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Essential Tremor


Pegleg84

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Pegleg84 Collaborator

Hi all

 

Just curious whether any of you with Celiac also have essential tremor, which is a neurological conditions that make your hands shake. It looks like a symptom of Parkinsons, but isn't

 

an overview:

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Anyway, my grandmother (on my mom's side) has had it for years, and now my Mom and my uncle are also developing it. They both have Celiac disease, and the condition is hereditary.

I'm just wondering if anyone else has it, or knows if its a condition associated with Celiac? If yes, will the gluten-free diet help?

 

Mom is in her late 50s, and has been gluten-free for 7-8 years, though I believe she might still be getting low levels of cc in her diet. We don't know if my grandmother has Celiac, though it's possible.

 

If it's completely unrelated, any advice for dealing with the condition? It's probably something I have to look forward to in later years.

 

Any info would be helpful

Thanks!

 

 


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nvsmom Community Regular

I'm pretty sure I have this, but I had never thought anything of my shakes until I read something about it here.  My hand will shake if I hold a glass or fork, not everytime but often enough - especially if I'm tired, a bit hypoglycemic, or my blood pressure is low. 

 

I get it on occassion around my eye too so the eye lid twitches. If I am very tired my whole eyeball seems to twitch. I can't see the twitch but visually the world is jittery.

 

Hypoglycemic episodes seem to make it the most noticeable. I had more episodes before going gluten-free except for the last for weeks - I seem to be trembling half of the time lately.

 

I don't know much about it since I literally thought nothing of it until recently. I to am curious what others have to say.

cristiana Veteran

It's in our family too.  No-one has ever had an official diagnosis as far as I know, I guess because everyone's got it and lives well with it.   It seems mostly to affect our hands, I think it is esp. aggravated with stressful situations, too much caffeine, low blood sugar, fatigue, etc.  Has come down my mother's family.   So far I'm the only officially diagnosed Celiac, I can't seem to persuade anyone else to be tested for Celiac but I have my suspicions I am not the only one.

cyclinglady Grand Master

Yes, this runs in our family. It affects their hands and a few have what we term "Bobble Head Syndrome". celiac disease runs in our family, but the folks who have it do not shake.

Cindy61 Newbie

Hi

I find it interesting that other people with celiac disease also have essential tremors.  I was diagnosed with tremors a few years ago.  As far as I know no one else in my family has had these tremors.  My hands don't shake, but my head does.  If I am really tired or stressed the shaking is worse.

Pegleg84 Collaborator

Yeah, i just found it odd that it happens to be Mom and my uncle who both have Celiac who are starting to get the tremor. Of course, they're the older members of their family and it could just be the genetics catching up with them.

BritChick Newbie

I think it's also called a familial tremor.  My grandmother had it and my aunt has it.  Neither as far as I know are celiac.  My grandmother's tremor was in her hands and worsened with age.  We gently would make fun of her when she would hand us a cup of tea because the majority of the tea ended up in the saucer instead of the teacup!  My aunt's tremor began to show up about 10 years ago (she's in her early 60s).  My mother is celiac and lactose intolerant and does not have the tremor - she's in her 70s.  I am celiac and people started noticing  my hands shake about 5 years ago.  Like someone else mentioned it seems to be more obvious when I'm eating - holding a knife and fork.  I wasn't even aware of it until others would comment and ask if I was feeling OK.  I'm in my late 40's so I'm expecting to be pretty entertaining in my 60's!!  I haven't heard of any links between celiac and tremors.  The medical community doesn't seem to consider an essential tremor any cause for concern.


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1desperateladysaved Proficient

I felt tremors every day in my life UNTIL my chiropractor recommended a liquid magnesium to meet my deficiency.  After 3-4 days my shaky feelings went away and never returned.  My chiro did warn not to take magnesium if you have the diarrhea. 

 

D

nvsmom Community Regular

I've had tremors for a good ten years since I was 30... I think I'm the baby in this.  LOL 

Pegleg84 Collaborator

Well, I'm destined for either arthritis or tremors, or both. As long as I can still knit!

So sounds like jury's out on whether it's a celiac thing, or just a coincidence.

  • 3 months later...
daydreamer Newbie

I didn't know there was any relation between the essential tremors and celiac. Celiac runs in our family. My maternal grandmother has essential tremors badly (it exhausts her). She does not have celiac. My mother has celiac and does have shaky hands from time to time. I am self diagnosed with Celiac and have had hand tremors for years. (I'm only 27)  This is very interesting, thank you for inquiring. 

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