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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,303 topics in this forum

  1. susanac70
    ShayFL

    Second Opinion?

    By susanac70, Last action:
    • 6 replies
    • 2.3k views
    • ShayFL
    • ShayFL
  2. GF-Canadian
    lizard00

    When To Seek A Second Opnion?

    By GF-Canadian, Last action:
    • 2 replies
    • 1k views
    • lizard00
    • lizard00
  3. imagine22
    spoticus

    3yr Old Negative Blood Test Results For Celiac But Severe Vitamin D Deficiency Found? Any Ideas

    By imagine22, Last action:
    • 6 replies
    • 2.2k views
    • spoticus
    • spoticus
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  4. yaelchai
    jerseyangel

    Questions Prior To Colonoscopy

    By yaelchai, Last action:
    • 2 replies
    • 1.3k views
    • jerseyangel
    • jerseyangel
  5. LisaInTexas
    nora-n

    Help With Interpreting Enterolab Results

    By LisaInTexas, Last action:
    • 5 replies
    • 1.7k views
    • nora-n
    • nora-n
  6. callctr2000

    Sore Legs And Buttocks...

    By callctr2000, Last action:
    • 6 replies
    • 21.6k views
    • callctr2000
    • callctr2000
  7. curiousgeorge

    Opinion On Biopsy After Positive Bloodwork

    By curiousgeorge, Last action:
    • 3 replies
    • 1.7k views
    • curiousgeorge
    • curiousgeorge
  8. kezee

    Wheat Intorence And Gluten Intolorence Are They The Same Thing?

    By kezee, Last action:
    • 4 replies
    • 3.2k views
    • kezee
    • kezee
  9. TracyB

    Cyberprof

    By TracyB, Last action:
    • 0 replies
    • 1k views
    • TracyB
    • TracyB
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  11. kezee
    Mother of Jibril

    Advice Please Help Thankyou

    By kezee, Last action:
    • 5 replies
    • 2.1k views
    • Mother of Jibril
    • Mother of Jibril
  12. Guest jasminum
    Guest

    Question About Gluten Intake Prior To Celiac Panel

    By Guest jasminum, Last action:
    • 2 replies
    • 1.2k views
    • Guest
    • Guest
  13. TK2006
    jerseyangel

    Diagnosing Gluten Intolerance

    By TK2006, Last action:
    • 1 reply
    • 1.6k views
    • jerseyangel
    • jerseyangel
  14. astid929

    Vomiting With Celiac

    By astid929, Last action:
    • 8 replies
    • 4.6k views
    • astid929
    • astid929
  15. TracyB

    When Blood Results Are Negative But Still Have Symptoms

    By TracyB, Last action:
    • 7 replies
    • 2k views
    • TracyB
    • TracyB
  16. DinaB
    TracyB

    Positive Enterolab Results

    By DinaB, Last action:
    • 7 replies
    • 2.1k views
    • TracyB
    • TracyB
  17. lil voice
    TracyB

    Test Options

    By lil voice, Last action:
    • 6 replies
    • 2.2k views
    • TracyB
    • TracyB
  18. Mother of Jibril

    Gene Test Results... Worth Waiting For!

    By Mother of Jibril, Last action:
    • 16 replies
    • 9.5k views
    • Mother of Jibril
    • Mother of Jibril
  19. wahmmy
    ShayFL

    Enterolab Gene Test Questions

    By wahmmy, Last action:
    • 1 reply
    • 1.1k views
    • ShayFL
    • ShayFL
  20. artselegance
    Mother of Jibril

    Enterolab Results

    By artselegance, Last action:
    • 6 replies
    • 2.2k views
    • Mother of Jibril
    • Mother of Jibril
  21. GF-Canadian

    Please Help!

    By GF-Canadian, Last action:
    • 4 replies
    • 1.6k views
    • GF-Canadian
    • GF-Canadian
  22. djmom
    CMCM

    Child Of Parent W/ Celiac Disease

    By djmom, Last action:
    • 3 replies
    • 3.2k views
    • CMCM
    • CMCM
  23. SGWhiskers
    jerseyangel

    Frogleggs Needs Our Guidance

    By SGWhiskers, Last action:
    • 4 replies
    • 1.6k views
    • jerseyangel
    • jerseyangel
  24. angelaw
    jerseyangel

    Entero Labs Test Results - Are They Easy To Understand?

    By angelaw, Last action:
    • 6 replies
    • 2.1k views
    • jerseyangel
    • jerseyangel
  25. syren4444
    Amyleigh0007

    New Here, About To Test, Question Regarding Prior Gluten Avoidance?

    By syren4444, Last action:
    • 3 replies
    • 1.6k views
    • Amyleigh0007
    • Amyleigh0007
  26. Linzee
    mamaw

    Not Sure If I Have Celiacs

    By Linzee, Last action:
    • 1 reply
    • 1.2k views
    • mamaw
    • mamaw

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  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      29

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I will only add that one should never do 50k IU daily of vitamin D without being advised to do so by your doctor, and only if they are closely monitoring your vitamin D levels over the time you are doing this.
    2. dixonpete
      0

      Inoculation day!

    3. trents
      - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      29

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      It needs to be said that 50k IU daily is certainly safe for correcting vitamin D deficiency when used for a limited amount of time, for a few months maybe, as was the case in the two studies linked by knitty kitty. But it would not likely be a safe dosage when used for an indefinite period of time.
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      29

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      It's much easier to correct low Vitamin D if you take high doses. It's safe and health improvement is much faster. This is how I corrected my severely low Vitamin D level. I had no ill effects correcting my deficiency this way. High-Dose Vitamin D Supplementation Can Correct Hypovitaminosis D Prior to Total Knee Arthroplasty https://pubmed.ncbi...
    5. Kathleen Mostek
      - Kathleen Mostek replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      29

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I have had low Vit D for years before my Celiac diagnosis. I recommend Nature Made, it’s everywhere. GET THE TABLET, not the oil based capsule. The soy oil in the capsules give me diarrhea!
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  • Posts

    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I will only add that one should never do 50k IU daily of vitamin D without being advised to do so by your doctor, and only if they are closely monitoring your vitamin D levels over the time you are doing this.
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      It needs to be said that 50k IU daily is certainly safe for correcting vitamin D deficiency when used for a limited amount of time, for a few months maybe, as was the case in the two studies linked by knitty kitty. But it would not likely be a safe dosage when used for an indefinite period of time.
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      It's much easier to correct low Vitamin D if you take high doses.  It's safe and health improvement is much faster.  This is how I corrected my severely low Vitamin D level.  I had no ill effects correcting my deficiency this way. High-Dose Vitamin D Supplementation Can Correct Hypovitaminosis D Prior to Total Knee Arthroplasty https://pubmed.ncbi.nlm.nih.gov/34737019/ Therapeutic high-dose vitamin D for vitamin D-deficient severe COVID-19 disease: randomized, double-blind, placebo-controlled study (SHADE-S) https://pubmed.ncbi.nlm.nih.gov/38291897/
    • Kathleen Mostek
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Kathleen Mostek · Posted

      I have had low Vit D for years before my Celiac diagnosis. I recommend Nature Made, it’s everywhere. GET THE TABLET, not the oil based capsule. The soy oil in the capsules give me diarrhea!
    • catnapt
      dairy? gluten in chocolates?? calcium?

      By catnapt · Posted

      ack!! seriously???  just googled all the different things I ate Milky Way: Contains barley malt and is not gluten-free. Krackel: Contains barley malt.   good grief 
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