Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Almond Reaction


JoelW1lls

Recommended Posts

JoelW1lls Apprentice

Hello, another post here from me!

 

So recently I have been more sick than usual (after drinking cherries and orange juice, home made omelette eg etc.). And yesterday I threw up after eaten eggs and bacon, then I had a gluten free jam tart yesterday and threw that up, but the day before I had my usual chicken jalfrezi microwave meal and was sick after that. So yesterday when I was throwing up I was still throwing up the chicken curry AND jam tarts and I tried throwing it up as much as I could and today felt a bit of it still inside. I had then a banana with a bit of black on it (which in the past has been fine) and then had a gluten free almond slice and was then sick after that. Could this mean that I could be allergic to almond or is it triggered when I already have sick inside of me?  My worry is that I'm dependent on these snacks and don't want to not take these, anyone have any suggestions? The only think that's highlighted on the curry is mustard.

 

Thank you all for your help on my previous posts as well!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

Look into the Autoimmune Paleo Diet....  this is the book I found most helpful, easy to read, lots of illustrations, charts, etc. for visual learners....

https://www.thepaleomom.com/books/the-paleo-approach/

 

Think easy to digest foods...soups or stews that's been simmering until very soft and mushy.  

Keep a food/mood/poo'd journal to pinpoint problematic foods. 

Some foods contain high levels of histamine. Your body already makes histamine as part of the immune response.  So, eating more histamine in foods can make you feel bad.  Try to avoid high histamine foods like eggs, citrus fruits, nuts, spicy foods (mustard and curry), and over ripe fruit, and foods with lots of sulfur in them (pork, wine).  

Stick with meat and veggies.  Avoid gluten free facsimile foods because they often are made from corn which can be rough on the gut. 

Avoid dairy and all grains including oats (for now until you heal a bit).  Avoid nightshades (potatoes, tomatoes, peppers, and eggplants).  

Do look into taking a B Complex vitamin supplement.  Look into taking additional thiamine Vitamin B1 (500 mg a day or more).  Throwing up is a symptom of thiamine insufficiency.  Thiamine is water soluble and nontoxic.  

And remember to stay hydrated.

Hope this helps!  

 

 

 

JoelW1lls Apprentice
On 4/3/2021 at 8:25 AM, knitty kitty said:

Look into the Autoimmune Paleo Diet....  this is the book I found most helpful, easy to read, lots of illustrations, charts, etc. for visual learners....

https://www.thepaleomom.com/books/the-paleo-approach/

 

Think easy to digest foods...soups or stews that's been simmering until very soft and mushy.  

Keep a food/mood/poo'd journal to pinpoint problematic foods. 

Some foods contain high levels of histamine. Your body already makes histamine as part of the immune response.  So, eating more histamine in foods can make you feel bad.  Try to avoid high histamine foods like eggs, citrus fruits, nuts, spicy foods (mustard and curry), and over ripe fruit, and foods with lots of sulfur in them (pork, wine).  

Stick with meat and veggies.  Avoid gluten free facsimile foods because they often are made from corn which can be rough on the gut. 

Avoid dairy and all grains including oats (for now until you heal a bit).  Avoid nightshades (potatoes, tomatoes, peppers, and eggplants).  

Do look into taking a B Complex vitamin supplement.  Look into taking additional thiamine Vitamin B1 (500 mg a day or more).  Throwing up is a symptom of thiamine insufficiency.  Thiamine is water soluble and nontoxic.  

And remember to stay hydrated.

Hope this helps!  

 

 

 

Thank you so much for this! I avoided the foods you suggested yesterday and it worked. The thing that is concerning me though is that you say not to eat food high in sulfur yet fish and chicken and stuff is high in that, so it means like I can't really eat anything and on the website of that book, it says to include fish in the diet so a bit confused on that. Also, I can't buy the book because I'm from Britain

CMCM Rising Star
17 hours ago, JoelW1lls said:

Thank you so much for this! I avoided the foods you suggested yesterday and it worked. The thing that is concerning me though is that you say not to eat food high in sulfur yet fish and chicken and stuff is high in that, so it means like I can't really eat anything and on the website of that book, it says to include fish in the diet so a bit confused on that. Also, I can't buy the book because I'm from Britain

I got really sick the other night after having a fish oil capsule.  I've had trouble with them before, and also after eating fish.....although not always after fish, so it's frustrating figuring out what is causing what.   I definitely can't take a fish oil pill on an empty stomach.  I hate having to mostly avoid fish and fish oil...don't see any other choice, though.

I've been taking Vitamin B1 (benfotiamine) for a couple of weeks on a recommendation from several people on this forum, and I do think it's helping with things in general as my gut was in a rough state and it seems much better now.  Here's a definition of benfotiamine if you don't know about it: 

Benfotiamine is a relative of thiamine, which is better known as vitamin B1. Thiamine is critical for the metabolism of our brain's major energy source—glucose. Benfotiamine, which converts to thiamine in the body, enters cells more easily than thiamine.

GFinDC Veteran
5 hours ago, CMCM said:

I got really sick the other night after having a fish oil capsule.  I've had trouble with them before, and also after eating fish.....although not always after fish, so it's frustrating figuring out what is causing what.   I definitely can't take a fish oil pill on an empty stomach.  I hate having to mostly avoid fish and fish oil...don't see any other choice, though.

....

I don't know if this is the problem, but fish oil is an organic oil so it c an go bad/rancid if left sitting out at room temperature.  It's better to keep fish oil capsules in the refrigerator or freezer even.  Just a thot.

knitty kitty Grand Master
On 4/4/2021 at 8:29 AM, JoelW1lls said:

Thank you so much for this! I avoided the foods you suggested yesterday and it worked. The thing that is concerning me though is that you say not to eat food high in sulfur yet fish and chicken and stuff is high in that, so it means like I can't really eat anything and on the website of that book, it says to include fish in the diet so a bit confused on that. Also, I can't buy the book because I'm from Britain

I'm pleased to hear that you are making progress!

You get to become a Celiac Guinea Pig now and experiment with chicken and fish and what YOUR system will tolerate.  

The book is available on Amazon.co.UK  and on some used book seller sites (abebooks) and ebay.  I hope you can find a copy.  

Keep us posted on your progress!

 

knitty kitty Grand Master
9 hours ago, CMCM said:

I got really sick the other night after having a fish oil capsule.  I've had trouble with them before, and also after eating fish.....although not always after fish, so it's frustrating figuring out what is causing what.   I definitely can't take a fish oil pill on an empty stomach.  I hate having to mostly avoid fish and fish oil...don't see any other choice, though.

I've been taking Vitamin B1 (benfotiamine) for a couple of weeks on a recommendation from several people on this forum, and I do think it's helping with things in general as my gut was in a rough state and it seems much better now.  Here's a definition of benfotiamine if you don't know about it: 

Benfotiamine is a relative of thiamine, which is better known as vitamin B1. Thiamine is critical for the metabolism of our brain's major energy source—glucose. Benfotiamine, which converts to thiamine in the body, enters cells more easily than thiamine.

 

Fish oil caps are a problem for me, too.  I switched to flax seed oil caps for the omega threes and separate vitamin D and vitamin A supplements.  

Skip fish for now and try it again in three to six months.  This is the fun Celiac Guinea Pig part where you test foods, record the reaction in your food/mood/poo'd journal and try them again in a few months.  

Some foods I wasn't able to tolerate at first, but I was able to tolerate later as my intestines healed and my body began functioning better.  

I'm so happy you've found good results with benfotiamine!  

Tryptophan and the amino acid L-Theanine are also beneficial.  Tryptophan, a form of niacin B2, is instrumental in healing the intestinal lining.  

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star
2 hours ago, knitty kitty said:

 

Fish oil caps are a problem for me, too.  I switched to flax seed oil caps for the omega threes and separate vitamin D and vitamin A supplements.   

Tryptophan and the amino acid L-Theanine are also beneficial.  Tryptophan, a form of niacin B2, is instrumental in healing the intestinal lining.  

 

Thanks for the flax seed oil suggestion.  Any recommendation for which brand, and are amounts the same as with fish oil?

I'll check out Tryptophan and L-Theanine.

knitty kitty Grand Master

I use Naturewise Organic Flaxseed oil.

Scott Adams Grand Master

I use Nature Made available at Costco.

  • 2 months later...
JoelW1lls Apprentice
On 4/3/2021 at 8:25 AM, knitty kitty said:

Look into the Autoimmune Paleo Diet....  this is the book I found most helpful, easy to read, lots of illustrations, charts, etc. for visual learners....

https://www.thepaleomom.com/books/the-paleo-approach/

 

Think easy to digest foods...soups or stews that's been simmering until very soft and mushy.  

Keep a food/mood/poo'd journal to pinpoint problematic foods. 

Some foods contain high levels of histamine. Your body already makes histamine as part of the immune response.  So, eating more histamine in foods can make you feel bad.  Try to avoid high histamine foods like eggs, citrus fruits, nuts, spicy foods (mustard and curry), and over ripe fruit, and foods with lots of sulfur in them (pork, wine).  

Stick with meat and veggies.  Avoid gluten free facsimile foods because they often are made from corn which can be rough on the gut. 

Avoid dairy and all grains including oats (for now until you heal a bit).  Avoid nightshades (potatoes, tomatoes, peppers, and eggplants).  

Do look into taking a B Complex vitamin supplement.  Look into taking additional thiamine Vitamin B1 (500 mg a day or more).  Throwing up is a symptom of thiamine insufficiency.  Thiamine is water soluble and nontoxic.  

And remember to stay hydrated.

Hope this helps!  

 

 

 

Hi, me again! It's been a while since I commented on this thread here but I wanted to ask about the Paleo Diet. I saw online on of their websites that it can heal the gut or something like that in 30 days, so this may sound stupid, but I was wondering if I could follow this diet for 30 days and then go back to the gluten free food that I was eating, maybe in smaller amounts and excluding ones that cause a leaky gut?

Thanks. 

JoelW1lls Apprentice

Also, I am quite concerned with the level of food that I have to cut out, even looking at some recipes on the Paleo Diet, some of the ingredients involve eggs and almond flour and stuff like that, seems like I'm limiting myself to quite a lot

 

Scott Adams Grand Master

@JoelW1lls I forgot your specific circumstances, but if you've been diagnosed with celiac disease, or have non-celiac gluten sensitivity, these are considered to be lifelong conditions which require a gluten-free diet, so it would not be a good idea to add gluten back into your diet ever.

JoelW1lls Apprentice
2 hours ago, Scott Adams said:

@JoelW1lls I forgot your specific circumstances, but if you've been diagnosed with celiac disease, or have non-celiac gluten sensitivity, these are considered to be lifelong conditions which require a gluten-free diet, so it would not be a good idea to add gluten back into your diet ever.

Yeah that's completely off the table now, but some other foods I have had bad reactions to as mentioned above. However, I am in the process of getting an endoscopy three weeks since Monday, I had a piece of wheat chocolate cake Monday, but couldn't bear myself to do it yesterday or today. Currently waiting for a phone call from my doctors about it etc. I live in the UK so hopefully I can get support from a dietician depending on whatever happens next

Scott Adams Grand Master

If you are doing an endoscopy to confirm diagnosis of celiac disease you need to eat 1-2 sliced of wheat bread daily for at least 2 weeks before the test, otherwise you could get false negative results.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748

    Heather8280
    Newest Member
    Heather8280
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.