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Ataxia

AutumnSky

By AutumnSky
in Related Issues & Disorders

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AutumnSky Rookie
AutumnSky
Posted

I was diagnosed with ataxia of unknown causes in 2019 by my neurologist. Honestly that entire year is like a dream. 8 remember very little of it because I was so ill. 

I was tested for MS, Parkinson, and myasthenia Gravis. They really could not find a cause for the ataxia. 

Now I am wondering if it could have been the gluten. I was diagnosed not that long ago this year. 

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trents Grand Master
trents
Posted

It absolutely could be the gluten. Ataxia is common to the celiac community and the NCGS community.

knitty kitty Grand Master
knitty kitty
Posted

Definitely related to gluten.  Some of us lucky ones make tissue transglutaminase antibodies (Ttg 6) that affect the brain in addition to the usual antibodies (Ttg 2) when exposed to gluten.  There are tests to measure the Ttg 6 antibodies. 

My gluten ataxia has improved dramatically with High Dose Thiamine treatment with Allithiamine, a form of thiamine that crosses the blood brain barrier easily.  

The brain uses as much Thiamine as a marathon runner's muscles do in a race.  Thiamine insufficiency can affect brain function.  Symptoms can wax and wane as Thiamine from our diet may fluctuate.  

Since Celiac Disease causes malabsorption of vitamins, supplementing with High dose Thiamine and B Complex vitamins is beneficial in recovery.

  • 3 weeks later...
Scott Adams Grand Master
Scott Adams
Posted

If you're 100% gluten-free, and you take supplements, the good news is that the ataxia can improve greatly over time, but it can take years.

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      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
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