Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else Not Really Gain Or Lose Weight After Becoming gluten-free?

jkmunchkin

By jkmunchkin
in Related Issues & Disorders

Recommended Posts

jkmunchkin Rising Star
jkmunchkin
Posted

I always see posts of people who either gained a ton of weight or lost a ton of weight after becoming gluten-free, but did anyone just kinda maintain their same weight without really trying?

When I first started eating gluten-free (The first 4 months or so), I lost maybe 8 lbs., but for me any weight loss is a lot because I'm really thin to begin with. I'm still probably a few lbs. less than what I was previously but really not that much change. And I eat a fair amount of the gluten-free cookies, cakes and candy.

I'm not complaining because it's not like I want to gain 20 lbs. but I'm just wondering if anyone else had this same experience.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

I lost 25 lbs. total and have only gained back about 8 of it. Its been about 5 months now with no change. I'm bummed because I'd love to have all my weight back but right now I'm only 103.

jerseyangel Proficient
jerseyangel
Posted

My weight issues with Celiac weren't dramatic, either. In the months before my Dx, when I was the sickest, I lost 15 lbs. Within 2 months of starting the gluten-free diet, I gained 10 lbs. back and have since gained 2 more. I seem to be staying at this weight--although I wouldn't mind losing the 15 again, but this time in a healthy way!

gabrielle Contributor
gabrielle
Posted

I have the same weight issues as well. I lost a total of 20 pounds. Now, I am only 103 pounds and sometimes I fluctuate between 101-105. But really no big weight gain/loss (Since going gluten-free). I am only 5'2" so I guess I really don't need the extra weight, but I figured once I went gluten-free that some pounds would come back. Not so.

Felidae Enthusiast
Felidae
Posted

I initially gained about five pounds and my weight has not changed since. I eat constantly too since I'm always hungry. I wouldn't mind another five pounds but it just remains stable. Before I was gluten-free my weight always fluctuated so I guess this is a good thing.

burdee Enthusiast
burdee
Posted

I had lost about 3# when I had very painful symptoms, before going gluten free. Then I gained back 4# in my first few weeks abstaining from gluten. Now I stay in the same 3# range. I've been 105-110# at 5'4" for 38 years, so I didn't really expect a big weight change. Besides I like my clothes and can't afford many new ones. :lol:

BURDEE

elonwy Enthusiast
elonwy
Posted

I didn't gain or lose weight, but I did lose the bloating, which had always made me feel ten lbs heavier. I never really had weight problems though. I'm 5'1 & 3/8" and weigh 130lbs.

Elonwy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mouse Enthusiast
mouse
Posted

I lost 53 pounds, which I needed to lose, just not this way. :P The doctor said that I would gain some back but I have not. I am 5"8 1/2 and weigh between 131 1/2 to 133 1/2 pounds. I have been gluten free for 2 years this Feb. 3rd. After we moved to this townhome last June, I dropped another 10 pounds from the 135 I was at. He did an MRI for colon cancer and I was fine, but for the first time in my life I had to count calories up to gain most of the 10 pounds back. The problem was that I drank 2 Ensures (soy allergy) and 2 Frappachinos (dairy allergy) each day. There was no way I could eat that many calories without going into my food allergies. I was using my nebulizer so many times a day, just trying to stop the asthma. And my body just itched something horrible. But no way was I going to stay in a size 6 pair of jeans. I had already sold all my bigger clothes and bought and had alterations done on what I could keep. I was not going through that again. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
I have the same weight issues as well. I lost a total of 20 pounds. Now, I am only 103 pounds and sometimes I fluctuate between 101-105. But really no big weight gain/loss (Since going gluten-free). I am only 5'2" so I guess I really don't need the extra weight, but I figured once I went gluten-free that some pounds would come back. Not so.

I'm exactly the same as you. Same height, same weight, same fluctuations. I probably will never gain all my weight back but I'd love to get to at least 115. Oh well...at least I'm over 100 now..6 months ago I was at 94 lbs.

mookie03 Contributor
mookie03
Posted

well, its obvious that with celiac, eating gluten and not eating gluten affect every single person differently- some gain before and lose after, some lose before and gain after, and some remain pretty much the same. I didnt ever lose weight prior to going gluten free. When i first went gluten-free, i gained a few pounds in the first 6 months- but more b/c i was ODing on the gluten-free snacks. Now im pretty much back to where i always was, so no net change. And when i say a few pounds, im small like u, so i really mean A FEW POUNDS- like 5. My weight has never fluctuated more than a few pounds.

I think that if ur diet hasnt done a huge overhaul, theres no reason ur weight should change. Replacing cookies for gluten-free cookies isnt likely to make you gain weight if the rest of ur diet has become more healthy-- are u eating more fruit and veggies now? fewer bad carbs? i know for me, this diet has caused me to eat a bit healthier in general so the extra calories from the gluten-free snacks doesnt cause me to gain weight. but everyones bodies are different so i think the excessive weight gain/loss has more to do w/ an individual's absorption

Rikki Tikki Explorer
Rikki Tikki
Posted

Proir to diagnosis I lost about 25 pounds and after diagnosis I didn't put any weight on, I seemed to either drop a few pounds or maintain the weight. In the last six months I have put back on a few pounds and am now 5'7" and when I weighed last week I was at 125. So that means I have put on about 10 pounds, but it has taken me 3 years to do it. I think if I get to 130 and maintain that I would be happy. I think a lot of it is that we have taken out the bread, pasta's things like that, the ones that seem to have a lot of calories. Just a theory.

gabrielle Contributor
gabrielle
Posted
I'm exactly the same as you. Same height, same weight, same fluctuations. I probably will never gain all my weight back but I'd love to get to at least 115. Oh well...at least I'm over 100 now..6 months ago I was at 94 lbs.

Yeah, 115 would be nice... I hate people saying to me, "You're too thin...eat something." But I eat all the time!! I just can gain the weight. It's comforting to know that others understand your situation- especially when you feel like no one in the world could understand!

  • 3 weeks later...
ebrbetty Rising Star
ebrbetty
Posted

I'm still loosing, about 103 lbs at 5 feet 6..I stopped most of my cardio, but still do my weight lifting. in the winter ppl think i'm anorexic because i'm covered up, once the summer hits they're in shock at the muscle tone, I've had ppl apologize to me for things they were thinking about my weight

Moongirl Community Regular
Moongirl
Posted

105 pre dx....Im 5'3 and 2 months gluten-free, I lost about 3 pounds since, and im about 102 right now...i would love to be able to get back up to 110-115. I used to be 125 when i was about 21, now Im 26.

key Contributor
key
Posted

I have lost about 2 lbs gluten free. I think I just don't eat as much. IT is hard being vegetarian. I had lost though before because of celiac. I am 5'2inches and 103lbs now. Everyone thinks I am too skinny. I am kind of sick of it. My husband thinks it is fine, but people think I should gain weight. I don't try either way. I just stay the same basically. I do exercise, because I enjoy it. It gets me out and clears my mind. I have three boys under six years old and I homeschool, so it is more for my mental health and overall health. NOt for weight loss.

MOnica

jenvan Collaborator
jenvan
Posted

Hmmm... I gained 6lbs after going gluten-free, after about 6mos and I've lost 3 of that :) So in a few more I'll be back to my normal, which for me is a healthy weight. I attribute part of those 6lbs to not having energy to work out and trying to many gluten-free baked goods! :)

marcmtl Newbie
marcmtl
Posted

I weigh 145 which is 15 lbs less than i did 5 years ago when first told i have celiac. I have not been able to gain weight. I do go to the gym 4 times a weeks and thought that would help and did to some extent but i find that i am thin for my size. I eat my 3 meals a day and some snacking but tend to eat very healthy. I have a cousin with the same condition and like me all we ever hear is you are too thin but we feel good so maybe this is just how we are supposed to be.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,174
    • Most Online (within 30 mins)
      7,748
    jaxie
    Newest Member
    jaxie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jane878
      My mo,ther married a bread making when I was 4

      By Jane878 · Posted

      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Sheila mellors
      Is Toblerone Gluten-Free?

      By Sheila mellors · Posted

      I asked about the new fruit and nut one and the Dietician said yes I could eat it safely. Hooe this helps
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
×
×
  • Create New...