Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Concerned Husband With Questions...


LenSan

Recommended Posts

LenSan Newbie

Your comment is awaiting moderation.

 

Question:

 

This past year my wife found out she had celiac disease, and so for it has been an up hill battle for her and our family. I know I can’t possibly know what she is going through, but I want to be there for her and let her know she is not alone. However, I have recently noticed she has been extremely irritable and impatient. She becomes mad very easy and does not even notice. Not that this is a huge deal, but her sex drive has also went away.

 

I am no doctor, but what can I do to help her? Are these symptoms of celiac disease? Also, has anyone else gone through this? I want us to be normal again.

 

Thanks,

 

Len

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Welcome!

 

Is it possible that your wife has not removed all gluten from her diet?  Many of us become quite irritable when we accidentally ingest gluten.

 

Both of you should read this thread to see if her diet is as strict as needed:

 

Newbie Info 101 - Celiac Disease - Coping With - Celiac.com Celiac Disease & Gluten-Free Diet Forum

 

Hang in there -- many symptoms can take quite awhile to resolve :)

cyclinglady Grand Master

How old is your wife?  Besides, possible exposure to gluten in her diet, she may be experiencing issues with her thyroid or going through perimenopause.  I was a crazy woman for the past two years due to the combination of all three issues!  I was diagnosed in March, went gluten free, got back on hormone replacement therapy (to help build bone and sex drive!) and my thyroid stabilized.  Whew!  It was hard on my husband and daughter.  Now, I'm back to my normal grumpy self! :lol:

 

So, nice to hear that you are willing to support your wife.  I am blessed with a husband who's been gluten free for 12 years.  I can say that he gets grumpy too when he gets glutened.

 

Best of luck!

1desperateladysaved Proficient

Her body could be busy healing and it can take some time.  Thanks for your efforts to assist her.  My children watch labels for me; you can help do that.  Do you have a gluten free house?  It can make life easier.  I have good hopes for your success as you work together.

 

D

IrishHeart Veteran

I suggest you and your wife read this book.  REAL LIFE WITH CELIAC DISEASE by Melinda Dennis and Daniel Leffler

 

Really. It will help you both understand what is going on, how to deal, what else can be going

on besides celiac, and what follow up care she may need.

 

Good for you for being so sweet and wanting to help her.

 

but gee, Len.....going to be blunt here.

 

She has been very, very ill in her body and brain from gluten. This disease is DEADLY...

and involves the entire body. She has been malnourished and suffering and her intestines do not work right now.Think: starving babies in Africa we used to see on TV.Celiac Disease is malabsorption.

And malabsorption wreaks total havoc.I was a walking dead woman from it. I could barely lift my own arms. My husband had to dress me at one point.

 

This means NOTHING in her body works...including hormones. She does not mean to be irritated; she's sick. hon..

 

and so, yeah, sex is not the first thing she is interested in right now.

Would you want to have sex if you had the worst flu of your life and you felt like hell ?Nope.

You may need to take a break on this idea for a while,  Len. Give her some time to heal.

 

She has vitamin deficiencies and anemia and all kinds of horror going on inside...including hormone dysregulation.

 

Please, be patient with your wife. Just be extra sweet... and read the book.

Make sure she is not being glutened inadvertently somehow (this can happen in a shared household, for example),,, and soon, you'll be back to normal. 

squirmingitch Veteran

Len, Gluten turned sweet lil ol' loving me into a dyed in the wool fire breathing dragon lady. I could easily have been an ax murderess. I didn't want anyone to even speak to me & for a long time I could not see what a harridan I had become. Sex? Forget about it! 

You see Len, celiac disease affects every. single. cell. in. your. body. And it doesn't matter if we realize how we're acting or not ~~~ it's sort of like you could say, "the gluten made me do it".

The others gave great advice. Both of you should read the newbie 101 & the book IrishHeart suggested. Have patience, we did not get sick overnight & we will not heal overnight. It takes time. But that time will come, I can guarantee you that. 

nvsmom Community Regular

Celiac killed my sex drive too. When I felt bloated and full to the point of pain in the abdominal area (did not want anything else in there - LOL), had migraines about half the time and felt fatigued, I'm afraid sex was about as appealing as vacuuming... except I could at least frown and sigh while vacuumin gwhere as with "lovin'" I was expected to smile and enjoy myself when I just wanted to sit or sleep even though I love my husband dearly... Every husband's nightmare. It did get better for me (and him) but it did take many many months as well as addressing other health issues like underfunctioning adrenals and thyroid, as well as nutritional supplements.

 

Give it time.  I know it's easier said than done, but hang in there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

Hi Len -

 

First, let me say that I think you're brave and very sweet to reach out to a bunch of strangers in this way - and I commend you for really wanting to help your wife.

 

When I started going through pre-menapausal symptoms I would wake up some days very angry and wanting to kill.  For no reason at all.  Other days I'd be on cloud nine - again, for no reason at all.  One day I had a crying fit that scared my cat.  And I very rarely cry.  It sounds to me like your wife is experiencing something hormonal, not necessarily gluten related.  Although... keep in mind that while she's healing from the Celiac her body is going to be going through a lot that can also affect her hormone levels... vitamin deficiencies, etc. - and her body needs to find her new equilibrium.

 

That said... I got tired of waking up angry - and my sex drive also took a nose-dive, which can be very confusing for women because at first you just don't know what the heck is going on.  I started taking Relacore (the version that does NOT have any synthetic hormones in it).  Basically, it is a Vitamin B Complex with a few additional herbs thrown in to help stabilize mood.  Once I was on it for a couple of weeks, I haven't woken up angry once - and my sex drive is back.

They market it as a "belly fat reducer" because it relieves stress, and if you have stress-induced weight gain I suppose it could help you lose weight.  But I think that's just a marketing ploy.  Marketing gimics aside, it has really helped me to feel normal again.

 

(Vitamin B deficiencies are also very common in Celiac people.)

 

Your wife should get her blood work done to see if she has low iron as well.  Or low Vitamin D.

 

Good luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,369
    • Most Online (within 30 mins)
      7,748

    Nick H.
    Newest Member
    Nick H.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...