Can't Figure Out Source Of Symptoms

[sfc83]

I am 11 months gluten free after being diagnosed last August, and after feeling a lot better over the last few months, I am beginning to have symptoms again. I have a completely gluten free kitchen (shared only with my wife), and have 100% avoided eating at restaurants since a cross contamination episode in March. I eat the following foods on a daily basis, and never stray from my diet:

 

Breakfast:

 

- Banana

- Kiwi

- Hard boiled eggs (without yolk)

- So Delicious Dairy Free Coconut Greek Yogurt

- Coconut Oil

 

Lunch

- Three turkey  and avocado sandwiches on Canyon Bakehouse 7 Grain Bread. The turkey brand is Applegate Organics (marked gluten free)

- Raspberries

- Blueberries

- Glutino Strawberry Breakfast Bar

- Orange

 

Dinner

- Chicken breast or Tilapia

- Eden Organic Millet

- Carrots

- Zucchini

- Coconut Oil

 

I also take the following supplements:

 

- Designs for Health L-Glutamine (3/4 teaspoon twice per day)

- Enzymedica Digest Spectrum (before meals)

- Source Naturals Vitamin D Supplement (marked gluten free)

 

Does anyone see anything on this list that warrants a closer look? I do eat about 50 grams of fiber per day, which may be excessive. It is mostly soluble fiber, however, as I have IBS as well.  I have started to look into household products as well, and my wife has replaced most of her makeup with gluten free brands. My symptoms are mostly digestive, with lower abdominal soreness and some anxiety/disruptive sleep. Any insight would be appreciated.

[GottaSki]

Good Morning-

 

Your diet is very healthful and I can understand the frustration as I had many setbacks eating very healthy foods.  The thing that stands out to me is there are quite a few high histamine foods.  Banana, eggs, berries, avocado, processed turkey (applegate is a fantastic brand, but may not be safe if histamine is an issue).

 

The main enzyme used to regulate histamine in our bodies is created in the small intestine -- celiac disease can disrupt this production.

 

Here is a good overview of Histamine Intolerance:

 

Open Original Shared Link

 

You obviously know exactly what you are eating...but if you aren't already...also track symptoms and sleep patterns.   Finding exactly the correct foods for you until you are completely healed can be tough.

 

Hang in there

[dilettantesteph]

Hi.  I experienced ongoing glutening symptoms despite a gluten free diet at first as well, despite an initial significant improvement.  Then my GI doctor told me that some celiacs are more sensitive to trace contamination than others and can even have problems with foods labelled as gluten free.  Since then there has been a study published of this fraction of celiacs which you can read here: Open Original Shared Link

 

Do your symptoms feel like the glutening symptoms you had before you were diagnosed, or do they feel like something new?  There are a whole lot other options for causes of symptoms other than gluten, like histamines as pointed out above.  Others include other food intolerances, Lyme disease, cancer, other immune conditions, bacterial overgrowth, yeast overgrowth, and more that I considered before I finally found out about trace gluten issues.  If you think that trace gluten could be a problem for you, you could try the gluten contamination elimination diet as described in the article.  Alternately, you could try eliminating and re adding the more suspicious elements of your diet until you find which one or ones is bothering you.  That can help for food intolerances as well as gluten contamination.  I usually try to give it a week as it can take that long to heal and to build up noticeable symptoms, in my experience.

 

As a super sensitive celiac, as I look at the list of foods that you eat, I see several that would probably give or have given me symptoms.

[sfc83]

Thank you for your reply. I recently read the study below, and I have weighed trying the gluten contamination elimination diet. If this episode continues, it may be the direction I take. I consider myself to be a fairly sensitive Celiac as well, and I am curious, which foods on my list would you consider to be suspicious or have previously given you symptoms?

 

  On 7/15/2013 at 4:45 PM, dilettantesteph said:

Hi.  I experienced ongoing glutening symptoms despite a gluten free diet at first as well, despite an initial significant improvement.  Then my GI doctor told me that some celiacs are more sensitive to trace contamination than others and can even have problems with foods labelled as gluten free.  Since then there has been a study published of this fraction of celiacs which you can read here: Open Original Shared Link

 

Do your symptoms feel like the glutening symptoms you had before you were diagnosed, or do they feel like something new?  There are a whole lot other options for causes of symptoms other than gluten, like histamines as pointed out above.  Others include other food intolerances, Lyme disease, cancer, other immune conditions, bacterial overgrowth, yeast overgrowth, and more that I considered before I finally found out about trace gluten issues.  If you think that trace gluten could be a problem for you, you could try the gluten contamination elimination diet as described in the article.  Alternately, you could try eliminating and re adding the more suspicious elements of your diet until you find which one or ones is bothering you.  That can help for food intolerances as well as gluten contamination.  I usually try to give it a week as it can take that long to heal and to build up noticeable symptoms, in my experience.

 

As a super sensitive celiac, as I look at the list of foods that you eat, I see several that would probably give or have given me symptoms.

[sfc83]

Thank you for your reply. I had never considered histamine intolerance, but based on the list provided, I definitely have a high histamine diet. I am currently consulting with a dietitian, so I will ask her about it. Do you know if there are digestive enzymes that may be taken to improve the tolerance of histamines?

 

 

Good Morning-

 

Your diet is very healthful and I can understand the frustration as I had many setbacks eating very healthy foods.  The thing that stands out to me is there are quite a few high histamine foods.  Banana, eggs, berries, avocado, processed turkey (applegate is a fantastic brand, but may not be safe if histamine is an issue).

 

The main enzyme used to regulate histamine in our bodies is created in the small intestine -- celiac disease can disrupt this production.

 

Here is a good overview of Histamine Intolerance:

 

Open Original Shared Link

 

You obviously know exactly what you are eating...but if you aren't already...also track symptoms and sleep patterns.   Finding exactly the correct foods for you until you are completely healed can be tough.

 

Hang in there

[GottaSki]

  On 7/15/2013 at 6:49 PM, sfc83 said:

 

Thank you for your reply. I had never considered histamine intolerance, but based on the list provided, I definitely have a high histamine diet. I am currently consulting with a dietitian, so I will ask her about it. Do you know if there are digestive enzymes that may be taken to improve the tolerance of histamines?

 

 

 

Good Morning-

 

Your diet is very healthful and I can understand the frustration as I had many setbacks eating very healthy foods.  The thing that stands out to me is there are quite a few high histamine foods.  Banana, eggs, berries, avocado, processed turkey (applegate is a fantastic brand, but may not be safe if histamine is an issue).

 

The main enzyme used to regulate histamine in our bodies is created in the small intestine -- celiac disease can disrupt this production.

 

Here is a good overview of Histamine Intolerance:

 

Open Original Shared Link

 

You obviously know exactly what you are eating...but if you aren't already...also track symptoms and sleep patterns.   Finding exactly the correct foods for you until you are completely healed can be tough.

 

Hang in there

 

 

There are a few DAO supplements out there -- they did not help me. 

 

High Histamine foods are not like gluten...it may be you can tolerate some or small quantities...but too many or certain foods within the group can cause issues.

 

I don't know if histamine is the cause of your symptoms...but you could test by removing histamine foods for a week or so to see if you improve.

[dilettantesteph]

  On 7/15/2013 at 4:01 PM, sfc83 said:

I am 11 months gluten free after being diagnosed last August, and after feeling a lot better over the last few months, I am beginning to have symptoms again. I have a completely gluten free kitchen (shared only with my wife), and have 100% avoided eating at restaurants since a cross contamination episode in March. I eat the following foods on a daily basis, and never stray from my diet:

 

Breakfast:

 

- Banana

- Kiwi

- Hard boiled eggs (without yolk)

- So Delicious Dairy Free Coconut Greek Yogurt

- Coconut Oil

 

Lunch

- Three turkey  and avocado sandwiches on Canyon Bakehouse 7 Grain Bread. The turkey brand is Applegate Organics (marked gluten free)

- Raspberries

- Blueberries

- Glutino Strawberry Breakfast Bar

- Orange

 

Dinner

- Chicken breast or Tilapia

- Eden Organic Millet

- Carrots

- Zucchini

- Coconut Oil

 

I also take the following supplements:

 

- Designs for Health L-Glutamine (3/4 teaspoon twice per day)

- Enzymedica Digest Spectrum (before meals)

- Source Naturals Vitamin D Supplement (marked gluten free)

 

Does anyone see anything on this list that warrants a closer look? I do eat about 50 grams of fiber per day, which may be excessive. It is mostly soluble fiber, however, as I have IBS as well.  I have started to look into household products as well, and my wife has replaced most of her makeup with gluten free brands. My symptoms are mostly digestive, with lower abdominal soreness and some anxiety/disruptive sleep. Any insight would be appreciated.

 

You asked me which ones I reacted to, and it's a long list.  I have a terrible time with so delicious, coconut oil, Glutino produces, and many supplements.  My daughter reacted to Applegate hot dogs so I didn't even try them as she is a lot less sensitive than I am.  Eden organic millet I did better with when I washed it well.  If I were to pick the most likely candidate from your list that I would eliminate first, it would be the gluten-free bread, followed by the so delicious yogurt.  I do need to follow this up with the fact that I am extremely sensitive and the vast majority of celiacs don't have problems with these products.  Good luck to you and I hope you get to the bottom of it and let us know.

[sfc83]

Thank you for your reply. I appreciate your insight and hope to get to the bottom of it as well.

  On 7/16/2013 at 5:26 PM, dilettantesteph said:

You asked me which ones I reacted to, and it's a long list.  I have a terrible time with so delicious, coconut oil, Glutino produces, and many supplements.  My daughter reacted to Applegate hot dogs so I didn't even try them as she is a lot less sensitive than I am.  Eden organic millet I did better with when I washed it well.  If I were to pick the most likely candidate from your list that I would eliminate first, it would be the gluten-free bread, followed by the so delicious yogurt.  I do need to follow this up with the fact that I am extremely sensitive and the vast majority of celiacs don't have problems with these products.  Good luck to you and I hope you get to the bottom of it and let us know.