Hip Pain

[MaryJb Here]

On 5/16/2011 at 7:23 PM, SAVANNAH21 said:

Can anyone tell me is they have had hip or low back pain associated with their Celiac? I had and MRI of my back and the only thing it shows is arthritis. The pain is mostly in my hips and there are times when I have difficulty standing up after sitting for extended times. Every morning I have so much pain I need to get out of bed. I didn't know if this was associated with something that can be caused by Celiac.

Savannah21 that is exactly why I signed on tonight - to look up if anyone else had this problem.  The problem you described.   It's a dull ache in the hip.  It will wake me up too.  
I know the gluten causes the pain in my sciatica, but I'm not sure if this in the hip is related or the same thing.  

[knitty kitty]

Welcome to the forum, @MaryJb Here!

I've taken the liberty to start you off with your own thread, since this is a rather old post and the original poster may not answer.  

I have back, hip and joint pain.  Supplementing with Vitamin D and making sure I get plenty of Omega Three healthy fats keeps my joints more fluid.  

How long have you been diagnosed with Celiac Disease?  

What sort of diet do you follow?

[cristiana]

@MaryJb Here

You may wish to look into sacroiliac pain, and referred pain from sacroiliac issues (can affect thighs, hips, buttocks, groin)

I had shocking sacroiliac pain around the time of my diagnosis and for some time afterwards.  It has greatly improved but I still get it from time to time.

I found bloating greatly exacerbated it, as well as carrying uneven loads (even a shopping basket) could set it off.   Tight elastic waistbands/jeans not a good idea either.  A GP, physio or chiropractor should be able to confirm if you have issues with these joints by putting pressure on the joints affected.  I remember screaming out in pain at a chiropractor's office when she located the spot  - I can't imagine what the patients in the waiting room thought!

 A 2010 study shows that coeliacs are prone to this condition.

https://pubmed.ncbi.nlm.nih.gov/19504097/

If you do turn out to have this,  I recommend warm baths in Epsom salts to relax the area.  A good handful, warm water, not hot, for 20 minutes.  Try not to fall asleep, and be careful as you get out of the bath as the magnesium can make you feel quite relaxed and unsteady on your feet! 

Try also to listen to your body.  I'm quite a keen walker but find that overdoing it isn't a good thing when I have a flare, I can feel the area tightening.  So always make sure you also take time to rest.   

Edited November 14, 2023 by cristiana

[Scott Adams]

Welcome to the forum...are you diagnosed with celiac disease? Are you on a gluten-free diet?

[MaryJb Here]

On 11/13/2023 at 10:10 PM, knitty kitty said:

Welcome to the forum, @MaryJb Here!

I've taken the liberty to start you off with your own thread, since this is a rather old post and the original poster may not answer.  

I have back, hip and joint pain.  Supplementing with Vitamin D and making sure I get plenty of Omega Three healthy fats keeps my joints more fluid.  

How long have you been diagnosed with Celiac Disease?  

What sort of diet do you follow?

Thank you, Scott!   
I only found out in 2016 that gluten was ruining my life.  After weeks of being crippled with pain I sought out relief by going to my family doctor.  All of my blood work proved nothing out of sorts except very low vitamin D levels. She wanted me to go to an RA doctor but I refused because I told her they would only put me on medication and I prefer to find out what I'm doing wrong with diet instead.  
So I left the doctor's office in tears.  Feeling all on my own.  That's when I began serious research on my symptoms.   Everything pointed to gluten intolerance.

I went on a strict gluten diet and within the first two weeks pain just up and disappeared.  About a month later my doctor tested me for Celiac which she insisted I didn't have as the test didn't prove it.  I've come to learn that you need to still be eating it for it to show up.  

I find that this lifestyle is hard for me as I guess I'm so self-willed that I can't follow it.   Time and time again I will eat what I can't have and the pain in my hips and back will return almost immediately.   
What makes it hard for me is that I am a vegetarian, and I like to eat a very low-carb diet.  That is when I feel the best.  


 

[MaryJb Here]

On 11/14/2023 at 5:55 AM, cristiana said:

@MaryJb Here

You may wish to look into sacroiliac pain, and referred pain from sacroiliac issues (can affect thighs, hips, buttocks, groin)

I had shocking sacroiliac pain around the time of my diagnosis and for some time afterwards.  It has greatly improved but I still get it from time to time.

I found bloating greatly exacerbated it, as well as carrying uneven loads (even a shopping basket) could set it off.   Tight elastic waistbands/jeans not a good idea either.  A GP, physio or chiropractor should be able to confirm if you have issues with these joints by putting pressure on the joints affected.  I remember screaming out in pain at a chiropractor's office when she located the spot  - I can't imagine what the patients in the waiting room thought!

 A 2010 study shows that coeliacs are prone to this condition.

https://pubmed.ncbi.nlm.nih.gov/19504097/

If you do turn out to have this,  I recommend warm baths in Epsom salts to relax the area.  A good handful, warm water, not hot, for 20 minutes.  Try not to fall asleep, and be careful as you get out of the bath as the magnesium can make you feel quite relaxed and unsteady on your feet! 

Try also to listen to your body.  I'm quite a keen walker but find that overdoing it isn't a good thing when I have a flare, I can feel the area tightening.  So always make sure you also take time to rest.   

Thank you, Cristina, I'll look into this. 

[Scott Adams]

6 hours ago, MaryJb Here said:

I went on a strict gluten diet and within the first two weeks pain just up and disappeared.  About a month later my doctor tested me for Celiac which she insisted I didn't have as the test didn't prove it.  I've come to learn that you need to still be eating it for it to show up.  

I find that this lifestyle is hard for me as I guess I'm so self-willed that I can't follow it.   Time and time again I will eat what I can't have and the pain in my hips and back will return almost immediately.   
What makes it hard for me is that I am a vegetarian, and I like to eat a very low-carb diet.  That is when I feel the best.  


 

You are self diagnosed, and may have non-celiac gluten sensitivity or celiac disease, and it sounds like doing a gluten challenge to get diagnosed would be very difficult for you, so it might be best at this point to focus on your diet, and make sure going forward that it is 100% gluten-free. 

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

You likely also need to take supplements, as the most common nutrient deficiencies associated with celiac disease (if you have it) that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.

 

 

 

[MaryJb Here]

32 minutes ago, Scott Adams said:

You are self diagnosed, and may have non-celiac gluten sensitivity or celiac disease, and it sounds like doing a gluten challenge to get diagnosed would be very difficult for you, so it might be best at this point to focus on your diet, and make sure going forward that it is 100% gluten-free. 

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

You likely also need to take supplements, as the most common nutrient deficiencies associated with celiac disease (if you have it) that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.

 

 

 

Thank you Scott for both of the articles.   I can't wait to read them.   
Yes, I am self-diagnosed and I am not sure if I have Celiac or intolerance although I suffer big time and have since I was in my teens.   
As soon as I eat anything with gluten my fingers swell up like little sausages and one or two fingers will have an ache in the joints, I also get within an hour or two severe toe cramps and foot cramps where my toes open wide and I have to massage them to get them back.  I bloat with the first bite, my stomach actually expands immediately.   
In my 30's and 40's I was diagnosed with IBS, and suffered constipation and bloating. 
Prior to being a vegetarian 20 years ago I suffered with sinus infections 2 or 3 times a year and have always been put on antibiotics.  With an infection in my mastoids one year an ENT put me on every heavy hitter he had.  It was at that time I also suffered from Lyme disease.  

So with all of those issues, some of the problems can overlap but nothing happens until I eat gluten.  

I'm a very active person, I can cycle 40 miles at a time while out and exercise and watch my weight.  So back in 2016 when I couldn't even ride my bike, it was serious enough to make me cry and make myself go to the doctor.   I just think I have the wrong family practitioner who knows nothing but how to read when blood tests come back within normal range.  She's a protocol doctor.
Well, I'll close for now, but looking forward in reading your posted articles.