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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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- knitty kitty replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18Virus, celiac disease or both?
@Shining My Light, While you're trying to decide on your next steps on your journey, I suggest you have a DNA test to look for Celiac genes. Your genes don't change, so you do not have to be eating gluten for it. If you have even one Celiac gene, it's more likely to be celiac disease, than NCGS. TTg antibodies do not occur in NCGS. There are... -
- lehum replied to lehum's topic in Gluten-Free Foods, Products, Shopping & Medications15nuts.com -- no longer Celiac safe?
Thanks for sharing this! You contacted them specifically about their certified gluten-free products, or which products specifically? So out of all the finished batches of nuts, they only test one?! That seems suboptimally safe... Maybe I will have to try Tierra Farms too... -
- trents replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18Virus, celiac disease or both?
Also, concerning your apprehension about family pushback, you might relate to this: -
- Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10Waiting on biopsy after positive bloodwork, but also not really believing this is real
MY BIOPSY WAS NEGATIVE!!! HOW?? Obviously I'm thrilled it was negative, but I'm so confused now. -
- trents replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18
Virus, celiac disease or both?
First, I hope you know that celiac disease is not an allergy to gluten. It is an autoimmune disease reaction that is triggered by gluten consumption. Allergies don't trigger immunes responses whereby the body attacks it's own tissues but this is what is actually happening with celiac disease and what distinguishes celiac disease from NCGS (Non Celiac Gluten...
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By knitty kitty · Posted
@Shining My Light, While you're trying to decide on your next steps on your journey, I suggest you have a DNA test to look for Celiac genes. Your genes don't change, so you do not have to be eating gluten for it. If you have even one Celiac gene, it's more likely to be celiac disease, than NCGS. TTg antibodies do not occur in NCGS. There are different amounts of gluten in different breeds of wheat. Wheat used for cookies and cakes and tortillas do not contain as much gluten as wheat used for bread and pizza crust. Look at the crumb in cakes and tortillas. There's only small bubbles. Gluten is in the matrix forming those bubbles. Compare those to the big bubbly holes in artisan bread and chewy pizza crust. To get those big holes, more stretchy elastic gluten is used. You are subconsciously avoiding those types of foods with large amounts of serious gluten in them. Consider including these types of high gluten foods in your gluten challenge before your antibody retest and endoscopy. Keep a food mood poo'd journal to record how symptoms change. Anxiety, headaches and joint pain are symptoms of Celiac that occur outside the digestive tract, these are extraintestinal symptoms of celiac disease. "Could I really possibly follow a gluten free life as close as I follow Jesus?" Yes, He's been my constant companion and guide on this journey which has brought us to the forum so we can help others on their journeys. References: Celiac Disease: Extraintestinal Manifestations and Associated Conditions https://pmc.ncbi.nlm.nih.gov/articles/PMC6895422/ Psychiatric and Neurological Manifestations of Celiac Disease in Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC9984242/#:~:text=celiac disease%2C a multiorgan disorder with,life [21%2C22]. -
Thanks for sharing this! You contacted them specifically about their certified gluten-free products, or which products specifically? So out of all the finished batches of nuts, they only test one?! That seems suboptimally safe... Maybe I will have to try Tierra Farms too...
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Also, concerning your apprehension about family pushback, you might relate to this:
-
MY BIOPSY WAS NEGATIVE!!! HOW?? Obviously I'm thrilled it was negative, but I'm so confused now.
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First, I hope you know that celiac disease is not an allergy to gluten. It is an autoimmune disease reaction that is triggered by gluten consumption. Allergies don't trigger immunes responses whereby the body attacks it's own tissues but this is what is actually happening with celiac disease and what distinguishes celiac disease from NCGS (Non Celiac Gluten Sensitivity). Second, though I think your question other question has already been answered. Since the tTG-IGA antibody test is only 90 to 98% specific, elevated values for this test will be have non-celiac disease causes in 2 to 8 out of 100 cases. I realize that is addressing your question in a general way but the non-celiac causes have also be covered in this thread, though not to the granularity of giving percentages to each non-celiac cause. Not sure why that is important to you at this point. First, you need to separate whether it is due to celiac disease or not. If not, then start sorting out what the other cause is. But as I stated above, by far the most likely cause is celiac disease so that is the place to start. Sure, we get it. Having to eliminate gluten from your life spells huge culinary and social changes and challenges. But it's still better than facing cancer or host of other diseases that less definitive antidotes and outcomes. With celiac disease you don't even have to worry about taking medications because, as of now at least, there are none. The treatment is very straightforward. Avoid gluten.
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