Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Need To Share...


sarahdea

Recommended Posts

sarahdea Rookie

Hi! I have had a heckuva 2014 so far, but today is a HUGE day for me, so I wanted to share my joy. :)

 

Let me recap the year:

 

 

Scheduled to have a hysterectomy in January. Found out ON HYSTERECTOMY DAY that I was pregnant.

Preganacy triggered GI which I had never had ANY symptoms prior to that.

Miscarried, which was expected but still difficult.

While "testing" to see if indeed I had become gluten intolerant, I had to go to the ER for severe blaoting that cut off my bladder.

Hysterectomy rescheduled. 5 days before I was to have it, my father passed away.

Decided to go forward with the surgery, as Dad was a surgeon and would have wanted me to.

Sick as hell in the hospital and they were clueless about GI.  

 

I buried my father 2 days post-op.

 

I've been recovering from surgery and grieving my Dad. He was 93 with advanced Alzheimer's -- so not a surprise to lose him... But still, it's been a heckuva time!

 

TODAY-I closed in the sale of my rental house which is a HUGE WIN for me personally, as I have been managing it myself for 2 years since my ex-husband filed bankruptcy. It is an historic house built in 1898, with a lot of maintenence issues.

 

So. It's over. The house is sold. I am so relieved, exhalted, ready to move forward.

I am so happy. It's OVER. Today starts a new chapter. No more ties to the ex, no more crazy maintenence woes, no more money and debt struggles over it.

THIS IS FANTASTIC!!!  :) :)

 

Tonight, my bf and I are going to celebrate. I called the restaurant and they DO have a gluten-free menu and the cook on the phone was very helpful and understanding.

 

Thanks for reading, I just had to share. Here's to less crazy stuff ahead and more good things.

 

--Sarah

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

glad  things  are looking better for you.....

bartfull Rising Star

I always try to remember that the pendulum swings both ways. No matter how bad things get sometimes, they are sure to get equally GOOD when that pendulum gets to the other side. I'm glad yours is finally on the good side, and here's hoping it stays there for a long time! :)

w8in4dave Community Regular

Wow! So very for your loss. I don't care how prepared you are, your never prepared for the heart ache of losing a loved one. But things are looking good! Good luck and hopefully things are full of sunshine and butterflies :) As long as they are gluten free :) Good luck! :) keep us posted :) 

powerofpositivethinking Community Regular

awesome news  :D

  • 2 weeks later...
sarahdea Rookie

Thanks everyone! :) Great support on this site.

Gemini Experienced

Hitting the lows makes you appreciate the highs even more.  So glad your life is coming together in a more positive way!  :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CaliSparrow Collaborator

It's always good to read things are brighter for someone who has been through a lot. My mom was dx with Alzheimer's but ended up with Parkinson's instead and my dad passed last May from vascular dementia. It's ALL hard! I'm sorry for your loss and happy sunshine is yours once again. The difficult times do make the good times sweeter!

Fenrir Community Regular

Good to see things are getting better. I'm in the midst of a bad run myself but know it will get better.

 

Daughter had cranial surgery in June
Mom died in June at age of 52

Had to put my father in-law in a nursing home after Christmas due to dementia

Slipped on ice in late November and tore my ACL and MCL.

Right around christmas time starting having GI problems/pain

DIganosed with billary dysknesia and had Gallbladder out in February

Still having GI issues, had tTTG positive a week ago.

Went in on Monday because I had a abscessed tooth and had to have a root canal.

 

blah!

 

Can only get better right?

moosemalibu Collaborator

So sorry to hear about all your troubles.. you've had a helluva time. Glad to hear that you can close that chapter and start anew.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      1

      How Social Media Algorithms Are Fueling Gluten Anxiety: TikTok, Reddit, and Instagram Trends

    2. - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      4

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    3. - Scott Adams replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

    4. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

    5. - suek54 replied to Kayla S's topic in Dermatitis Herpetiformis
      4

      Need advice for some relief!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,658
    • Most Online (within 30 mins)
      7,748

    Pope rome
    Newest Member
    Pope rome
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.