Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Concerned Husband With Questions...


LenSan

Recommended Posts

LenSan Newbie

Your comment is awaiting moderation.

 

Question:

 

This past year my wife found out she had celiac disease, and so for it has been an up hill battle for her and our family. I know I can’t possibly know what she is going through, but I want to be there for her and let her know she is not alone. However, I have recently noticed she has been extremely irritable and impatient. She becomes mad very easy and does not even notice. Not that this is a huge deal, but her sex drive has also went away.

 

I am no doctor, but what can I do to help her? Are these symptoms of celiac disease? Also, has anyone else gone through this? I want us to be normal again.

 

Thanks,

 

Len

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Welcome!

 

Is it possible that your wife has not removed all gluten from her diet?  Many of us become quite irritable when we accidentally ingest gluten.

 

Both of you should read this thread to see if her diet is as strict as needed:

 

Newbie Info 101 - Celiac Disease - Coping With - Celiac.com Celiac Disease & Gluten-Free Diet Forum

 

Hang in there -- many symptoms can take quite awhile to resolve :)

cyclinglady Grand Master

How old is your wife?  Besides, possible exposure to gluten in her diet, she may be experiencing issues with her thyroid or going through perimenopause.  I was a crazy woman for the past two years due to the combination of all three issues!  I was diagnosed in March, went gluten free, got back on hormone replacement therapy (to help build bone and sex drive!) and my thyroid stabilized.  Whew!  It was hard on my husband and daughter.  Now, I'm back to my normal grumpy self! :lol:

 

So, nice to hear that you are willing to support your wife.  I am blessed with a husband who's been gluten free for 12 years.  I can say that he gets grumpy too when he gets glutened.

 

Best of luck!

1desperateladysaved Proficient

Her body could be busy healing and it can take some time.  Thanks for your efforts to assist her.  My children watch labels for me; you can help do that.  Do you have a gluten free house?  It can make life easier.  I have good hopes for your success as you work together.

 

D

IrishHeart Veteran

I suggest you and your wife read this book.  REAL LIFE WITH CELIAC DISEASE by Melinda Dennis and Daniel Leffler

 

Really. It will help you both understand what is going on, how to deal, what else can be going

on besides celiac, and what follow up care she may need.

 

Good for you for being so sweet and wanting to help her.

 

but gee, Len.....going to be blunt here.

 

She has been very, very ill in her body and brain from gluten. This disease is DEADLY...

and involves the entire body. She has been malnourished and suffering and her intestines do not work right now.Think: starving babies in Africa we used to see on TV.Celiac Disease is malabsorption.

And malabsorption wreaks total havoc.I was a walking dead woman from it. I could barely lift my own arms. My husband had to dress me at one point.

 

This means NOTHING in her body works...including hormones. She does not mean to be irritated; she's sick. hon..

 

and so, yeah, sex is not the first thing she is interested in right now.

Would you want to have sex if you had the worst flu of your life and you felt like hell ?Nope.

You may need to take a break on this idea for a while,  Len. Give her some time to heal.

 

She has vitamin deficiencies and anemia and all kinds of horror going on inside...including hormone dysregulation.

 

Please, be patient with your wife. Just be extra sweet... and read the book.

Make sure she is not being glutened inadvertently somehow (this can happen in a shared household, for example),,, and soon, you'll be back to normal. 

squirmingitch Veteran

Len, Gluten turned sweet lil ol' loving me into a dyed in the wool fire breathing dragon lady. I could easily have been an ax murderess. I didn't want anyone to even speak to me & for a long time I could not see what a harridan I had become. Sex? Forget about it! 

You see Len, celiac disease affects every. single. cell. in. your. body. And it doesn't matter if we realize how we're acting or not ~~~ it's sort of like you could say, "the gluten made me do it".

The others gave great advice. Both of you should read the newbie 101 & the book IrishHeart suggested. Have patience, we did not get sick overnight & we will not heal overnight. It takes time. But that time will come, I can guarantee you that. 

nvsmom Community Regular

Celiac killed my sex drive too. When I felt bloated and full to the point of pain in the abdominal area (did not want anything else in there - LOL), had migraines about half the time and felt fatigued, I'm afraid sex was about as appealing as vacuuming... except I could at least frown and sigh while vacuumin gwhere as with "lovin'" I was expected to smile and enjoy myself when I just wanted to sit or sleep even though I love my husband dearly... Every husband's nightmare. It did get better for me (and him) but it did take many many months as well as addressing other health issues like underfunctioning adrenals and thyroid, as well as nutritional supplements.

 

Give it time.  I know it's easier said than done, but hang in there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

Hi Len -

 

First, let me say that I think you're brave and very sweet to reach out to a bunch of strangers in this way - and I commend you for really wanting to help your wife.

 

When I started going through pre-menapausal symptoms I would wake up some days very angry and wanting to kill.  For no reason at all.  Other days I'd be on cloud nine - again, for no reason at all.  One day I had a crying fit that scared my cat.  And I very rarely cry.  It sounds to me like your wife is experiencing something hormonal, not necessarily gluten related.  Although... keep in mind that while she's healing from the Celiac her body is going to be going through a lot that can also affect her hormone levels... vitamin deficiencies, etc. - and her body needs to find her new equilibrium.

 

That said... I got tired of waking up angry - and my sex drive also took a nose-dive, which can be very confusing for women because at first you just don't know what the heck is going on.  I started taking Relacore (the version that does NOT have any synthetic hormones in it).  Basically, it is a Vitamin B Complex with a few additional herbs thrown in to help stabilize mood.  Once I was on it for a couple of weeks, I haven't woken up angry once - and my sex drive is back.

They market it as a "belly fat reducer" because it relieves stress, and if you have stress-induced weight gain I suppose it could help you lose weight.  But I think that's just a marketing ploy.  Marketing gimics aside, it has really helped me to feel normal again.

 

(Vitamin B deficiencies are also very common in Celiac people.)

 

Your wife should get her blood work done to see if she has low iron as well.  Or low Vitamin D.

 

Good luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,925
    • Most Online (within 30 mins)
      7,748

    Linda Stark
    Newest Member
    Linda Stark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.