Omg...i Might Be On To Something

[dlp252]

OMG...I've been Racheling my own corn tortillas too! The other day I ate two! Not two tortillas.....two packages of tortillas. Needless to say I'm in histamine hell right now. Not to mention all the rice bread.

If I had had two packages I might have eaten them, lol. At the whole darned package in a day and a half. I was thinking (this morning as I was eating my LAST ONE) that I'd by two packages on Saturday...now I'm thinking I shouldn't, lol.

DRIVE BY

Aren't rashes that get worse in the sun a symptom of lupus?

Off to go research...

[Green12]

I cant remember who suggested polenta? Leah?? Anyways, I just tried it...it was yummy.

I actually didnt pull a Rachel this time...I still have half left. I'm gonna cut waaaay down on the carbs. Last summer I was totally of carbs for 4 months. Seriously, no cheating or anything. Not a single grain and no starchy veggies at all. I dont know how I did it but it was working...I didnt have any headaches or head swelling, no reflux...nothing like that. I also had an abundance of energy...I was like the energizer bunny.....building stuff and doing all kinds of home improvement and yard work. All day, every day.

I would get reactions out of the blue though and then take a week or so to get well again. Now I know why....I was eating spinach, avocados, tomatos, eggplant, fish, canned tuna....etc. These particular foods always did make me way worse but at the time I couldnt connect the dots.

I'm betting if I went on the same diet again but took out those foods....I'd feel great.

Sounds like a plan Rachel

I think am going back to following an adrenal healing plan, basically it is all about eating equal portions of protein, a small serving of carb with that protein, a healthy fat, and lots of vegetables. Totally eliminates sugar, as the sugar interferes with the nervous system, as well as everything else. I just can't totally get rid of the carbs, because I just lose way too much weight too quickly and I have no energy.

That's great you feel energized by it Rachel, energy is good

And thanks for clearing that up about who is on the keto and who isn't, so many wonderful people to keep track of here, but I try

[queenofhearts]

DRIVE BY

Aren't rashes that get worse in the sun a symptom of lupus?

I don't know, but ordinary hives feel worse in any kind of heat.

[dlp252]

No, the heat doesn't cause them, but it does make them feel 100 times worse. My doctor actually warned me against getting too "enthusiastic" with my hubby when I had my last outbreak!!! I thought that was a bit personal! But cool showers, a fan, &c. can help keep the misery at bay.

Hum....my mother was telling me about someone she worked with who had the same thing on her legs only...she'd go soak her legs in the swimming pool...I was thinking it was the chlorine, but I bet it was the coolness...maybe I'll try cool shower.

[Green12]

DRIVE BY

Aren't rashes that get worse in the sun a symptom of lupus?

Chelse, you crack me up.

How's the "all gluten, all the time" going??

I have heard that some hives are heat induced hives, and there is such thing as cold induced hives, both brought on by extreme temperature changes. Also by the sun, or for example jumping into a cold river.

I don't know if the sun induced hives are exclusive to lupus......

[queenofhearts]

I just saw Rachel's polenta post in Julie's reply, missed the original-- actually it was Miamia who brought it up, I just warmly concurred!!!

I'm glad you like it, I think it's great. In fact I may make some tonight!

Leah

[Green12]

More scientificness regarding hives:

Hives can be caused by allergic or non-allergic mechanisms . In a majority of chronic cases, the exact cause is unknown.

Often hives are caused by an adverse reaction to some food or drug. Foods likely to cause hives include chocolate, nuts, tomatoes, shellfish, and berries. Drugs often responsible for producing hives are penicillin, sulfa, anticonvulsants, phenobarbital, as well as aspirin, or food colored by tartrazine, which is yellow food dye #5.

A common cause of hives is dermatographism , which occurs in 5% of the population. It is caused by stroking of the skin or rubbing as occurs with scratching or tight-fitting garments .

Cholinergic urticaria is the medical profession's term for hives which can develop after activities which increase the body's temperature after exposure to warmth or heat . Such activities include a warm bath, shower, jacuzzi or hot tub use, exercise, a fever, or emotional stress. It has been estimated that 5% to 7% of patients who have hives experience the phenomenon of cholinergic urticaria.

Cold induced urticaria occurs after exposure to cold wind or water. Hives may appear on limbs, arms, and generally on any exposed area. Cold water or liquids can provoke symptoms on the lips or in the mouth.

Another type of hives is called solar urticaria . It is caused by exposure to sunlight or to a sunlamp and a reaction can occur within one to three minutes.

According to physicians, the factors (heat, cold, and sunlight) causing the hives in these cases involve no defined allergic substance even though the body mechanisms may resemble allergy.

Exercise is another common cause of hives in which there is no allergic substance involved (in most cases). Those individuals affected can also develop respiratory obstruction and/or lose consciousness. Such a severe reaction is caused exercise-induced anaphylaxis

[AndreaB]

Thanks for the lesson Julie.

My oldest step son used to break out in hives after having anything with prunes in it....at least that's what we think it was.

[dlp252]

More scientificness regarding hives:

Hives can be caused by allergic or non-allergic mechanisms . In a majority of chronic cases, the exact cause is unknown.

Often hives are caused by an adverse reaction to some food or drug. Foods likely to cause hives include chocolate, nuts, tomatoes, shellfish, and berries. Drugs often responsible for producing hives are penicillin, sulfa, anticonvulsants, phenobarbital, as well as aspirin, or food colored by tartrazine, which is yellow food dye #5.

A common cause of hives is dermatographism , which occurs in 5% of the population. It is caused by stroking of the skin or rubbing as occurs with scratching or tight-fitting garments .

Cholinergic urticaria is the medical profession's term for hives which can develop after activities which increase the body's temperature after exposure to warmth or heat . Such activities include a warm bath, shower, jacuzzi or hot tub use, exercise, a fever, or emotional stress. It has been estimated that 5% to 7% of patients who have hives experience the phenomenon of cholinergic urticaria.

Cold induced urticaria occurs after exposure to cold wind or water. Hives may appear on limbs, arms, and generally on any exposed area. Cold water or liquids can provoke symptoms on the lips or in the mouth.

Another type of hives is called solar urticaria . It is caused by exposure to sunlight or to a sunlamp and a reaction can occur within one to three minutes.

According to physicians, the factors (heat, cold, and sunlight) causing the hives in these cases involve no defined allergic substance even though the body mechanisms may resemble allergy.

Exercise is another common cause of hives in which there is no allergic substance involved (in most cases). Those individuals affected can also develop respiratory obstruction and/or lose consciousness. Such a severe reaction is caused exercise-induced anaphylaxis

Okay, I get itchy when I exercise, but usually only intense exercise which I don't do often any more. All of the foods they mentioned are foods I have been eating a LOT of. Today the darned legs itched in the shower...maybe the water temp was too high...

The only thing that keeps stumping me is that I don't get the itchyness everywhere...just on my legs. Weird.

Oh, and I meant to respond to Evie's post, but it wouldn't let me reply directly either.

Evie - Maybe you're right...maybe the scratching IS what brings them out. I noticed a couple of "drive-by" earaches this week too...just quick little "ows" then their gone.

You asked about improvements...can't remember if you meant after gluten free...but yes I've seen a lot of improvement since going gluten and casein free...for the last few years I haven't had a sense of smell, and that is returning ever so slightly. I'm not dizzy everyday like I was for nearly a year. Abdominal pain is virtually gone...just pops up here and there, but it was a daily occurrence for a long time. Pain in my knees is gone. I went so far as to see an orthopedic surgeon who basically said he didn't think he could help me because he didn't see anything majorly wrong in the MRI...after gluten/casein free the pain is gone. There are lots of other little things that have improved. What's improved since joining this thread is no more daily D and no more dizzyness. Yay.

[Green12]

Okay, I get itchy when I exercise, but usually only intense exercise which I don't do often any more. All of the foods they mentioned are foods I have been eating a LOT of. Today the darned legs itched in the shower...maybe the water temp was too high...

The only thing that keeps stumping me is that I don't get the itchyness everywhere...just on my legs. Weird.

I usually have my rashes and hives in one or a few designated areas each time, for you it sounds like it is the legs. Have you ever considered going to an acupucturist Donna? Just a thought since the main stream medical world hasn't been able to help you re this.

I am full of scientificness today, researching the DAO enzyme, I found this:

In the following study, persons with hyperthyroidism were found to have low levels of MAO and DAO (histaminase), both of which are copper-containing enzymes. This is excellent evidence that a copper deficiency is a key part of hyperthyroidism.

Circulating levels of T3, T4, gamma-amino-butyric acid, glutamate, 5-hydroxytryptamine, histamine, monoamine oxidase and histaminase were studied in 45 (25M, 20F) hyperthyroid patients and 46 (25M, 21F) normal healthy volunteers. Increased levels of blood 5-hydroxytryptamine, histamine and glutamic acid were observed along with elevated T3 and T4, whereas plasma gamma-aminobutyric acid, monoamine oxidase and histaminase activities were found to be low in both male and female patients. After three months of treatment, circulating levels of 5-hydroxytryptamine, histamine and glutamic acid decreased significantly along with normalization of thyroid hormones and with an increase in the concentrations of gamma-aminobutyric acid, monoamine oxidase and histaminase. There was a positive correlation between these amines and thyroid hormone levels. The findings thus suggest that alterations in the metabolism of biogenic amines may be related to an altered metabolism in thyrotoxicosis , and these parameters may prove to be useful markers for diagnosis and follow-up of these patients.

[dlp252]

I usually have my rashes and hives in one or a few designated areas each time, for you it sounds like it is the legs. Have you ever considered going to an acupucturist Donna? Just a thought since the main stream medical world hasn't been able to help you re this.

Actually, I HAVE considered an acupuncturist...I do have the name of someone who is supposed to be good. Maybe I should pull it out (if I can find it--my house is a bit messy...it's the black hole of condos, lol, things go in never to be seen again).

[Green12]

Maybe I should pull it out (if I can find it--my house is a bit messy...it's the black hole of condos, lol, things go in never to be seen again).

Donna

I would give it a try, see what thier approach would be

Look up "diamine oxidase enzyme deficiency" and MAJOR scientificness comes up

[Fiddle-Faddle]

Okay, I get itchy when I exercise, but usually only intense exercise which I don't do often any more. All of the foods they mentioned are foods I have been eating a LOT of. Today the darned legs itched in the shower...maybe the water temp was too high...

The only thing that keeps stumping me is that I don't get the itchyness everywhere...just on my legs. Weird.

ME, TOO! ME, TOO! I don't know anybody else that has this happen, either.

[dlp252]

ME, TOO! ME, TOO! I don't know anybody else that has this happen, either.

Yah, I've only heard of the one other person (besides you now) that had it and I didn't know her personally.

[penguin]

Chelse, you crack me up.

How's the "all gluten, all the time" going??

I have heard that some hives are heat induced hives, and there is such thing as cold induced hives, both brought on by extreme temperature changes. Also by the sun, or for example jumping into a cold river.

I don't know if the sun induced hives are exclusive to lupus......

All gluten all the time both sucks and blows I'm eating a disgusting amount of food in order to keep that reaction going all week!

I didn't mean that the sun rashes are exclusive to lupus, I just remember from my previous lupus research that they can occur... just throwing some ideas out there

More scientificness regarding hives:

Hives can be caused by allergic or non-allergic mechanisms . In a majority of chronic cases, the exact cause is unknown.

Often hives are caused by an adverse reaction to some food or drug. Foods likely to cause hives include chocolate, nuts, tomatoes, shellfish, and berries. Drugs often responsible for producing hives are penicillin, sulfa, anticonvulsants, phenobarbital, as well as aspirin, or food colored by tartrazine, which is yellow food dye #5.

A common cause of hives is dermatographism , which occurs in 5% of the population. It is caused by stroking of the skin or rubbing as occurs with scratching or tight-fitting garments .

I get these kind, but only since I've been eating gluten again. I usually get scratching induced hives on my arms, and then random patches everywhere else. It's worse at night, and I get hives all over my butt and left thigh

I'm in the same boat...don't know what's causing all the damn itching. I could buy stock in cortaid and benadryl So I'm no help, but just letting you know I have similar problems.

Yah, I've only heard of the one other person (besides you now) that had it and I didn't know her personally.

I have that happen, too. Usually if I've been running around outside, I always attributed it to pollen riding up my pants.

[dlp252]

It's worse at night, and I get hives all over my butt and left thigh

I'm in the same boat...don't know what's causing all the damn itching. I could buy stock in cortaid and benadryl So I'm no help, but just letting you know I have similar problems.

I have that happen, too. Usually if I've been running around outside, I always attributed it to pollen riding up my pants.

Mine seems worse at night too...or at least later in the day. They itched today in the shower and a bit after I got to work, but haven't really had any other problems so far today...same thing happened yesterday, but by the time I went to bed, the scratching was bad.

Wasn't it you that had the rash on your face a few weeks/months ago? Did you have that checked out (sorry, can't remember, and I can't even use the brain fog thing)? I remember (sort of) that Lupus was brought up, but can't remember if you had it checked out.

I'm picking up two prescription creams for the itching today after work, so I'll see if they help.

on the pollen thing!

[penguin]

Wasn't it you that had the rash on your face a few weeks/months ago? Did you have that checked out (sorry, can't remember, and I can't even use the brain fog thing)? I remember (sort of) that Lupus was brought up, but can't remember if you had it checked out.

Yeah, I didn't have it checked out, may ask the dr next time I go in. That is why I did all that lupus research, because of the redness on my face and across my nose.

I just determined that I'm a redhead and as such, I'm always blushing

That Irish blood is causing me all kinds of problems

[Fiddle-Faddle]

That Irish blood is causing me all kinds of problems

Yeah, in my case it seems to be the 1/4 Welsh bit that's causing mine...

[Green12]

That Irish blood is causing me all kinds of problems

Aint that the truth

I think I posted this somewhere else a while ago, but my naturopath had told me once that the hives at night time was significant. Can't remember exactly why now, but it had something to do with a certain organ doing its work at night, cleansing the body, so that toxicity was working itself out through the skin via hives. Darn, wish I could remember....

[rinne]

Julie, thanks for all the scientificness.

[Green12]

Omg....we've been moved

Julie, thanks for all the scientificness.

Thanks rinne, did you get your computer troubles all figured out?

[penguin]

Wow! This fast reply thing is awesome!

And the OMG thread...the thread so big it needed it's own section

[rinne]

Julie, I haven't got it figured out yet, I'm using my sweetie's computer. I've been thinking I need to be doing some other things in the daytime so it is o.k. and with the Rachelville subdivisions opening up I may spend a little time visiting them too.

[Rachel--24]

Wow!! This is really cool and exciting!!

Yes, we got moved to a new forum specifically for food intolerances other than gluten. Just for people like us.

I know this is gonna be very useful for alot of the members of this board....during my time here it seems like most of the people have to deal with additional intolerances and as we know it can be very very frusterating. I think the OMG thread started something that will ultimately be a huge help to other Celiac/gluten intolerant people with problems like ours. So ladies (and gents)...I think in the midst of all our fun and silliness we actually accomplished something here. Imagine that.

A really big thanks to Scott for adding in this new forum!

and yeah...the quick reply....waaaay cool! I love it.

[Rachel--24]

I am full of scientificness today, researching the DAO enzyme, I found this:

In the following study, persons with hyperthyroidism were found to have low levels of MAO and DAO (histaminase), both of which are copper-containing enzymes. This is excellent evidence that a copper deficiency is a key part of hyperthyroidism.

Circulating levels of T3, T4, gamma-amino-butyric acid, glutamate, 5-hydroxytryptamine, histamine, monoamine oxidase and histaminase were studied in 45 (25M, 20F) hyperthyroid patients and 46 (25M, 21F) normal healthy volunteers. Increased levels of blood 5-hydroxytryptamine, histamine and glutamic acid were observed along with elevated T3 and T4, whereas plasma gamma-aminobutyric acid, monoamine oxidase and histaminase activities were found to be low in both male and female patients. After three months of treatment, circulating levels of 5-hydroxytryptamine, histamine and glutamic acid decreased significantly along with normalization of thyroid hormones and with an increase in the concentrations of gamma-aminobutyric acid, monoamine oxidase and histaminase. There was a positive correlation between these amines and thyroid hormone levels. The findings thus suggest that alterations in the metabolism of biogenic amines may be related to an altered metabolism in thyrotoxicosis , and these parameters may prove to be useful markers for diagnosis and follow-up of these patients.

WOW Julie!!!

That is awesome scientificness!!

I was diagnosed hyperthyroid (Graves Disease) about 4 years before I got really sick! I already mentioned previously that folic acid causes a big increase in histamines. My Graves disease was active and I was hyperthyroid at the time I was taking the folic acid. This is the exact time that I got sick! Before you provided this info. I was already thinking that I must have already had low levels of DOA in order for something to push this whole thing over the top. I've been racking my brain trying to figure out what the trigger was.

Since my thyroid had been overactive and my metabolism really fast for most of my life its likely that in light of this new scientificness.....I was always low in DOA!! Possibly the folic acid sent things out of control?? Then they "killed" my thyroid to calm things down and now my body has had to adjust to a slower metabolism and as a result...slower digestion. Now that I have slow digestion and possibly elevated histamine levels...it makes sense that whatever isnt being digested quickly is creating even more histamines. Hence....the overload I've been dealing with for almost 4 years now.

I believe glutamic acid is related to glutamates....which would explain my reactions to MSG and even natural glutamates. Hmmmm....its all very complicated though.

Right now my thyroid is very low for me...possibly this is causing me to be more sensitive?? I find myself having to be very strict with my diet right now. Seems like I have more of a histamine build-up than usual and the slightest error will cause a flare-up.

I dont think my DOA will go back to normal with normal thyroid levels...it hasnt happened so far. Is there anything else that can get the DOA back to normal functioning again? Should I have copper levels tested?

If I had copper deficiency do you think it could be contributing? How do they fix a copper deficiency? This will be the next thing I bring up to my doc.