Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

One Year Gluten Free Tomorrow.

Chibiehotaru

Recommended Posts

Chibiehotaru Newbie
Chibiehotaru
Posted

Hello everyone,

I have been much better since my last post. I have been getting much more family support which makes me feel much less alone. I wont lie, I still have my days I feel like crying and asking myself "why me?!" Some days are still difficult to be around others eating foods I would love to eat. I do get jealous. :,(

My question to others with celiac disease that have dairy issues is:

I have been gluten free a full year tomorrow. I gave up dairy shortly after as I realized I had almost the same reaction to dairy as I did with the gluten. (Uncontrollable diaherria, severe ststomach burning, bloating, etc...) is there anyway to possibly eat dairy again? Has anyone been successful in adding dairy back into their diet? If so, when? Any feedback would be helpful and give me confidence to go down that path or put to rest the idea of having a gluten free pizza with yummy cheese. Also, I apologize if there's any thread going on thia topic. My phone isn't letting me search for anything. Thank you.

~Nora. Survivor of celiac disease of one full year.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi Nora  CONGRATULATIONS  :D .  1 year is a biggie.

 

Many, many people get dairy back.  Once the villi heal is when it happens, assuming you were not lactose intolerant before.  Add back one dairy item at a time and see how you do.  

 

Good Luck, Colleen

ravenwoodglass Mentor
ravenwoodglass
Posted

I am one of the ones that was able to add dairy back. It is suggested that you first add back low lactose items like hard cheeses, cheddar for example, and yogurt. If all goes well you can try small amounts of other dairy like milk, ice cream and soft cheeses like mozzarella.  I was so happy to get dairy back and hope the same happens for you.

nvsmom Community Regular
nvsmom
Posted

  :D Woo Woo!  :)  One year!  Congratulations!  B)

 

Dairy was an issue for me too - lactose is not a good thing for me. ;)  I started trying to add parts of it back after about a year, and at that point it wasn't frequent.  At first, I always took a lactaid (with lactase) when I ate dairy, or tried to buy lactose free products.  That helped.  

 

I never went back to drinking milk or eating yogurt - too much lactose - and I don't like to drink milk much anyways.  The dairy products I missed were cheese and ice cream.  I still can not have much ice cream or it gets me; lactase tablets still help with that.  Happily I can eat hard cheeses now, and have been able to for at least a year.  That being said, if I can substitute some non-dairy in (like Daiya "cheese",  or plain coconut yogurt for sour cream, or coconut cream for half and half) I will still do it.  Dairy is not an essential part of a humans diet, it just tastes good.  ;)

Chibiehotaru Newbie
Chibiehotaru
Posted
  • Author

Thank you everyone for sharing! I am hopeful to try a few pieces of cheese here in the summer. Lol... I have a few days off so if my body decides to disagree I can suffer in the protection of my own home. :) fingers crossed and wish me luck. Thanks again. :)

ThisIsMyUserName Explorer
ThisIsMyUserName
Posted

I love that I am now part of a community where using the words "uncontrollable diahreaa" on a message board doesn't raise eyebrows.

squirmingitch Veteran
squirmingitch
Posted

I had trouble with dairy too. I was off of it for over a year - I'll say around a year & 3 months. There were 2 reasons for me being off dairy. 1 was the gut issues & 2 was the iodine in it which makes the dh rash flare so I was off dairy longer than perhaps my gut issues needed to be. But I am happy to say when I went back to it I had no problems at all. My gut said uuuum, ummmmm, good!

 

HAPPY ANNIVERSARY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Chibiehotaru Newbie
Chibiehotaru
Posted
  • Author

Thank you. I have not read deeply into any of the topics on why some people with Celiac end up having issues with dairy or what exactly in the dairy triggers people. I always thought it was lactose but I heard from someone recently it was the cassiene? (Not sure if that's spelled correctly) but iodine as well, huh? So, it could be any one of those ingredients or a combo that kill me? Lol.

squirmingitch Veteran
squirmingitch
Posted

No. no. no ~~~ the iodine is not for you to worry about. Only those of us with the celiac rash b/c the iodine content makes our rash flare. 

beth01 Enthusiast
beth01
Posted

Kraft shredded mozzarella and cheddar have 0 lactose per serving. I use them on my pizza, but still have to be careful on the amount I use and still take Lactaid and a anti-gas when I eat it.  I'm a little over a year gluten free and too much dairy still bothers me.  Ice cream I make myself with Almond milk or the Lactaid milk.  I know nothing of casein allergies, someone else will have to chime in about that.

cap6 Enthusiast
cap6
Posted

Congratulations on your one year anniversary! That is a milestone to be celebrated. As stated, you can add a tad of dairy and see if you tolerate it ok. I am at five years and can handle it if I don't eat too much. We all heal at such different levels!

Judy3 Contributor
Judy3
Posted

I don't have the dairy issues but have some exciting news about my food allergies.    I've been allergic to shrimp and fish and nuts for years (23 to be exact) and diagnosed with Celiac almost 5 yrs ago.   I have been gluten free since that day and now my doctor sent me to an allergist for my sneezing etc.. and it turns out that I have nonallergic rhinitis in regard to that but in the process he tested me for the food allergies 20 of them.. both blood tests and skin tests and they all came back negative!!!   So in a month I'm doing a food challenge with shrimp in his office and if I pass I can eat it again!    The last time I ate shrimp I had anaphylactic shock and ended up in the ER via rescue squad.      He said allergy testing has come a long way in 23 yrs but he thinks that I either out grew it or more likely my undiagnosed Celiac disease manifested in a strange way and it 'appeared' that I was allergic to all this stuff...but now that it's healed they are gone..    He said at most I have an intolerance and not a true allergy so it's not life threatening. He did some blood tests yesterday to see if I'm missing an enzyme which could be causing the nut allergy symptoms (numbness in the mouth) when I eat nuts and flax...     I'm very excited about all this!   

 

Wish me luck, I just may have a tuna sandwich for lunch  (on gluten free bread of course  lol) 

cyclinglady Grand Master
cyclinglady
Posted

I don't have the dairy issues but have some exciting news about my food allergies.    I've been allergic to shrimp and fish and nuts for years (23 to be exact) and diagnosed with Celiac almost 5 yrs ago.   I have been gluten free since that day and now my doctor sent me to an allergist for my sneezing etc.. and it turns out that I have nonallergic rhinitis in regard to that but in the process he tested me for the food allergies 20 of them.. both blood tests and skin tests and they all came back negative!!!   So in a month I'm doing a food challenge with shrimp in his office and if I pass I can eat it again!    The last time I ate shrimp I had anaphylactic shock and ended up in the ER via rescue squad.      He said allergy testing has come a long way in 23 yrs but he thinks that I either out grew it or more likely my undiagnosed Celiac disease manifested in a strange way and it 'appeared' that I was allergic to all this stuff...but now that it's healed they are gone..    He said at most I have an intolerance and not a true allergy so it's not life threatening. He did some blood tests yesterday to see if I'm missing an enzyme which could be causing the nut allergy symptoms (numbness in the mouth) when I eat nuts and flax...     I'm very excited about all this!   

 

Wish me luck, I just may have a tuna sandwich for lunch  (on gluten free bread of course  lol)

Congratulations! That is thrilling news!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,947
    • Most Online (within 30 mins)
      7,748
    Sinch23
    Newest Member
    Sinch23
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.