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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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    • Lotte18
      I went back to consuming dairy after a year of healed villi.  What I didn't know is that along with developing celiac, my pancreas was no longer producing enough enzyme to consume lactose.  My GI said he often sees this with celiac patients.  Some people can go back to dairy with no problems at all and others will develop odd symptoms like ataxia--balance issues, etc.-- for no apparent reason.  It took me a year of suffering to get it all straightened out.  Hope this saves you some time!  
    • Russ H
      Do you know what the lab's standard range is for the IgA tTG2 result? The Endomysial IgA basically tests for the same antibodies as IgA tTG2 but it uses an older, less sensitive method and the result is positive/negative rather than quantitative. Hence, it is possible to show raised IgA tTG2 antibodies without getting a positive test for Endomysial IgA antibodies.
    • Heatherisle
      She’s eating mostly gluten as far as I know. Think her GP is trying to get her seen fairly quickly
    • RMJ
      Be sure to have her continue eating gluten before the biopsy. Reducing gluten now could lead to healing and false negative results.
    • knitty kitty
      Allegra is an antihistamine.  Histamine is released by the body as part of the autoimmune and immune responses, so an antihistamine would be helpful.  Following the low histamine version of the AIP diet is helpful as well because there's also histamine in foods.  Sometimes our body has trouble getting rid of the histamine it makes and the histamine from our food.  Sometimes the mast cells that make and release histamine get touchy and release histamine at the slightest provocation.  Thiamine helps mast cells not to release histamine so readily.  Look into Mast Cell Activation Syndrome.  SIBO, small intestinal bacterial overgrowth, can also cause high histamine levels.  Following the low histamine AIP diet will starve out the bad SIBO bacteria that feed on carbohydrates we eat.  We don't want to take antibiotics because they kill off both the good and bad bacteria.  We don't want to take probiotics yet because the SIBO bacteria will outnumber them.   The AIP diet will allow the good bacteria to flourish.   Some have Candida infections as well as SIBO.   Lowering histamine levels is important because high histamine levels for a long time can lead to worsening health problems like Crohn's and colitis and other health problems.
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