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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,283 topics in this forum

  1. Marie1976
    1888

    Do I Need The Endoscopy?

    By Marie1976, Last action:
    • 13 replies
    • 7k views
    • 1888
    • 1888
  2. Basslover
    Rweber

    Swollen and burning bum

    By Basslover, Last action:
    • 2 replies
    • 4k views
    • Rweber
    • Rweber
  3. Hayley-1982
    cyclinglady

    If not celiac, gluten intolerant perhaps? Help 😭

    By Hayley-1982, Last action:
    • 1 reply
    • 827 views
    • cyclinglady
    • cyclinglady
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  4. Christy71
    squirmingitch

    Pre diagnosis and no answers yet...

    By Christy71, Last action:
    • 4 replies
    • 2.6k views
    • squirmingitch
    • squirmingitch
  5. Jefferson Adams

    Celiac.com Article: Twelve Common Questions About Celiac Disease

    By Jefferson Adams, Last action:
    • 0 replies
    • 1.2k views
    • Jefferson Adams
    • Jefferson Adams
  6. rowanie
    chocolatesunrise

    Understanding ANA results

    By rowanie, Last action:
    • 1 reply
    • 1.8k views
    • chocolatesunrise
    • chocolatesunrise
  7. marynrandy
    cyclinglady

    Where should I get tested for celiac disease?

    By marynrandy, Last action:
    • 2 replies
    • 1.2k views
    • cyclinglady
    • cyclinglady
  8. Matt C
    GFinDC

    Asymptomatic

    By Matt C, Last action:
    • 9 replies
    • 4.5k views
    • GFinDC
    • GFinDC
  9. GlutenFreeRegerts

    Was Going gluten-free a Mistake? Request for Advice and Cautionary Tale

    By GlutenFreeRegerts, Last action:
    • 17 replies
    • 5.2k views
    • GlutenFreeRegerts
    • GlutenFreeRegerts
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  11. Chase80
    Keight

    Chronic abdominal pain... Celiac?

    By Chase80, Last action:
    • 6 replies
    • 3.6k views
    • Keight
    • Keight
  12. Keight

    Endo report

    By Keight, Last action:
    • 2 replies
    • 1.4k views
    • Keight
    • Keight
  13. Z4CH
    Awol cast iron stomach

    Question? Neuro Symptoms (Twitching + peripheral neuropathy)

    By Z4CH, Last action:
    • 2 replies
    • 1.8k views
    • Awol cast iron stomach
    • Awol cast iron stomach
  14. pinkpandapants
    MaryinAz

    Negative Ttg Iga Test

    By pinkpandapants, Last action:
    • 5 replies
    • 10.7k views
    • MaryinAz
    • MaryinAz
  15. Tracey E
    Scott Adams

    symptoms of Celiac?

    By Tracey E, Last action:
    • 3 replies
    • 2.3k views
    • Scott Adams
    • Scott Adams
  16. LBell-Aus

    Analysing blood test results

    By LBell-Aus, Last action:
    • 3 replies
    • 2.1k views
    • LBell-Aus
    • LBell-Aus
  17. Solafide3
    squirmingitch

    Scared

    By Solafide3, Last action:
    • 13 replies
    • 5.1k views
    • squirmingitch
    • squirmingitch
  18. Jefferson Adams

    Celiac.com Article: Can a New Drug Eliminate a Gluten-Free Diet for Celiac Disease Patients?

    By Jefferson Adams, Last action:
    • 0 replies
    • 1.5k views
    • Jefferson Adams
    • Jefferson Adams
  19. chocolatesunrise
    Keight

    Can Celiac cause weight gain??

    By chocolatesunrise, Last action:
    • 9 replies
    • 4.8k views
    • Keight
    • Keight
  20. Katie S
    GFinDC

    Three Fold - My kids, myself and starting gluten-free

    By Katie S, Last action:
    • 5 replies
    • 2.2k views
    • GFinDC
    • GFinDC
  21. jenniferlee415
    RMJ

    Need help analyzing my results!

    By jenniferlee415, Last action:
    • 3 replies
    • 1.9k views
    • RMJ
    • RMJ
  22. MelB1975
    cyclinglady

    IgA Symptoms and Heredity - ADVOCATE

    By MelB1975, Last action:
    • 3 replies
    • 1.2k views
    • cyclinglady
    • cyclinglady
  23. En0u1209
    Keight

    Blood test results - levels of ttg iga

    By En0u1209, Last action:
    • 8 replies
    • 4.4k views
    • Keight
    • Keight
  24. JennM91606
    GFinDC

    Appt W GI Specialist

    By JennM91606, Last action:
    • 1 reply
    • 1.2k views
    • GFinDC
    • GFinDC
  25. cyclinglady
    Beverage

    Testing First-Degree Relatives

    By cyclinglady, Last action:
    • 6 replies
    • 2.4k views
    • Beverage
    • Beverage
  26. Vriskahs8
    cyclinglady

    Possible Celiac?

    By Vriskahs8, Last action:
    • 14 replies
    • 3.4k views
    • cyclinglady
    • cyclinglady

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  • Recent Activity

    1. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    2. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
    3. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    4. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    5. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
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  • Posts

    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      Am I nuts?

      By trents · Posted

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
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