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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Wheatwacked replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications2Fiber Supplement
Welcome @Trish G to the forum. Hard or lumpy stools and infrequent bowel movements. My brother likes Phillips Stool Softener, Ducolate Sodium. Just a question. Was the benefiber helping? -
- kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11ttg iga high (646 mg/dl) other results are normal
I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! -
- RMJ replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11ttg iga high (646 mg/dl) other results are normal
Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. -
- kpf posted a topic in Introduce Yourself / Share Stuff0
Vegetarians and vegans with celiac disease
I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? -
- trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications2Fiber Supplement
Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their...
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By Wheatwacked · Posted
Welcome @Trish G to the forum. Hard or lumpy stools and infrequent bowel movements. My brother likes Phillips Stool Softener, Ducolate Sodium. Just a question. Was the benefiber helping? -
I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this!
-
Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result.
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I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else?
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Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
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