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Sooo I Went To The Doc..

VydorScope

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VydorScope Proficient
VydorScope
Posted

And gave my two vilas of blood. So now Im going gluten-free agian, and wiating on the results. I hate on wiating. Did I mention that i hate waiting? Cause I realy do. Waiting stinks!!

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VydorScope Proficient
VydorScope
Posted
  • Author

Oh and this is intreating dunno if its related or not but since going on gluten my bp been steadly going up. This time it was 142/98.

VydorScope Proficient
VydorScope
Posted
  • Author

Ugh.. did I mention I hate waiting yet? This stinks. :( Prbly take a lot longer to get reustls cause of Turkeyday too.

CMCM Rising Star
CMCM
Posted
Oh and this is intreating dunno if its related or not but since going on gluten my bp been steadly going up. This time it was 142/98.

<{POST_SNAPBACK}>

That's interesting about the BP....mine is regularly in the range you mention, and for YEARS this has been an issue for me. I'm technically not overweight, in good health other than the celiac disease stuff, don't take medicines EXCEPT....I've tried various BP meds and nothing really helped. Right now I take diuretics for BP and that helps a bit and it usually keeps it around 120/85 or so, but the other day when I was having such a horrible reaction with dizziness etc. it was up to 148/98 or some such. So here's another area that may have a connection to celiac disease....although not always, obviously, because my Mom had LOW BP for years. Go figure!

jerseyangel Proficient
jerseyangel
Posted

My BP is also in the same range as yours. I take 2 different BP meds. now and they seem to be keeping it in the normal range. Its been high for about 8 years now. Does this have something to do with celiac disease or just a coincidence?

WGibs Apprentice
WGibs
Posted

If it makes you feel any better, I'm right here waiting with you. I had more blood taken on Friday, after getting a high AGA result. I still don't think that they are running all the tests people on here ask for, but I'm hoping it'll be enough. I started gluten-free on Saturday and immediately got relief from all my GI symptoms. I really hope I've found an answer! I can't believe how much better I feel...there has got to be a connection.

Part of me feels like I should still be eating gluten, since I may need more tests, but I just don't know if I can -- I feel so much better.

For some reason, though, I'm still expecting my blood work to come back negative.

VydorScope Proficient
VydorScope
Posted
  • Author
If it makes you feel any better, I'm right here waiting with you.  I had more blood taken on Friday, after getting a high AGA result.  I still don't think that they are running all the tests people on here ask for, but I'm hoping it'll be enough.  I started gluten-free on Saturday and immediately got relief from all my GI symptoms.  I really hope I've found an answer!  I can't believe how much better I feel...there has got to be a connection. 

Part of me feels like I should still be eating gluten, since I may need more tests, but I just don't know if I can -- I feel so much better.

For some reason, though, I'm still expecting my blood work to come back negative.

<{POST_SNAPBACK}>

They prbly WONT do all the test, most insurance will only cover one fo the tests, one that is considered for "screening" ttIGA or somthign like that.... I cant keep them straight.

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VydorScope Proficient
VydorScope
Posted
  • Author
My BP is also in the same range as yours.  I take 2 different BP meds. now and they seem to be keeping it in the normal range.  Its been high for about 8 years now.  Does this have something to do with celiac disease or just a coincidence?

<{POST_SNAPBACK}>

Dunno all I know is I used to be on BP meds, then went low carb, lost 50 pounds and stopped the meds. BP was a bit high, but in normal range till I went back on gluten... could be conicdence ... or not, duno.

mightymorg Rookie
mightymorg
Posted

I'm also waiting on my blood test results--I can definetly relate!!

All this BP talk...when I went in on Friday, my BP was 104/61...Wednesday, right before my colonoscopy my BP was 116/84. I thought it would be higher than that because I was scared outta my mind! I guess that's a little high for me now, though...it makes sense though if my BP is going down since I have lost weight from not feeling good.

jerseyangel Proficient
jerseyangel
Posted

Yes! A few years ago, pre gluten-free, I went on the Atkins diet with a friend. I lost about 30 lbs. and was on BP meds. at the time. I got incredibly dizzy, and my BP got really low. Was taken off the meds. and was fine for a short time, but then it crept back up. Now I take Norvasc and Lisonopril. Anyway, hope you get your results back quickly :)

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    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      A little about me and my celiac disease

      By trents · Posted

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Gluten Free Coffee

      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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