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Recent Activity
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- Flash1970 replied to Lizie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Can someone help explain my labs?
I never had bad stomach issues before I was diagnosed. What I did have was anemia and hashimoto's thyroid disease. The celiac was suspected because I had to keep taking higher and higher doses of synthroid just to try to get out of hypothyroidism and also the unresolved anemia. Once I had the blood tests, celiac was confirmed. -
- Mari replied to knitty kitty's topic in Coping with Celiac Disease3Is Thiamine Deficiency the Beginning of Celiac Disease?
It is rather amazing to me that I was able to follow, in a general way, your reasoning in this scientific thesis. It is very good work on your part taking different research papers and tying the information together if not for a cure for celiac disease, the ability to decrease the symptoms of celiac disease and other autoimmune conditions. Now if you can... -
- Mari replied to Kelly Kimball's topic in Coping with Celiac Disease3
Retirement/assisted living facility and cross contamination in the kitchen
Hi Kelly, We have had at keast 2 discussions abour people with Celiacs moving into assisted living. . No easy solutens to the problems Celiacs face when they cannot eat the food served so they need to prepare their own meals or order gluten-free meals. You seem to be coping quite well. It is not clear to me whether you are suffering because you miss... -
- Flash1970 commented on Scott Adams's article in Diabetes and Celiac Disease1
Why Some People Develop Celiac Disease Instead of Type One Diabetes?
Very interesting article. My father had type one diabetes. I was always worried I would develop diabetes. I must have had the group that gave me celiac disease. I knew both were autoimmune diseases, but not how closely they were linked.- autoimmune disease
- autoimmune diseases
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- Rory Bokser posted a topic in Food Intolerance & Leaky Gut0Tracking food triggers with elimination diets — tried Tract app?
Hi everyone, I've been struggling with identifying food triggers beyond gluten — things like dairy, soy, corn, and various FODMAPs. Elimination diets are incredibly helpful but the tracking part is a real pain. I recently came across an app called Tract (tract.health) that's specifically designed for gut health tracking with IBD, ...
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Posts
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I never had bad stomach issues before I was diagnosed. What I did have was anemia and hashimoto's thyroid disease. The celiac was suspected because I had to keep taking higher and higher doses of synthroid just to try to get out of hypothyroidism and also the unresolved anemia. Once I had the blood tests, celiac was confirmed.
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It is rather amazing to me that I was able to follow, in a general way, your reasoning in this scientific thesis. It is very good work on your part taking different research papers and tying the information together if not for a cure for celiac disease, the ability to decrease the symptoms of celiac disease and other autoimmune conditions. Now if you can get this into the scientific conversation about autoimmune problems. I hope so. On a more practical level please give me the name of the thiamine that you recommend. I forgot to copy it the last time you shared it. Thanks
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Hi Kelly, We have had at keast 2 discussions abour people with Celiacs moving into assisted living. . No easy solutens to the problems Celiacs face when they cannot eat the food served so they need to prepare their own meals or order gluten-free meals. You seem to be coping quite well. It is not clear to me whether you are suffering because you miss the companionship of shared meals or are a little outraged by the unfairness of your situation/ It is unfair but if you managed to force the facility to provide a gluten-free kitchen they would go bankrupt. Just too expensive. Many of the residents would become outraged at not eating the gluten foods they love to eat. .I think you have adapted very wellIf this place does provide some foods that are gluten-free but cross contaminated you may be able to use an antigluten enzyme that you could take with meals. The one advertised here, GliadinX works well for me. Bring your own bread and pastries from your freezer. I sympathize. You could still follow through with the suggestions Scott and Trents made.
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By Rory Bokser · Posted
Hi everyone, I've been struggling with identifying food triggers beyond gluten — things like dairy, soy, corn, and various FODMAPs. Elimination diets are incredibly helpful but the tracking part is a real pain. I recently came across an app called Tract (tract.health) that's specifically designed for gut health tracking with IBD, IBS, celiac, and elimination diets. It lets you log meals, symptoms, bowel movements, and stress all in one place, and uses AI to help identify patterns between what you eat and how you feel. For those of us dealing with multiple food intolerances on top of celiac, something like this could be really useful — especially when you're doing a low-FODMAP or specific carbohydrate diet and need to see correlations over weeks of data. Has anyone here tried it or something similar? Would love to hear what tools others are using to track food intolerances beyond just gluten. -
By HectorConvector · Posted
I take B12 and Vitamin D (1000 I.U) as well. I can't take 500mg twice a day, only once due to cost reasons. I'm getting more than the minimum rda of Niacin in my diet but not supplementing it.
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