Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Still Healing Or Is It Cc

niese

Recommended Posts

niese Explorer
niese
Posted
  • Author

That friend I mentioned above also had C.difficile and after taking all the antibiotics, then the MC raged and she was a mess. My intestinal tract was inflamed from mouth to rectum and I believe the probiotics helped reduce the inflammation and get the bowels regulated. I had bowel issues for my entire life. Not any more.

Again, just a suggestion.

 

Maybe this will shed more light?

 

 

Open Original Shared Link

thank you I learned alot from that, running out to get some probiotics  :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

thank you I learned alot from that, running out to get some probiotics  :)

check them for gluten-free, DF status....and multi-strains! 

niese Explorer
niese
Posted
  • Author

check them for gluten-free, DF status....and multi-strains! 

confused what is DF status and multi strains mean?

IrishHeart Veteran
IrishHeart
Posted

DF means dairy free (you may see that a lot on this site ) 

 

You want a probiotic that has multi-strains of "good guy" bacteria because there are many that live in our gut and we want to replenish them.

They all have different jobs. For example, Lactobacillus GG is good for diarrhea.

 

Like this one-- Culturelle:

 

Open Original Shared Link

 

 

 

or this one Jarro -Dophilis AF which has several strains

Open Original Shared Link

 

 

 

or this  one adult Multi strain

 

Open Original Shared Link

 

I have used all these and they are all good, IMHO

niese Explorer
niese
Posted
  • Author

DF means dairy free (you may see that a lot on this site ) 

 

You want a probiotic that has multi-strains of "good guy" bacteria because there are many that live in our gut and we want to replenish them.

They all have different jobs. For example, Lactobacillus GG is good for diarrhea.

 

Like this one-- Culturelle:

 

Open Original Shared Link

 

 

 

or this one Jarro -Dophilis AF which has several strains

Open Original Shared Link

 

 

 

or this  one adult Multi strain

 

Open Original Shared Link

 

I have used all these and they are all good, IMHO

duhh on the DF I just couldn't figure that one out.  Culturelle is the one I had my eye on, only one our Walmart has and it just right on package gluten free so I was happy.

Gemini Experienced
Gemini
Posted

No seperate toaster yet but then again I haven't had bread in over 2 months, refuse to pay those high prices and I haven't had the energy to bake but when I do yes I will be getting one.  My thought is to get a toaster oven however I just know it will be used for gluten food but I figured its easier to clean it out before I use it, any thoughts on that

On, no, no, no, no!!!!!!!!!!  Make sure everyone knows that it is your toaster, can only accommodate gluten-free food and if they violate your gluten-free space, they will suffer pain of death.  :ph34r:

 

OK..that does sound a bit dramatic, doesn't it?  You really need to explain to them that they just cannot use your toaster because you will get sick.  Put a little sign near to it so they won't forget...maybe with a cute little skull and cross bones.  :P   I use a toaster oven myself and like them very much.  I have a gluten-free household to it's easier for me.

niese Explorer
niese
Posted
  • Author

On, no, no, no, no!!!!!!!!!!  Make sure everyone knows that it is your toaster, can only accommodate gluten-free food and if they violate your gluten-free space, they will suffer pain of death.  :ph34r:

 

OK..that does sound a bit dramatic, doesn't it?  You really need to explain to them that they just cannot use your toaster because you will get sick.  Put a little sign near to it so they won't forget...maybe with a cute little skull and cross bones.  :P   I use a toaster ooven myself and like them very much.  I have a gluten-free household to it's easier for me.

LOL your funny.  I was checking out the Toasta bags is that safe to use, my mother in law won't hear of me having my own toaster, honestly I would worry that while I'm not looking she would use it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

LOL your funny.  I was checking out the Toasta bags is that safe to use, my mother in law won't hear of me having my own toaster, honestly I would worry that while I'm not looking she would use it.

 

This is for the rest of your life. You need your own toaster. They cost 7 bucks at walmart's.

Toast it bags cost a lot more.

Your MIL better get used to you needing some things that are YOURS--safe and totally dedicated, hon. And she better not

do anything to put your life in danger. You cannot afford to keep glutening yourself through cc and living in the bathroom all day long.

You may need to set some rules down. ;)

niese Explorer
niese
Posted
  • Author

This is for the rest of your life. You need your own toaster. They cost 7 bucks at walmart's.

Toast it bags cost a lot more.

Your MIL better get used to you needing some things that are YOURS--safe and totally dedicated, hon. And she better not

do anything to put your life in danger. You cannot afford to keep glutening yourself through cc and living in the bathroom all day long.

You may need to set some rules down. ;)

I hear that

frieze Community Regular
frieze
Posted

I hear that

Do you live with her, or does she live with you?  Not trying to split hairs here.  If you live with her, she is the alpha female, the other way around you are and need to make that point.  if it is the first, take your toaster into your bedroom and leave it there when not in use, or even toast  your bread there and bring it out the kitchen/dining room.  Should you have to go to these lengths, hell no.  But mother-in-law sounds like it may be nec.  good luck

IrishHeart Veteran
IrishHeart
Posted

I hear that

 

I know it may be difficult considering you live together, but honestly, she will have to take your diagnosis seriously or risk having you ill

indefinitely. Your husband surely must realize this?

 

This can be done without causing a fight. You just need a little space for your things. You know best how to handle it, but many people on here co-exist with WEs (wheat eaters) without any trouble at all 

and if you need some assistance with that, they will come to your aid.  :)

Gemini Experienced
Gemini
Posted

LOL your funny.  I was checking out the Toasta bags is that safe to use, my mother in law won't hear of me having my own toaster, honestly I would worry that while I'm not looking she would use it.

The toaster bags are great for traveling...I use them for that but this is everyday life and Irish's advice is spot on.  Your husband needs to have a talk with his mother and defend your needs.  It can be done nicely but it needs to be done.  There are only a few times when you have to take a step over that line that is being drawn in the sand but this is one of them.

Don't let this worry you.  Just make sure she understands, however the two of you have to go about it.

 

Make her an offer she can't refuse...... ;)   :)

niese Explorer
niese
Posted
  • Author

Do you live with her, or does she live with you?  Not trying to split hairs here.  If you live with her, she is the alpha female, the other way around you are and need to make that point.  if it is the first, take your toaster into your bedroom and leave it there when not in use, or even toast  your bread there and bring it out the kitchen/dining room.  Should you have to go to these lengths, hell no.  But mother-in-law sounds like it may be nec.  good luck

We live with my in-laws.  She has health issues and it was just easier to move in to help her, however since I got sick 11 wks ago I haven't been much of a help to her.  She thinks Celiac is all in my head and I am crazy for listening to the doc,  This morning she said there is something else wrong with you its been 11 wks you should be fine your gluten-free diet is not working just eat normal food you will be fine.  I replied with this is my body and since following gluten-free diet I have seen improvement in my health and I will NOT eat anything that is going to make me sick, if anyone has a problem with that too bad. Last night she was cutting an orange she lays a slice of the orange down in front of me on the counter says here have a slice, I said thanks but I will pass since you just laid that in all that gluten crumbs from your bread.  She freaked she said now your going crazy on me a little crumb or two isn't going to kill you, your going to end up being a mental person if you keep freaking out over a few crumbs on your food.  She just doesn't understand CC and won't listen when I try to educate her.  Grrrrrrr so frustrating. 

niese Explorer
niese
Posted
  • Author

The toaster bags are great for traveling...I use them for that but this is everyday life and Irish's advice is spot on.  Your husband needs to have a talk with his mother and defend your needs.  It can be done nicely but it needs to be done.  There are only a few times when you have to take a step over that line that is being drawn in the sand but this is one of them.

Don't let this worry you.  Just make sure she understands, however the two of you have to go about it.

 

Make her an offer she can't refuse...... ;)   :)

we both have tried to talk to her over and over.  The main problem is she thinks all doctors are stupid and don't know what they are talking about.  When I first told her I had Celiac she looked it up online and read some article that said gluten-free diet doesn't show much improvement for ADHD and said see this gluten-free diet won't work for you. Tried to point out they are referring to ADHD I don't have that plus the article was dated 2006 and so much has changed since then.  She's the type that knows everything about nothing.  Don't get me wrong I do love my mother-in-law we get along wonderful, but sometimes she gets something in her head and you can't get her to understand nor accept the facts.  I guess she feels this is her home and if I were to change anything she lost control of her castle, but I just have to find away to work this all out.  

frieze Community Regular
frieze
Posted

We live with my in-laws.  She has health issues and it was just easier to move in to help her, however since I got sick 11 wks ago I haven't been much of a help to her.  She thinks Celiac is all in my head and I am crazy for listening to the doc,  This morning she said there is something else wrong with you its been 11 wks you should be fine your gluten-free diet is not working just eat normal food you will be fine.  I replied with this is my body and since following gluten-free diet I have seen improvement in my health and I will NOT eat anything that is going to make me sick, if anyone has a problem with that too bad. Last night she was cutting an orange she lays a slice of the orange down in front of me on the counter says here have a slice, I said thanks but I will pass since you just laid that in all that gluten crumbs from your bread.  She freaked she said now your going crazy on me a little crumb or two isn't going to kill you, your going to end up being a mental person if you keep freaking out over a few crumbs on your food.  She just doesn't understand CC and won't listen when I try to educate her.  Grrrrrrr so frustrating. 

ah! yes, some of her behavior is probably motivated by denial of her own health issues, and the having to give up some of her independence.  If this is going to be a long term living arrangement, I would suggest investing in a separate, basic kitchen, for yourself.  I wouldn't trust her not to sabotage you.

IrishHeart Veteran
IrishHeart
Posted

ah! yes, some of her behavior is probably motivated by denial of her own health issues, and the having to give up some of her independence.  If this is going to be a long term living arrangement, I would suggest investing in a separate, basic kitchen, for yourself.  I would trust her not to sabotage you.

 

 

This! I totally agree.

frieze Community Regular
frieze
Posted

This! I totally agree.

sometimes ya gotta work with what you're given, banging your head agin the wall, ain't gonna change 'er.  Y'all will gest end up with a soar hade!

1

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,923
    • Most Online (within 30 mins)
      7,748
    cmckurtz
    Newest Member
    cmckurtz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Newly diagnosed mam to coeliac 11 year old

      By cristiana · Posted

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.