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I'm Too Hot Or Too Cold, Chills, Never In Between Today!


learning2cope

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learning2cope Apprentice

Ok, I've not been yet diagnosed with anything relating to celiac but I have my doc appt on Friday and will request the specific blood tests to be done. Today I can't seem to get to a normal feeling temperature. I have my legs covered up and my feet are sweating (too hot!!) but if I put my fan on I'm way too cold! I get chills and goose bumps all over if I have my fan on. I can't get comfortable and I don't know why. I did check my temperature and it's perfectly normal today (which is odd since for over a year I've had eleveated temperature in the evenings/nighttime). I'm bloated feeling and always a little gassy. I just ate ice cream about a half hour or so ago and as I type this I'm starting to get nauseated and it feels now like I'm getting more bloated which is causing the nausea. I had a sandwich about an hour or so ago (wheat bread). This is happening more and more day by day I've noticed. I tend to always eat wheat with any meal, and have for many years.

 

I have what I truly believe is DH instead of palmoplantar pustular psoriasis. (mostly same symptoms but poss caused by celiac). I've already posted a lot of my health problems in other threads I've recently started but I need to know if this temperature things is normal?! I cannot sleep without a fan directly on my head and body, otherwise I wake up soaked in sweat, even a nap during the day. Been like that for about 2 years. But today the temperature thing is out of control. My arms are cold with goose bumps but my main upper body and head feels too warm like I want the fan on. My legs are chilly and frozen yet they are too warm and my feet are sweating. Yuck! I don't know if this is somehow a new manifestation of gluten intolerance.. I tried searching this forum for "hot and cold" but the search was fruitless. I feel like I'm going to go insane! If I cover up my arms, i immediately get too hot yet my arms still feel cold. Is this considered a "neurological" symptom?


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GFinDC Veteran

HI,

 

try searching for "night sweats". there are some threads about them.  Maybe something in one of them will help.

GottaSki Mentor

For years pre-diagnosis -- the only way I could describe the crazy temperature fluctuations I felt was that I had a broken thermostat -- I'm tired now -- but will re-read your post and try to give a more detailed answer in the morning.

jhol Enthusiast

the only way i know ive eaten "the wrong thing" is because i go absolutely freezing cold, get the chills, thankfully since ive gone gluten free i dont get the bloating any more. i hate getting wrapped up though because then im too hot!! it happened last night when i had some popcorn - think it was the soya!!!

 

it could be a gluten symptom or could be a thyroid problem -although they do tend to go hand in hand, id mention this to your doctor when you go and get them to check it out.

cavernio Enthusiast

I don't know why this is, but I definitely experienced similar things to what you are, just not to such an extreme. Being gluten free I've experienced far fewer of these episodes. Notably, dairy seems a likely culprit for these reactions in me too.

 

What you have sounds worse than how I was though. I would described it as feeling like I was getting the flu, mildly icky all over, and getting randomly hot and cold, but of course the thermometer always showed my body temp was fine even though I felt like it wasn't.

 

Since I felt like it was flu-like in nature, and since finding out I have celiac disease, I've assumed it was a more or less regular bodily reaction to the bombardment of antibodies being produced. It's how your immune system reacts to illnesses that usually makes you feel sick, not the illness itself, (at least until an illness starts to cause serious damage.)

 

In any case, you say you eat wheat with every meal, but that's normal. And you're getting it from more sources than you probably think. For instance, your ice cream probably has wheat in it or enough traces of wheat to make you sick too, ignoring the dairy.

learning2cope Apprentice

I ended up falling asleep and when I woke up about 2 hours later all that crazy temperature fluctuations were gone. So, I'm not sure what happened. I was so relieved when I woke up and realized it was gone. i wonder if it was from lack of sleep from the previous 2 days. I really didn't get much quality sleep during those days, had insomnia pretty bad. If I did fall asleep, I woke up very often during the time i was sleeping. But I had never experienced that kind of reaction to lack of sleep before. Thank you all for your replies. :)

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
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    • JoJo0611
      Thank you this really helped. 
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