Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Enzymes

notme

Recommended Posts

notme Experienced
notme
Posted

i have been meaning to try these, but kept forgetting to pick them up (they don't sell them where i grocery shop) FINALLY remembered to get them.  you take them before every meal.  

 

they are my best friend.  i thought, well, i'll just give this a test drive.  holy guacamole, they work like a charm.  everything is nice and quiet and niiiiice.  i know my intestines are probably stilll damaged, so i was patient and some things i was eating were not sitting as well as i wanted them to, but this is awesome.  :D

 

yayyyyy!  and thank you, people on this board.  my doctor never even suggested this.  love y'uns's i just all warm and fuzzy (and not in the bathroom all morning ha HAAAA!)  

 

I SHALL HAVE SALAD!  AND GRAPES!  AND DIFFERENT COLOR GRAPES!  AND RAW VEGGIES!  THERE'S NO STOPPING ME WHAT I SHALL EAT!!!!!!!!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

Great!  Glad to hear it!

Gemini Experienced
Gemini
Posted

Ha, Ha, Ha!!!!!!  I use them also Arlene, for the harder to digest food and they do indeed work like a charm.  A Celiac's best friend..... ;)

 

I think your food bill is about to go up......

GottaSki Mentor
GottaSki
Posted

:lol:  :lol:  :lol:

 

Heck ya they work....our poor damaged systems need all the help they can get ;)

LauraTX Rising Star
LauraTX
Posted

I was thinking of picking some up now that I have my gallbladder out... for when I reintroduce some foods that I couldn't eat before, especially fatty foods.  I need to look into it as well!

mamaw Community Regular
mamaw
Posted

count  me in on loving  digestive  enzymes & probiotics... Honestly all  celiac  folks  should use these two  items....

gilligan Enthusiast
gilligan
Posted

Please name some brands that are worth purchasing.  I have something from GNC - papaya enzyme?  The sales guy had no idea what I was talking about when I asked for digestive enzymes.  I found the papaya enzymes on the shelf.  Is there something better?  I want to eat salad!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted
  • Author

Ha, Ha, Ha!!!!!!  I use them also Arlene, for the harder to digest food and they do indeed work like a charm.  A Celiac's best friend..... ;)

 

I think your food bill is about to go up......

i was so shocked!  next time, i'm getting a BIG bottle.  and take some in my snack pack backpack  :D  strap on the feedbag, ima eat it allll !!

 

eggs = no prob, grapes = no prob, <two of many foods that have had me wondering if i should be giving up more foods.  i am wondering about the soy but it's not a gastro reaction if i eat too much, it's more of joint swelling, headache, etc..  

 

gilligan:  i just bought the cvs brand - "food intolerance DIGESTIVE AID fast acting enzyme formula!"  it was like 5 bucks for 20 or 24 capsules.  they say 'gluten free' right on the packaging and the capsule itself is made with pure gelatin :)  yay!!  eatin' stuff!!   :lol:

GottaSki Mentor
GottaSki
Posted

Our family uses Source Naturals - Digestive Enzymes

 

Have used their "gluten" formula in the past...but I prefer the cost of their plain digestive enzymes -- my kids blow through quite a few ;)

 

There are many good ones...sure others will be along to add more.

notme Experienced
notme
Posted
  • Author

right, lisa, i was glad these are not too expensive.  you have to have one for every meal.  on the upside, if everything evens out, i may cut back on the probiotics because i'm still taking 2 per day (1 am-ish, 1 pm-ish) now, those suckers are 'spensive eating 2 a day....

 

oh, and i totally agree:  probiotics are also da bomb (and not in the explosive D way LOLZ)   :P  

GottaSki Mentor
GottaSki
Posted

the boys don't use them for every meal now...but we all did for the first year or two gluten-free

 

now they use them whenever out and about...which is many meals for young adults

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

this makes me excited!!  I should be starting them later this week if everything works out at my next appointment.  I tried raw carrots for the first time in a long time the other week and ended up with cramping and gas.  I can't tell you the last time I ate a salad, and from the carrot experience I'm not planning on it anytime soon  :lol:  I only eat cooked vegetables mostly blended all up in my soup.

1desperateladysaved Proficient
1desperateladysaved
Posted

https://www.azurestandard.com/shop/product/2904/%C2'> I buy Genuine NZimes Dr. Howell's Extra-Strength from Azure.  It is 4 oz of powder containing Amylose, Protease, Lipase, and cellulose.  No wheat, soy, yeast or dairy products.  I sprinkle 1/4 tsp of it into a small amount of water.  The directions say you can sprinkle it over your food.  I like that there is no capsule.  Several months back sometimes I didn't digest my capsules, so it was an advantage.  When I was the only one using it one canister lasted a couple of months +.

 

Dee

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

I'm so glad to hear this info! I have really been wanting to try them but was not sure if there might be a possible down side, I didn't want to add anything new into the mix that could throw things off. It sounds like the results are all good so no reason not to try them. This makes me very happy :) Thanks for including brand names too.

notme Experienced
notme
Posted
  • Author

ok, test drove these things around the block a couple of times, then kicked it into high gear and mashed the pedal.  so far, all the stuff that was giving me trouble (mostly raw veggies/salads, but a few other things, too) have been digested successfully.  peach salsa, pico de gallo, spinach salad, some cheesesesesesss......  yay!  a whole new world  :D

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

Fantastic! Very encouraging :)

dilettantesteph Collaborator
dilettantesteph
Posted

Thanks for posting.  It is encouraging.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    2. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
    3. Scott Adams
      - Scott Adams replied to GlorietaKaro's topic in Super Sensitive People
      1

      Am I nuts?

      Your experience is absolutely valid, and you are not "nuts" or a "complete weirdo." What you are describing aligns with severe neurological manifestations of gluten sensitivity, which is a recognized, though less common, presentation. Conditions like gluten ataxia and peripheral neuropathy are documented in medical literature, where gluten triggers an autoimmune...
    4. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      My journey is it gluten or fiber?

      Some members here take GliadinX (a sponsor here) if they eat out in restaurants or outside their homes. It has been shown in numerous studies to break down small amounts of gluten in the stomach, before it reaches your intestines. This would be for small amounts of cross-contamination, and it would not allow any celiac to eat gluten again.
    5. Russ H
      - Russ H replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748
    lalan45
    Newest Member
    lalan45
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Am I nuts?

      By Scott Adams · Posted

      Your experience is absolutely valid, and you are not "nuts" or a "complete weirdo." What you are describing aligns with severe neurological manifestations of gluten sensitivity, which is a recognized, though less common, presentation. Conditions like gluten ataxia and peripheral neuropathy are documented in medical literature, where gluten triggers an autoimmune response that attacks the nervous system, leading to symptoms precisely like yours—loss of coordination, muscle weakness, fasciculations, and even numbness. The reaction you had from inhaling flour is a powerful testament to your extreme sensitivity. While celiac disease is commonly tested, non-celiac gluten sensitivity with neurological involvement is harder to diagnose, especially since many standard tests require ongoing gluten consumption, which you rightly fear could be dangerous. Seeking out a neurologist or gastroenterologist familiar with gluten-related disorders, or consulting a specialist at a major celiac research center, could provide more validation and possibly explore diagnostic options like specific antibody tests (e.g., anti-gliadin or transglutaminase 6 antibodies) that don't always require a gluten challenge. You are not alone; many individuals with severe reactivity navigate a world of invisible illness where their strict avoidance is a medical necessity, not a choice. Trust your body's signals—it has given you the most important diagnosis already.
    • Scott Adams
      My journey is it gluten or fiber?

      By Scott Adams · Posted

      Some members here take GliadinX (a sponsor here) if they eat out in restaurants or outside their homes. It has been shown in numerous studies to break down small amounts of gluten in the stomach, before it reaches your intestines. This would be for small amounts of cross-contamination, and it would not allow any celiac to eat gluten again.
    • Russ H
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Russ H · Posted

      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.