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Wow...mouth Ulcers


Celia the Celiac

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Celia the Celiac Apprentice

Well...I've just had a bunch of mouth ulcers pop up. Concerned, I went under askjeeves.com and asked for the causes. Did you know "Celiac" came up in the list of causes. Does anybody have a similar story about this and more info?

Thanks,

Celia


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karisox Newbie

I used to get mouth ulcers all the time before I started the gluten free diet. Now when I get them it's usually because I've eaten flour on accident somewhere.....so thankfully thats not often.

Good luck with them, they are no fun. I used to get them down my throat...sorry i know its gross but it is very difficult to live with.

Guest Viola

Mouth Ulcers seems to be a common problem amoung Celiacs when contaminated with gluten.

Also, they tend to show up when one gets into way too much sugar goodies. :rolleyes:

CeliaCruz Rookie
Also, they tend to show up when one gets into way too much sugar goodies. :rolleyes:

I also get them when I eat too many salty snacks, MSG or anything citrus-y.

jerseyangel Proficient

I used to get them often, pre gluten-free. They usually showed up when I was 'sick'. Now, I only get them if I drink a lot of grape juice.

penguin Community Regular

Most tree nuts (but not almonds and macadamia nuts) do it for me, as well as some dark chocolate...

There's just something in them that doesn't agree with my mouth :o

zip2play Apprentice

When I get glutened I get mouth ulcers, it's typically the first sign I have!

Monica


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Celia the Celiac Apprentice

Thanks everyone on your posts. I went to Houston yesterday and ate out at a Mexican Restaurant. I was real careful with what I ordered but my food must have been contaminated with some gluten. I'm paying for it today. No energy and alot of gas. Yuck....just when I thought I was healing well, a set back!

paulasimone Rookie

there was another forum on this called "mouth sores".

here's my post from there about changing your toothpaste to non-SLS (from a lifetime of horrible ulcers to almost never!) - you can view other posts from there:

Open Original Shared Link

good luck!

:)

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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