Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Else Get The Worst Gas


danikali

Recommended Posts

danikali Enthusiast

Okay, every single day, after I eat cookies, a granola bar, pasta, pizza, (I'm on the gluten challenge), I get the WORST GAS EVER! And it lingers! :lol:

I'm at work and I have to keep running to the bathroom just to let it out in a stall!

Does anyone else get this RIGHT AFTER eating gluten? :unsure:

This is horrible! My fiance could barley walk into the bedroom a couple of nights ago! :blink:

If this isn't a sign of SOMETHING, I don't know what to say anymore!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

Yep, you are certainly not alone in that symptom!

gf4life Enthusiast

Yep, me too. And my middle boy. I also get gas a lot if my intestinal bacteria are "off", so I take probiotics and use digestive enzymes too.

jerseyangel Proficient

Yea--I was still having it, although not as bad, even after being gluten-free for several months. I went casein free 3 weeks or so ago and it seems to be improving. I went gluten-free and dairy free at the same time, but did continue to eat butter. When I gave up the butter is when I noticed the difference.

VegasCeliacBuckeye Collaborator

Ha!!

Celiacs get gas if "the wind changes".......

Symtoms get better as the gluten-free diet goes on, but I can still "light it up" almost upon request...

For some of us, it is as normal as breathing...

Jenn2005 Contributor

My husband gets the gas build up but he is constantly belching. Do any of you belch a lot from the gas? I guess I shouldn't complain because at least I can walk into the bedroom when he's belching. :lol:

Jennifer

ehrin Explorer
My husband gets the gas build up but he is constantly belching.  Do any of you belch a lot from the gas?  I guess I shouldn't complain because at least I can walk into the bedroom when he's belching. :lol:

Jennifer

<{POST_SNAPBACK}>

Yes, I do. My coworkers even said it's been quieter around here since I went gluten-free.

My main symptom is gas. I don't get belly aches or cramping - just severe gas that entails both burping and farting. I also get severe bloating - to the point of where I go up a pant size.

Fun stuff!

Peace

Ehrin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

LOL. Yup.

I was blowing on my boyfriends stomach to make fart noises ( I was torturing him for information) and he piped up with "Boy I miss that sound from when we were first dating".

I was a little gas machine. Belches, farts, you name it.

Mostly gone now. I have a "normal" amount of gas these days.

Elonwy

nettiebeads Apprentice
Okay, every single day, after I eat cookies, a granola bar, pasta, pizza, (I'm on the gluten challenge), I get the WORST GAS EVER! And it lingers!  :lol:

I'm at work and I have to keep running to the bathroom just to let it out in a stall!

Does anyone else get this RIGHT AFTER eating gluten?  :unsure:

This is horrible! My fiance could barley walk into the bedroom a couple of nights ago!  :blink:

If this isn't a sign of SOMETHING, I don't know what to say anymore!

<{POST_SNAPBACK}>

Lucky you! I don't have to eat gluten for gas!!! Good thing I'm in my own office in the back of the building (but it is right next to the kitchen...)

bluelotus Contributor

I forgot to mention the belching....a completely new symptom that I developed in the last few months. I was being glutened in small amounts by various things (unknowingly), and during that time I started burping......hasn't gone away yet, but its only been 2 weeks (at most) since being glutened.

PreOptMegs Explorer

I was always so embarrassed when i would get the worst gas, but I didn't know what it was from or what gluten even was, so I lived with it for a long time. I am so glad that is over.

danikali Enthusiast

Yes! I belch a lot too! And I was so used to it and thought nothing about it, and one day my friend was like, "At least say excuse me!" She was half joking but half not-I think........ :huh: .....but I was just acustomed to burping, especially in the mornings for some reason, I forgot it was kind of rude! :lol:

Guest gfinnebraska

LOL ~ the things we talk about on here!! :huh: I get horrible gas from gluten. Not just loud and often, but the smell would kill most small animals. Have two older sons (19 & 20) and a husband... you can imagine the fun I have! I threaten to eat gluten just to blow them out of the room if they don't behave!!! Hahahaha! No, I have never carried through with my threat, but they don't take any chances!

I go for long walks - alone! - and that helps with the gas if I have any. IF I keep gluten free, then I don't have any gas at all. :)

Canadian Karen Community Regular

Yep! I can join this club too! :P

For me, there is so much gas to go around that it comes out both ways constantly. When I burp, it is not only one burp, but about 10 burps one after the other, with every breath. When it is the other, well, let's just say that someone would rather run over a skunk than be next to me....... :P

Every once in awhile, I get gas so bad and it kinda gets "trapped" in my body. It becomes extremely painful. It actually feels like there are gas bubbles that are rising up and up until there is nowhere else to go. My jaw hurts, my neck and even my ears....... Have you ever had any surgery where they have to blow up your abdomen with air and afterward you have that gas that rests underneath your shoulders and feels like a knife? Well, that's the best way I can describe how it feels....... It's scary when it happens, actually....... :unsure:

Karen

danikali Enthusiast
Yep!  I can join this club too! :P

For me, there is so much gas to go around that it comes out both ways constantly. When I burp, it is not only one burp, but about 10 burps one after the other, with every breath.  When it is the other, well, let's just say that someone would rather run over a skunk than be next to me.......  :P

Every once in awhile, I get gas so bad and it kinda gets "trapped" in my body. It becomes extremely painful.  It actually feels like there are gas bubbles that are rising up and up until there is nowhere else to go.  My jaw hurts, my neck and even my ears.......  Have you ever had any surgery where they have to blow up your abdomen with air and afterward you have that gas that rests underneath your shoulders and feels like a knife?  Well, that's the best way I can describe how it feels.......  It's scary when it happens, actually....... :unsure:

Karen

<{POST_SNAPBACK}>

WOw! I do know exactly what you mean when it get's stuck and it builds up in your whole body! That is a horrible feeling! It usually stays in my stomach and back though.......well, I guess my upper back get's some of it, like right below my backbones. I really hate that.

I'm also a student still and when I'm in class, I can't really let it out. SO I hold it in, when I can't run to the bathroom, and that is when I get the WORST abdominal pains ever. It's my classic "IBS" (or what I thought was IBS before all of this) symptom. It's like, my stomach gets soooooooo big I look like I am pregnant; it gets really really hard! It's like, there is a short string attached from my lower lower stomach to about an inch below my belly button, and when I stand up, and straighten up, the string is too short! So it pulls and causes HORRIBLE pain! It's really hard to walk when that happens, sometimes, I can't, I have to crunch down and get in the fetal position. I used to notice this in high school when I first started drinking beer. I would have like 4 sips and all of sudden, this would happen (except I can't get the gas out then). Well, I stopped drinking beer when going out not long after I discovered this. :blink:

swittenauer Enthusiast

My husband had the worlds worst gas right before he was diagnosed. I specifically remember our wedding day. Ha! He had it forever. It is not funny but you really do have to laugh. I spent a many a night fanning the bedroom door back & forth to keep from suffocating from his gas. Ha!

Rusla Enthusiast
WOw! I do know exactly what you mean when it get's stuck and it builds up in your whole body! That is a horrible feeling! It usually stays in my stomach and back though.......well, I guess my upper back get's some of it, like right below my backbones. I really hate that.

I'm also a student still and when I'm in class, I can't really let it out. SO I hold it in, when I can't run to the bathroom, and that is when I get the WORST abdominal pains ever. It's my classic "IBS" (or what I thought was IBS before all of this) symptom. It's like, my stomach gets soooooooo big I look like I am pregnant; it gets really really hard! It's like, there is a short string attached from my lower lower stomach to about an inch below my belly button, and when I stand up, and straighten up, the string is too short! So it pulls and causes HORRIBLE pain! It's really hard to walk when that happens, sometimes, I can't, I have to crunch down and get in the fetal position. I used to notice this in high school when I first started drinking beer. I would have like 4 sips and all of sudden, this would happen (except I can't get the gas out then). Well, I stopped drinking beer when going out not long after I discovered this.  :blink:

<{POST_SNAPBACK}>

I can so relate to this. At work in our small cubicals it was like quick get that person off the phone and run to the bathroom. I was jet propelled and boy is it different after being gluten free for almost two weeks. I hate that I have to go back to gluten next week for a week. Good thing I work on the days when hardly anyone is in next week.

I have no problems staying gluten free but I will have problems going back.

ianm Apprentice

Major gas and bloating. Even the dog would have to leave the room.

aikiducky Apprentice
I can so relate to this. At work in our small cubicals it was like quick get that person off the phone and run to the bathroom. I was jet propelled and boy is it different after being gluten free for almost two weeks. I hate that I have to go back to gluten next week for a week. Good thing I work on the days when hardly anyone is in next week.

I have no problems staying gluten free but I will have problems going back.

<{POST_SNAPBACK}>

Why are you going back on gluten for a week? Is it to see how you feel, or is it for testing? because if it's for testing, yuo should know by now that a week isn't going to be enough?

Pauliina

jnifred Explorer

peeeeee-eeewwwwww is all I have to say to that.......Oh yeah!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,966
    • Most Online (within 30 mins)
      7,748

    Susan Allsopp
    Newest Member
    Susan Allsopp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Hello @CeliacNew, If you are Vegan to help you feel better, reconsider returning to omnivore.  Actually, since you are already on a very restrictive diet, transitioning to gluten free might be easier for you.  Read the ingredient labels, Particularly vitamin D and Choline require supplements for vegan diet because our primary source is sun, eggs and beef.  B12 also.
    • Wheatwacked
      Once you've completed testing and still don't have improvement, start a trial gluten free diet.  Looking for imprvement that may indicate Non Celiac Gluten Sensitivity, which is 10 times more prevalent than Celiac Disease. Deficiencies in vitamins B6, B12, D, and C can manifest as skin rashes.  Virtual guaranty you are deficient in vitamin D.
    • cameo674
      So those rs numbers tell researchers where the dbSNP is located in a Genome so that other reasearchers or an AI system can look in that specific spot for that Snip of information.  You can look those rs # s by pasting the numbers after rs into the lookup on this page https://www.ncbi.nlm.nih.gov/snp/ right under the Blue header bar at the top of the webpage.  Since you are not a researcher, I do not know how this will help you though.
    • cameo674
      So I posted here once before, and everyone advocated that I get into a GI doc.  I finally got into my functional health appointment on 6/16 to get my blood results evaluated and get the Gastro referral. I was told that I would be fortunate to see a gastro doctor by December, because of the number of people waiting to get in, but they did believe that I needed to see a GI doc among others.  Well, the stars aligned. I got home. I looked at MyChart and it showed an appointment available for later that same day. I never clicked so fast on an appointment time. The gastro doc ran some additional blood work based off the December values that had confirmed my daughter's suspicion that I have undiagnosed stomach issues.  Gastro has also scheduled me to get an upper endoscopy as well as a colonoscopy since it has been 8 years since my last one. She said it would rule out other concerns if I did not show Celiac per the biopsies.  Those biopsies will not occur until August 29th and like everyone here stated, Gastro wants me to keep gluten in my diet exactly as everyone suggested. To be honest, I was barely eating any gluten since I figured I would have plenty of time to do so before testing.  Doc is also looking for the cause of the low level heartburn that I have had for 30 years.  I have mentioned the heartburn to PCPs in the past and they always said take a tums or other OTC drug.  The upper endoscopy is for ruling out eosinphilic esophagitis, h. pylori, and to biopsy the duodenal bulb and second portion to confirm or exclude celiac. The colonoscopy will have random biopsies to rule out microscopic colitis. I didn't really catch her reasoning for the bloodwork.  Doc looked at the December numbers and said they were definitely concerning for Celiac.  She also said, “Hmm that’s odd; usually it’s the reverse”, but I did not catch which result made her say that. She seems very through.  She also asked why I had never bothered to see a GI before.  To be honest, I told her I just assumed that the heartburn and loose stool were a part of aging.  I have been gassy since I was born and thought constantly passing gas was normal?  Everyone I know with Celiac have horrible symptoms that cannot be attributed to other things.  They are in a lot of stomach pain.  I do not go through that.  I attribute my issues to the lactose intolerance that comes with aging, but have slowly been eliminating foods from my diet due to the heartburn or due my assumption that they did not agree with a medication that I was prescribed. I have already eliminated milk products especially high fat ones like ice cream; fats like peanut butter; acids like citrus and tomatoes; chocolate in all forms; and breads more because it is so hard to get in 100 grams of protein if I eat any foods that are not a protein.  I would not have even done the testing if my daughter had not brought up the fact that she thought I might have an undiagnosed condition since she has issues with bloating and another sibling has periodic undiagnosed stomach pain that GI docs throw pills at instead of helping.  Who knew that Bristol scale 5 and 6 were not considered normal especially multiple times a day? I watched my MIL go through basically the same bowel changes starting at 50 so to be honest, I really did think it was normal before this week's appointment.   December 2024's blood tests ran through Quest Labs were:  Deamidated Gliadin (IgA) 53.8 U/mL Above range >15.0 U/mL; Deamidated Gliadin (IgG) >250.0 U/mL Above Range >15.0 U/mL; Tissue Transglutaminase (IgA) 44.0 U/mL Above range >15.0 U/mL; Tissue Transglutaminase (IgG) <1.0 In range <15.0; Immunoglobulin A (IgA) 274 mg/dL In range 47-310 mg/dL 6/16/25 bloodwork:  Until today, I did not really know what all the four tubes of blood were for and since I did not understand the results, I got into the clinical notes to see what was ordered, but it did not exactly explain why for everything. Immunoglobulins IGG, IGA, IGM all came back in range:  IGG 1,010 mg/dL In range 600-1,714; IgA 261 mg/dL In range 66-433 mg/dL; IGM 189 mg/dL In range 45-281.  How do these numbers help with diagnosis? Google says she checked these to see if I have an ongoing infection? I do have Hashimoto's and she did say once you have one autoimmune disease others seem to follow. Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies? Comprehensive Metabolic Panel: Everything was in the middle of the normal range.  Google says this just says I am metabolically healthy. Tissue Transglutaminase ABS test results – Done by the Mayo Clinic’s Labs –  T-Transglutaminase IGA AB --Value: 3.1 U/mL – Normal Value is <4.0 (negative) U/mL; Tissue Transglutaminase, IgG -- Value: 15.3 U/mL High -- Normal Value is <6.0 (Negative) U/mL – Interpretation Positive (>9.0) – These are the only labs the GI did that have been labeled Abnormal.  I am confused at how/why these came back different than the December labs? Because these numbers seem to be the opposite of what the were in December and I know I have eaten less gluten.  They were definitely measured differently and had different ranges. This must be why she said they are usually opposite? Molecular Stool Parasite Panel said I was Negative for Giardia Lamblia by PCR; Entamoeba Histolytica by PCR and Cryptosporidium Parvum/Hominis by PCR.  So at least I do not need to do a parasite cleanse like everyone on TikTok seems to be doing. So I guess, I am just really asking why the Tissue Transglutaminase numbers are different.  Was it because they were truly different tests? Is it because I have not consumed the crazy amount of gluten one is suppose to eat prior to testing? To be honest, I thought that was only for the biopsy testing. I generally only eat twice a day, and the thought of eating the equivalent of 6 slices of bread is daunting. Even in my youth, I probably only consumed the equivalent of maybe 3 slices a day. Like I said before, now I usually focus on trying to eat 60 gram of protein.  I am suppose to consume 100 grams, but have failed to succeed. I will focus on eating gluten starting in July now that I know my procedure date.
    • Scott Adams
      I agree with @trents and wiping down the spot you eat your lunch, and eating the food your brought from home should be safe for even sensitive celiacs. Gluten can jump on your food, so it would likely better better for you to continue eating where you prefer.
×
×
  • Create New...