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Did Your Vitamin D Levels Go Up?

1desperateladysaved

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FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

Hmmm... sunscreen blocks out the rays that provide vit D. I'm fair so I'm going to use sunscreen and take a D supplement. I've had family with minor skin cancer, but it was easy to remove and not serious. Still I have to be careful. Does anyone else ever feel like they weren't made to survive on this planet?

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frieze Community Regular
frieze
Posted

you only need 10/15 minutes per day of sun for Vitamin D.  you DO NOT want to develop a tan!  If you tan, you need more sun, rinse and repeat.

frieze Community Regular
frieze
Posted

what side effects??  unless you have a problem with the oily kind?  that may be gall bladder.

  • 4 weeks later...
1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

I got a new reading for my vitamin D.  Just to remember previous readings were 30(Minnesota Mn after diagnosis and some supplements, 33 (last June while gardening) and current (June) is 48!  That really jumped compared to the last time!

dilettantesteph Collaborator
dilettantesteph
Posted

Good news

  • 2 weeks later...
motheroftwins2010 Rookie
motheroftwins2010
Posted

Yes, for unknown reasons pre-diagnosis my Vit D levels were a bit high at 79 (I did not take any supplements and was not eating dairy so we chalked it up to being outside a lot and being very fair) now I'm nearly 90 and they've asked me to cut back on my new multivitamin, even though I'm low on other things, to prevent it from getting dangerous.

greenbeanie Enthusiast
greenbeanie
Posted

Does anyone have reliable info about what the recommended D level is? I've heard wildly different things from different doctors. My daughter and I were both tested in early summer last year, at the same lab. We both spend lots of time outside. Her level was 29, and her doctor said he wants to see it much higher, to 50 at least. My level was 30, and my doctor said that's more than enough and that there's no need to try to raise it through supplements or ever retest it to see if it goes up. Again, our blood was drawn at the same lab in the same week, presumably using the same testing methods. I have trouble believing that a 1-point difference between us shows that hers is much too low and mine is more than high enough. Or are there really drastically different levels of D that are considered adequate for children and adults?

I took supplements anyway, based on info from my daughter's doctor who seemed more informed - but I'm really just wondering if there's any actual medical consensus on adequate levels, or whether it just depends on each particular doctor's opinion.

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GottaSki Mentor
GottaSki
Posted

I'd say you both are at minimal acceptable. Do you have previous tests to compare if either of your levels have risen?

As example...mine was 17 at celiac diagnosis....rose to 28 with supplementation first year gluten-free...has continued to rise without supplementation each subsequent year since.

greenbeanie Enthusiast
greenbeanie
Posted

I'd say you both are at minimal acceptable. Do you have previous tests to compare if either of your levels have risen?

Thanks for the info, Lisa. My daughter has no other tests to compare to, but after that she started taking an adult dose of chewable Caltrate every day (which has 800IU of D3) on the recommendation of the dietitian at her GI's office, mainly for the calcium. My level was retested by a different doctor about six months after the first test and had risen significantly, though I forget the exact number now and the lab had a different reference range. I'd been supplementing with 4000IU per day in between and was feeling much better, so I stopped taking it regularly. I was never really clear on what level to aim for.

dilettantesteph Collaborator
dilettantesteph
Posted

I have some information about vitamin D levels.  It seems that there were some very high levels of vitamin D being recommended. Then the Institute of Medicine of the National Academies were asked to study the matter by the US and Candian governements.  They came up with lower recommendations.  Many labs and doctors are still using the very high levels.  Also, different units are used in different countries, which further complicates matters.  You can read about it here: Open Original Shared Link

SkyBlue4 Apprentice
SkyBlue4
Posted

My Vit D went from the low end of insufficient (on supplements for years) to the high end of sufficient (without any supplements at all) after just 6 months gluten free. My antibodies were all down to almost nothing as well.

 

I was so happy that I wanted to frame that lab report!  :D

frieze Community Regular
frieze
Posted

medscape.com/viewarticle718671 

 

you can try this, copy and paste wouldn't work....

across Contributor
across
Posted

My doctor was appalled that I was at 20 and said she wants me to be near 80! That sounds pretty high to me. I'm not sure what to make of it.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
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      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
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