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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- plumbago replied to Treen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history
Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together... -
- Scott Adams replied to Jenny (AZ via TX)'s topic in Gluten-Free Foods, Products, Shopping & Medications5Does Dailymed.nlm.nih.gov site have filters for gluten?
PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the... -
- trents replied to Treen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history
A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.? -
- Scott Adams replied to Treen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16
Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history
You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance...- 1
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- Jmartes71 posted a topic in Doctors0Disregarded
Im beyond frustrated on so many levels. I have always checked labels , have to read everything. Allergic to everything foods and medications. My skin has sores, my body aches my eye is effected, im actively dealing with all these lovely issues, sibo positive, ibs, high blood pressure now dealing with depression because my new doctors after 25 years of many...
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Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
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By Scott Adams · Posted
PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/ -
A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
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By Scott Adams · Posted
You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance unaffordable, thus, everyone who is undiagnosed should understand such potential consequences before they go the official diagnostic route. As mentioned, once it's on your medical record, it won't go away. -
Im beyond frustrated on so many levels. I have always checked labels , have to read everything. Allergic to everything foods and medications. My skin has sores, my body aches my eye is effected, im actively dealing with all these lovely issues, sibo positive, ibs, high blood pressure now dealing with depression because my new doctors after 25 years of many test dancing around my disregarded celiac disease that I was half ass told im 1994 by endoscopy and colonoscopy stating to stay away from wheat and Ill be fine Im not.I had to reprove my disease with another endoscopy and colonoscopy. Had blood work with new gi and of course blood work shows fabulous, nothing wrong. Im not eating the foods im not supposed too.Im stressed and fired of fighting of my disregarded celiac.
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