Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cheating On The Diet

heartfelt

Recommended Posts

heartfelt Newbie
heartfelt
Posted

My question is what happens if you cheat once in awhile?. I was diagnosis 8 months ago and never had one side effect for this disease. I found out by a blood test. I'm really having a hard time convincing my husband this is important, but he  said if you never had any symptoms of this disease how serious is it?

Is there away I can read actually what this disease is and what happens if you cheat so I can have my husband and myself read. I was told me if I cheat I'm back to square one is that true? HELP

 

I'm new at this page so were do I type a question of my own topic? I can't find any were for this. That's why I'm I asking this question under coping  Thank you

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I am curious why they tested you for Celiac?  That isn't a normal blood test.  They must have had a reason.

 

Read here:

 

Open Original Shared Link

 

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms......"

StClair Apprentice
StClair
Posted

My guess is that everyone reacts differently to consuming gluten, either accidentally or on purpose. I've read here that that there are 300 different symptoms of celiac disease, so your response will probably be unique to you. That said, serious damage can be done without your even knowing about it, so better not to consider cheating on the gluten free diet. I may want to eat a cinnamon roll and see what happens (I do!), but I'm way too afraid of the consequences to try it.

cyclinglady Grand Master
cyclinglady
Posted

I had life-long anemia which was attributed to 1) my being a woman and 2) a genetic anemia which was masking iron-deficiency anemia related to celiac disease which was caught finally during a routine consult for a colonoscopy (Yep, over 50!). Two months in to my diagnosis, I broke some vertabrae doing nothing. That's when I was diagnosed with osteoporosis. I had no tummy issues at the time I was diagnosed.

Why did they run a celiac panel? I too, am curious.

heartfelt Newbie
heartfelt
Posted
  • Author

I am curious why they tested you for Celiac?  That isn't a normal blood test.  They must have had a reason.

 

Read here:

 

Open Original Shared Link

 

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms......"

The reason why they did a test is I had my 10 year colonoscopy and they did a biopsy. I ask doctor why they did that and he said he does t with every patient. Then after I have had 2 blood test and very high

kareng Grand Master
kareng
Posted

The reason why they did a test is I had my 10 year colonoscopy and they did a biopsy. I ask doctor why they did that and he said he does t with every patient. Then after I have had 2 blood test and very high

So you have intestinal damage - whether you directly feel it or not. Have you checked your bone density? Are you anemic? Low on B12, D, etc. those are all things that can be caused by Celiac disease.

cyclinglady Grand Master
cyclinglady
Posted

Your hubby needs to get serious!

I was shocked at my diagnosis because my husband had been gluten free for 12 years (never tested/bad advice from two doctors). We maintain a gluten-free house. The kid gets her gluten fixes outside of the house. Some households can be mixed but you need safe areas to prepare food and he needs to brush his teeth before kissing you besides other things. Yes, you can get glutened from kissing!

Lucky that you had a celiac savvy doctor! Me too!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


heartfelt Newbie
heartfelt
Posted
  • Author

So you have intestinal damage - whether you directly feel it or not. Have you checked your bone density? Are you anemic? Low on B12, D, etc. those are all things that can be caused by Celiac disease.

I so surprised that I have this not one symptom. They say its hereditary so I had my parents tested and they were fine.  I would of never new if I didn't go to this doctor to have my colposcopy done.  I had a few bone dentistry test  level in that is average and no not anemic. I do take plenty of D and few others  but not sure on B12 how much I'm taking. I will have to check that. what other vitamins should I be taking for celiac disease?

Its just so hard as we travel a lot and never can find restaurants for my needs. Its always salads.

 

thank you Kareng

BlessedMommy Rising Star
BlessedMommy
Posted

Even in the absence of symptoms, a celiac patient suffers intestinal damage each time they consume gluten. That damage can add up to a lot of health problems, over time.

 

What a blessing that you were diagnosed! That doctor sounds like a really good one! :)

nvsmom Community Regular
nvsmom
Posted

Cheating will set you back a few weeks to a month.  If you cheat repeatedly, it will set you back further because autoantibody levels will start to rise.  The tissue transglutaminase antibodies (tTG IgA and tTG IgG) can be very slow to change.  I was gluten-free for about a year (with two known accidents in the early months) before my tTG IgA levels came down to normal.  That means that even though I was gluten-free for 363 meals in a year, my intestines were still being attacked and damaged... One year later!

 

Avoid cheating at all costs.  Eat raw fruits and veggies if you need to.  When we travel, we rent cottages, camp, or bring along camp stoves so we can prepare our food.  It's a pain not eating out while on vacation, but long term health is important.

 

Here are 300 possible symptoms of celiac disease :Open Original Shared Link As you can see, many of them are not very obvious.  It's no wonder that celiac disease is underdiagnosed.

Celiacandme Apprentice
Celiacandme
Posted

That's great that your GI doc routinely looks for celiac. I agree with the others - you've got a great doctor! You had an endoscopy at the same time as your colonoscopy?

 

The book Celiac Disease: A Hidden Epidemic by Peter H.R. Green, MD and Rory Jones is a good one to check out. It easily could help you both learn more about the disease and why it is important to be strict with the gluten free lifestyle.

fran641 Contributor
fran641
Posted

I have heard that some people have silent celiac. Not in my case. The Peter Green book is very informative. That is the first place I read about lymphoma associated with celiac. I have had 2 forms of lymphoma treated with chemo and radiation. I did great in 2008 until 2010 after my first cancer and I went on a pity party with food! There isn't a pill for my kind of stupid. Again in 2011 cancer hit, worse. I struggled with staying gluten-free for long periods until last year when the most severe pain began every time I had gluten. I guess my body's reaction has increased over the years. Anyway pain is my motivator. Radiation damaged my biliary duct and gallbladder and because of that dairy makes me severely ill. All this and more can be avoided if you avoid gluten completely. It is so worth it.

psawyer Proficient
psawyer
Posted

My short answer about cheating: Don't do it!  Don't even think about it.

 

You have had some replies that explain why, so I won't belabor the points already made.

cap6 Enthusiast
cap6
Posted

Cheat and ultimately you sign your own death certificate. Bottom line.

My mother did it. It is not something to mess around with.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,190
    • Most Online (within 30 mins)
      7,748
    Sah
    Newest Member
    Sah
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      TTG IgA and IGA elevated mildy

      By knitty kitty · Posted

      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates like rice, potatoes (nightshades), quinoa, peas, lentils, legumes, which starves out the SIBO bacteria.  Better bacteria can then proliferate.   I followed the AIP diet to get rid of my SIBO.  It's a strict diet, but my digestive tract had time to rest and heal.  I started feeling better within a few days.  Feeling improvement so soon made sticking to the AIP diet much easier. References: Small intestinal bacterial overgrowth among patients with celiac disease unresponsive to a gluten free diet https://pmc.ncbi.nlm.nih.gov/articles/PMC7759221/   Luminal antigliadin antibodies in small intestinal bacterial overgrowth https://pubmed.ncbi.nlm.nih.gov/9260801/#:~:text=Luminal total IgA concentrations (p,response to local bacterial antigens.   Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov/12479649/
    • trents
      New to gluten free living, in5ro and small question

      By trents · Posted

      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
    • AllyJR
      Gluten free parakeet food

      By AllyJR · Posted

      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      New to gluten free living, in5ro and small question

      By boy-wonder · Posted

      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten intolerant,  I looked it up and had every one of 8 or so symptoms listed. Bloating,  weight gain,  headaches, brain fog,  constipation, etc etc. I took the decision to give going gluten free a try. Within 1 week I had lost 4 lb, now 7 weeks in I've lost 13 lb. I feel much better in general,  the bloating has severely subsided, it used to keep me awake at night as I felt so uncomfortable.  So pretty much a success story, as everyone here knows,  going gluten free isn't always easy, and eating out can be awkward,  but I consider myself lucky that I appear to have an intolerance rather than an allergy or being celiac.  I can deal with most of the gluten free options at the supermarket but, the big one for me is bread, I love bread, and the gluten free options I've tried are pretty poor. I was at a posh black tie event last night and chose all the food options I thought would be gluten free,  however,  there was bread on the table and I couldn't resist it, I had I small piece of bread,  god it was good, I wanted more but I resisted. Today I feel a bit dodgy, my stomach is churning, and I generally feel a bit urgh.  So here's the question, is that really down to 1 small piece of bread or is it coincidence?  I'd be interested in hearing how other people have reacted to a similar situation,  as I was considering having a day off every now and then and enjoying some lovely fresh bread.
    • ValerieC
      Guide to colleges for celiac disease

      By ValerieC · Posted

      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
×
×
  • Create New...