Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Your Most Annoying Symptom?

erin24

By erin24
in Coping with Celiac Disease

Recommended Posts

erin24 Explorer
erin24
Posted

I was just thinking...what is everyone's most annoying symptom/side effect of celiac? (fatigue, bloating, C, D, etc). I was just wondering if other people were just as annoyed with their bloating as me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 98
  • Created
  • Last Reply
dlp252 Apprentice
dlp252
Posted

Dizziness. I'll be sitting here at my desk and all of a sudden feel like I'm going to fall out of my chair.

The second most annoying is the diarrhea.

VydorScope Proficient
VydorScope
Posted

I was gonan aswer this.. but I just cant think straight right now.....

Guhlia Rising Star
Guhlia
Posted

Definitely the major fatigue. When I get glutened I have to take a nap every day for usually about a week. I can't get out of bed in the morning. My two year old runs circles around me. The fatigue is definitely the worst for me.

jams Explorer
jams
Posted

My left temple twitches for about a week. It is very obnoxious!

My second thing is my stomach gurguling. I just don't like that feeling. That lasts for a few days too.

Moongirl Community Regular
Moongirl
Posted

Bloating! I might as well be pregnant....im 5'3 about 105, then there is this huge belly, picture that now...lol

Then the uncomfortableness of the gut, yuck!

erin24 Explorer
erin24
Posted
  • Author
Bloating! I might as well be pregnant....im 5'3 about 105, then there is this huge belly, picture that now...lol

Then the uncomfortableness of the gut, yuck!

Moongirl,

Me too. While I am not as petite as you, I look pregnant. Does your bloating come and go or (before you went gluten-free) were you always bloated?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

The most annoying to me are--

Fatigue--it is still hanging on despite enough and better sleep

Low abdominal cramping--especially after "going" in the morning (or whenever ;) )

Bloating--I start out ok in the AM, but my midsection gets bigger as the day goes on

aaascr Apprentice
aaascr
Posted

Bloating, D, and itchy itchy rashes are all up there, but so is the fatigue - I

play on several soccer teams and hate when

I can't contribute... :angry:

penguin Community Regular
penguin
Posted
I was gonan aswer this.. but I just cant think straight right now.....

EXACTLY!

My face going numb and having the rest of my head on the ceiling is really annoying, especially at work. DH doesn't appreciate it either, my attention span goes from zero to negative...

The D is pretty annoying also, nothing like abandoning your cart a half hour into your wal-mart trip to ruin your day. And stinking up the place. Luckily Target has mini Oust air freshener so that I can do that public service of decontaminating the bathroom :ph34r: ...

StrongerToday Enthusiast
StrongerToday
Posted

Mine is the D or always worring about it.

cgilsing Enthusiast
cgilsing
Posted

Bloating/cramps - It goes on for days and I look pregnant! (when I'm not) I've actually had strangers ask when I'm due! :blink: That's an akward moment! Now that I am actually pregnant if I get bloated there is even less room in there and it's really painful. :(

I don't have constant cramps, but they can strike at any moment for no reason - in the grocery store, at work, in the car......it's never when I'm at home and close to my own bathroom! :angry:

It wouldn't be so bad if it was just for a day...but it lasts upwards of a week!

aikiducky Apprentice
aikiducky
Posted

My GI symptoms aren't all that bad really (or I don't mind them so much) but the BRAIN FOG :blink: and fatigue are really annoying!

The most annoying symptom though is that I get very depressed when I get glutened, and that makes dealing with all the other symptoms so much harder. I mean, then I end up being depressed about being tired, and bloated, and so on...and I hate knowing that life doesn't feel like any fun due to a stupid gluten molecule, and not because my life actually sucks, because it doesn't.

Congratulations to anyone who understood the above sentence! You have been now officially diagnosed as having NO brainfog at this moment! :lol:

Pauliina

francelajoie Explorer
francelajoie
Posted

Gas..pretty much the only symptom I have.

Guest cassidy
Guest cassidy
Posted

brain fog, anxiety and irritability, all that bothers me much more than the intestinal symptoms

Estelle Newbie
Estelle
Posted

Definitely the pain. I'm a tiny person but if I accidentally eat gluten *curses all the restaurants promising the meal I odered is gluten-free*, my belly balloons to a size of a house and is pretty #%!**@# painful. Not nice. As a result-crankiness and fatigue. :(

Nantzie Collaborator
Nantzie
Posted

EXTREMELY FOUL GAS and unpredictable, immediate DIARRHEA.

It meant that I couldn't GO anywhere. I couldn't go to the store, to the bank, to people's houses. There were even a couple funerals I missed and that family still doesn't know why I missed.

The worst though was when my dad was sick and after he died, I couldn't even go to church because the gas was so bad, and almost constant. There was NO WAY I could go to church like that. That was the worst because I had lost so much, and I couldn't even have that.

Other than that, my back was in so much pain, I could barely walk. Which even further dimished my ability to do anything other than sit on my booty.

Since going gluten-free though, even when I get glutened I really don't have a problem with gas, diarrhea or back pain.

So now, if I get glutened I get REALLY cranky and get a headache. But that's just from cross contamination or forgetting to read a label. I haven't cheated since going gluten-free, so I don't know what would happen if I actually ATE something gluten.

My husband and best friend would both agree that CRANKY is my most irritating symptom. :lol:

B)

Nancy

MallysMama Explorer
MallysMama
Posted

My worst symptom (and sometimes ONLY symptom) would be the gas! It comes usually in the evening/night and ruins any romantic time with my hubby. I think he'd say that was my worst symptom too - I'm never "in the mood" because I'm afraid of the noises my tummy's going to make. :D

anerissara Enthusiast
anerissara
Posted

I'd have to say the D and bloating are the worst, however brain fog drives me nuts, being tired all the time isn't fun, the itchy rash I get is miserable, and the low cramping is crummy. Come to think of it, the whole thing pretty much stinks!

MattUK Newbie
MattUK
Posted

Brain fog which is so depressing as i am a writer. Then the tiredness.

Guest BERNESES
Guest BERNESES
Posted

this is a great question! For me I would say the mood swings and the NAUSEA. I get so nauseous I can't do anything. And it's not "normal' nausea- it's some foul mutation. UGH!

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Gas and my non-stop general sense of malaize....

I also dislike having to explain this disease to EVERY person I meet.

mmaccartney Explorer
mmaccartney
Posted

For me the pain is close to unbearable (I'm a lucky micro sensitive person!), however the most annoying is the nausea and belching. Not the actual act of belching, but the most retched, foul, rotten smell and taste that comes with the belching, and lasts around 7 hours (which has actually triggered vomiting).

I'll take every other symptom of mine over that!

Lisa Mentor
Lisa
Posted

My most annoying symptom is when my husband askes me in the morning if I want a biscuit from McDonalds, then says...."oh I forgot". <_<

mookie03 Contributor
mookie03
Posted

I'm with you Nantzie, no question about it, those emissions are THE WORST! :ph34r: Enough to make u never want to mess up on the diet, huh? :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.