Reaction To Buckwheat?

[sandsurfgirl]

Yesterday and today I've  had horrible brain fog, like back in the old days when I was going through gluten withdrawal when I was first diagnosed. I have that achy flu like feeling when glutened and I am starving!! 

 

I started the eating for your blood type plan at the recommendation from my doctor, but it's really just changing  a few of my normal foods. It's not a drastic difference in what I'm eating.

 

I have always avoided buckwheat but I thought I would give a new buckwheat cereal a try that I saw at Sprouts. I ate it two days in a row. I'm wondering if buckwheat could be the culprit.

 

I've been freaking out a bit trying to find out what happened because I haven't eaten anything where I would be glutened and I have no G.I. symptoms like I would normally get. It's like a very weird glutening.

[nvsmom]

It is entirely possible that you are having a reaction to buckwheat. Celiacs commonly react to other gluten-free foods (like buckwheat).... Unfortunately.   I guess all you can do is avoid the buckwheat for a time and maybe try it again in a few months.

 

Good luck. I hope you feel better soon.

[sandsurfgirl]

Did you move my post? I couldn't find it in coping with so I reposted because I had a glitch when I originally posted the topic. Then I found it here. 

[WinterSong]

There could also have been some CC with the buckwheat, rather than the buckwheat itself. 

[IrishHeart]

Depends on the buckwheat. How was it processed?

I eat Pocono's buckwheat without issues.

 

P.S. just curious, but is a  blood type diet the one where you should supposedly only

eat foods that match your blood type?

[1desperateladysaved]

I am not saying it is celiac.  Buckwheat is a fruit and unrelated to wheat.  However, I do react to it.  I use to eat it heavily when other "grains" were cut out.  I had a similar withdrawal as I did to gluten.  I would hold off on the buckwheat for now and try it later if you can brave it.

 

D

[dilettantesteph]

The last time I bought buckwheat with "wheat and gluten free" on the box was within this last year.  I bought whole groats and found what looked like wheat grains in three of the 4 boxes.  I phoned them and was told I would be called back and wasn't.  Then I wrote them using snail mail and included the questionable grains and didn't hear back from that either.  I was polite.  Based on this experience, I think that it is more likely to be contamination than a problem with buckwheat itself.

[JoyMurphy]

i have heard of celiacs reacting to buckwheat.  I've been fine in the past using it.  Someone had mentioned a gluten-free bakery that they can't go to anymore b/c they are so sensitive and the baker started using buckwheat and they were reacting to it.

[sandsurfgirl]

I'm just going to avoid buckwheat. It doesn't taste all that great anyways and it's not worth it. I had brain fog really bad. It's one of the worst reactions I've had in years. I don't get glutened often. I even had the achy flu symptoms and everything. It was bad. 

[sandsurfgirl]

Depends on the buckwheat. How was it processed?

I eat Pocono's buckwheat without issues.

 

P.S. just curious, but is a  blood type diet the one where you should supposedly only

eat foods that match your blood type?

 

Yes the blood type diet has lists of foods that are beneficial and foods to avoid for your blood type. My doctor recommended it and I figured it was worth a try. I've been totally gluten free for 4 years and eat a clean diet, live in a gluten-free household, yet still have lingering health problems. My vitamin absorption still isn't great. I can't get my D and iron into good levels at all. The doc who created the blood type diet has an even more extensive program called the Genotype diet and now I'm doing that. I have noticed a huge difference in a short time from doing it.

 

It may not be for everyone. I'm not here to defend it or recommend it. I mentioned it because I had made some dietary changes which could have been a factor. If you read reviews of the diet, the results people have had are phenomenal. There are some other celiacs I've met on forums for it who weren't getting completely well and did amazing after doing the blood type or genotype diets. The negative reviews are usually from people who disagree theoretically with the scientific premise, not from people who actually tried it, interestingly enough. A friend of mine I met on this board recommended it to me about a year ago but I wasn't ready to make anymore dietary changes at that time. 

 

I think buckwheat and I will part ways for now. Maybe we will try to be friends again the future. LOL

[tepi]

I too had a bad reaction to buckwheat.

I am a bit on the fence because I also ate some chia

pudding. But, in the past I was ok with chia, so I think it is the buckwheat (which I had been staying

away from.)

With other gluten poisoning, I do not usually have stomach pain. But with buckwheat, I get a lot of pain in my

intestines along with the other usual horrible flu like symptoms. 

 

No more buckwheat for me. My doctor had already suggested I not eat it as I am sensitive to oats as well.

So it goes. More scrutiny about buckwheat in Gluten free bread for me.

 

Regarding the chia. Does anyone out there have 

good/bad news about Chia?

 

thank you so.

tep

[cyclinglady]

4 hours ago, tepi said:

I too had a bad reaction to buckwheat.

I am a bit on the fence because I also ate some chia

pudding. But, in the past I was ok with chia, so I think it is the buckwheat (which I had been staying

away from.)

With other gluten poisoning, I do not usually have stomach pain. But with buckwheat, I get a lot of pain in my

intestines along with the other usual horrible flu like symptoms. 

 

No more buckwheat for me. My doctor had already suggested I not eat it as I am sensitive to oats as well.

So it goes. More scrutiny about buckwheat in Gluten free bread for me.

 

Regarding the chia. Does anyone out there have 

good/bad news about Chia?

 

thank you so.

tep

Hi Tep.  

Chia seeds are naturally gluten free as is buckwheat.  It is probably best to buy certified gluten free  versions that have not been cross contaminated.  But some people are just plain intolerant to those foods.  I personally just avoid grains.  I save them for treats and do not used them on a daily basis.  This helps control, my blood sugar too.