Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Concerned Husband With Questions...


LenSan

Recommended Posts

LenSan Newbie

Your comment is awaiting moderation.

 

Question:

 

This past year my wife found out she had celiac disease, and so for it has been an up hill battle for her and our family. I know I can’t possibly know what she is going through, but I want to be there for her and let her know she is not alone. However, I have recently noticed she has been extremely irritable and impatient. She becomes mad very easy and does not even notice. Not that this is a huge deal, but her sex drive has also went away.

 

I am no doctor, but what can I do to help her? Are these symptoms of celiac disease? Also, has anyone else gone through this? I want us to be normal again.

 

Thanks,

 

Len

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Welcome!

 

Is it possible that your wife has not removed all gluten from her diet?  Many of us become quite irritable when we accidentally ingest gluten.

 

Both of you should read this thread to see if her diet is as strict as needed:

 

Newbie Info 101 - Celiac Disease - Coping With - Celiac.com Celiac Disease & Gluten-Free Diet Forum

 

Hang in there -- many symptoms can take quite awhile to resolve :)

cyclinglady Grand Master

How old is your wife?  Besides, possible exposure to gluten in her diet, she may be experiencing issues with her thyroid or going through perimenopause.  I was a crazy woman for the past two years due to the combination of all three issues!  I was diagnosed in March, went gluten free, got back on hormone replacement therapy (to help build bone and sex drive!) and my thyroid stabilized.  Whew!  It was hard on my husband and daughter.  Now, I'm back to my normal grumpy self! :lol:

 

So, nice to hear that you are willing to support your wife.  I am blessed with a husband who's been gluten free for 12 years.  I can say that he gets grumpy too when he gets glutened.

 

Best of luck!

1desperateladysaved Proficient

Her body could be busy healing and it can take some time.  Thanks for your efforts to assist her.  My children watch labels for me; you can help do that.  Do you have a gluten free house?  It can make life easier.  I have good hopes for your success as you work together.

 

D

IrishHeart Veteran

I suggest you and your wife read this book.  REAL LIFE WITH CELIAC DISEASE by Melinda Dennis and Daniel Leffler

 

Really. It will help you both understand what is going on, how to deal, what else can be going

on besides celiac, and what follow up care she may need.

 

Good for you for being so sweet and wanting to help her.

 

but gee, Len.....going to be blunt here.

 

She has been very, very ill in her body and brain from gluten. This disease is DEADLY...

and involves the entire body. She has been malnourished and suffering and her intestines do not work right now.Think: starving babies in Africa we used to see on TV.Celiac Disease is malabsorption.

And malabsorption wreaks total havoc.I was a walking dead woman from it. I could barely lift my own arms. My husband had to dress me at one point.

 

This means NOTHING in her body works...including hormones. She does not mean to be irritated; she's sick. hon..

 

and so, yeah, sex is not the first thing she is interested in right now.

Would you want to have sex if you had the worst flu of your life and you felt like hell ?Nope.

You may need to take a break on this idea for a while,  Len. Give her some time to heal.

 

She has vitamin deficiencies and anemia and all kinds of horror going on inside...including hormone dysregulation.

 

Please, be patient with your wife. Just be extra sweet... and read the book.

Make sure she is not being glutened inadvertently somehow (this can happen in a shared household, for example),,, and soon, you'll be back to normal. 

squirmingitch Veteran

Len, Gluten turned sweet lil ol' loving me into a dyed in the wool fire breathing dragon lady. I could easily have been an ax murderess. I didn't want anyone to even speak to me & for a long time I could not see what a harridan I had become. Sex? Forget about it! 

You see Len, celiac disease affects every. single. cell. in. your. body. And it doesn't matter if we realize how we're acting or not ~~~ it's sort of like you could say, "the gluten made me do it".

The others gave great advice. Both of you should read the newbie 101 & the book IrishHeart suggested. Have patience, we did not get sick overnight & we will not heal overnight. It takes time. But that time will come, I can guarantee you that. 

nvsmom Community Regular

Celiac killed my sex drive too. When I felt bloated and full to the point of pain in the abdominal area (did not want anything else in there - LOL), had migraines about half the time and felt fatigued, I'm afraid sex was about as appealing as vacuuming... except I could at least frown and sigh while vacuumin gwhere as with "lovin'" I was expected to smile and enjoy myself when I just wanted to sit or sleep even though I love my husband dearly... Every husband's nightmare. It did get better for me (and him) but it did take many many months as well as addressing other health issues like underfunctioning adrenals and thyroid, as well as nutritional supplements.

 

Give it time.  I know it's easier said than done, but hang in there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

Hi Len -

 

First, let me say that I think you're brave and very sweet to reach out to a bunch of strangers in this way - and I commend you for really wanting to help your wife.

 

When I started going through pre-menapausal symptoms I would wake up some days very angry and wanting to kill.  For no reason at all.  Other days I'd be on cloud nine - again, for no reason at all.  One day I had a crying fit that scared my cat.  And I very rarely cry.  It sounds to me like your wife is experiencing something hormonal, not necessarily gluten related.  Although... keep in mind that while she's healing from the Celiac her body is going to be going through a lot that can also affect her hormone levels... vitamin deficiencies, etc. - and her body needs to find her new equilibrium.

 

That said... I got tired of waking up angry - and my sex drive also took a nose-dive, which can be very confusing for women because at first you just don't know what the heck is going on.  I started taking Relacore (the version that does NOT have any synthetic hormones in it).  Basically, it is a Vitamin B Complex with a few additional herbs thrown in to help stabilize mood.  Once I was on it for a couple of weeks, I haven't woken up angry once - and my sex drive is back.

They market it as a "belly fat reducer" because it relieves stress, and if you have stress-induced weight gain I suppose it could help you lose weight.  But I think that's just a marketing ploy.  Marketing gimics aside, it has really helped me to feel normal again.

 

(Vitamin B deficiencies are also very common in Celiac people.)

 

Your wife should get her blood work done to see if she has low iron as well.  Or low Vitamin D.

 

Good luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.