Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

worried about endoscopy

ellajones
 Share

Recommended Posts

ellajones Rookie
ellajones
Posted

Hi guys, I have made some other posts on here but just thought id make a post now as my exams are almost done and I am having an endoscopy in just over a month. I will start eating gluten on Saturday and safe to say im scared both about the endoscopy and the 4 weeks of gluten before it!

I was just wondering if anything has anyone advice on how to deal with eating gluten after not having it for so long. My main issues are insane bloating and extreme abdominal pain which has continued during my gluten free diet (hence the endoscopy) so my issue may not even be with gluten so it might be not as bad as im thinking. I am about to turn 18 and have my last a level on Friday and therefore have a few things planned to celebrate, so im really hoping im not going to be too bad.

also if anyone has had an endoscopy done and could say anything about it that would be great, I am quite scared of hospitals and needles!

any help would be great :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GodsGal Community Regular
GodsGal
Posted
4 hours ago, ellajones said:

Hi guys, I have made some other posts on here but just thought id make a post now as my exams are almost done and I am having an endoscopy in just over a month. I will start eating gluten on Saturday and safe to say im scared both about the endoscopy and the 4 weeks of gluten before it!

I was just wondering if anything has anyone advice on how to deal with eating gluten after not having it for so long. My main issues are insane bloating and extreme abdominal pain which has continued during my gluten free diet (hence the endoscopy) so my issue may not even be with gluten so it might be not as bad as im thinking. I am about to turn 18 and have my last a level on Friday and therefore have a few things planned to celebrate, so im really hoping im not going to be too bad.

also if anyone has had an endoscopy done and could say anything about it that would be great, I am quite scared of hospitals and needles!

any help would be great :)

Hi Ellajones!

Glad to talk to you. I hope your exams are going well.

I realize that you are starting a gluten challenge. I am curious, how long have you been gluten free? Sometimes it can take a long time for your gut to heal and for symptoms to improve. And sometimes gluten can be found in crazy places like toothpaste, soaps, cosmetics, lotions, lip balms, etc. Is your family gluten free or are you the only one? 

I had my endoscopy in February 2020. I was nervous about it too. My experience was not bad. I was given the option of either going under general anesthesia or having conscious sedation. I felt like it would be a little uncomfortable to be awake. So I chose general anesthesia. They did start an IV line, but I didn't feel any other needles. 

When they took me into the operating room, the doctor confirmed the procedure I was there for, the staff helped me get into position, and I fell asleep. The next thing I knew, I was back in a recovery room and the nurse was telling me it was time to wake up. I felt like I had taken a nice nap.

I don't recall even seeing the scope. But I did get a paper printout of the pictures the scope took. I thought that was pretty cool!

Facing a new medical procedure can be nerve wracking. You can do this, my friend. Keep us posted!

Scott Adams Grand Master
Scott Adams
Posted

This article might be helpful:

 

  • 2 weeks later...
BuddhaBar Collaborator
BuddhaBar
Posted

About the endoscopy. Ask for a double dose of sedatives! I did and I don't remember anything 😀 

Make the glutening worth it. Don't eat boring bread. Eat cookies, cakes and pizza! 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,126
    • Most Online (within 30 mins)
      7,748
    Sheryll C
    Newest Member
    Sheryll C
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NoriTori
      Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems

      By NoriTori · Posted

      @Scott Adams No one said anything about eating gluten consistently until testing, the appointment was scheduled and an address was given. I don't even have access to the results as it stands. I was just told "everything looks fine, but slight irritation." I don't know if they took a biopsy because I have no access to the results. I don't know how many samples they took (I recently learned they're supposed to take more than one), I don't know what things looked like internally, it was just word of mouth and I didn't know any better to pry and get copies of everything. And I know! I also have chronic Anemia, never truly resolved UNTIL I went gluten free, and low vitamin D (fairly normal in black community), and low creatine (also resolved with gluten free diet). I plan to request a new dermatologist! As well as a referral to Gastro. Food/symptom diary is a great idea though. I have no way of cooking as it stands, so even just the basics wouldn't work for me.
    • trents
      Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems

      By trents · Posted

      @NoriTori, "gluten intolerance" is a general term that can refer to either celiac disease or NCGS. NCGS is often referred to as "gluten sensitivity" for short. Though, admittedly, there is still a great deal of inconsistency in the use of terms by the general public.
    • NoriTori
      Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems

      By NoriTori · Posted

      @trents A gluten intolerance is a real possibility! I never ruled it out, but am keen on finding out the EXACT cause. I'd want testing done again to be sure it's not celiac, or SIBO (which I've considered) or other digestive disorder. Celiac seems the most pertinent considering its implications.
    • sillyac58
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By sillyac58 · Posted

      Thanks so much Scott. I would be incredibly grateful to the gluten gods if eliminating oats was the magic cure. In the meantime, it's nice to have moral support! 
    • trents
      Eating gluten before blood test

      By trents · Posted

      Understood. And don't beat yourself up about this. Many are in the same boat as you, having experimented with the gluten-free diet before getting formerly tested. It is a logical, common sense approach when you don't have the knowledge about how testing works or you don't have the healthcare resources to afford testing. And some experience such severe reactions to gluten that it is impossible to get through the gluten challenge in order to get tested. So, they must live with the ambiguity of not knowing for sure if they suffer from celiac disease or NCGS. But at the end of the day, the antidote is the same for both. Namely, life-ling abstinence from gluten. Recently there was an article on posted on this forum about the develop of a new testing method for diagnosing celiac disease that do not require a gluten challenge. It is still in the developmental stage and probably years away from becoming main streams even if it pans out. But there is hope at least.
×
×
  • Create New...