Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Allergy Too

hayley3

By hayley3
in Coping with Celiac Disease

Recommended Posts

hayley3 Contributor
hayley3
Posted

My doctor suspects I have celiac, although my blood test came back negative for celiac, the allergist now wants to do what is called aCeliac Plus test. 

 

Now however, the allergy testing showed I am allergic to rice. I was wondering if that was common thing with celiacs.  I know some celiacs never seem to feel well even after going gluten free, so that could be the reason, other allergies. 

 

Thanks,

Cheryl

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Celiac disease is not an allergy. It is an autoimmune disease that damages the villi of the small intestine as well as causing a host of GI and non-gastro symptoms. Allergies are separate part of the immune system based on Immunoglobulin E (IgE) I think. Celiac tests use IgA and IgG.

 

Pages 11-12 of this report discusses celiac testing: Open Original Shared Link

 

Did you docor discuss Non-celiac Gluten sensitivy (NCGS) with you? Those with NCGS have all the same symptoms as celoacs but no villi damage. The AGA IgA and AGA IgG is thought by some to show gliadin sensitivities in non-celiacs but it is not a very reliable test. The best test for NCGS remains a positive response to the gluten-free diet.

 

Many celiacs do have other food sensitivities (like corn, dairy, or rice) or happen to have food allergies (like wheat, dairy, or strawberries).  Other food allergies or sensitivities could definitely make you feel poorly. I hope you feel better rice free.

hayley3 Contributor
hayley3
Posted
  • Author

Thanks Nicole...I bought bags of rice flour, rice krisipies, rice spring roll wrappers only to find out now Im allergic to rice of all things, so for someone who can't eat wheat, it's a bit shocking.

1desperateladysaved Proficient
1desperateladysaved
Posted

I make baked goods with ground nuts.  Almonds are a particular favorite.  My family even likes them.  I try to vary what I use daily, though.

 

My physicians assure me that not many have a problem with rice.  We don't know for sure that I do, but when I quit eating it, I had a similar withdrawal as with gluten.  I am planning to try rice.

 

One thought is that it is possible your rice is processed with wheat and that causes a problem for you.  It is possible I have that problem.  Only time and discernment can tell for sure.

 

D

ravenwoodglass Mentor
ravenwoodglass
Posted

Did you come up allergic to a lot of other things also? I ask because before diagnosis I showed reactions to 98 of the 99 things for which I was tested. Within a few months gluten free all but 3 of those allergies were gone. My allergist said that because of the celiac my immune system was in 'hyperdrive' which caused me to react to so many things. Once the gluten issue was under control those other reactions abated. Hopefully that will be the case for you also. Once you have fully healed try adding rice back in a couple of times a day and watch for a reaction. Keeping a food and symptoms log can help as intolerance reactions can be delayed by up to a week.

hayley3 Contributor
hayley3
Posted
  • Author

Thanks D!  I read also that tomato allergy is rare but I have it lol  I made some things with nuts and dates and was still having issues...So not sure what was going on there. 

hayley3 Contributor
hayley3
Posted
  • Author

@ raven...I am allergic to rice, tomatoes, milk, carrots, fish (tuna, salmon, bass and catfish) and crab.

 

I'm not dx'd yet with a gluten problem.  He said I most likely had celiac although I was tested before and it came back negative, but he says the test is not accurate.  I can't eat much now, so I knew I had leaky gut of some sort.  I can't eat oats, bananas, etc..etc...and I follow a migraine list to try to stop the migraines and then I have the IBS list where I can't eat a lot of stuff there.  So I'm down to being able to eat lettuce and meat.  I have osteoporosis, hyperthyroid, migraines, liver problems, dry eyes, discoid lupus, IBS, sacroiliac arthritis...So with all that going on, it seems reasonable that I have celiac but after years of testing , I don't think I will ever get a dx of anything.  Lost the job and the whole mess because of being sick.  But it's good to know that diseases resolve when you stop eating gluten.  I did cut back on eating wheat just because of the Gerd.

 

But I assume even if I just had allergies, giving up what I'm allergic to will allow my stomach to heal.  I'm hopeful.

 

I haven't been to this forum in years...long ago I thought I had celiac.  :-) 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

@ raven...I am allergic to rice, tomatoes, milk, carrots, fish (tuna, salmon, bass and catfish) and crab.

 

 

I haven't been to this forum in years...long ago I thought I had celiac.  :-) 

Glad you came back. It sounds like you are in pretty rough shape right now. Do give the diet a strict try after your doctor does the test.  It sounds like that is what your doctor is planning to have you do so it sounds like he is a good doc. There are some of us who do test a false negative especially with some of the older tests. If they haven't recently done them you could have them do the newer DGP IGA and DGP IGG tests.

Meanwhile try to concentrate on what you can eat. You still have potatoes, peas, beans, chicken, beef, pork, nuts and much more from which you can choose.

 I think it likely you won't need the 'IBS' diet after you start the gluten free one. And hopefully you will also see your migraines resolve. I was lucky and haven't had one since a short time after I went gluten free. It can take a bit of time to heal but chances are you are going to feel much better in a couple months.

1desperateladysaved Proficient
1desperateladysaved
Posted

Thanks D!  I read also that tomato allergy is rare but I have it lol  I made some things with nuts and dates and was still having issues...So not sure what was going on there. 

I have been using mango sauce for homemade pizza.  I use eggs instead of cheese also.  I hadn't had pizza in years, it's great.

 

I wash and scrub all nuts before eating.  I think it is going okay.

 

D

hayley3 Contributor
hayley3
Posted
  • Author

@ raven....thanks so much!  I would do anything to stop the migraines.  And this doctor ordered 6 celiac tests...I never knew there was so many. 

I just always thought I was in that category of diseases that hadn't been discovered yet.  :-)   But I know there are alot of people who are sick and give up gluten and feel better and never get a diagnosis...Very sad that is.
 

hayley3 Contributor
hayley3
Posted
  • Author

@D

And I was also reading about using red pepper paste as a base for pizza, never thought of mango sauce.  You like it?  I read about nomato sauce but it's made with carrots.

 

I bought my teenage daughter a pizza yesterday, she was so happy , poor thing...but she has issues already.  Low vitamin D, very thin, hair loss, joint pain, stomach cramping, but she also tested negative a few years back.  So I let her eat what she wants, although now I have started her on almond milk.  :-)

 

 


ravenwoodglass Mentor
ravenwoodglass
Posted

 

@D

And I was also reading about using red pepper paste as a base for pizza, never thought of mango sauce.  You like it?  I read about nomato sauce but it's made with carrots.

 

I bought my teenage daughter a pizza yesterday, she was so happy , poor thing...but she has issues already.  Low vitamin D, very thin, hair loss, joint pain, stomach cramping, but she also tested negative a few years back.  So I let her eat what she wants, although now I have started her on almond milk.  :-)

 

 

 

Do keep in mind that with celiac just because someone showed up negative in past tests doesn't mean they will in a test done today. Doctors advise that in families with a celiac history children be screened every 3 years or so from what I understand. It wouldn't hurt to have her retested with her symptoms. A dietary trial after testing might benefit you both.

Pegleg84 Collaborator
Pegleg84
Posted

Did you ever have a biopsy done?

Blood test are more likely to be false negatives than false positives. Mine all came back negative, but so did my sister's and her biopsy came back positive (I'm self-diagnosed. Couldn't wait for a biopsy).

If you haven't, you should have one done. You need to be eating gluten for at least the test to be accurate, but even if you're not willing to go back to eating gluten (if you're not now), you should get one done anyway. There could still be damage.

 

Other than that, go completely gluten-free. See what happens. You could have other intolerances/allergies, or your allergies could start clearing up. You might have trouble with rice because your guts are healing. I have a rough time with brown rice, but white is fine.

 

In any case, talk to your doctor about it, and if everything comes back negative, go gluten free anyway. Do what makes you get better

 

Cheers

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,073
    • Most Online (within 30 mins)
      7,748
    ImVenus
    Newest Member
    ImVenus
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.