Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could it be ………..


Jackie Garrett

Recommended Posts

Jackie Garrett Collaborator

Could it be because Dairy/ Gluten is added to almost everything we eat or drink to extend shelf life/ or as a filler in our foods/ drinks medications and our bodies are just saying no more, it’s not our faults as so many of us are unaware of what we are ingesting and it’s not what our bodies are naturally meant to digest, just because we want these things and we can’t have them anymore it’s probably a good thing because it’s telling us we need to heal ourselves and eat as nature intended, then when we have healed maybe we can go back to small amounts but not having things with all the extra preservatives in which can raise our histamine levels, shops are filled with food/drinks with all this in and our bodies do not like it, so when we eat/ drink it, our brain thinks this taste nice, but our microbiome hates it, and that’s what we have to please as they look after our health, so we need to eat/drink wisely and as natural as possible, it’s hard because there are so many temptations out there, moderation is key. I don’t know if there are other more natural ways we could preserve our food/drinks and fill our meds with, but overdoing these ingredients in most things we digest is probably the cause of some if not many of our health problems.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

 Celiac is an autoimmune disease.  It is not a histamine disorder. May some celiacs have issues with histamine, of course. Do all, no. Many celiacs are able to digest dairy once their villi heal, some can't. But a Celiac can NEVER go back to eating gluten. Once fully healed a reaction may be a bit delayed or milder as it can take some time for the antibodies to build up. This is why we have to do a gluten challenge if we have stopped consuming gluten before going for diagnosis. Doctors used to think children could out grow celiac because after fully healed GI symptoms could take some time to show up. We know now that is not the case.  We can get the impression that celiac is a GI disease because that is where the most obvious symptoms show up but celiac is a full system destroyer. It is an autoimmune disease and the antibodies can attack any organ including the brain.  If someone is a diagnosed celiac they can not go back to eating gluten. Ever.

Jackie Garrett Collaborator
2 hours ago, ravenwoodglass said:

 Celiac is an autoimmune disease.  It is not a histamine disorder. May some celiacs have issues with histamine, of course. Do all, no. Many celiacs are able to digest dairy once their villi heal, some can't. But a Celiac can NEVER go back to eating gluten. Once fully healed a reaction may be a bit delayed or milder as it can take some time for the antibodies to build up. This is why we have to do a gluten challenge if we have stopped consuming gluten before going for diagnosis. Doctors used to think children could out grow celiac because after fully healed GI symptoms could take some time to show up. We know now that is not the case.  We can get the impression that celiac is a GI disease because that is where the most obvious symptoms show up but celiac is a full system destroyer. It is an autoimmune disease and the antibodies can attack any organ including the brain.  If someone is a diagnosed celiac they can not go back to eating gluten. Ever.

I appreciate your answer, but do you still consume Dairy and that includes Lactose in medication, alcohol and preservatives,  Because I believe that also causes immune problems which will raise histamine levels putting our bodies in high alert,  so both would have to be avoided to get our levels down and our immune to settle down and our bodies to heal , and by eating a diet that is natural is the only way of finding out and that is pretty hard to do as it is nearly in everything, now I do follow a very natural diet to be well but it can be difficult at times, so I do weaken on the odd occasion, it takes a lot determination. I am sorry I don't agree with you saying it’s not a histamine Disorder, when our bodies are on high alert making our immune on overdrive it releases a histamine reaction and when we continually put things in our bodies that it’s not meant to have it reacts and histamine is released, we are unaware of this going on because it’s inside of us but we get problems when it is too much. With respect, no sorry I don’t agree with you there about a histamine  disorder not having anything to do with Celiac Auto immune problems, I think a lot more research has to be done on what too much histamine is doing to our bodies.

Scott Adams Grand Master

While foods that are higher in histamines can be an issue for some people, most people can tolerate them just fine, and in countries that consume large quantities of them like Japan, Korea, Italy, France, Singapore, etc., they have some of the longest life spans on Earth (https://www.worldometers.info/demographics/life-expectancy/). In fact, many studies have linked increased life spans directly with a higher consumption of fermented foods that are higher in histamines, for example the following (from https://www.healthline.com/health/low-histamine-diet#foods-to-avoid😞

  • fermented dairy products, such as cheese (especially aged), yogurt, sour cream, buttermilk, and kefir
  • fermented vegetables, such as sauerkraut and kimchi
  • pickles or pickled veggies
  • kombucha
  • cured or fermented meats, such as sausages, salami, and fermented ham
  • wine, beer, alcohol, and champagne
  • fermented soy products such as tempeh, miso, soy sauce, and natto
  • fermented grains, such as sourdough bread
  • tomatoes
  • eggplant
  • spinach
  • frozen, salted, or canned fish, such as sardines and tuna
  • vinegar

So I don't believe that your histamine theory holds up to scientific scrutiny, and in fact, people should be eating more, not less, fermented foods.

Also, you keep throwing in things like "by eating a diet that is natural," but you've not defined what that is. Eating fermented foods is totally natural for human beings, and we've been doing this for thousands of years now, and our lifespan and quality of life has been increasing ever since. Fermentation is a natural way of preserving foods that can keep us eating vitamin-rich foods all year long, before refrigeration was invented. Going back 100-200 years or more, if you were poor you drank water and had a high chance of dying from tainted water, but many people in Europe drank beer or wine (even kids), and this protected them from pathogens. Julius Cesar was popular with his army because he doubled the wine ration for those in the army from the normal 1.5 liters per day, to 3 liters (drinking at these isn't healthy, but probably much more healthy than getting dysentery in those days--they mixed it 50/50 with water). 

I think you should do some more research on longevity and diet, and you will quickly find that foods that are high in histamine do not cause the vast majority of people who consume them to be unhealthy.

Jackie Garrett Collaborator
2 hours ago, Scott Adams said:

While foods that are higher in histamines can be an issue for some people, most people can tolerate them just fine, and in countries that consume large quantities of them like Japan, Korea, Italy, France, Singapore, etc., they have some of the longest life spans on Earth (https://www.worldometers.info/demographics/life-expectancy/). In fact, many studies have linked increased life spans directly with a higher consumption of fermented foods that are higher in histamines, for example the following (from https://www.healthline.com/health/low-histamine-diet#foods-to-avoid😞

  • fermented dairy products, such as cheese (especially aged), yogurt, sour cream, buttermilk, and kefir
  • fermented vegetables, such as sauerkraut and kimchi
  • pickles or pickled veggies
  • kombucha
  • cured or fermented meats, such as sausages, salami, and fermented ham
  • wine, beer, alcohol, and champagne
  • fermented soy products such as tempeh, miso, soy sauce, and natto
  • fermented grains, such as sourdough bread
  • tomatoes
  • eggplant
  • spinach
  • frozen, salted, or canned fish, such as sardines and tuna
  • vinegar

So I don't believe that your histamine theory holds up to scientific scrutiny, and in fact, people should be eating more, not less, fermented foods.

Also, you keep throwing in things like "by eating a diet that is natural," but you've not defined what that is. Eating fermented foods is totally natural for human beings, and we've been doing this for thousands of years now, and our lifespan and quality of life has been increasing ever since. Fermentation is a natural way of preserving foods that can keep us eating vitamin-rich foods all year long, before refrigeration was invented. Going back 100-200 years or more, if you were poor you drank water and had a high chance of dying from tainted water, but many people in Europe drank beer or wine (even kids), and this protected them from pathogens. Julius Cesar was popular with his army because he doubled the wine ration for those in the army from the normal 1.5 liters per day, to 3 liters (drinking at these isn't healthy, but probably much more healthy than getting dysentery in those days--they mixed it 50/50 with water). 

I think you should do some more research on longevity and diet, and you will quickly find that foods that are high in histamine do not cause the vast majority of people who consume them to be unhealthy.

1 in 2 of us are getting cancers, and we are also getting more allergies/ illnesses weight gain which then leads to other problems, I do believe preservatives made with molds and bacteria, and I believe making our bodies acidic is not good for us, and back then in Julius’s time they didn’t have all the processed foods, so maybe they could get away with a few beers, I just found it fascinating how my body healed by avoiding certain things, like Lactose, preservatives, fermented things. The countries you mentioned above wouldn’t follow the western diet. By natural I mean clean food that hasn’t had added preservatives,  wholesome foods not junk/ fried foods/ ready meals but food that we prepare from scratch so we know what’s in it. Yes some people can tolerate higher histamine but I believe in Some cases when we have too much and our bodies can’t handle the extra histamine it then can cause all sorts of problems with our health. 

Scott Adams Grand Master

The increase in the average lifespan, especially over the last 100-200 years, has been dramatic in most countries. Clean water, vaccines, antibiotics, etc., can explain a lot of this, but now subtle differences in lifespans between people in different countries are, more and more, being attributed to the differences in their diets...for example in Europe the Mediterranean diet has been shown to increase longevity, and the overall quality of health. This diet does include regularly consuming wine, salted sardines and fish, tomatoes, fermented meats like salami, ham, and sausages, and vinegar and pickles, so lots of fermented foods high in histamines. 

I agree that there is much about the modern Western diet, especially in the USA, that is now causing a huge increase in health issues like diabetes, cancer, etc., which are much more prevalent in the USA than in Japan or the Mediterranean area, but I'm just not sure it has anything to do with histamine consumption, especially given their prevalence in places like Japan where they are eaten daily, yet they tend to have among the longest lifespans, and maintain their weight and overall health longer than most other populations.

I think adding things like nitrates to lunch meats, and not aging them like they do in Europe, has a bigger negative effect than histamines (which develop naturally as you age meats, for example in prosciutto or salami). So unhealthy additives, chemicals, artificial sweeteners, pesticides, refined sugar & flour in junk foods, sodas, etc., are things that may have a more negative impact on health, cancer risk and lifespans than foods that are high in histamines. 

Scott Adams Grand Master

BTW, the fact that 1 in 2 of us are getting cancer is also related to our longer lifespans now. You have to die of something, and the longer we live, the more likely we are of getting cancer or heart disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

@Jackie Garrett

Thiamine helps our bodies get rid of histamine.  Thiamine can prevent our mast cells from degranulation and prevent more histamine from entering our systems.  

There is a world wide depletion of Thiamine in the plants and even in the animals we eat.  Scientists have been studying die-offs of fish and the birds that feed on them.  Even moose are dying off in Maine because the plants they eat don't contain enough Thiamine.  

Scientists believe Global Warming is responsible for this decrease in thiamine.  

The modern "Standard American Diet" contains high levels of carbohydrates, but very little bioavailable thiamine which is needed to process those carbohydrates, resulting in high histamine levels.  

Let's focus on giving our bodies the nutrients and vitamins that they need to heal themselves.

 

 

 

Jackie Garrett Collaborator
20 hours ago, Scott Adams said:

The increase in the average lifespan, especially over the last 100-200 years, has been dramatic in most countries. Clean water, vaccines, antibiotics, etc., can explain a lot of this, but now subtle differences in lifespans between people in different countries are, more and more, being attributed to the differences in their diets...for example in Europe the Mediterranean diet has been shown to increase longevity, and the overall quality of health. This diet does include regularly consuming wine, salted sardines and fish, tomatoes, fermented meats like salami, ham, and sausages, and vinegar and pickles, so lots of fermented foods high in histamines. 

I agree that there is much about the modern Western diet, especially in the USA, that is now causing a huge increase in health issues like diabetes, cancer, etc., which are much more prevalent in the USA than in Japan or the Mediterranean area, but I'm just not sure it has anything to do with histamine consumption, especially given their prevalence in places like Japan where they are eaten daily, yet they tend to have among the longest lifespans, and maintain their weight and overall health longer than most other populations.

I think adding things like nitrates to lunch meats, and not aging them like they do in Europe, has a bigger negative effect than histamines (which develop naturally as you age meats, for example in prosciutto or salami). So unhealthy additives, chemicals, artificial sweeteners, pesticides, refined sugar & flour in junk foods, sodas, etc., are things that may have a more negative impact on health, cancer risk and lifespans than foods that are high in histamines. 

I’m really saying that when we do begin to have problems maybe we ought to look at this first, it may help us by avoiding these things that contain higher histamine until we find a level that our bodies can cope with, then maybe we can get away with some things again that contain higher amounts in time, but I certainly can’t unless I have symptoms, wine with me is a definite no, no because of the starter cultures  which I believe makes our bodies release histamines maybe gluten and dairy are histamine liberators in some of us and maybe this can go undetected until we begin to have problems. I would be very happy to take part in research in this area.

Jackie Garrett Collaborator
8 hours ago, knitty kitty said:

@Jackie Garrett

Thiamine helps our bodies get rid of histamine.  Thiamine can prevent our mast cells from degranulation and prevent more histamine from entering our systems.  

There is a world wide depletion of Thiamine in the plants and even in the animals we eat.  Scientists have been studying die-offs of fish and the birds that feed on them.  Even moose are dying off in Maine because the plants they eat don't contain enough Thiamine.  

Scientists believe Global Warming is responsible for this decrease in thiamine.  

The modern "Standard American Diet" contains high levels of carbohydrates, but very little bioavailable thiamine which is needed to process those carbohydrates, resulting in high histamine levels.  

Let's focus on giving our bodies the nutrients and vitamins that they need to heal themselves.

 

 

 

When our bodies are not having the foods/ drinks that are making our bodies release this extra histamine  it begins to work again letting our villi heal and absorb the nutrients again that’s what’s made me well. Our bodies won’t absorb these valuable nutrients while our villi is malfunctioning.

Jackie Garrett Collaborator
10 hours ago, Scott Adams said:

BTW, the fact that 1 in 2 of us are getting cancer is also related to our longer lifespans now. You have to die of something, and the longer we live, the more likely we are of getting cancer or heart disease.

But Scott I don’t want to die of Cancer i have seen people die of that, I know we have to die of something but I want to live a long healthy life and I will try and do what I can to achieve that and if watching my histamine levels is working for me then that’s all well and good 😀 like I said before in my other posts we have to look at things at all angles, this may work for someone else, I would love to know if anyone else has found this has worked for them. I hope you are well. 
Jackie

Jackie Garrett Collaborator
10 minutes ago, Jackie Garrett said:

When our bodies are not having the foods/ drinks that are making our bodies release this extra histamine  it begins to work again letting our villi heal and absorb the nutrients again that’s what’s made me well. Our bodies won’t absorb these valuable nutrients while our villi is malfunctioning.

That’s very interesting Kk you can learn a lot of useful information on this site.

ravenwoodglass Mentor
15 minutes ago, Jackie Garrett said:

When our bodies are not having the foods/ drinks that are making our bodies release this extra histamine  it begins to work again letting our villi heal and absorb the nutrients again that’s what’s made me well. Our bodies won’t absorb these valuable nutrients while our villi is malfunctioning.

Jackie, If it is the consumation of histamine that is the reason for celiac how do you explain the development of Celiac in infants like my son who was breastfed? I deveolped celiac at about age 4. This was back in the 50's before all this processed food became available. My mother cooked whole foods always. People that have been newly diagnosed don't (IMHO) need someone telling them this huge list of foods they should not be consuming especially with the thought that it might relieve them of celiac. It is advised that we drop gluten, of course, and dairy but giving folks the idea that they need to also avoid a huge list of other foods may be quite discouraging and make folks feel like they have no chance to follow those restriction leading them to possibly just ignore their diagnosis of celiac.

Jackie Garrett Collaborator
4 minutes ago, ravenwoodglass said:

Jackie, If it is the consumation of histamine that is the reason for celiac how do you explain the development of Celiac in infants like my son who was breastfed? I deveolped celiac at about age 4. This was back in the 50's before all this processed food became available. My mother cooked whole foods always. People that have been newly diagnosed don't (IMHO) need someone telling them this huge list of foods they should not be consuming especially with the thought that it might relieve them of celiac. It is advised that we drop gluten, of course, and dairy but giving folks the idea that they need to also avoid a huge list of other foods may be quite discouraging and make folks feel like they have no chance to follow those restriction leading them to possibly just ignore their diagnosis of celiac.

Yes but Gluten and Dairy are added to so many things and that’s where we get accumulation it’s in a lot of things, to go into things deeper to find these answers which I really want to know we have to ask lots of questions, now I believe and it’s my belief that milk is the underlying cause and some of you won’t agree but that’s my opinion and I’m being honest it has the histamine meant for calves not the humans, I know so many mums that say their babies can’t have milk, which I believe I was one of them but I never connected milk to all my health issues until of late. I don’t know of course but maybe could milk have been an underlying factor with your son that you never picked up on, like I didn’t pick up on until I removed it from my diet, maybe your breast milk had too much histamine from your diet who knows, maybe it starts in the womb by what we ingest it’s going to be a long time before we get answers, we could have started to accumulate extra histamine in the womb, maybe a small birth weight child can not cope with the levels of histamine a larger birth weight child can, all my children were under 6.12 my son was born with Jaundice was that down to my higher histamine levels that I was unaware of, I really think it probably was looking back. But we are not to know it’s not our faults, with the higher histamine diet if it’s works for people then great, it’s worth being aware of what higher levels of histamine are doing or can do to the body that’s all !! It’s may work for some. 

cristiana Veteran
8 hours ago, ravenwoodglass said:

Jackie, If it is the consumation of histamine that is the reason for celiac how do you explain the development of Celiac in infants like my son who was breastfed? I deveolped celiac at about age 4. This was back in the 50's before all this processed food became available. My mother cooked whole foods always. People that have been newly diagnosed don't (IMHO) need someone telling them this huge list of foods they should not be consuming especially with the thought that it might relieve them of celiac. It is advised that we drop gluten, of course, and dairy but giving folks the idea that they need to also avoid a huge list of other foods may be quite discouraging and make folks feel like they have no chance to follow those restriction leading them to possibly just ignore their diagnosis of celiac.

I have to say I agree with you, ravenwoodglass.   

Jackie - adding a huge list of other foods could be  discouraging and and put people off altogether.  I realise that some people do have problems obvious issues with histamines but I think, having followed this website for some eight years since my diagnosis, the vast majority of people really do find their health improves radically once they take up a gluten-free diet.   

 

Scott Adams Grand Master
10 hours ago, Jackie Garrett said:

When our bodies are not having the foods/ drinks that are making our bodies release this extra histamine  it begins to work again letting our villi heal and absorb the nutrients again that’s what’s made me well. Our bodies won’t absorb these valuable nutrients while our villi is malfunctioning.

 

Quote

the histamine meant for calves not the humans...maybe your breast milk had too much histamine from your diet who knows, maybe it starts in the womb by what we ingest it’s going to be a long time before we get answers.

So you continue to speculate without providing scientific research to back any of this up. This forum isn't about "what ifs." Please include references for the claims you're making, otherwise you shouldn't be making them. There are definitely people who have an issue with histamine's, but I've see zero research that links this to celiac disease, damaged villi, or many of the other claims you're making here.

AlwaysLearning Collaborator
Scott Adams
This post was recognized by Scott Adams!

"Thanks for this post!"

AlwaysLearning was awarded the badge 'Great Content' and 50 points.

While I'm never going to be opposed to someone learning more about foods and avoiding or at least limiting those that upset their systems, there are some major misunderstandings in your original post.

1. For starters, dairy is low in histamines. Foods that are high in histamines include (but are not limited to) avocados, nuts, eggplant, spinach - healthy foods that are high in nutrients and good for us. The only dairy products that will be in high in histamines are those that are fermented, but even then, not all fermented dairy is high in histamines.

If you are concerned about high histamine levels in your system, you have to look for a different cause other than just the foods you eat, such as an overactive thyroid, then ask why your thyroid is overactive. The histamines you get from food alone are unlikely to cause any noticeable histamine reactions.

2. No matter how much you might miss foods that contain gluten, no amount of healing will ever make them safe to eat for someone who has celiac disease. If you are toying with the idea of going back to eating gluten in the future, I recommend you change your thinking.

3. Although there are plenty of problems with our food supply, most of them can be avoided simply by buying organic ingredients and doing your own cooking. This will avoid most chemical pesticides, herbicides, preservatives, flavorings, etc. If you want to go a step further, you can seek out products from small farms that have ethical practices, such as allowing their farm animals to graze in fields rather than be kept inside buildings which will help avoid things like overuse of antibiotics in livestock. Or grow your own to take even more control.

But whether you buy ethical/sustainable/organic foods or highly-processed/chemically-laden foods, it will make no difference whatsoever to whether or not you have an autoimmune reaction to the gluten protein. A gluten protein is a gluten protein is a gluten protein. No amount of care in food production, healing, or time spent being gluten free is going to change the fact that it is going to trigger an autoimmune reaction in someone with celiac. How long it takes to notice the reaction might vary from one individual to another, but all celiacs will react ... forever.

I have read that the proteins in milk can trigger autoimmune reactions in celiacs simply because of the similarity in the molecular structure of the proteins to gluten's proteins (mistaken identity), which can explain why some celiacs are unable to ever return to consuming dairy. 

If you want to improve your gut biome, then a great step for a celiac would be to stop consuming gluten (and dairy if it also bothers you) so that you can stop experiencing diarrhea on a regular basis. Else, eat lots of fresh foods that you prepare yourself and are not heavily processed. In addition to eating organic to steer clear of the chemicals used in growing mainstream food, avoiding sugar and salt can also help because they are preservatives that limit microbial activity. Else, variety and moderation are always smart practices when trying to achieve a healthy diet. 

Jackie Garrett Collaborator
4 hours ago, AlwaysLearning said:

While I'm never going to be opposed to someone learning more about foods and avoiding or at least limiting those that upset their systems, there are some major misunderstandings in your original post.

1. For starters, dairy is low in histamines. Foods that are high in histamines include (but are not limited to) avocados, nuts, eggplant, spinach - healthy foods that are high in nutrients and good for us. The only dairy products that will be in high in histamines are those that are fermented, but even then, not all fermented dairy is high in histamines.

If you are concerned about high histamine levels in your system, you have to look for a different cause other than just the foods you eat, such as an overactive thyroid, then ask why your thyroid is overactive. The histamines you get from food alone are unlikely to cause any noticeable histamine reactions.

2. No matter how much you might miss foods that contain gluten, no amount of healing will ever make them safe to eat for someone who has celiac disease. If you are toying with the idea of going back to eating gluten in the future, I recommend you change your thinking.

3. Although there are plenty of problems with our food supply, most of them can be avoided simply by buying organic ingredients and doing your own cooking. This will avoid most chemical pesticides, herbicides, preservatives, flavorings, etc. If you want to go a step further, you can seek out products from small farms that have ethical practices, such as allowing their farm animals to graze in fields rather than be kept inside buildings which will help avoid things like overuse of antibiotics in livestock. Or grow your own to take even more control.

But whether you buy ethical/sustainable/organic foods or highly-processed/chemically-laden foods, it will make no difference whatsoever to whether or not you have an autoimmune reaction to the gluten protein. A gluten protein is a gluten protein is a gluten protein. No amount of care in food production, healing, or time spent being gluten free is going to change the fact that it is going to trigger an autoimmune reaction in someone with celiac. How long it takes to notice the reaction might vary from one individual to another, but all celiacs will react ... forever.

I have read that the proteins in milk can trigger autoimmune reactions in celiacs simply because of the similarity in the molecular structure of the proteins to gluten's proteins (mistaken identity), which can explain why some celiacs are unable to ever return to consuming dairy. 

If you want to improve your gut biome, then a great step for a celiac would be to stop consuming gluten (and dairy if it also bothers you) so that you can stop experiencing diarrhea on a regular basis. Else, eat lots of fresh foods that you prepare yourself and are not heavily processed. In addition to eating organic to steer clear of the chemicals used in growing mainstream food, avoiding sugar and salt can also help because they are preservatives that limit microbial activity. Else, variety and moderation are always smart practices when trying to achieve a healthy diet. 

If we don’t question things how are we ever going to find out the answers ?

trents Grand Master
29 minutes ago, Jackie Garrett said:

If we don’t question things how are we ever going to find out the answers ?

I agree. But the trouble seems to be you present as already having all the answers.

Jackie Garrett Collaborator
33 minutes ago, trents said:

I agree. But the trouble seems to be you present as already having all the answers.

Trents it’s because of what I avoided after many years of symptoms I got well and it made me realise what effects  some food/ drinks has on our bodies. So to me it all just makes common sense. 

Wheatwacked Veteran

It is all about what we eat, the vitamins we don't get enough of,, either from malabsorption or just poor diet choices, the omega 6 to omega 3 ratio.  All the B vitamins are all important because they have short storage periods. Thiamine is B1 because it was the first identied.  Long term poor diet causes other deficiencies. Folic acid increases the risk of prostate cancer but folate does not. Potassium is lost from diahrea plus we don't eat enough. The depletetion of nutrients in our vegetables from never allowing fields to lie fallow means we need to eat more for the same nutrients than did our ancestors 100 years ago.  There are feeds that improve a cow's health and maintain a healthy omega 3 content, but it does not increase production, so is not used.

What is your vitamin D plasma level?

Quote

If you have Mast Cell Activation Syndrome or Histamine Intolerance, you may need to look at Vitamin D!   I’ve noticed that 90% of people who aren’t supplementing with Vitamin D who have Mast Cell Activation Syndrome have low levels.In immune issues like Mast Cell Activation Syndrome and also in Histamine Intolerance, you are looking for a range between 60 and 100.   https://mastcell360.com/will-vitamin-d-help-or-hurt-you-if-you-have-mast-cell-activation-syndrome-or-histamine-intolerance/

 

Jackie Garrett Collaborator
48 minutes ago, Wheatwacked said:

It is all about what we eat, the vitamins we don't get enough of,, either from malabsorption or just poor diet choices, the omega 6 to omega 3 ratio.  All the B vitamins are all important because they have short storage periods. Thiamine is B1 because it was the first identied.  Long term poor diet causes other deficiencies. Folic acid increases the risk of prostate cancer but folate does not. Potassium is lost from diahrea plus we don't eat enough. The depletetion of nutrients in our vegetables from never allowing fields to lie fallow means we need to eat more for the same nutrients than did our ancestors 100 years ago.  There are feeds that improve a cow's health and maintain a healthy omega 3 content, but it does not increase production, so is not used.

What is your vitamin D plasma level?

 

Thank you Wheatwacked for that information, I do try and make sure I go outside and get sun when I can, i went to a functional Dr. Who said I was  low in Zinc this was before I withdrew milk from my diet and had a lot of symptoms ,will go back and see if that’s  rectified itself especially after I have changed my diet. She had this funny sort of machine that had a probe that you hold and it could pick up allsorts of things and made different pitched sounds, quite fascinating really. 

Jackie Garrett Collaborator
15 hours ago, cristiana said:

I have to say I agree with you, ravenwoodglass.   

Jackie - adding a huge list of other foods could be  discouraging and and put people off altogether.  I realise that some people do have problems obvious issues with histamines but I think, having followed this website for some eight years since my diagnosis, the vast majority of people really do find their health improves radically once they take up a gluten-free diet.   

 

That’s really good that some people improve by avoiding gluten, but what about the people that are still struggling, I just want to point out a few things that helped me and avoiding things with higher histamine may help others, you may not have to follow it long just until levels are lower, it’s just something to look at and see if it helps, fermented food have dairy cultures in and a lot of people do not realise that and that could be why they are still having problems because it is keeping their levels raised. My opinion but it worked for me. I have a very interesting article but I’m not sure how to add it. 

Jackie Garrett Collaborator

There is an awful lot of information out there some contradict others, but it down to us and seeing what affects us, making a food Diary is a good way of finding out what we can react too, I hope everyone on this site can find a solution like I did, I wish you all the very best. 

Scott Adams Grand Master
8 hours ago, Jackie Garrett said:

That’s really good that some people improve by avoiding gluten, but what about the people that are still struggling, I just want to point out a few things that helped me and avoiding things with higher histamine may help others, you may not have to follow it long just until levels are lower, it’s just something to look at and see if it helps, fermented food have dairy cultures in and a lot of people do not realise that and that could be why they are still having problems because it is keeping their levels raised. My opinion but it worked for me. I have a very interesting article but I’m not sure how to add it. 

It's fine to share things here that have helped you, as they could help others, and we regularly recommend keeping a food diary and understand that not everyone improves on a gluten-free diet alone.

The issue though is that you present lots of broad claims in this thread about histamines possibly being the cause of diseases like celiac disease, among others, and various foods you believe are high in histamines (like all dairy products) or that histamines cause disease and cancer, as though these are fact, which they aren't. I don't doubt at all that cutting out histamines has helped you, and may help others, but making broad unsupported claims about histamines requires some scientific support, like links to studies that back up your claims, otherwise a lot of bad information would end up here, and this would be unhelpful all future visitors.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,188
    • Most Online (within 30 mins)
      7,748

    Leeila
    Newest Member
    Leeila
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Jane878
      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
×
×
  • Create New...