Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee - Good Or Bad?


Ys255

Recommended Posts

Ys255 Rookie

Personally, I've always had digestive issues when I consume coffee - every time. I know coffee acts as a stimulant which makes you need to go, but is it still considered a no go for gluten free diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Good!   Open Original Shared Link

 

 

 

Seriously, There is no reason not to have coffee on a gluten free diet.  It has never been on the forbidden foods list as it does not contain gluten.

 

Now coffee does bother some people, Celiac or not.  The acid in it can be hard on the stomach or the caffeine bothers people.  If that is the case, don't drink it.

WinterSong Community Regular

I have heard about some CC issues with coffee, so that might be something to double check :)

GottaSki Mentor

Plain coffee is good.

Flavored coffees and creamers need to be checked for safe ingredients - every time.

As Karen mentioned there are other reasons folks cant drink plain coffee, gluten is not one of them.

Gemini Experienced

Unless you order your coffee at a donut shop, there really are no cc issues with coffee.

 

GottaSki.....screamers?  :P

Adalaide Mentor

If coffee was a problem from a gluten standpoint half the people here would be dead by now. Not an issue. Also Bailey's (I think?) makes a killer red velvet creamer. I use it for hot chocolate but I'll bet it's amazing in coffee. 

Ys255 Rookie

Nice, well that's good to hear! Just thought I'd check.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



answerseeker Enthusiast

If I couldn't have coffee......I have no words

Coffee=good. Very very good

And tea too!

Really there is a lot more we CAN eat than not

NoGlutenCooties Contributor

I find coffee to be very acidic and I cannot drink it on an empty stomach.  Some people need that first cup of joe to get moving in the morning, but I've found that I need to have food in my stomach first.  Otherwise it tends to make me a little nausious.  For what it's worth... orange juice does the same thing to me.  Too acidic and high in sugar - I can't stomach orange juice even with food, unless I really, really dilute it (and at that point, what's the point?).

 

Coffee also freaks out my bladder - but my bladder is retarded for other reasons.

Minstinguette Rookie

My mom is gluten intolerant just like me and she cannot have coffee. She's intolerant to it. She has been gluten free for a while and every time she tries to add coffee back, she gets sick. So I think it's possible that you might be intolerant to it. I hope not!

WinterSong Community Regular

I read that the protein in coffee is similar in structure to the protein of gluten. Sometimes the body gets tricked and thus you get sick. 

 

Open Original Shared Link

Gemini Experienced

I read that the protein in coffee is similar in structure to the protein of gluten. Sometimes the body gets tricked and thus you get sick. 

 

Open Original Shared Link

That whole idea of coffee cross reacting is junk science.......it has no validity at all.  Coffee can be an irritant for all the reasons stated above.  It has nothing to do with gluten.  :)

kareng Grand Master

I read that the protein in coffee is similar in structure to the protein of gluten. Sometimes the body gets tricked and thus you get sick. 

 

Open Original Shared Link

 

I wonder how these internet pseudo-doctors came up with this nonsense? 

 

What’s with all the talk about certain types of food causing “cross-reactivity?”

There is not yet reliable data about cross-reactivity. As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, orange juice, etc.) would trigger symptoms in celiac individuals due to hidden antigens mimicking gluten or cross-reacting with anti-gluten antibodies, it must be clearly stated that this is all false information, devoid of any scientific basis, and must be rejected as untrue

Open Original Shared Link

WinterSong Community Regular

I wonder how these internet pseudo-doctors came up with this nonsense? 

 

What’s with all the talk about certain types of food causing “cross-reactivity?”

There is not yet reliable data about cross-reactivity. As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, orange juice, etc.) would trigger symptoms in celiac individuals due to hidden antigens mimicking gluten or cross-reacting with anti-gluten antibodies, it must be clearly stated that this is all false information, devoid of any scientific basis, and must be rejected as untrue

Open Original Shared Link

 

My mistake. I had heard about cross-reactive foods a few times, so I thought I'd post something. Thanks for clearing that up! :)

bartfull Rising Star

I wonder how these internet pseudo-doctors came up with this nonsense? 

 

What’s with all the talk about certain types of food causing “cross-reactivity?”

There is not yet reliable data about cross-reactivity. As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, orange juice, etc.) would trigger symptoms in celiac individuals due to hidden antigens mimicking gluten or cross-reacting with anti-gluten antibodies, it must be clearly stated that this is all false information, devoid of any scientific basis, and must be rejected as untrue

Open Original Shared Link

Maybe there should be a sticky, or at least something on the newbie thread about this. It seems that lately a LOT of people are reading about this on those quack sites. If we nip it in the bud, it'll save a lot of new folks from giving up foods they don't need to.

WinterSong Community Regular

Maybe there should be a sticky, or at least something on the newbie thread about this. It seems that lately a LOT of people are reading about this on those quack sites. If we nip it in the bud, it'll save a lot of new folks from giving up foods they don't need to.

Agreed it would be good to add to the newbie thread, but I had heard about this through the grapevine and I am not a newbie. I think it's important to keep each other updated on supposedly "new research" and what is true/false, not just automatically stick it in a section that only newbies would read  ;)

 

Thank you again for the correct information. 

answerseeker Enthusiast

I suggested a "celiac myth sticky" a while back but the consensus was that people will argue with the facts anyway because of what's on the Internet

kareng Grand Master

Maybe there should be a sticky, or at least something on the newbie thread about this. It seems that lately a LOT of people are reading about this on those quack sites. If we nip it in the bud, it'll save a lot of new folks from giving up foods they don't need to.

We do have links on that thread to reputable sites. Unfortunately, we can't force people to read them. Nor can we keep up with all the odd theories, cures, and other myths that might pop up. We try, but it's really up to each person to use some common sense, recognize scams and attention seekers and seek out reliable info.

If people don't believe us and the Univ of Chicago, it won't hurt them not to drink coffee. The Internet sites I think are worse are the " cures" and the companies that take hundreds of dollars for bogus testing.

NoGlutenCooties Contributor

I agree that the idea of coffee being mistaken by your body as being the same as wheat protein sounds like voodoo BS.

 

However, isn't this the same thing as what happens with oats?  I was lead to believe that the protein in oats is not actually the same as that in wheat, rye, and barley - but many celiacs cannot tolerate oats because the protein is similar-enough that the body reacts to it as if it were the same protein.  Same with rice, only a reaction to rice is much more rare.

No??

kareng Grand Master

I agree that the idea of coffee being mistaken by your body as being the same as wheat protein sounds like voodoo BS.

 

However, isn't this the same thing as what happens with oats?  I was lead to believe that the protein in oats is not actually the same as that in wheat, rye, and barley - but many celiacs cannot tolerate oats because the protein is similar-enough that the body reacts to it as if it were the same protein.  Same with rice, only a reaction to rice is much more rare.

No??

 

 

Oats -

 

Open Original Shared Link

 

Rice probably comes from the same "cross-reactive" nonsense.  Coffee, unless you eat the bean, has almost no protein in it.  This just makes this whole idea even sillier.  I imagine someone thinking - "What food would cause the biggest uproar and get me the most attention?"  :ph34r:

 

Open Original Shared Link

NoGlutenCooties Contributor

Oats -

 

Open Original Shared Link

 

 

 

Thanks KarenG.  I'm still a bit confused because my uncle has Celiac and he most definitely cannot tolerate oats.  Even the ones that are certified gluten-free.

 

(my confusion is in relation to the oats - not the coffee)

dilettantesteph Collaborator

Look at it botanically and you can understand better.  If you aren't familiar with the plants, look them up online.  Wheat, barley, rye and oats are members of the grass family.  Many celiacs don't even react to oats.  All are not supposed to react to other grasses such as corn rice and millet.  Open Original Shared Link 

Coffee comes from a flowering shrub.  Open Original Shared Link  It is not at all closely related to grasses.  

 

Apart from that, coffee is known to have contamination issues.  Not everyone is honest on this planet, and when things are expensive, they can have cheaper things added to them to increase profit.  Open Original Shared Link

 

Coffee has been found to be contaminated with barley among other things:

Open Original Shared Link

Open Original Shared Link

 

You grind your own whole beans for extra safety.  As a super sensitive, that's what I do.

GFinDC Veteran

Just wanted to mention the possibility of reacting to caffeine for some people.  Not as a gluten reaction, but some people don't tolerate coffee or caffeine.  It's simple to test if it bothers you.  Stop drinking coffee and any caffeine for a month and see if there is an improvement.

 

Thanks for the links Stephanie.  I'd seen those reports about barley in some coffee before but had forgot about it.

 

Here is a link to the CSA page on oats.  It has several studies listed that discuss the possibility of some celiacs reacting to oats.

 

Open Original Shared Link

NoGlutenCooties Contributor

It's simple to test if it bothers you.  Stop drinking coffee and any caffeine for a month and see if there is an improvement.

 

Just wanted to add that some people will have an initial withdrawal reaction to giving up caffeine cold-turkey, such as headaches.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    Mike Maurillo
    Newest Member
    Mike Maurillo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.