Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amy, I Thought You Were My Friend!


penguin

Glutened by Amy's!  

35 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

penguin Community Regular

I know there've been posts about Amy's and glutening, and I remember someone calling the company about it, how did that turn out?

I've tried 3 things by Amy's, two were near the beginning, and one was today. There was one in my freezer and I was too lazy to make anything else for lunch. I was definitely glutened, and I really know that now that I know exactly what gluten does to me. The one today was the Santa Fe Enchilada Bowl.

Now I can't feel my face and I spent 10 minutes in the bathroom at work :ph34r:

And I'm stoned again :wacko:

Who needs Amsterdam?

Is there anyone that hasn't had problems? I don't have any other intolerances or allergies, except for tree nuts (and that's oral allergy syndrome anyway). What should I do, other than not eat them anymore? Does the company really care?

I hate that products labelled gluten-free really mean "not as likely to have gluten" :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Chelsea--Sorry you're feeling so bad today :( . It's really maddening to be going along just fine and then--bam! I don't have any input on the Amy's--haven't tried any of them as the stories of CC have scared me off :ph34r: Feel better!

Canadian Karen Community Regular

I tried Amy's shepherd's pie and got glutened. Didn't buy anything more from Amy's after that.

Hope you feel better soon!

Hugs.

Karen

kabowman Explorer

I gave up Amy's because I kept getting sick. Didn't bother to call the company...just not buying their products.

bluelotus Contributor

Sorry you are sick. I believe that one of their pasta sauces, labeled gluten-free/DF, made me ill. I called them and they are currently testing some sauce from that batch. I haven't heard back yet though. I'm not planning on buying any more of their products either at this point.

Carriefaith Enthusiast

I haven't had their products in a long time. I suspect that some of their products made me sick.

terps19 Contributor
I know there've been posts about Amy's and glutening, and I remember someone calling the company about it, how did that turn out?

I've tried 3 things by Amy's, two were near the beginning, and one was today. There was one in my freezer and I was too lazy to make anything else for lunch. I was definitely glutened, and I really know that now that I know exactly what gluten does to me. The one today was the Santa Fe Enchilada Bowl.

Now I can't feel my face and I spent 10 minutes in the bathroom at work :ph34r:

And I'm stoned again :wacko:

Who needs Amsterdam?

Is there anyone that hasn't had problems? I don't have any other intolerances or allergies, except for tree nuts (and that's oral allergy syndrome anyway). What should I do, other than not eat them anymore? Does the company really care?

I hate that products labelled gluten-free really mean "not as likely to have gluten" :angry:

Yeah I tried something of Amy's once and it gave me the worst bathroom time in a long time. Blech.

I think everyone needs a little Amsterdam every once in a while B)

I dont think I am ever going to try an Amy's product again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VegasCeliacBuckeye Collaborator

I ONLY eat Amy's Mac N Cheese (and do so religiously)

I have never had a problem with the Mac...

I kinda thought the other stuff looked "grody" anyway...

jenvan Collaborator

I have eaten several types many times and have no issues. Amy's is moving several of their gluten-free products to a dedicated facility or line (can't remember which!) in the future...

Guest cassidy

I got glutened by the rice mac n cheese and the santa fe bowl. I called them twice, the first call wasn't returned. I talked to someone who seemed like she held a high position with the company. She said that they don't get many complaints. So, I urge anyone who has been glutened to call. I had bought like 7 meals at once and she reimbursed me for all of them. I got a handwritten note and cash, which I thought was a little strange.

She told me that some of their products were going to be produced in a facility that didn't contain wheat. Those products should be in stores in June. I believe it is the mac n cheese, pizza and a new pasta w/tomato sauce type of thing, but please check before you try them.

Sorry you got sick, but please call them. Maybe if they know what a big problem they have they will try to be more careful about it.

zip2play Apprentice
I got a handwritten note and cash, which I thought was a little strange.
]

OH my goodness the CASH is really odd!

I have a box of the mac n cheese, but haven't tried it yet!

Monica

penguin Community Regular

I just emailed them that I felt betrayed and that I would likely not be buying any more of their products, and how sad it made me. It really does, because the food is yummy! :(:angry:<_<

jerseyangel Proficient

I remember reading a while back that someone else got cash back when they complained about getting sick.

Canadian Karen Community Regular

Cash? That's really, really strange!

I don't know of any reputable company that wouldn't send you a money order or cheque as refund your money.

Was the note on any type of letterhead?

Karen

wolfie Enthusiast

I posted a couple weeks ago about the enchilada bowl and being glutened too! I am sorry that you are feeling bad :( I won't be buying any more Amy's for now and I really like the rice mac & cheese, but not enough to feel that way again.

Hope you are feeling better soon!!!

key Contributor

Now you are freaking me out. I just bought and ate her Vegan chilli today and I swear if I get sick, I am going to scream!! I specifically bought it, because I just don't know who I can trust anymore. I have felt sick from her enchilada's before and just haven't eaten them, because I was pretty sure they made me sick, but every product. Someone posted here awhile ago saying that they had called about a specific product and that they test stuff. I am scared of all beans in a can, because they all say that they are manufactured in a facility that had wheat. What beans do you get?? I actually really liked the chili today, but if I get sick, I will no longer eat any of her stuff.

Monica

hez Enthusiast

I eat several of Amy's soups and frozen foods. I have not gotten glutened by them. I think with alot of processed food our risk for cc is high. It still sucks! Hope you feel better soon.

Hez

Guest nini

I was glutened by the rice crust cheese pizza not so long ago... very upsetting because I LOVE Amy's stuff. I used to eat it all the time when I worked full time. But now that I'm on part time, I don't need to eat lunches at work anymore. My daughter still loves their rice mac and cheese, but I'm afraid to get it for her now.

key Contributor

THis actually makes me very angry! If they aren't gluten free, then by all means don't put Gluten free right on the can or package in BOLD letters!!! It is negligent! I am trying SO hard to be healthy and I am tired of getting sick. If I get gluten I have D for a day and then C for two weeks and cramping etc. It is Miserable! It affects my whole life. This should be against the law. We have to do something about companies like this.

Does anyone else feel this way or am I just nuts!

Monica

Carriefaith Enthusiast
Does anyone else feel this way or am I just nuts!
I am also upset that companies label products gluten free when they aren't always 100% gluten free. The most common products that people seem to react to are Amy's and Bob's Red Mill.
Becky6 Enthusiast

I got glutened by their tofu scrambler. I have had a few other things and been fine. But am scared to try anything else now.

paulasimone Rookie

it looks like Amy's is paying attention to this issue.

they now have 2 separate gluten designations for their products (on their website, though apparently the products on shelves are still the old version):

1. "no gluten ingredients" (still potential for cross-contamination)

"Products that are formulated without any gluten containing ingredients but are made in a processing area that may contain gluten."

here's the list (it includes the enchiladas, shepherd's pie, indian food, etc etc.)

Open Original Shared Link

2. "gluten-free"

the only one listed so far is Rice Crust Pizza. someone else on this thread said they were told that Amy's is expanding into a gluten-free facility in June? so presumably then they would add more stuff here.

good luck,

paula

:)

penguin Community Regular

That was quick! Here's the response I got from Amy's...

Chelsea,

I am sorry to hear you became ill after eating some of our products. I

would like to talk to you about this in more detail. Did you save the

packages for these four products? If so, I would like to get the lot

numbers so I can send in our retains for testing.

Could you send me your phone number and suggest a time I could call.

Please respond to both e-mail addresses so I can get your phone number

both here at Amy's and at my home (I don't want to take a chance of

missing your e-mail).

I am looking forward to talking with you.

Kind regards,

Marsha Kopral

Technical Service

I didn't save the other 3 boxes, but I saved the one today. Let's see where this takes us...

Carriefaith Enthusiast

That was a very nice e-mail.

Becky6 Enthusiast

That was a great response!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results

    2. - trents replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

    3. - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

    4. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

    5. - catsrlife posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,897
    • Most Online (within 30 mins)
      7,748

    Sgp
    Newest Member
    Sgp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
    • Rejoicephd
      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • catsrlife
      Back at the end of July I got this rash on both of my forearms. It started on my right and continued to the left. It was on the top and side. The rash has bumps that would pop with clear liquid if scratched. They would almost crystalize and scab up. They reminded me of chicken pox. They would scab for weeks and not heal much at all except for the blood clotting. If the scab was scratched off, it would bleed and bleed until it scabbed up again. The skin has lost its pigment where the scabs are. I figured it was probably either the plant I had trimmed around the 15th or some reaction to the magnesium complex I was taking or an allergic reaction to the asthma meds I was on. I stopped the asthma meds and the magnesium. The rash seemed to get better but when I took the asthma meds it flared up again so I went to the urgent care as my doctor was unavailable. The UC doctor said it probably wasn't the meds and asked about my diet. I said I was strict keto. I usually am, but there is a story around this. I feel amazing on keto. When I eat sugar, wheat, and starchy veggies I feel horrible. Blood sugar goes up, IBS type symptoms, brain fog, etc. But I have a horrible addiction to carbs so I blow it sometimes and after Mom died in 2023, I fell off the wagon. No rashes, just weight gain. I finally went back on keto and then around that time had a piece of pizza (or so, it's hard to stop the carb rush.) So I was strict keto, off and on. She ignored that and prescribed some allergy meds. It didn't go away.  What was happening by then was that the rash was now on my upper elbows, both of them, on the back of my arms. It starts with a very itchy bump, spreads around it and sometimes just burns like crazy and other times just itches. Then it started on the sides of my knees on the oustide, a little bit down the sides of the calves. It's not as bad there as it is on my arms even though it comes and goes (and so does wheat in my diet.) I then got three tiny blisters on each hand, 3 on the insdie of my index finger on the right hand and 3 on the inside of middle finger of my left hand. There is still a little scab there even though it was two weeks ago. No more have appeared on the fingers. But right now the back of the arms above my elbows are starting to itch. At some point I started to think mites from the possum that was sneaking into our house but it's been 3 months and they would be dead already. It wouldn't be from humans because I don't go near any humans although I did take an Uber to the doctor and the bus back. Plus, it's symmetrical. It starts on one side and is almost identical on the other.  I did my DNA with Ancestry and MyHeritage. I don't have the HLA-DQ2 or HLA-DQ8. I do have HLA-DQ2.2. I took the blood test but it was negative. Then again, I don't eat wheat every day. I rarely eat it except for lately when I've been preparing for the blood test if I have to take it again. I don't like to. It makes my joints hurt, gives me brain fog, stomach problems, I sleep in the middle of the day, etc. I have a doctor appointment tomorrow. I hope that she will be more serious about this than the UC doctor was.  So I have no idea. With my luck they'll magically disappear before the doctor appointment. That's what happens with everything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.