Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unintentional Glutening Suspects


skelly247

Recommended Posts

skelly247 Rookie

I was diagnosed about a month ago and have managed to unintentionally gluten myself twice, once with a spaghetti strainer that I thought I cleaned really well and once with foods that have no business having gluten, in my case, barley malt in chocolate as a sweetener.

 

In the interest of avoiding glutening myself (and any new celiacs as well), what are some things that you didn't expect to have gluten in them that actually do (and sorry if this topic already exists, I looked back a few pages and didn't see any similar)?
 

Thanks! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

The good thing is, if we read the ingredients, we will see the gluten ingredient.

Some things people are surprised to find contain gluten-

Cereals like Rice Krispies and cornflakes ( there are gluten-free versions)

Non- gluten-free oats

Licorice

Contadina flavored tomato paste ( Italian herb)

Soy sauce and " Asian" flavors that contain non gluten-free soy sauce

Butterscotch baking chips

Might add to this as I think of others

Adding: I wanted to make sure I was clear- these foods have gluten in them, which surprised me. However, the gluten wheat or malt, is clearly labelled in the ingredients. I just didn't expect to see gluten in them.

NoGlutenCooties Contributor

I'd have to say I've been more annoyed than surprised.  Just want to reiterate the Celiac mantra... every label, every time.  If I'm unsure about any ingredient I Google it from my phone before I even buy it.  I was actually most surprised that maltodextrin does NOT contain gluten.

BlessedMommy Rising Star

Jam & soymilk were a couple that surprised me.

 

There was a brand of jelly that had wheat glucose syrup in it. Some soymilk is barley malt sweetened.

notme Experienced

I'd have to say I've been more annoyed than surprised.  Just want to reiterate the Celiac mantra... every label, every time.  If I'm unsure about any ingredient I Google it from my phone before I even buy it.  I was actually most surprised that maltodextrin does NOT contain gluten.

 

yeah, i confused 'barley malt' <GLUTEN with' maltodextrin' <NOT GLUTEN for quite a while :/  the thing i probably googled over and over the most in the beginning lolz

Jam & soymilk were a couple that surprised me.

 

There was a brand of jelly that had wheat glucose syrup in it. Some soymilk is barley malt sweetened.

always be reading your labels :)  pick up box, turn box over, read third ingredient, make disappointed face, turn box back over, return box to shelf lolz

skelly247 Rookie

Thank you all so much!

 

The barley malt was in one of those lindor truffles, they were giving away free samples at costco and I didn't even think to check because it was chocolate, why would there be gluten in chocolate....?

 

BlessedMommy, is there really gluten in jams? That's really depressing.....

notme Experienced

BlessedMommy, is there really gluten in jams? That's really depressing.....

i have never seen gluten in jam, but that's why reading the labels is so important.  if it's in the product, they have to list it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



C-Girl Contributor

The most annoying one for me was GoodBelly's berry flavor, and others, contain barley. Why do they need barley in a fruit juice???

gilligan Enthusiast

Canada Dry Ginger Ale!  Some sites say it contains gluten in the coloring and other sites say it's okay.  I just wish I knew for sure.  It's the only carbonated beverage I drank.  

kareng Grand Master

Canada Dry Ginger Ale!  Some sites say it contains gluten in the coloring and other sites say it's okay.  I just wish I knew for sure.  It's the only carbonated beverage I drank.

I have never seen a soda with gluten. I drink this sometimes.

IrishHeart Veteran

Canada Dry Ginger Ale!  Some sites say it contains gluten in the coloring and other sites say it's okay.  I just wish I knew for sure.  It's the only carbonated beverage I drank.  

 

What site says "it contains gluten?" I'd like to see their proof. 

 

I would not worry about ginger ale, hon. 

Nikki2777 Community Regular

Hershey's miniatures. But the full size is ok. Weird, right?

Fwiw, I drink Canada Dry Ginger Ale all the time.

NoGlutenCooties Contributor

The most annoying one for me was GoodBelly's berry flavor, and others, contain barley. Why do they need barley in a fruit juice???

 

For the same reason they feel the need to put high-fructose-corn-syrup in a can of pineapple.  Either we've all gotten so used to eating stuff that is so over-sweetened that we can't taste anything anymore - or the quality of our soil and of our food has gotten so poor that it tastes like crap without a ton of sugar on it. 

:angry:

<getting down off the soapbox>

NoGlutenCooties Contributor

Canada Dry Ginger Ale!  Some sites say it contains gluten in the coloring and other sites say it's okay.  I just wish I knew for sure.  It's the only carbonated beverage I drank.  

 

I'm not usually one to drink soda, but I have had Canada Dry Ginger Ale once since being diagnosed and not only did I not have any issues with it I was actually drinking it to calm my stomach after my one accidental glutening.  It worked.

FWIW.. whenever I come across contradictory information like that I contact the company directly.  They can usually set the record straight.

kareng Grand Master

Hershey's miniatures. But the full size is ok. Weird, right?

Fwiw, I drink Canada Dry Ginger Ale all the time.

You mean the little candy bars? I eat those. Not the ones that have gluten in every size - like Krackel bars. I haven't noticed a change in the ingredients between the big and little chocolate bars. They even say they don't have all the products on the list and to read ingredients.

From Hersheys:

For your convenience, the current products listed below have been fully evaluated and qualify as gluten-free using standards proposed by the US Food and Drug Administration (FDA). Please note, this list is not all inclusive as we have other products that do not have gluten containing ingredients.

The best way to determine if our products contain a gluten ingredient is to read our product label. This label includes an accurate, current listing of the ingredients in our products. Because, on occasion, the list of ingredients can change, we strongly encourage you to check the ingredient label on the package each time before you make a purchase.

NoGlutenCooties Contributor

You mean the little candy bars? I eat those. Not the ones that have gluten in every size - like Krackel bars. I haven't noticed a change in the ingredients between the big and little chocolate bars.

 

Hersey's miniatures are on the NON-gluten-free list:  Open Original Shared Link

(although I haven't checked the packages - I'm not really a junk-food person)

 

Also, regular Rolos are gluten-free but the mini's have wheat in them.  (Edited to add... Hersey's actually doesn't include Rolos on their gluten-free list either even though there are no gluten-ingredients in them... I *think* this because of the possibility of cross-contamination.)

 

So while most full-size and mini versions may be created equal... not all of them are.  (Every label... every time...)

Nikki2777 Community Regular

Yes - here's the clip from the about.com site that NoGlutenCookies cited above:

 

The following Hershey's products are NOT gluten-free:

  • Hershey's Special Dark Bar
  • Hershey's Cookies 'N' Creme Bar
  • Hershey's Air Delight
  • Hershey's Milk Chocolate Drops
  • Hershey's Miniatures
  • Mr. Goodbar
  • Symphony Bar
  • Hershey's Extra Dark Chocolate

 

What I read somewhere that it has something to do with an emulsifier that they use in the minis.  And I was so sad that Special Dark Bars were on this list.  Those are my favorites!

GF Lover Rising Star

I'm not really a junk food person my self.  I'll file away the information for next time I look at the candy isle and get sick.

 

Caddbury Caramel eggs are not junk food, just sayin...

 

Colleen

Dianaw Newbie

What gets me is that Reeses cups are on the gluten free list, but seasonal shapes are not.  I used to love the christmas trees.

NoGlutenCooties Contributor

I'm not much for junk food either, but once in awhile you just need something unhealthy :)

I miss ice-cream sandwiches... but luckily Eddy's Fudge Tracks are safe!

kareng Grand Master

I'm not much for junk food either, but once in awhile you just need something unhealthy :)

I miss ice-cream sandwiches... but luckily Eddy's Fudge Tracks are safe!

If you can find these..... So good! They come in different sizes.

Open Original Shared Link

NoGlutenCooties Contributor

Thanks Kareng - I'll keep those in mind.  I haven't experimented with hardly any gluten-free processed food yet - actually just bought a few rolls for the first time today. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.