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Super Sensitive People
Non-scientific discussions for those who react to lower levels of gluten than most.
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Recent Activity
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- MommaBear82 replied to bdot78's topic in Coping with Celiac Disease23Celiac Caused By Mold?
Just wanted to say that mold can absolutely cause the genes for Celiac to be turned on. I know from experience, unfortunately.... -
- knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders18Headaches / Migraines and Hypoglycaemia
You're very welcome, @Sarah Grace, You do need a B Complex, but the TTFD is not the same at all. B Complex usually contains Thiamine Hydrochloride (good) or Thiamine Mononitrate (bad) and the other seven essential B vitamins. Don't get vitamins containing Thiamine Mononitrate. This is used because it has a long shelf-life (it won't break down... -
- Sarah Grace replied to Sarah Grace's topic in Related Issues & Disorders18Headaches / Migraines and Hypoglycaemia
Hello Knitty Kitty, many thanks for your very detailed response. I'm planning to try your recommendation of L-threonate and TTFD, along with the Triptophan. However, my normal supplement supplier does not have TTFD and they suggest using B Complex instead. Is this a satisfactory substitute, in your opinion? Thanks again!- 1
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- knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders18
Headaches / Migraines and Hypoglycaemia
@glucel, I encourage you to reconsider Benfotiamine. Talk to your doctor! There's many articles that have found a link between thiamine and heart problems. Here are some articles worth further discussion with your doctor: Pyruvate dehydrogenase activity and quantity decreases after coronary artery bypass grafting: a prospective observational... -
- glucel replied to Sarah Grace's topic in Related Issues & Disorders18Headaches / Migraines and Hypoglycaemia
Sorry I was not clear. I never took benfotiamine due to the alleged side effects. I never had irregular heart beat before bypass surgery or at least it was never detected.
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By MommaBear82 · Posted
Just wanted to say that mold can absolutely cause the genes for Celiac to be turned on. I know from experience, unfortunately.... -
By knitty kitty · Posted
You're very welcome, @Sarah Grace, You do need a B Complex, but the TTFD is not the same at all. B Complex usually contains Thiamine Hydrochloride (good) or Thiamine Mononitrate (bad) and the other seven essential B vitamins. Don't get vitamins containing Thiamine Mononitrate. This is used because it has a long shelf-life (it won't break down and become inactive sitting on a store shelf). But that same non-reactivity occurs in the body, so Thiamine Mononitrate is not absorbed well and is difficult to utilize since it's so non-reactive. Only thirty percent of Thiamine Mononitrate is absorbed. TTFD is a form of thiamine that was first found in garlic. It has a fatty tail attached which allows it to enter cells very easily. Benfotiamine has a fatty tail and gets easy access, too. Thiamine Hydrochloride needs passive diffusion to enter cells (high concentrations outside of cells moving to areas of low concentration inside cells). TTFD can cross the blood brain barrier by itself. Benfotiamine and Thiamine HCl need carrier molecules to pass through. They'll still get through, just takes longer. Because TTFD gets into the brain so easily, smaller amounts are needed to see results. Thiamine Hydrochloride 500 - 2000 mg/day Benfotiamine 300 - 1800 mg/day TTFD 50 - 500 mg/day Everyone is different, so you have to find what's right for you. I take some of each every day. Ask your supplier about Lipothiamine, also TTFD with added lipoic acid (brain likes this). Thiamax is another TTFD brand name to look for. I hope you can find a source! P.S. for pain, I take B12 Cobalamine , B 6 Pyridoxine, and Thiamine (Alinamin TTFD) All together these three vitamins have an analgesic effect. Takeda Alinamin EX Plus is the brand name of one tablet with all three in that I really like and rely on. -
By Sarah Grace · Posted
Hello Knitty Kitty, many thanks for your very detailed response. I'm planning to try your recommendation of L-threonate and TTFD, along with the Triptophan. However, my normal supplement supplier does not have TTFD and they suggest using B Complex instead. Is this a satisfactory substitute, in your opinion? Thanks again! -
By knitty kitty · Posted
@glucel, I encourage you to reconsider Benfotiamine. Talk to your doctor! There's many articles that have found a link between thiamine and heart problems. Here are some articles worth further discussion with your doctor: Pyruvate dehydrogenase activity and quantity decreases after coronary artery bypass grafting: a prospective observational study (This article found thiamine deficiency can occur after heart bypass surgery, so it's not surprising you developed bradycardia after your surgery. Bradycardia is a symptom of thiamine deficiency.) https://pmc.ncbi.nlm.nih.gov/articles/PMC4472607/ Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://pmc.ncbi.nlm.nih.gov/articles/PMC10502219/ Association of thiamine administration and prognosis in critically ill patients with heart failure https://pmc.ncbi.nlm.nih.gov/articles/PMC10076601/ Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ -
Sorry I was not clear. I never took benfotiamine due to the alleged side effects. I never had irregular heart beat before bypass surgery or at least it was never detected.
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