Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pseudo Coeliacs

come dance with me

Recommended Posts

come dance with me Enthusiast
come dance with me
Posted

Just a minor vent, I suppose.  We went on a family road trip last weekend while my brother was down here visiting and my dad and his wife invited their friend along.  I'd met her before, she came for dinner one night and was a bit excited to find out that all my cooking is gluten free due to my child being coeliac, and that we also do not eat meat.  She's vegetarian and coeliac, so she told me, and even on our road trip we drove past KR Castlemaine where the ham and bacon products come from and she started getting upset about the treatment of pigs and saying this is why she can't stand the thought of eating them.  Anyway we were discussing where to go for lunch and I said there was one place I know that has gluten free, vegan options in one little town and also an Indian place where all the curries are gluten free and a couple of them are vegan.  This friend then told my brother that she, too, is coeliac so it's good to know she doesn't have to worry when she's with us.

 

Fast forward to lunch time, we made sure we were in that particular town at lunch time and went to the cafe, although we did check out the menu at other places.  I ordered a roast vege toasted sandwich to share with my daughter which was vegan provided no spread was used, and it was delicious.  I even had to double check the bread was gluten free it was so yummy! We also had the garden salad with it to share.  Friend, on the other hand, ordered a salmon wrap which was not vegetarian, nor gluten free!  All the while saying out loud in the cafe that she's a vegetarian coeliac!  The staff gave me "the look" whereby I knew they were thinking what I was thinking, but I still felt nervous about other people in the cafe who might now think that wraps are fine for coeliacs!

 

It's her life, her business, she might well be coeliac and willing to eat it at the risk of feeling very sick later on, but I think people being vocal like that about it then ordering something that isn't gluten free really does make it more difficult for everyone.  Like I said, just a minor vent but it's been playing on my mind for a full week now!

 

Happy Easter everyone, hope you have a good one :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGlutenCooties Contributor
NoGlutenCooties
Posted

Wow.  People that call themselves vegetarian and still eat fish annoy the hell out of me.  (Personally I could never survive as a vegetarian... but don't be fake about it.)

And anyone who is Celiac - or calls themselves Celiac - and then orders a regular wrap deserves what they get.  Part of me hopes she was up half the night running to the bathroom...

moosemalibu Collaborator
moosemalibu
Posted

That really grinds my gears. She's not  a vegetarian she's a pescetarian. And the fact that she ordered a glutenous lunch is irritating and particular rude and misleading. Perhaps she's a silent celiac and doesn't understand the ramifications of cheating?

BlessedMommy Rising Star
BlessedMommy
Posted

It is totally irritating! People can cheat or do whatever they want, just be quiet about it. Don't say that you're celiac and and then proceed to just eat whatever, it just makes it for people who are doing their best to eat 100% gluten-free. 

 

It doesn't really matter what people eat, provided that they don't mislabel it and make it harder for the next guy. Oy!

Monklady123 Collaborator
Monklady123
Posted

These kind of people annoy me because of what it might be "teaching" the servers in restaurants. If I go out and have a salad I ask to see the ingredients in the dressing. My friend who is gluten free "because I need to lose weight" (ugh) eats her croutons and whatever dressing she wants. But she's "gluten free" because she's given up pasta and bread. No, you are "low carb" maybe but you are not gluten free! 

dilettantesteph Collaborator
dilettantesteph
Posted

That makes me mad because it makes people not take seriously those of us who get very sick from gluten contamination.  It is easy to see how someone might think that a little bit won't hurt when some idiot like that person is demonstating that "fact" before their very eyes.  It's their business, but: Grrr!!

NoGlutenCooties Contributor
NoGlutenCooties
Posted

Yep - on the rare occassion that I brave going to a restaurant I tell the server.. I'm gluten intolerant.  I'm not one of those annoying people to claim to be "gluten free" because they think it sounds cool.  If I get so much as a crumb I will actually get very, very ill.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


come dance with me Enthusiast
come dance with me
Posted
  • Author

My daughter got sick at school when she had a fruit salad that was being prepared on the board beside where sandwiches were being made.  The tuckshop staff were unaware of her condition (second day at a new school, I hadn't ordered tuckshop but miscommunication between myself, my daughter and the teacher meant she had a fruit salad) so didn't know to do the fruit salads first, seal the tubs then start on sandwiches which they now do.  She was sick for days, which is why I even questioned it having not been told she had a fruit salad at school.

GluFree4Me Rookie
GluFree4Me
Posted

I actually had a conversation on the phone today about this very thing.  Celiac or not, if you are gluten free for ANY health reason, I'm backing you up one thousand percent.  However, if you come off with "to lose weight," "because *insert your favorite "gluten-free" celeb here* is doing it" or even start to say the word "trendy," I sincerely want to punch you in the face.  That makes it so much harder for us, people who have to take her gluten-free diet seriously or intense ramifications occur.  Also, it is highly irresponsible to loudly proclaim your "gluten-freeness" while chowing down on a gluteny wrap.  I'm also a type 1 diabetic, and I would never use diabetes as an excuse to get out of, say, eating something I don't like. The person I say that to may go the rest of their lives thinking that diabetics cannot eat said food.  There is enough ignorance about diseases in this world, and that is simply contributing to that.

NoGlutenCooties Contributor
NoGlutenCooties
Posted

I actually had a conversation on the phone today about this very thing.  Celiac or not, if you are gluten free for ANY health reason, I'm backing you up one thousand percent.  However, if you come off with "to lose weight," "because *insert your favorite "gluten-free" celeb here* is doing it" or even start to say the word "trendy," I sincerely want to punch you in the face.  That makes it so much harder for us, people who have to take her gluten-free diet seriously or intense ramifications occur.  Also, it is highly irresponsible to loudly proclaim your "gluten-freeness" while chowing down on a gluteny wrap.  I'm also a type 1 diabetic, and I would never use diabetes as an excuse to get out of, say, eating something I don't like. The person I say that to may go the rest of their lives thinking that diabetics cannot eat said food.  There is enough ignorance about diseases in this world, and that is simply contributing to that.

 

I'm with you!  When I first told a friend of mine about the whole Celiac diagnosis and what I couldn't eat, etc. her first question was, "have you lost weight?" - I'm skinny.  Always have been.  There have been times in my life when I have needed to gain weight and couldn't.  But I have never been chubby, let alone needing to lose weight.  I just answered her, "No, thank God!"

BlessedMommy Rising Star
BlessedMommy
Posted

Yeah, I don't get the whole gluten and weight thing myself.

 

My theory is if someone lost weight by cutting down on gluten or going gluten-free that it was because they cut down on processed foods and sugars and ate more fruits, veggies, lean protein, etc. not necessarily because gluten itself had that much to do with it.

 

One side effect of going gluten-free is that I can never eat the cake or cookies at potluck dinner. LOL!

kareng Grand Master
kareng
Posted

I know lots of people lose weight on a "gluten-free diet" because they cut out the large amounts of bread and pasta they were eating.  Also, stopped all the fast food.  

BlessedMommy Rising Star
BlessedMommy
Posted

^Yes, exactly!

GluFree4Me Rookie
GluFree4Me
Posted

Before my diagnosis, I was heavier than I am now.  If I look at gluten funny, I gain weight.  I can't explain it, but it's true.  So, I guess going gluten free made me lose weight...but that's now why I'm gluten free!  I really don't understand how some of us can be super skinny before we are diagnosed (that one makes sense, since we are malnourished), but then some of us are overweight.  The world may never know.

kareng Grand Master
kareng
Posted

Before my diagnosis, I was heavier than I am now.  If I look at gluten funny, I gain weight.  I can't explain it, but it's true.  So, I guess going gluten free made me lose weight...but that's now why I'm gluten free!  I really don't understand how some of us can be super skinny before we are diagnosed (that one makes sense, since we are malnourished), but then some of us are overweight.  The world may never know.

I thought you were diagnosed with Celiac disease? The weight lose should just be a happy side effect of eating gluten-free for your Celiac disease health. But, I guess if weight lose is what motivates you to stay gluten-free....Ok.... I just worry you won't care about your weight one day or decide it is OK to gain a little , and start eating a bit of gluten here and there.

GluFree4Me Rookie
GluFree4Me
Posted

Oh, no, I am diagnosed! I meant that's not why I'm gluten free instead of that's now why I'm gluten free (night shift is killing me right now) so sorry about that! I felt so miserable after my suprise glutening last week, that I can honestly say I will never willingly eat gluten.

 

So sorry about the mix up!  :wacko:

come dance with me Enthusiast
come dance with me
Posted
  • Author

My daughter was super, extra skinny before diagnosis because the food she was eating was going straight through her, she wasn't keeping enough in to be of a healthy weight.  She's still thin, but she does dancing, gymnastics, martial arts, AFL, netball and swimming, but she's not skeleton thin and unhealthy looking anymore.  I guess it's about how your body absorbs the food.

 

People can be on a strict gluten free diet for a number of reasons, I'm not judging anyone, I just don't like when people claim it then straight up order something that isn't gluten free.  Even with the vegetarian ones, it's people like her who are the reason other vegetarians are offered fish, it's hard enough for people to understand without others confusing matters.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.