How I realized I had Celiac Disease

[MrPK]

I was an avid meditator, the deeper I went the more Chaotic it all got though. I went deeper and deeper but the more painful it got. My brain was going crazy. I went really deep one day and then my brain began getting attacked 24 hours a day non-stop. I was eating Wheat daily.

 

Flashback! I developed cold hands and feet, increasing fatigue at age 14. I was always fatigued as a youngster really worsening at 14. Diagnosed as Thyroid issues, perhaps caused by Wheat? I could not run far my heart was weak as were my lungs. I would lift weights for months with no strength gains. I could not focus. I was always tired.

 

Back to the future! So my brain was attacked crazy headaches progressed to more cold limbs then circulation started cutting off and my nerves started letting off pain signals. Fluid was building in my lungs.. I had a heart attack... Age 28 guy who took perfect care of himself..(except for Wheat). My brain was still being attacked, I was emotionally dead at this point I had became numb. I saw doctors through this process but it was all bs and even got recommended psychiatrists who recommended anti-depressant meds... Age 29.

 

Finally went to the doc told him I needed a ********* Wheat test, had it and it was positive. I learned about the Wheat stuff googling, luckily came across this forum. My life depended on it. I had no digestive symptoms maybe because I ate really healthy utilizing spices plus garlic/ginger daily which may have counteracted digestive symptoms.

I took Wheat out, eating healthy(as I was before just minus Wheat), stayed balanced and resting now improving for the past months. Systemic inflammation going away. Everything steadily improving, Brain, Heart, Lungs, my mitochondria had burned out as the brain attacks burned everything out. They are recovering and starting to generate some energy now. I was waking and sleeping in a dead state with zero energy zero emotion zero hunger zero happiness zero sadness. My brain was fried. It is improving as is everything else. Hopefully I can find some balance, the war is over now. I made it out.. Just hope I can recover. Unique stories come from this Wheat thing.

[MrPK]

The Brain attacks immediately improved after dropping Wheat and were completely gone within a month. Now it's just a long road to recovery. I hope I can recover to a nice stable state that will allow me to enjoy life.

[Scott Adams]

Wow, that is quite a story. I'm glad you found our forum and it has helped you, and welcome!

So hopefully you mean "gluten" and not just wheat, because gluten in also in rye and barley, and can be a hidden ingredient in many things that you should avoid on this list:

 

[MrPK]

4 hours ago, Scott Adams said:

Wow, that is quite a story. I'm glad you found our forum and it has helped you, and welcome!

So hopefully you mean "gluten" and not just wheat, because gluten in also in rye and barley, and can be a hidden ingredient in many things that you should avoid on this list:

Thanks, I've never had that other stuff but yeah I make sure not to after realizing they contain gluten as well. I know gluten is the chief culprit but I just said Wheat in general because I read other stuff in Wheat can cause issues as well. So I didn't want to specifically blame gluten only, I want to blame the whole enchilada lol. I'm starting to think Wheat is bad in general for everyone after reading some studies stating it causes issues like gut permeability in all. Nobody can fully digest it. It may just be a spectrum of how bad of a reaction a person has to it. So I hate the whole thing lol. 

They say you can become adverse to it at any age, I remember reading about an 82 year old woman who developed Celiac at age 75. I don't know why anyone would eat this stuff, nobody is guaranteed safe.

 

Some estimates now say ~10% of population is adverse to it, I'm guessing they'll eventually realize it's bad for everyone. Sure was for me.

[GFinDC]

Hi MrPK,

Did you get your test results for celiac disease from the doctor?  That would be interesting to see for us.  Usually they give the DGP IgA and DGP IgG test plus total serum IgA.  The total serum IgA is a test to show if your body makes IgA antibodies.  Some people's bodies don't.  So the IgA tests are meaningless for those people.

The other part of celiac diagnosis is an endoscopy.  They take biopsy samples of the small intestine to check them for celiac like damage.

The doctor should also test you for vitamin and mineral levels.  Sometimes we are low on vitamin D and some minerals.  B-12 and other B vitamins can also be problems.

You may find it is better to cut out dairy and oats also.  At least for a few months to see if it makes a difference.

Welcome to the forum!

[MrPK]

16 hours ago, GFinDC said:

Hi MrPK,

Did you get your test results for celiac disease from the doctor?  That would be interesting to see for us.  Usually they give the DGP IgA and DGP IgG test plus total serum IgA.  The total serum IgA is a test to show if your body makes IgA antibodies.  Some people's bodies don't.  So the IgA tests are meaningless for those people.

The other part of celiac diagnosis is an endoscopy.  They take biopsy samples of the small intestine to check them for celiac like damage.

The doctor should also test you for vitamin and mineral levels.  Sometimes we are low on vitamin D and some minerals.  B-12 and other B vitamins can also be problems.

You may find it is better to cut out dairy and oats also.  At least for a few months to see if it makes a difference.

Welcome to the forum!

My family doctor closed his practice temporarily due to health issues since the Coronavirus, so I can't get the test results yet. I had a paper I was given that had those numbers on it but threw it away. I will get those when I go to get re-tested in a couple months. Then I can post the before and after.

I dropped dairy for the first month and then re-introduced it, I noticed the inflammation only started leaving my body when I dropped dairy along with Wheat. That month was a huge relief. The month before that with no Wheat was good and positive finally I was improving but dropping milk for a month was night and day... Maybe I will try to drop it for another month down the road to see how things improve.

So far I feel fine on Oats, I really enjoy them for breakfast so I hope I don't need to cut them. I am improving and feel good eating them. The re-test will tell me. I have read oats bothers some people, thanks for the heads up.