Soy

[kenlove]

Has anyone read anything on the number of celiacs that develop soy allergies after the celiac? 

After 9 years celiac I seem to have problems everytime with soy products like tofu.

thanks

[1desperateladysaved]

My functional Medicine Nurse has a blanket celiac diet that excludes Soy for everyone.   However, I do not know the reason for it.

 

D

[cyclinglady]

Soy is a common allergen. You can develop allergies and intolerances at any time. Perhaps by avoiding it for a while, you can eat it occasionally.

Since I am allergic to milk and nuts, I dread the day that soy starts to bother me. I use a lot of it!

[kenlove]

same here, I'm celiac and vegan so soy is a major part of what I can have.  Will just have to try to work it out

 

Soy is a common allergen. You can develop allergies and intolerances at any time. Perhaps by avoiding it for a while, you can eat it occasionally.

Since I am allergic to milk and nuts, I dread the day that soy starts to bother me. I use a lot of it!

[Pegleg84]

Hi Kenlove,

 

I'm soy-intolerant. It seems to be a common intolerance for Celiacs, though no one really knows why. I also started noticing that tofu and such was bothering me, so cut that, but then any amount of soy bothered me. I get more neurological symptoms on soy: brain fog/dizziness, kind of like being drunk, and it gets my anxiety going. Doesn't affect my gut as much, and doesn't last as long, but it's still hell and I avoid it as much as possible. Even small amounts of soy lecthin will bother me.

My soy problems didn't really kick in until after about 2 years gluten-free (as did dairy).

If you're vegan and have to cut soy, yeah, it's going to be tough. I'd like to eat less meat than I do, but since I can't have soy, and my gut doesn't like when I feed it too many beans/chickpeas/lentils/etc, I really can't cut it completely.

 

In any case, if you're concerned about a soy intolerance/allergy, cut it out for at least a couple weeks, see if you feel better, then add it back and see if you get the same reaction (call it a soy challenge). However, if you think you might have an allergy (which is different from an intolerance) and are having problems breathing/rash/etc, you should get tested for it. (you can test for allergies but not intolerances). Also, they say eating too much unfermented soy isn't good for you anyway, so maybe not a bad idea to cut back on the tofu either way.

 

Good luck! Hope soy doesn't become the bane of your existence, like it is to me

[GFinDC]

I don't know what % of celiacs are soy intolerant Ken.  But soy is one of the top 8 allergens, so it bothers a lot of people in general, not just celiacs.  I was vegetarian for 5 years, so I ate a lot of soy junk (ok products) during that time.  Now I avoid all soy protein, but I can tolerate soy lecithin occasionally.  And I tolerate real meat vs faux meat just fine.

[kenlove]

Thanks much, I do have to do the soy challenge.  So far the only reaction seems to be  heavy sweating and urination. no soy and it seldom happens unless I have tomato after 4pm.  Thanks much

 

Hi Kenlove,

 

I'm soy-intolerant. It seems to be a common intolerance for Celiacs, though no one really knows why. I also started noticing that tofu and such was bothering me, so cut that, but then any amount of soy bothered me. I get more neurological symptoms on soy: brain fog/dizziness, kind of like being drunk, and it gets my anxiety going. Doesn't affect my gut as much, and doesn't last as long, but it's still hell and I avoid it as much as possible. Even small amounts of soy lecthin will bother me.

My soy problems didn't really kick in until after about 2 years gluten-free (as did dairy).

If you're vegan and have to cut soy, yeah, it's going to be tough. I'd like to eat less meat than I do, but since I can't have soy, and my gut doesn't like when I feed it too many beans/chickpeas/lentils/etc, I really can't cut it completely.

 

In any case, if you're concerned about a soy intolerance/allergy, cut it out for at least a couple weeks, see if you feel better, then add it back and see if you get the same reaction (call it a soy challenge). However, if you think you might have an allergy (which is different from an intolerance) and are having problems breathing/rash/etc, you should get tested for it. (you can test for allergies but not intolerances). Also, they say eating too much unfermented soy isn't good for you anyway, so maybe not a bad idea to cut back on the tofu either way.

 

Good luck! Hope soy doesn't become the bane of your existence, like it is to me

[kenlove]

my allergy to animal protein is pretty bad, just tasted my wifes chicken last night and was sick pretty much most of the night with heart trouble. the animal protein throws my heartbeat into a fib and/or a flutter

I don't know what % of celiacs are soy intolerant Ken.  But soy is one of the top 8 allergens, so it bothers a lot of people in general, not just celiacs.  I was vegetarian for 5 years, so I ate a lot of soy junk (ok products) during that time.  Now I avoid all soy protein, but I can tolerate soy lecithin occasionally.  And I tolerate real meat vs faux meat just fine.

[mamaw]

Hey Ken.... have  you tried  organic  free range  chicken &  grass fed to finish  beef? I'm not  a  vegan but  I find  I tolerate  these  meats well... I would not  eat  any meat  from a grocery store.....

Soy  is  a  problem  for  me in  several  ways...I understand  that  thyroidless  people  should  avoid  soy  like the  plague....

Years  ago  I loved  tofu    but  now  never touch it....

[GFinDC]

my allergy to animal protein is pretty bad, just tasted my wifes chicken last night and was sick pretty much most of the night with heart trouble. the animal protein throws my heartbeat into a fib and/or a flutter

 

Sorry to hear that Ken.  Maybe fish or other types of meat would work?  Soy is bad for people IMHO.  It took me a while to learn that.  But there is plenty of information available about the problems soy causes in the digestive tract.  I just didn't bother to read it until my own soy intolerance popped up.  Dr. Mercola's page on soy has some links to other info on it.

 

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[kenlove]

i cant handle any meats, my wife made organic chicken the other day and i was up most of hte night from it. Felt like I had that alien growing inside me..gonna stick to fruit until i sort this out and can do a soy challenge

Hey Ken.... have  you tried  organic  free range  chicken &  grass fed to finish  beef? I'm not  a  vegan but  I find  I tolerate  these  meats well... I would not  eat  any meat  from a grocery store.....

Soy  is  a  problem  for  me in  several  ways...I understand  that  thyroidless  people  should  avoid  soy  like the  plague....

Years  ago  I loved  tofu    but  now  never touch it....

[kenlove]

thanks, i'll check the link, i cant eat any meats without getting heart problems. The stomach acts up but its my heart that goes out of whack when i have any form of animal protein. I was in a clinic for 6 weeks before they figured it out.

Sorry to hear that Ken.  Maybe fish or other types of meat would work?  Soy is bad for people IMHO.  It took me a while to learn that.  But there is plenty of information available about the problems soy causes in the digestive tract.  I just didn't bother to read it until my own soy intolerance popped up.  Dr. Mercola's page on soy has some links to other info on it.

 

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[GFinDC]

Ouch!  6 weeks!  Not so fun and exciting stuff there Ken.  I suppose you've read about the tick borne illness that makes people allergic to red meats?  I think they found it in Texas first.

[kenlove]

hard not heard about the tick -- guess Texas seems an appropriate place to find it ..

 

Ouch!  6 weeks!  Not so fun and exciting stuff there Ken.  I suppose you've read about the tick borne illness that makes people allergic to red meats?  I think they found it in Texas first.

[GFinDC]

hard not heard about the tick -- guess Texas seems an appropriate place to find it ..

 

 

Here's an article on it Ken.

 

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[kenlove]

amazing-- they told me mine was from the animal protein molecules scraping the walls of my blood vessels throwing me into A-Fib. 

I think in  almost  5 years since i went vegan I cheated maybe 5 times. Sunday I ate a drumstick form  my wifes chicken -- went into  a fib with a loud pop at 248 am and have problems ever since. See the cardiologist  tomorrow.

 

Here's an article on it Ken.

 

Open Original Shared Link

[GFinDC]

amazing-- they told me mine was from the animal protein molecules scraping the walls of my blood vessels throwing me into A-Fib. 

I think in  almost  5 years since i went vegan I cheated maybe 5 times. Sunday I ate a drumstick form  my wifes chicken -- went into  a fib with a loud pop at 248 am and have problems ever since. See the cardiologist  tomorrow.

I hope the cardio has some good ideas for you Ken.  Personally, I think eating soy leads to irritation in the gut and possible food intolerances.  But that's just a theory of mine.

 

Looks like the tick meat allergy is in Australia too.  So Ken, you tucked into a drumstick and had a reaction at 2 in the morning?  Been to Australia lately?

 

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Open Original Shared Link

...

The cause of the allergy has been difficult to identify because symptoms can appear three to six hours after eating meat and could occur months after a tick bite.

"People may get a little reaction at the site (of the bite), usually a small lump but they don't think it's anything," Van Nunen said.

"Then they tuck into a lamb roast and at one or two in the morning they need an ambulance."

...

 

This site has more medical info on MMA.  Since chicken is not mammalian tho, it seems you have a different condition.  I thot you still might find it interesting.  It names the protein that the have identified as being the trigger in MMA.

 

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[kenlove]

nothing really surprises me anymore with these allergies. We've added so many chemicals and hormones to what we eat that its just a matter of time before we start dropping like flies.  supposed to be down  under in march sometime  but will stick to the fruit while there.  This 80 -10-10 diet by doug graham seems to give my gut the least stress. 

 

I hope the cardio has some good ideas for you Ken.  Personally, I think eating soy leads to irritation in the gut and possible food intolerances.  But that's just a theory of mine.

 

Looks like the tick meat allergy is in Australia too.  So Ken, you tucked into a drumstick and had a reaction at 2 in the morning?  Been to Australia lately?

 

Open Original Shared Link

Open Original Shared Link

...

The cause of the allergy has been difficult to identify because symptoms can appear three to six hours after eating meat and could occur months after a tick bite.

"People may get a little reaction at the site (of the bite), usually a small lump but they don't think it's anything," Van Nunen said.

"Then they tuck into a lamb roast and at one or two in the morning they need an ambulance."

...

 

This site has more medical info on MMA.  Since chicken is not mammalian tho, it seems you have a different condition.  I thot you still might find it interesting.  It names the protein that the have identified as being the trigger in MMA.

 

Open Original Shared Link