Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last Meal Before Dx


par18

Recommended Posts

par18 Explorer

Does everyone remember their last gluten meal before diagnosis. Mine was a ham and cheese on a kaiser roll. 5 mins after eating the GI called with the good/bad news. 5/03/05.

Tom


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel-jd1 Community Regular

Not exactly sure but during that time I couldn't keep any food down so it was probably pedialyte and possibly a jar or baby food.

I wish I had eaten something wonderful like pizza or take-out chineese! ha

-Jessica :rolleyes:

Lauren M Explorer

I had absolutely no knowledge of celiac disease and no idea that I was being tested for it (biopsy taken during a follow-up endoscopy for pancreatitis), so it's kind of funny that my "last meal" before diagnosis was a big pancake breakfast from Perkin's. :P I guess that was a good call on my part.

- Lauren

KarenCM Rookie

My last meal before starting the gluten free diet was homemade pizza. I will never ever forget that last meal.

Karen

lovegrov Collaborator

I was so ill it was a hospital meal. I have no idea what it was.

richard

Guest nini

mine was an avocado sandwich on sourdough bread at the Atlanta Bread Company! I went straight from there to the Dr.s office!

key Contributor

Mine was self diagnosed. I was sick all the time. My son had just been diagnosed with celiac. I had had a bagel from Panera. It made me sick the whole day. Nauseated, belching, bloating, yuck. THat was it. THen I decided I had to try gluten-free. Started feeling better in a week. Had borderline blood results after being gluten-free for 5 weeks. THat was enough for me. NOw if I get gluttened, I feel very sick.

Monica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

Hamburger, with bun, seasoned fries and a diet coke from Backyard Burgers.

jerseyangel Proficient

I seriously don't remember!

danikali Enthusiast

It was reccently actually:

My fiance took me to this resturant that is THE BEST resturant in NYC for -shoot, haha, I forgot what's it's called!- well, it was lamb, in this very thick, AMAZING gravy with this creamy rice all around it and delicious bone marrow (hahah sounds gross) mixed with the gravy......I had TONS of bread for an appetizer and a mozzarella cheese plate-the really gourmet, thick moz. cheese! MMMMMMMMMmm! Then for dessert, we got soft batch chocolate chip cookies and EGG NOG (I love that stuff!!!!!!!!!!!!!!!!!!) and put the cookies in the microwave so they were melted and soft and tasted like we just baked them from scratch!

:( I'm getting sad thinking about this meal! I can't have any of that anymore! Ever! I got so sick! I never want to be like that again! But that last hour was pure bliss!!!!!!!!!!!

Thanks for reminding me! :angry:

Haha, j/k :D

nikki-uk Enthusiast

My husband had a big bowl of cereal('weetabix'!)with milk,

Later in the eve he had one or two beers :blink:

Bowls of cereal are a distant memory now as he's lactose intolerant too !

Carriefaith Enthusiast

Before I started fasting for the biopsy, I had a very big pasta dish at a restaurant called East Side Mario's. That is the last gluten meal that I remember.

Rusla Enthusiast

My last meal was a week long so that my DH could really shine out. So the very last one was Zorba the Greek Pizza from BP.

frenchiemama Collaborator

I knew that it was going to be my last hurrah, so I went out for mexican. I had a big carnitas burrito on a flour shell with everything. It was delicious.

Then my doctor called me with my lab results about an hour after I ate. But it was good.

jenvan Collaborator

can't remember THE last one..but the last few days before i had pasta, homemade soda bread, thai food out and a sam adam's oktoberfest i think.

aikiducky Apprentice

Well, my last gluten meal was a bowl of muesli I ate in an attempt to start eating gluten again for blood tests. It made me so sick I went to have blood drawn the same day. Of course the results were negative. :( I can't say I miss muesli, lol.

Pauliina

Rachel--24 Collaborator

After my last meal I ended up in the ER. I was already very sick but wasnt thinking about gluten because my bloodtests were negative. The meal was some kind of breaded fish sandwich with fries. I only ate half of it because I got too sick. :(

Too bad I had no idea it would be my last...if I had known I probably would have had pizza or a big Italian spaghetti dinner with meatballs and tons of bread.

jen3899 Apprentice

I left the hospital after my upper and lower scope, not suppose to eat until the drugs wore off, but insisted that we stop and get a sub from this sub shop (ebert & gerberts in La Crosse, WI) They have the best bread, makes subways taste like crap! I got a foot long turkey sub with tomatoes, lettuce, and extra mayo! Looking back, I could not have picked something I would have enjoyed more, I just wish I wasnt so doped up so I could remember it better! I did cheat once like a week after DX, with some pizza hut pizza, but I knew how sick it was going to make me so I didnt even enjoy it, I think I had like 2 bites before I chickened out, and then tried to make myself puke hopeing that would help. Ahh what fun....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    5. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,345
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.