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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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    • DebJ14
      Our Functional Medicine doctor has always ordered the Spectracell Test for Micronutrient Deficiencies.  It tests the intracellular levels of the nutrients, not blood levels.  When high dose, targeted supplementation did not resolve the deficiencies after retesting at 6 months and then a year, he ordered genetic tests.  I have a genetic inability to process Vitamin D, B12 and antioxidants, so I am on high doses of those for life.  The rest of the initial deficiencies resolved within 6 months to a year and a good multi vitamin is sufficient to address those.  My husband has historically had high homocysteine levels and his low folate, B 12 and B6  levels are because of his MTHFR gene mutation.  Always good to get to the root cause!
    • trents
      Welcome to the forum, @Idnam! Ranitidine and Famotidine are not proton pump inhibitors. They are H2 blockers. It is true that histamine intolerance is common in the celiac population. We often don't produce enough of a histamine regulator called DAO (diamine oxidase). Not sure, but this may be due to damage to the gut lining by celiac inflammation. You might also want to research MCAS (Mast Cell Activation Syndrome) as it is often goes hand in glove with histamine intolerance and is actually the root cause. Or, at least that is my understanding. By the way, you can purchase DAO capsules but there is not clear evidence they work.
    • cristiana
      Very interesting, @Idnam.  When I was experiencing this problem at its worse, I found high carb meals like lots of rice or too many cookies were a trigger.
    • cristiana
      Really interesting, Kitty, thank you. 
    • nanny marley
      Thankyou I will definitely have a look your very  insightful and a lot is making sence 👍
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