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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,295 topics in this forum

  1. TracyB

    Cyberprof

    By TracyB, Last action:
    • 0 replies
    • 1k views
    • TracyB
    • TracyB
  2. kezee
    Mother of Jibril

    Advice Please Help Thankyou

    By kezee, Last action:
    • 5 replies
    • 2k views
    • Mother of Jibril
    • Mother of Jibril
  3. Guest jasminum
    Guest

    Question About Gluten Intake Prior To Celiac Panel

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    • 1.2k views
    • Guest
    • Guest
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  4. TK2006
    jerseyangel

    Diagnosing Gluten Intolerance

    By TK2006, Last action:
    • 1 reply
    • 1.6k views
    • jerseyangel
    • jerseyangel
  5. astid929

    Vomiting With Celiac

    By astid929, Last action:
    • 8 replies
    • 4.6k views
    • astid929
    • astid929
  6. TracyB

    When Blood Results Are Negative But Still Have Symptoms

    By TracyB, Last action:
    • 7 replies
    • 1.9k views
    • TracyB
    • TracyB
  7. DinaB
    TracyB

    Positive Enterolab Results

    By DinaB, Last action:
    • 7 replies
    • 2.1k views
    • TracyB
    • TracyB
  8. lil voice
    TracyB

    Test Options

    By lil voice, Last action:
    • 6 replies
    • 2.1k views
    • TracyB
    • TracyB
  9. Mother of Jibril

    Gene Test Results... Worth Waiting For!

    By Mother of Jibril, Last action:
    • 16 replies
    • 9.5k views
    • Mother of Jibril
    • Mother of Jibril
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  11. wahmmy
    ShayFL

    Enterolab Gene Test Questions

    By wahmmy, Last action:
    • 1 reply
    • 1.1k views
    • ShayFL
    • ShayFL
  12. artselegance
    Mother of Jibril

    Enterolab Results

    By artselegance, Last action:
    • 6 replies
    • 2.2k views
    • Mother of Jibril
    • Mother of Jibril
  13. GF-Canadian

    Please Help!

    By GF-Canadian, Last action:
    • 4 replies
    • 1.6k views
    • GF-Canadian
    • GF-Canadian
  14. djmom
    CMCM

    Child Of Parent W/ Celiac Disease

    By djmom, Last action:
    • 3 replies
    • 3.2k views
    • CMCM
    • CMCM
  15. SGWhiskers
    jerseyangel

    Frogleggs Needs Our Guidance

    By SGWhiskers, Last action:
    • 4 replies
    • 1.6k views
    • jerseyangel
    • jerseyangel
  16. angelaw
    jerseyangel

    Entero Labs Test Results - Are They Easy To Understand?

    By angelaw, Last action:
    • 6 replies
    • 2.1k views
    • jerseyangel
    • jerseyangel
  17. syren4444
    Amyleigh0007

    New Here, About To Test, Question Regarding Prior Gluten Avoidance?

    By syren4444, Last action:
    • 3 replies
    • 1.5k views
    • Amyleigh0007
    • Amyleigh0007
  18. Linzee
    mamaw

    Not Sure If I Have Celiacs

    By Linzee, Last action:
    • 1 reply
    • 1.2k views
    • mamaw
    • mamaw
  19. ThinkingMom
    frec

    Another Person With Digestive Difficulties

    By ThinkingMom, Last action:
    • 1 reply
    • 947 views
    • frec
    • frec
  20. dizzygrinch
    MaryJones2

    Syptoms Noticed Right At The End Of A Meal?

    By dizzygrinch, Last action:
    • 3 replies
    • 1.6k views
    • MaryJones2
    • MaryJones2
  21. confused
    nora-n

    20 Months Later

    By confused, Last action:
    • 1 reply
    • 1.2k views
    • nora-n
    • nora-n
  22. coltoot

    Please Explain Blood Test Results

    By coltoot, Last action:
    • 2 replies
    • 2.2k views
    • coltoot
    • coltoot
  23. xzandra

    Symptoms And Approaching It....

    By xzandra, Last action:
    • 11 replies
    • 2.7k views
    • xzandra
    • xzandra
  24. djmom
    darcijj

    Abnormal Uterine Bleeding

    By djmom, Last action:
    • 9 replies
    • 17k views
    • darcijj
    • darcijj
  25. kjay

    Prometheus Celiac Plus -blood Test

    By kjay, Last action:
    • 0 replies
    • 3k views
    • kjay
    • kjay
  26. imnotdyingnow
    happygirl

    Celiac Disease Panel Results

    By imnotdyingnow, Last action:
    • 5 replies
    • 9.1k views
    • happygirl
    • happygirl

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  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein...
    2. trents
      - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    3. Seabeemee
      - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Thanks for your reply Trents…most appreciated. I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population? Also, I found what you said about N...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    5. JoJo0611
      - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks.
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  • Posts

    • xxnonamexx
      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Yeast extract

      By JoJo0611 · Posted

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
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