Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive Ana Blood Test

Lisa79

By Lisa79
in Related Issues & Disorders

Recommended Posts

Lisa79 Enthusiast
Lisa79
Posted

Hi

Its been a while since I was on the board.

 

I had terrible pains in the hands/wrists and knuckles for 6 days, went to the GP who ran some bloods, was tested for RA and it was negative, although It showed positive ANA nucleolar pattern (Titre 1:1280) I have to see a rheumatologist.  I am terrified, the report says positive results are associated with Lupus.  

 

Has anyone else had anything similar ?

 

Thanks

Lisa

  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

Hi Lisa,

      The ANA test is not specific to any one disease.  It is just a very general test for inflammation. I have had elevated ANA for years and it was worse than yours.  I also have elevated Rheumatoid Factor but I have no symptoms of anything new, besides the 4 autoimmune diseases that I already have.  I have been gluten-free for 8 1/2 years and all 4 AI diseases have calmed down and do not bother me that much at all.  I do not have lupus.  I still have elevated test results but that can occur in people with AI diseases so it doesn't necessarily mean that you are popping with another.  However, you do have symptoms that are new so it's worth checking out.  Joint issues can be from many things so please don't be all worried that you have lupus.  There isn't any specific test for lupus, it's more of a combination of testing, symptoms, etc.  I would just go to the Rheumy and see what they suggest....probably more specific blood work. 

 

Good luck and try to relax.......even though I know that is hard at such times. :)

SkyBlue4 Apprentice
SkyBlue4
Posted

I have a +ANA titer. I have been evaluated by several Rheumatologists over the years b/c I also have joint pain along with some other symptoms. They thought I had lupus initially but it has been ruled out thus far. The doctors can only shrug and tell me that people walk around all of the time with an elevated titer and never develop further problems. It is a good idea if you have symptoms to see a Rheumatologist though and make sure it is nothing more concerning. 

Lisa79 Enthusiast
Lisa79
Posted
  • Author

Thank you for replies, I am an anxious mess, I suffer anxiety most of the time and this fear is just emphasised with my anxiety. 

 

I am lucky I have got into see a rheumatologist Monday. 

 

My test results also shows a possibility of Ross River Virus, but it was inconclusive and a restest is required in 14 days.  I also had a virus the week before, so I am trying to think positive and maybe something else caused them to be positive although the levels were so high it has me worried, if it was lower I would think it could have been false reading but 1:1280 is very high.

 

Thank you I really appreciate the replies :)

nvsmom Community Regular
nvsmom
Posted

I too have had positive ANA's but in the last few years it has been negative again. A positive ANA often means there is an autoimmune problem but it's not always Lupus... or even usually. I thought I had lupus too because I had arthritis for years but after being gluten-free for a good while, I am essentially arthritis free - it was the celiac causing my pain.

 

A nucleolar pattern is a bit of an unusual onethough, I'm glad you are getting it checked -  just to be safe. Sclerodema and a coupl of other issues can be associated with that pattern. Open Original Shared Link

 

Good luck!

Lisa79 Enthusiast
Lisa79
Posted
  • Author

I too have had positive ANA's but in the last few years it has been negative again. A positive ANA often means there is an autoimmune problem but it's not always Lupus... or even usually. I thought I had lupus too because I had arthritis for years but after being gluten-free for a good while, I am essentially arthritis free - it was the celiac causing my pain.

 

A nucleolar pattern is a bit of an unusual onethough, I'm glad you are getting it checked -  just to be safe. Sclerodema and a coupl of other issues can be associated with that pattern. Open Original Shared Link

 

Good luck!

 

Thanks, its so scary waiting, I guess once you get some more results you can just learn how to live with it, its the waiting game that is the hardest.

Lisa79 Enthusiast
Lisa79
Posted
  • Author

Saw the specialist yesterday, he has ran some more bloods and urine and was reassuring it that it could be nothing.

 

Feeling a little less anxious but still worried.

 

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

(((HUGS)))

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,921
    • Most Online (within 30 mins)
      7,748
    Rusty49
    Newest Member
    Rusty49
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Newly diagnosed mam to coeliac 11 year old

      By cristiana · Posted

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.