Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Alcohol on the Fasano Diet?


disgruntledceliac

Recommended Posts

disgruntledceliac Explorer

Hi folks,

Been on the Fasano Diet for close to six months. Feeling so much better, and my DH finally went away.

With the festive season coming up I'd like to know if there are any alcoholic beverages safe for somebody following the Fasano Diet. Most gluten-free beers I know of contain millet, which isn't okay under this diet.

How about ciders, gin, and vodka? Are they ever safe? Any tips?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
(edited)
7 minutes ago, disgruntledceliac said:

Hi folks,

Been on the Fasano Diet for close to six months. Feeling so much better, and my DH finally went away.

With the festive season coming up I'd like to know if there are any alcoholic beverages safe for somebody following the Fasano Diet. Most gluten-free beers I know of contain millet, which isn't okay under this diet.

How about ciders, gin, and vodka? Are they ever safe? Any tips?

Does the diet list any alcohol? No.  So there is no safe alcohol if you are doing the Fasano elimination diet.  Its done for people who don't respond to the regular gluten-free diet.  So unhealthy/irritating items like alcohol would not be allowed.  

Now, your doctor should be monitoring your repsonse to this diet.  Usually it isn't necessary for more than 3-6 months

 

Edited by kareng
disgruntledceliac Explorer

Thanks for the reply kareng.

Great point. I guess I'm wondering if my stomach healed -- as per the goals of the Fasano diet -- what would be some drinks that would be relatively safe to try? As I mentioned above, I like cider, gin and vodka (to varying degrees) and wouldn't mind giving some of these a try.

 

kareng Grand Master
52 minutes ago, disgruntledceliac said:

Thanks for the reply kareng.

Great point. I guess I'm wondering if my stomach healed -- as per the goals of the Fasano diet -- what would be some drinks that would be relatively safe to try? As I mentioned above, I like cider, gin and vodka (to varying degrees) and wouldn't mind giving some of these a try.

 

I think you should complete your Elimination diet, be re-tested to see if it worked, before you go off the diet.  Obviously, your refractory Celiac is why you went on it.  If it didn't work, you will need to talk to your doctor about where you go next.  

 

PS.  It is your small intestines healing that is the focus of the Fasano diet.   Or maybe "stomach" is just the easy word to use? I do tend to say my "stomach" is upset but mean intestines. ?

cyclinglady Grand Master
(edited)

I am a little confused.  So you went on the Fasano diet with your doctor’s approval to see if you could finally rid yourself of DH, right?  It appears that the diet has been successful because your DH has resolved and now you want to experiment with alcohol.  Chances are your gut has healed too.  Usually DH appears much faster.   I listen to those with DH because if they get glutened they can actually SEE it!   Do you have any good guesses as to how gluten was getting into your diet before the Fasano diet?  Or did you determine you were super sensitive and that 20 ppm was too much for you?  Your response could help fellow DH sufferers.  

Back to alcohol.  I personally would choose a potato vodka and squeeze fresh juice (e.g. an orange) into it.  I did the Fasano diet too and it may or may not have healed my gut.  No way to know for sure.  It did not help my actual stomach because a repeat endoscopy revealed a healed small intestine but autoimmune gastritis.  On the Fasano diet, I did consume coffee with cream.  I did not drink Gatorade.  I think the PED GIs allowed that because kids will drink it and it helps with electrolytes which can be good for active celiacs.  The diet did let me debunk that old silly internet coffee cross reactor myth for sure!!!

 

Edited by cyclinglady
apprehensiveengineer Community Regular
On 12/20/2018 at 6:40 PM, disgruntledceliac said:

Hi folks,

Been on the Fasano Diet for close to six months. Feeling so much better, and my DH finally went away.

With the festive season coming up I'd like to know if there are any alcoholic beverages safe for somebody following the Fasano Diet. Most gluten-free beers I know of contain millet, which isn't okay under this diet.

How about ciders, gin, and vodka? Are they ever safe? Any tips?

Hey. I feel this post.

I am quite sensitive, and am still on a more-or-less Fasano diet. I did the official version (plus whole bean coffee, plus wine), and eventually started adding in additional gluten-free foods as tolerated.

Personally, I have done ok with almost all wines, gluten-free labelled cider, and gluten-free (not removed!) beers from reputable brands. Some gluten-free beers made by smaller companies that also make "real" beer use shared equipment, and some use oats, so I avoid those. For beer, I stick with Glutenberg (inexpensive, widely available, true taste), but Ghostfish is amazing as well if that's available where you are. No problems with those brands.

I'm still a bit apprehensive about distilled alcohols. I understand (and have performed!) distillation, but know that some brands add flavourings etc. post-distillation, or share equipment/have CC risk. As such, I avoid distilled alcohols unless they are willing to claim that they are gluten-free. This goes for food as well (since distilled alcohol/vinegar can appear in food). To be honest, I don't really like spirits, but I think that Tito's (vodka) would be a good option.

 

Beverage Rising Star

If you do try beer, remember to check that it is beer not made with any gluten ingredients ... i.e., GLUTEN REMOVED IS NOT OK for those with Celiac's.  If you can get it in your area, Ghostfish is my favorite, certified gluten free and even tastes good to those that don't have to be gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



disgruntledceliac Explorer

Thanks all for your responses. I tried some locally produced ciders and came out a-okay. It was nice. I'm not a big drinker, but having my first couple drinks in over six months was a nice change of pace during the holidays.

 

I have some Glutenberg that I was gifted. I've avoided drinking it because it is made from millet, which is prohibited while on the Fasano diet. I'm generally adhering to the Fasano diet as my base diet for now, while expanding into other foods to see how I react. (So far so good.) After six months of following the Fasano diet should I be okay to try a Glutenberg?

apprehensiveengineer Community Regular
1 hour ago, disgruntledceliac said:

Thanks all for your responses. I tried some locally produced ciders and came out a-okay. It was nice. I'm not a big drinker, but having my first couple drinks in over six months was a nice change of pace during the holidays.

 

I have some Glutenberg that I was gifted. I've avoided drinking it because it is made from millet, which is prohibited while on the Fasano diet. I'm generally adhering to the Fasano diet as my base diet for now, while expanding into other foods to see how I react. (So far so good.) After six months of following the Fasano diet should I be okay to try a Glutenberg?

That's good to hear! I have had good luck with small-time local ciders. I always choose ones that say they are gluten-free on the label - most do in Canada these days it seems, which is nice.

I'd say you should feel pretty confident about the Glutenberg. They test their products at an independent lab and don't put it out unless the result is below the detection limit: https://glutenberg.ca/en/faq

I've not had too many problems with adding back in products with non-rice gluten-free grains. For me it seems, the company is more important. For me, a big break-through was realizing that I was probably getting dinged a little from companies that produce gluten-free oats alongside gluten-free products that do not contain oats. I cannot tolerate oats at all, but never thought about this possibility much until I ate a "100% yellow corn chip" that was grey-ish and tasted like oat cakes. The company confirmed that my package had been manufactured in their gluten-free factory, and that they make cereals/granola on the same lines as their corn chips, meaning that my weird chip was likely some oat run leftover. Boo.

Anyways... Glutenberg is one of the few companies I buy grain-based things from. I drink a lot of their beer, too. The other is Kinnikinnick (bread, mixes, baked goods). They make a specific statement that they don't use oats.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,738
    • Most Online (within 30 mins)
      7,748

    Jenn.mnc
    Newest Member
    Jenn.mnc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lizzie42
      Hi, My 3 year old was diagnosed a couple months ago. We went gluten free, very strict, and everything improved. Energy, no more meltdowns, bad rash is mostly gone. She's doing great. Except she complains every day of stomach pain. She describes it as squeezing. Any ideas from anyone?  We cut out oats and it didn't make any difference. She doesn't drink milk, though she has cheese. It doesn't seem to coincide with the cheese. She says it hurts when she wakes and then other random times during the day.  We are SO strict with her food. We don't eat out, out whole house is gluten-free. I make everything from scratch. She eats very healthy. She's not picky and we do tons of fruit, veggies, meat, etc. we don't do a lot of processed food. 
    • badastronaut
      Ok so I couldn't find the thiamine you suggested but I was able to buy a bottle of 'standard' thiamine (100 mg). Should I just try half a tablet to see if I notice any difference? If it turns out it does have effect I can always buy the more expensive stuff. Or is that not a smart idea?
    • knitty kitty
      @cristiana, Yes, I found high carbohydrate meals would trigger mine as well.  I learned from Dr. Lonsdale that high carbohydrate diets can deplete thiamine.  Heart palpitations are a symptom of thiamine insufficiency.  Diets high in refined simple carbohydrates (empty calories) need additional Thiamine to process the carbs into energy.  The more carbs one eats, the more Thiamine is required to process the additional calories.  500 mg more Thiamine is required for every additional one thousand calories.  This is named "High Calorie Malnutrition."  Sufficient calories are being consumed, but not enough of thiamine to burn the carbs for energy.  Instead to ration out the small supply of thiamine, the additional calories are stored as fat.  It takes less thiamine to burn fat than to burn carbs.    Do read Dr. Lonsdale' article here... Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      I used to suffer with migraines, but I have rarely had one since I started taking additional Thiamine.  The form called TTFD (tetrahydrofurfuryl disulfide) can improve neurological functions in the brain.  Benfotiamine is another form that improves migraines. Look at the label on your B Complex vitamins.  It should tell you what form of thiamine is in it.  If it says thiamine mononitrate, you're probably not getting sufficient thiamine.  Thiamine Mononitrate is a form used in vitamin supplements and foods because it is shelf stable.  Shelf stable means it won't break down when exposed to heat and light sitting on a shelf waiting to be bought in a store or warehouse.  It also is very difficult for the body to break it down and utilize it.  Only about thirty percent of the amount of thiamine mononitrate on the label is absorbed.   Do take a look at Dr. Lonsdale and Dr. Marrs' website hormonesmatter.com.  Dr. Lonsdale has done much research on Thiamine.   Keep us posted on your progress!
    • knitty kitty
      @DebJ14 The Spectracell Test for Micronutrient Deficiencies tests  intracellular levels of the nutrients INSIDE Leukocytes (white blood cells) which are in the bloodstream.  This still is not reflective of current stored vitamin levels inside organs.   The genetic MTHFR mutation does occur frequently with Celiac Disease.  Taking the methylated (activated) forms of the B vitamins is necessary.   A good multivitamin may not be sufficient to correct deficiencies.  Malabsorption due to the intestinal damage of Celiac Disease may prolong deficiency states.  Vitamin deficiencies need to be corrected quickly to prevent long-term problems.  Taking a B Complex twice a day increases absorption.  Taking a multivitamin as well is fine as multivitamins usually also contain some necessary minerals.
×
×
  • Create New...