Omg...i Might Be On To Something

[jerseyangel]

Hi Tavi--I really like your name! Nice to meet the "real"you So, you are the new town bum here? Congratulations R'ville is such a nice place to live, even our bums are pretty

[Rikki Tikki]

I don't know about that Patti, but thank-you. I have just been "bumming "around this afternoon but it appears the heat must of driven everyone underground. I guess I must just be used to the heat. But how hot is it in R-Ville? Maybe it's not as hot as I think it is!

I really like that, when you know better you do better. It leave hope open as a possibility

[rinne]

Hello everyone.

Karen, I'm so sorry to hear of all you are going through. I hope that you will find some answers and solutions soon, it must be terribly hard on you to suffer that way.

Cissie, I hope your migraine was brief, not that they generally are, I've had them and I know how truly awful they are.

Christine, I wonder how you are doing today.

I think it was Charlie asking about probiotics and in response to that question, I started eating organic unpasteurized sauerkraut which is high in the good bacteria and is a natural source for it versus a supplement. I can't say for sure whether it has made a difference yet because it has been only a couple of weeks.

I had an interesting conversation with my acupuncterist this morning. He was saying that acupuncterists that he is acquainted with think there is a middle ground between health and illness and they call it sub-health. It often comes about the age of 50 as genetics and unwholesome habits create a state where the body is overloaded with toxins. He thinks that at this point often what is wrong is undiagnosable by the western system and if people choose to take the drugs that suppress the symptoms they will get seriously ill. He also said that they think some people are much more sensitive to their bodies and that if they pay attention and receive treatment to re-balance themselves they can return to health.

Another Dr.Yan quote,"disease begins in the mouth".

I just ate a chocolate brownie. It is my sweetie's birthday and he loves my gluten free brownies.

[DingoGirl]

Will be keeping you and your family in prayer as well! I live in Campbell and my sister lives near Mariposa...about 30 miles away from Yosemite. I don't get up there much...did I mention I was lazy.

Mariposa - - they are trapped up there, aren't they? well they were, huge rockslides and tourism was really suffering! I love that town....

campbell, my best friend lives in Willow Glenn so not far!

must keep reading - - - premature post once again....

[Rikki Tikki]

I just ate a chocolate brownie. It is my sweetie's birthday and he loves my gluten free brownies.

[Lisa]

Ok, well I'm suppose to be Mayor of Rachelville. What the heck is going on here. No issues, ok that's cool.

Lisa

[DingoGirl]

After a long day, that is great news about Megan!

Big Hair, damn the 80s are coming back to haunt me. Although, I really miss the music. Can hear it now, Husker Du, Seven Seconds, Depeche Mode, early U2, New Order, Bauhaus, etc.

dn't forget Tainted Love - - who sang that.....

still reading....

Wait one second!!!!! What happened to our good looking R'Ville cop that Julie found??

where is he....remember we won't need law enforcement thanks to dingos and geese and other critters and the perfect magical life we will have.....but he can come hang out with us, if he brings gluten-free snacks....

[VydorScope]

Tavi... how do you pronouce that? like TAY VEE ? Or TA VEE? or?

[DingoGirl]

Hey, do you watch any of the shows like "Are you being served" and "As Time goes By" oh, and "Keeping Up Appearances"? I watch all the British shows on PBS.

OMG, I LOVE these shows, have my British telly Sat. nights quite often, esp. in Monterey. "As Time Goes By" is my favorite....used to watch "are you being served" w/ my cranky grandma.....my nieces all watch these shows since the oldest girl had/has a british boyfriend and she's lived there three summers (near Manchester).....Robbin, are you my twin????

[Canadian Karen]

Thanks guys. If truth be told, it really, really is starting to get to me......

In fact, one of the reasons I took a "sabbatical" from here for awhile was because I was starting to feel like a hypocrite, posting to all the newbies the things that you should be doing to get yourself better, yet it hasn't helped me to do the same...... How can I be a good example when my response to the gluten free diet has been a total failure????? I started to feel that I was just a shining example of "Celiac Disease Gone Wild", and if people came here to get re-assurance that all will get better once they are gluten-free, then I would only be a constant reminder that sometimes their is sooooo much damage done that a gluten free diet is worthless at this point.......

The diarrhea is very nocturnal. In fact, that is when it is most active. It will wake me up around 2 a.m. and be VERY active with cramping in between explosive diarrhea, right up until it settles down around 6 a.m. That's why alot of my posts are during the night! It is just such a part of me now that I can't imagine what life would be like otherwise......

I would love to be able to put my trademark "This too shall pass........", but I don't think it will........

So now you guys know why I have been so quiet in recent months........

Hugs.

Karen

[VydorScope]

MEGAN UPDATE!!!

TUESDAY, JULY 25, 2006 10:15 PM, CDT

As I write tonight I am overwhelmed with thankfulness. Each of you had a huge part in today with your prayers for Megan. I was AMAZED when I saw her tonight. I didn't realize just how bad she looked last time until I saw how good she looked this time. She is starting to wake up, but is being kept sedated for pain. She's only on 2 IVs, the last time there were 18. Her color is so pink. Her nailbeds aren't blue anymore!!!! I'm praising God for his handiwork and thanking him for the wonderful doctors and nurses caring for her. We are so blessed. The next few days are still critical, but we are so relieved to be on this side of surgery. Still a ways to go, but this was a major step. She kept her prayer blanket made by Mrs. Betsy Supancik with her during surgery, and she is blanketed with prayer by all of you now.

We got into Ronald McDonald House tonight. The Andrews are staying with Cole there tonight and my parents are in a hotel. Cole did great today and we hope to let him see Megan tomorrow. Yesterday when we got to her preop appt. he announced "This is Megnie. She has a big boo-boo on her heart that's getting fixed and it's going to hurt real bad." The ever caring big brother.

Thanks again for EVERYTHING. Keep the prayers going - God's definitely hearing and healing!!!

Love to all, Jarod, Tanya, Cole, and Megan Hope

[AndreaB]

Rachelville Rich farmland by the ocean, with mountains at our back to provide fresh spring water.

Population (not sure haven't counted)

President: Rachel

Vice President: Patti

Governor: Julie

Lt. Governors: Miamia & Chelsea

Mayor: Andrea

Secretary: Donna & Susan

Minister of Defense: Cissi in charge of auxigro detecting geese and dingo-ish dogs

Security: Donna

Village ambassador and queen: Julie

Newscaster: Celia

Decor and Design Committee: Patti -Decor Advisor, Susan - Garden Color Coordinator, Robbin - Assistant Decor Advisor, Rachel - Building and Landscape Advisor (this is going to be a very pretty place!)

Computer Tech: Vincent

Picard: Coach (for community sports) Oh and Diver for all our sea food..sorry you got 2 jobs

Christine: Nurse (you work in a hospital right?)

Cow and goat milkers: Evie and Armetta (I think she said she has milked before)

Music teacher: Alison

Chef 1: Miamia - Chef 2: Chelse - Chef 3: Rinne

Teachers: Andrea & Patti

Shopping consultant: Donna & Rachel

Community Events Coordinator: Rinne

Village adventurer/researcher: Meredith, who travels to distant lands to bring back news and information

Tony: captain for any water craft, so he can take Picard out for diving.

Mitch: truck driver, so he can haul whatever we need.

Andrea: Treasurer

Ryan: Handy-man, general fixer upper

Nikki: Cosmotologist, hair dresser

Physical Therapist: Lynne

Cissie: Literary reader around campfire or fireplace for the citizens of Rachelville

Vincent: Town hero and rule breaker

Jeny: Animal caretaker/veterinarian

Susan & Celia: Town comics

Cissie: Town matriarch

Cissie: History teacher Distinguished Chair of Celiac Literary and Historical Oddities dept.

Ryan: Language teacher

Tavi: Town bum, with the off time duty of raking leaves off paths in the fall

Karen: Counselor

[Rikki Tikki]

Let me see Vince, it's TAVEE kind of like. It's so hard to explain, but I think you have it right.

wait, wait wait, do we have leaves in the fall? Do we even have a fall?

[Lisa]

So glad, sniff, sniff.

Lisa

[VydorScope]

Let me see Vince, it's TAVEE kind of like. It's so hard to explain, but I think you have it right.

wait, wait wait, do we have leaves in the fall? Do we even have a fall?

Short A then?

[Guest Robbin]

[

I think it was Charlie asking about probiotics and in response to that question, I started eating organic unpasteurized sauerkraut which is high in the good bacteria and is a natural source for it versus a supplement. I can't say for sure whether it has made a difference yet because it has been only a couple of weeks.

[Rikki Tikki]

Karen:

That is just awful. I know I had a couple of really hard years after diagnosis and I knew I was not cheating, it just took me so much longer than what would be considered normal. My doctor acted like I was an irritant and it has finally gotten better. I pray the same result for you. Just one day it will slow the heck down. But please don't stop posting because you still help many people! Not everyone has the normal recovery's and what the heck is normal anyway?

Vincent: I think it is a short A, that would be with the little line above it right?

[DingoGirl]

Tavi/sally - - the name change always confuses me.....Tavi the bum, sounds exotic! R-ville never gets hotter than 85. Today - Fresno - we are 113, heat index 123, and outdoor burial in full sun. so......my post will be short.

I am just beat, spent, brain-dead, heat-exhausted......a very tiring day and tiring week. I had a huge epiphany at the funeral....do I have the stamina to share it now? It was not a happy epiphany...about how gluten ---> depression ---> mania robbed so many years of life from me, decades, really, as I felt tortured and sad even in early childhood.....and I hardly know soem of the people who've been in my life forever (like Grandma Rosie - my nieces' grandma, not mine - but I hardly knew my own either). I mean, I have been SO up and down emotionally and physically my whole life, and so over-drugged by every doctor.....malnourished.....mixed wtih occasional bouts of heavy alcohol consumption.....I just wasn't fully "THERE" most of the time wtih my family and many others. I caused much tension, trouble and worry in my family for so many years. They at times grow weary of me, yet have always been accepting and forgiving. They see all the difference now, and are telling my mom about it......but it was just this sad realization of how much I really didn't personally KNOW this tiny spitfire of a woman who died, because I was often too hyper to talk to her.....how dear she was and how little time I spent with her over the years, as I was either too hyper, too depressed......or drunk. Or absent entirely from family events, partying with a more lively bunch.....(I have the nicest family but I am quite different than they are - rather eccentric and very artsy and quite outspoken! Able to curb that mostly now, thank god, as was getting quite sick of self).

So, I got pretty sad, came home and collapsed......cool shower, down to the skivvies, lying on thte couch with the fan blowing.... sorry, TMI......

Oh SO sorry fellow residents that this is a sad post..... It will be better tomorrow. I do have the rest of my life to make up for lost time, I was BLESSED to find out the diagnosis at 44, as friends point out, instead of much later....I still DO have incredible, lifelong friends and some newer ones, and a family who loves me....I just mourn the lost years, and the damage control I am now doing.

Thank you to all of you who sent PM's and posted encouragement here...means the world.

and Meggan - - what a blessing. I don't even remember exactly the surgery she was having - someone please post. I know it was heart-related - - my little brother was the first open-heart surgery at our Children's hospital here - quite a stressor. I am SO glad it went well.

I think I'll be back to my old self tomorrow, carrying on the magical development of our wondrous cult farm. You guys are awesome, I know there are things I forgot to address tonight, but am SO tired and spent, will hope to have all my marbles back tomorrow....

thank you and bless you all. You add enormous entertainment to my life, daily.

Love - - -

[Green12]

Thanks guys. If truth be told, it really, really is starting to get to me......

In fact, one of the reasons I took a "sabbatical" from here for awhile was because I was starting to feel like a hypocrite, posting to all the newbies the things that you should be doing to get yourself better, yet it hasn't helped me to do the same...... How can I be a good example when my response to the gluten free diet has been a total failure????? I started to feel that I was just a shining example of "Celiac Disease Gone Wild", and if people came here to get re-assurance that all will get better once they are gluten-free, then I would only be a constant reminder that sometimes their is sooooo much damage done that a gluten free diet is worthless at this point.......

The diarrhea is very nocturnal. In fact, that is when it is most active. It will wake me up around 2 a.m. and be VERY active with cramping in between explosive diarrhea, right up until it settles down around 6 a.m. That's why alot of my posts are during the night! It is just such a part of me now that I can't imagine what life would be like otherwise......

I would love to be able to put my trademark "This too shall pass........", but I don't think it will........

So now you guys know why I have been so quiet in recent months........

Hugs.

Karen

Karen,

I'm really sorry you have been dealing with all of this. That is in a round about way how and why this thread started, Rachel and a handful of us still have a lot of symptoms and feel miserable - even after going gluten free. Many of us are so gluten free, we aren't even eating a regular gluten free diet, we aren't even eating a diet of any kind, because there is so little that we can eat We kind of all gravitated towards each other as we discussed our weird and strange symptoms and all of the food we can't eat, and along the way we found friendship, lots of support, and lots of humor in what at times seem to be the bleakest of situations.

Hang in there, I know better said than done, but chin up. Hang out here and we'll get you laughing!!

[DingoGirl]

OMG does Karen also have an alien in her stomach.....

[Guest Robbin]

Susan, we all have our regrets, I am sure, but God forgives and totally wipes the slate clean and so should you. Don't look back, only forward. I think that is going to be my new mantra too. Rest, recoup, & Rachelville tomorrow! Sweet dreams to you

Karen, I think you are brave and strong and am so glad you are here in this crazy thread to search for answers too.

[Green12]

No Nikki...Big hair went out a long time ago.

I remember the days when I wanted my hair to be big. What the heck was that all about??? Must have been an 80's thing....glad its over cuz its NOT easy to make my hair BIG.

Um, I will always have big hair

I'll just have to wait until it comes back into style, because I can't do a thing about it

[Rikki Tikki]

Susan:

I am older and wiser than you are, well I am 49 after all. Anyway, I just want to say to you we all have regrets, probably it's normal, if not it's normal for us. We can't change the past but we are in charge of this day forward. Do you understand what I am saying? Don't beat yourself up for would of could of should of, it's probably the funeral that got you on this sad road of reflection, just learn from the past so you don't make the same choices in the future, that's what all of it is really, just choices, roads we travel either by a divine plan or however one believes.

I for one am very glad to meet you, my life has become brighter since meeting you and I have a slight skip step.

My daughters also tell me I now have junk in my trunk, guess that gluten free lifestyle is working!

[Green12]

OMG does Karen also have an alien in her stomach.....

Exactly, it has to be the alien baby....

Susie Q, please don't be sad Put the past behind you and go forward, today is the first day of the rest of your life and make everything count now

I had an interesting conversation with my acupuncterist this morning. He was saying that acupuncterists that he is acquainted with think there is a middle ground between health and illness and they call it sub-health. It often comes about the age of 50 as genetics and unwholesome habits create a state where the body is overloaded with toxins. He thinks that at this point often what is wrong is undiagnosable by the western system and if people choose to take the drugs that suppress the symptoms they will get seriously ill. He also said that they think some people are much more sensitive to their bodies and that if they pay attention and receive treatment to re-balance themselves they can return to health.

Another Dr.Yan quote,"disease begins in the mouth".

I just ate a chocolate brownie. It is my sweetie's birthday and he loves my gluten free brownies.

rinne, another fabulous nugget of wisdom from your acupuncturist!

I'm jealous of the chocolate brownie, does that ever sound good about now, ummmmm!

[Lisa]

Tavi/sally - - the name change always confuses me.....Tavi the bum, sounds exotic! R-ville never gets hotter than 85. Today - Fresno - we are 113, heat index 123, and outdoor burial in full sun. so......my post will be short.

I am just beat, spent, brain-dead, heat-exhausted......a very tiring day and tiring week. I had a huge epiphany at the funeral....do I have the stamina to share it now? It was not a happy epiphany...about how gluten ---> depression ---> mania robbed so many years of life from me, decades, really, as I felt tortured and sad even in early childhood.....and I hardly know soem of the people who've been in my life forever (like Grandma Rosie - my nieces' grandma, not mine - but I hardly knew my own either). I mean, I have been SO up and down emotionally and physically my whole life, and so over-drugged by every doctor.....malnourished.....mixed wtih occasional bouts of heavy alcohol consumption.....I just wasn't fully "THERE" most of the time wtih my family and many others. I caused much tension, trouble and worry in my family for so many years. They at times grow weary of me, yet have always been accepting and forgiving. They see all the difference now, and are telling my mom about it......but it was just this sad realization of how much I really didn't personally KNOW this tiny spitfire of a woman who died, because I was often too hyper to talk to her.....how dear she was and how little time I spent with her over the years, as I was either too hyper, too depressed......or drunk. Or absent entirely from family events, partying with a more lively bunch.....(I have the nicest family but I am quite different than they are - rather eccentric and very artsy and quite outspoken! Able to curb that mostly now, thank god, as was getting quite sick of self).

So, I got pretty sad, came home and collapsed......cool shower, down to the skivvies, lying on thte couch with the fan blowing.... sorry, TMI......

Oh SO sorry fellow residents that this is a sad post..... It will be better tomorrow. I do have the rest of my life to make up for lost time, I was BLESSED to find out the diagnosis at 44, as friends point out, instead of much later....I still DO have incredible, lifelong friends and some newer ones, and a family who loves me....I just mourn the lost years, and the damage control I am now doing.

Thank you to all of you who sent PM's and posted encouragement here...means the world.

and Meggan - - what a blessing. I don't even remember exactly the surgery she was having - someone please post. I know it was heart-related - - my little brother was the first open-heart surgery at our Children's hospital here - quite a stressor. I am SO glad it went well.

I think I'll be back to my old self tomorrow, carrying on the magical development of our wondrous cult farm. You guys are awesome, I know there are things I forgot to address tonight, but am SO tired and spent, will hope to have all my marbles back tomorrow....

thank you and bless you all. You add enormous entertainment to my life, daily.

Love - - -

Susan:

There is one thing that I have learned in my 51 years...........is that yesterday is gone and, as you said, when the sun rises in the morning IT IS A BRAND NEW DAY. Every day is a new start, no matter what yesterday gave you. Every 24 hours is a new start. Sometimes we don't take advantage of that.

Get a good night sleep, and tomorrow will be the beginning of a new day with perhaps, maybe a more confident Susan. That's up to you Babe. Love ya... Lisa