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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,184 topics in this forum

  1. redheadheather
    lbsteenwyk
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  5. Guest Lucy
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    Kasey'sMom
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  8. roddi
    ms-sillyak-screwed
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  12. scaredparent
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  14. JacobsMom
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  15. scaredparent
    VydorScope
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  16. robbiesmom
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  17. Guest taweavmo3
    janicelm

    I've So Had It With Doctors!

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  18. Mjohnson73
    Jnkmnky
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  19. robbiesmom
    tpineo
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  20. VydorScope
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  21. 11111
    Nevadan
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  22. rachie
    lisabp
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  23. mamaof2boys
    e&j0304
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    lbsteenwyk
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  26. Guest taweavmo3
    annasmom

    Another Poop Question!

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  27. lauriel234
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  • Recent Activity

    1. - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Persistent isolated high DGP-IGG in child despite gluten-free diet

    2. - trents replied to JamieAnn's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Jersey Mike’s option: Gluten-free bread

    3. - JamieAnn posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Jersey Mike’s option: Gluten-free bread

    4. - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Persistent isolated high DGP-IGG in child despite gluten-free diet

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  • Posts

    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
    • trents
      Welcome to the celiac.com community, @JamieAnn!  Glad you had a good experience at your local Jersey Mike's.  In the town I live in all we have is Subway and they stopped offering gluten free buns. So, I can't eat there anymore. Oh, more recently there has come to our town a Firehouse sub shop and, according to the Internet, they offer gluten free buns but I haven't tried them yet. For super sensitive celiacs, cross-contamination in handling at these sub shops may also be a problem.
    • JamieAnn
      Today, in Uniontown, PA,  I ordered Jersey Mike’s Italian sub on gluten-free bread (paid extra for gluten-free) for my brother who hasn’t had a sub in yrs (neorological prob if consumes). He’s so happy! Their gluten-free bread is from a company that specializes in gluten-free products, some of which I’ve enjoyed before, so figured a sub would be good! Jersey Mike’s fast-food restaurant chain
    • cristiana
      Thank you @knitty kitty x
    • trents
      Most recent gluten challenge guidelines call for the consumption of at least 10g of gluten (about the amount in about 4-6 slices of wheat-based bread) for at least 2 weeks.  When celiacs have been on gluten free diets for long periods of time, they often find that when they consume a good amount of gluten, they react much more strongly than they did before going gluten free. They have lost all tolerance to the poison they had when consuming wheat products regularly. That is certainly the case with me. A couple of years ago I accidentally consumed a wheat biscuit my wife had made thinking it was a gluten free one and it made me violently ill. So, I mention that as I don't know if your son has started the gluten challenge yet.
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