Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Bleeding A Thing?

BrennanaBread

Recommended Posts

BrennanaBread Rookie
BrennanaBread
Posted

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi BrennanaBread and Welcome.

 

I don't get anything as severe as yours but I do get the majority of them in the Winter.  I'm assuming you have been checked out and have ruled out anything serious?  

 

As I say to my Hubs when I can't do anything about something....Good Luck With That !  :D

 

Colleen

nvsmom Community Regular
nvsmom
Posted

I don't know either but I wouldn't be surprised. I used to get bad nosebleeds as a child - I remember a six hour one on Christmas once. Bleach! After that I had my nose cauterizd and that helped.

My 11 year old used to get nosebleeds a few times a week, especially in the winter, but since going gluten-free it has improved.... Could be a coincidence though.

Thrombocytopenia is related to celiac disease and can lead to nose bleeds, and it is related to celiac disease. it means your body is attacking your platelets so you aren't clotting. This could also include easy bruising, bleeding gums, petechia, anemia, and very heavy periods. It is not very common though and if you don't ave other symptoms, I wouldn't worry.

I believe, and I am not sure of this, that low potassium can lead to bleeding too.

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

Welcome!

 

I didn't get nose bleeds, but I would end up with these random bruises, so when I got my vit/min levels tested, I expected to be anemic.  It turns out I wasn't anemic and instead was Vitamin K deficient.  Vit K deficiency can cause nose bleeds.  check out this link:

 

Open Original Shared Link

 

 

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B

shadowicewolf Proficient
shadowicewolf
Posted

So this is gross, but when I lived in Massachusetts, where it gets very cold, I would get torrential nosebleeds that refused to stop or properly clot. Like...soaked 4 dish towels and at one point an entire roll of paper towels. Like two people have been so scared they called 911. Blood faucet on my face.

 

Is this a thing? I live in Florida now and I don't get them from the cold, but the few times I have gotten them here, same deal.

 

Thank you for reading.

 

-B

Have you went to an ENT (ears, nose, and throat doctor)? What happens with nose bleeds is that you have very small veins in your nose and sometimes those veins come too close to the surface. When that happens, you can have very bad nose bleeds that are caused by the smallest things (such as cold, dry air or even just dry air).

 

If that is the case, it can be fixed.

 

Of course, there are other causes. Just thought i'd point out one factor.

BrennanaBread Rookie
BrennanaBread
Posted
  • Author

Have you went to an ENT (ears, nose, and throat doctor)? What happens with nose bleeds is that you have very small veins in your nose and sometimes those veins come too close to the surface. When that happens, you can have very bad nose bleeds that are caused by the smallest things (such as cold, dry air or even just dry air).

 

If that is the case, it can be fixed.

 

Of course, there are other causes. Just thought i'd point out one factor.

 

Yes, I went to an ENT up north and he refused to cauterize my nose and instead told me to put Bacitracin in my nose every day. I asked him if I could use Aquaphor (since I have a full container because that's what I heal tattoos with) and he said no, because "it's water based". It's petroleum based. Nimrod. My hematologist heard what he'd said and told me "Well, we'll find you someone....smarter."

 

I've also seen said hematologist because my mother has an autoimmune disease called aplastic anemia which causes her to bleed uncontrollably when she's injured or has a nosebleed. I was tested for a bunch of blood related diseases, and came up negative for everything. It's good to know that celiac disease can cause issues with that. Thank you for your input!

IrishHeart Veteran
IrishHeart
Posted

actually, I do recall reading that nosebleeds are an associated condition with celiac.

 

"CARDIOVASCULAR SYSTEM PROBLEMS

Disorders of the heart and blood vessels.

  • Angina Pectoris
  • Aortic Vasculitis
  • Atherosclerosis
  • Cardiomegaly
  • Coronary Artery Disease
  • Easy Bruising (Ecchymosis)
  • Hypertension
  • Idiopathic Dilated Cardiomyopathy
  • Nosebleeds, Unexplained"
found here:
 
Open Original Shared Link
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGlutenCooties Contributor
NoGlutenCooties
Posted

I very occasionally get a pretty bad nosebleed - maybe 3 or 4 of them in the last 15 years (that kind of "occasional") - and they've always been attributed to dry, cold, weather - and one was because I took Sudafed for a cold and I guess it worked a little too well at drying out my sinuses.

 

Anyhow... I just wanted to add that my most recent nosebleed was just a month or so ago - and the darned thing wouldn't stop.  Not as bad as what you described, but for me... this one was bad.  I remembered something that I saw on Sex-in-the-City and actually grabbed a slender tampon and put it in my nose (what can I say?  I was getting desparate!!) - it worked wonders!  the bleeding stopped pretty much immediately.  No kidding.

Just an idea... to save the dish towels... ;)

BrennanaBread Rookie
BrennanaBread
Posted
  • Author

Hahaha! I have photos of me with Super tampons stuffed up both nostrils, actually. They filled up fast and got too big for my nose. I also used one when I pierced my own nose as a teenager to catch the needle. Those things are darn useful.

 

If you have another one that won't stop, what works for me (taught by a paramedic) is ice. Get an icepack or a bag of frozen veggies (I use those for my god awful migraines, too) and hold it to the side that's bleeding. It works like a charm.

 

 

 

 

I very occasionally get a pretty bad nosebleed - maybe 3 or 4 of them in the last 15 years (that kind of "occasional") - and they've always been attributed to dry, cold, weather - and one was because I took Sudafed for a cold and I guess it worked a little too well at drying out my sinuses.

 

Anyhow... I just wanted to add that my most recent nosebleed was just a month or so ago - and the darned thing wouldn't stop.  Not as bad as what you described, but for me... this one was bad.  I remembered something that I saw on Sex-in-the-City and actually grabbed a slender tampon and put it in my nose (what can I say?  I was getting desparate!!) - it worked wonders!  the bleeding stopped pretty much immediately.  No kidding.

Just an idea... to save the dish towels... ;)

GretaJane Newbie
GretaJane
Posted

Vitamin K deficiency causes nosebleeds because its needed for clotting. Take a supplement and eat your dark leafy greens!

NoGlutenCooties Contributor
NoGlutenCooties
Posted

Hahaha! I have photos of me with Super tampons stuffed up both nostrils, actually. They filled up fast and got too big for my nose. I also used one when I pierced my own nose as a teenager to catch the needle. Those things are darn useful.

 

If you have another one that won't stop, what works for me (taught by a paramedic) is ice. Get an icepack or a bag of frozen veggies (I use those for my god awful migraines, too) and hold it to the side that's bleeding. It works like a charm.

 

I'm so glad I'm not the only one who has done this!  :ph34r:

BrennanaBread Rookie
BrennanaBread
Posted
  • Author

I'm so glad I'm not the only one who has done this!  :ph34r:

 

My tenth grade English teacher proudly told us of a horrible nosebleed she had as a preteen and going to the hospital and having a tampon pulled up through her throat and into her nasal passage. You're SO not the only one! If it fits and it's absorbent and sterile, it's been used!

NoGlutenCooties Contributor
NoGlutenCooties
Posted

Those things are darn useful.

 

I don't know if this is really true or just another urban legend that got propagated via the Internet, but someone claiming to be the mother of a soldier overseas said that they have been used to plug wounds on the battlefield in an emergency when that was all that was within reach.  :o

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,695
    • Most Online (within 30 mins)
      7,748
    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.