Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted
CArla-

I had the bicilin shots as well. And while it hurt going in it never lasted that long except twice when my doctor was not as careful. I am so thin so they had to really feel around to find a spot with enough meat to handle it the more careful they were the less it hurt. It should not be as painful as you describe although like I said twice it was very painful for me but only when they were done in a rush

miamia

Thank you for the feedback on this. This one was not done in a hurry. My friend, a nurse, did it and took one or two minutes to inject all the liquid. I didn't even feel the prick of the needle. It's still tender and hurt last night even in bed when I'd roll over on it.

I'm wondering if it's because I'm too muscular back there. I lift weights and am pretty muscular. I'm thin, but not as thin as you've been, so there's meat to inject it into.

Did your hurt for days the two times it was painful?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
dlp252 Apprentice
dlp252
Posted

Maybe it went into a muscle.... I have a lot of fat on my behind so probably wouldn't feel it much, but I can say that I've been having those trigger point injections in the muscles of my forearms (down to the bone) and it hurts like heck for days. It wasn't so bad when it was in less muscular parts...even in my head and neck it didn't hurt as much, but my forearms are the most muscular part of my body. :P

CarlaB Enthusiast
CarlaB
Posted

That's what I'm thinking, Donna, that it's because it's muscle. My behind is small and muscular, there's not a lot of fat back there. I just don't think I'm a good candidate for this treatment... I can't just have a sore backside ALL the time, which is what I would have because I'm due for the next shot tomorrow and this one still hurts, and I don't imagine it will be healed by Sunday when I'd need one on that side again.

dlp252 Apprentice
dlp252
Posted

I'd tend to agree with you Carla. I know that the day after I get the injections in my forearms I can barely lift ANYTHING. It even hurts to lift my plate when I eat. The muscles are weak too. I can't imagine not being able to sit, lol. Or laying down...how do you get comfortable to sleep?

CarlaB Enthusiast
CarlaB
Posted

I usually sleep on my back, sometimes leaning over to one side or the other, but basically on my back. I just have to be sure it's towards my left rather than my right! That's part of the reason I'm afraid to get one in the other side!

jerseyangel Proficient
jerseyangel
Posted

Well, this must be gluten--I'm positively doopy :huh: Hard to concentrate on anything--tried to reconcile the check book and had to focus so hard I got a headache!

At least the nausea is down to a dull roar...

But, now my face is breaking out :(

:angry::angry::angry:

jerseyangel Proficient
jerseyangel
Posted

...And enough with that baby picture--it's annoying the heck out of me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
I'm positively doopy :huh:

"Doopy", another new Rachelville word!

Patti, sorry you're feeling crummy. NO MORE ENVIROKIDS BARS for you!!

I balanced my checkbook last month when I started feeling better ... I hadn't done it for SIX months!! :o

My doctor said it was fine to continue on with the oral meds I'm on and just skip the bicillin. :rolleyes: It's good because I wasn't going to take them anyway! :lol:

CarlaB Enthusiast
CarlaB
Posted
...And enough with that baby picture--it's annoying the heck out of me.

Now that sounds more like PMS or Lyme rage than gluten!! :lol:

AndreaB Contributor
AndreaB
Posted
Well, this must be gluten--I'm positively doopy :huh: Hard to concentrate on anything--tried to reconcile the check book and had to focus so hard I got a headache!

At least the nausea is down to a dull roar...

But, now my face is breaking out :(

:angry::angry::angry:

I'm so sorry Patti. Sounds like it's on the downswing......kinda. :unsure:

...And enough with that baby picture--it's annoying the heck out of me.

:lol::ph34r:

My doctor said it was fine to continue on with the oral meds I'm on and just skip the bicillin. :rolleyes: It's good because I wasn't going to take them anyway! :lol:

I'm so glad. That must be a huge relief to you as well.

Now that sounds more like PMS or Lyme rage than gluten!! :lol:

Could be. :ph34r:

jerseyangel Proficient
jerseyangel
Posted
My doctor said it was fine to continue on with the oral meds I'm on and just skip the bicillin. :rolleyes: It's good because I wasn't going to take them anyway! :lol:

Well that's good! :D Your tushy will thank you :P

Now that sounds more like PMS or Lyme rage than gluten!! :lol:

PMS is gone forever...gluten really does make me very snappish. :ph34r:

Could be. :ph34r:

:lol:

dlp252 Apprentice
dlp252
Posted

Aw Patti, so sorry! You said doopy. :lol:

And, what's with the breaking out...I am too and it's driving me crazy. In my case it may be hormonal since that all seems to be out of whack I just want it gone. Stupid breaking out. :angry:

jerseyangel Proficient
jerseyangel
Posted

Yea--stupid breaking out! :angry:

Gluten makes me break out--but I think my hormones are still trying to settle down! What's left of them, anyway :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Donna...I was just doing a search on some candida stuff and came across a post from a candida site. Guess who's post it was??

Is was yours.....back in 2004. :huh:

You were talking about your itchy heel. :lol::lol:

And then...I read that your Dr. gave you a prescription for Diflucin. But just ONE pill!! :blink:

WTH is that??? :lol:

Oh yeah...one pill....thats really gonna "fix" everything. :rolleyes:

I used to post on that board too...but I think it was in 2005. Heck...maybe we "met" before the OMG thread ever existed. :P

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Bev posted on D/S that her appointment is tomorrow for the blood draw and that her endoscopy is

Friday. She's been swamped with company so I hope we see her over here after things calm down.

Thanks for posting that Andrea. For some reason I had thought her blood draw was yesterday?? Hmmmm...maybe that was my own blood draw I was thinking of. :huh:

Hopefully everything goes well and we'll hear from her soon enough. :)

Andrea....Michelle is in Tahoe with Dave and all the other managers...its some big Safeway "event" they have every year with all the managers from all over and all the "big-wigs".

Anyways...Michelle got awarded "Store Manager of The Year". :o

She got like 4 different awards I think...one was for training....and check this out....they're gonna name a training room at the corporate office after her. :huh: I thought that really cool but also hilarious!! I wonder what it will be called :unsure:

I can think of a BUNCH of stuff to call it. :lol::lol:

Cant wait to tease her about that. :P

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Well, this must be gluten--I'm positively doopy :huh: Hard to concentrate on anything--tried to reconcile the check book and had to focus so hard I got a headache!

Awwww Patti....stupid gluten. :angry:

I hope you feel better soon....drink lots of water. ;)

happygirl Collaborator
happygirl
Posted

Carla-I don't remember if you are still on Omnicef or not, but if you are or go back on it, I just found out today that there is a generic Omnicef....supposed to be considerably cheaper. Are you on the Omnicef or the generic?

Patti----you poor thing!!!!!! That is definitely the last thing you need. Like you need to deal with gluten issues on top of your other diet issues. I hope it passes quickly. Hugs!!!!

dlp252 Apprentice
dlp252
Posted
What's left of them, anyway

:lol: Yea, what the heck am I thinking, lol...after all this time, I bet I don't have any left. :P

Donna...I was just doing a search on some candida stuff and came across a post from a candida site. Guess who's post it was??

Is was yours.....back in 2004.

You were talking about your itchy heel.

And then...I read that your Dr. gave you a prescription for Diflucin. But just ONE pill!!

WTH is that???

Oh yeah...one pill....thats really gonna "fix" everything.

I used to post on that board too...but I think it was in 2005. Heck...maybe we "met" before the OMG thread ever existed.

Maybe :lol: I used to post on two candida boards. 2004 was in the middle of my sinus infection/sick cycle...every 6 weeks that doc put me on antibiotics and prednisone. I give him credit for at least trying to figure out what it was. He was certain I had candida so prescribed Nystatin and since my insurance company would only pay for ONE Diflucan, I only got ONE pill! Isn't that ridiculous!!! I think if I had had female candida issues they MIGHT have okay'd more, but I'm never sure with this stupid company. Anyway, I think eventually this doctor would have figured out the gluten/casein issue...he's the one that put me on the Yeast Connection rotation diet. He retired though in 2005 I think. He was also the one who was willing to clinically diagnose/treat on symptoms, so we tried a couple of different things, including Armour thyroid to see if it would ease some of my symptoms (the low body temp, hair loss, exhaustion, etc.)

That stupid heel was/is horrible. It's always the same spot, the itch is so intense that one day I was tempted to take a knife to my foot. It wakes me out of a sound sleep and once awake the itch is unbearable. We were never able to figure out what the heck goes on with my heel or my legs. :( Fprtunately my heel is taking a break...it hasn't itched for a few months now, but my legs have taken over. :( It seems to alternate between unbearable itching on my legs or unbearable itching on my one heel. :lol::P

I'm still wondering if it's tied in with the candida, mercury, mold or lyme. :P

Thanks for posting that Andrea. For some reason I I can think of a BUNCH of stuff to call it.

Cant wait to tease her about that.

I bet she can't wait to hear it :P:lol:

happygirl Collaborator
happygirl
Posted

My doctor's office received the samples, and they are working on sending it out...so hopefully it will go out this week. Once it goes out, it takes about 2 weeks for results.

Of particular interest:

Ned Tijdschr Geneeskd. 2005 Dec 17;149(51):2873-6. Links

[severe diarrhoea with invasive intestinal spirochaetosis][Article in Dutch]

Koopmans NG, Kwee WS, Grave W, Stals FS.

Universiteit Maastricht, Faculteit der Geneeskunde, Maastricht.

A 38-year-old heterosexual male presented with a 6 to 7 week history of severe diarrhoea but no other complaints. In routine faecal cultures and routine parasitological investigations no pathogenic micro-organisms were observed. Colonoscopy revealed a normal mucosa. Multiple biopsies were obtained. The histological diagnosis was invasive intestinal spirochaetosis. The immunostain for Borrelia burgdorferi cross-reacted with the spirochetes of the intestinal spirochaetosis. After two weeks of incubation under strict anaerobic conditions a spirochaete was cultured from a biopsy of the sigmoid mucosa. The 16SrDNA sequence was consistent with Brachyspira aalborgi. The HIV and syphilis results were negative. The patient was treated first with metronidazole and then by clindamycin. The diarrhoea subsided after the second course of treatment and the cause was presumed to have been the invasive intestinal spirochaetosis. Intestinal spirochaetosis is usually found coincidentally at histological examination of colon biopsies. There is no general consensus that intestinal spirochaetosis is the cause of the diarrhoea. There is however an association between the presence of symptoms and the invasivity of spirochaetes, morphological colon epithelial changes and evidence of immune response. The literature reports patients who improve symptomatically without specific treatment. Treatment may be given to patients with severe symptoms.

Trop Gastroenterol. 1990 Jul-Sep;11(3):152-7. Links

Spirochetal dysentery: a case report and review of literature.Singh S, Rattan A, Samantaray JC.

Department of Microbiology, All India Institute of Medical Sciences, New Delhi.

Spiral shaped bacteria have frequently been demonstrated from human faeces. Their role in causation of disease is, however, controversial; as they have been found to colonise the lower gastrointestinal tracts of both symptomatic and asymptomatic individuals. Here we report a case in which spiral shaped motile, gram negative and nonflagellated bacteria, probably belonging to the genus Borrelia, were demonstrated and associated with acute bloody diarrhea in a cardiac patient. The condition could successfully be treated with short course of Metronidazole. The relevant and up to date literature on this problem is also reviewed.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Laura,

Its interesting and I wouldnt be surprised if Lyme is the reason for alot of peoples GI distress and ongoing diarreah.

When I had to get treated for C. Diff I joined that board to learn whatever I could. There are soooo many people on there with ongoing diarreah. They were once found to have C.Diff and even though they've done treatment and do not test positive for C. Diff anymore....they believe its still there because there is no resolution of symptoms.

It seems like alot of us here have had C. Diff show up. It opportunistic like yeast...which we've all been dealing with as well. Sounds like Lyme can definately wreak some havoc in the GI tract. <_< I'm betting alot of those people who never ever recover from C. Diff symptoms....are actually dealing with Lyme...and the C.Diff overgrowth is a result of the Lyme infection.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Carla and Donna,

I have been hit in the muscle with shots, too. It took me a week to get rid of the soreness! The Depo-Provera shot needs to be given in the muscle, though. That is really difficult to handle, sometimes. It is not easy dealing with a sore rear-end. :(

Dear Patti,

I am sorry to hear you are doopy! :lol: I love that word! I hate the gastro symptoms that go with it. I have been breaking out as well. The thing is, I am beginning to think it is not just acne. Acne is not supposed to itch and burn, right? Could it be it is actually DH? I know it does not usually appear on the face, but it often makes me scratch it until it bleeds.

Sincerely,

NoGluGirl

happygirl Collaborator
happygirl
Posted

not sure if yall have seen this, but I think it will help explain some of the differences between ILADS and IDSA. The letter at the first part is good, but its the comparison later on that is so compelling. Might be good for Bev to see, also.

Open Original Shared Link

this is a good part:

College of American Pathologists (CAP): ELISA assays for Lyme Disease do not have adequate sensitivity to be part of

the two-tiered approach of the CDC/ASPHLD[6]

Johns Hopkins 2-yr study (2005): The CDC 2-tiered testing proceduremisses 75% of positive Lyme cases[14]

NY Dept. of Health Letter (1996): CDC

Mtndog Collaborator
Mtndog
Posted

Hello! Sorry I've been MIA (long story long weekend) but I've done some catching up reading on everyone. My blood draw is tomorrow. I got my "diagnosis" list and one of the diagnoses was GIDDINESS :P (apparently it's a medical term for dizziness).

Endoscopy Friday -ugh! will be SO happy when this week is over! I'm grumpy. Where's susie Q when I need a good *HARUMPH*

AndreaB Contributor
AndreaB
Posted
Anyways...Michelle got awarded "Store Manager of The Year". :o

She got like 4 different awards I think...one was for training....and check this out....they're gonna name a training room at the corporate office after her. :huh: I thought that really cool but also hilarious!! I wonder what it will be called :unsure:

I can think of a BUNCH of stuff to call it. :lol::lol:

Cant wait to tease her about that. :P

I bet Dave is jealous. :P Congratulations to her.

Can't wait to hear how she likes the names you'd like to call the training room. :lol:

I'm still wondering if it's tied in with the candida, mercury, mold or lyme. :P

Hm.....let me see......I vote for lyme and mercury. :ph34r:

Where's susie Q when I need a good *HARUMPH*

Don't know where Susie Q is but HARUMPH! :lol::lol:

Try to get some rest these next few days. We'll look forward to updates when you can update us.

Nice picture! :D

I went shopping two days before payday :ph34r: since my doctor was only over here today. Didn't want to drive down to Vancouver 2 days in a row. I know one won't clear before payday....

NoGluGirl Contributor
NoGluGirl
Posted

Dear Bev,

We were wondering where you were! You are so pretty in your pic! :) I will give you a HARUMPH! It sounds like you had a tough week. I had a bad day Friday after being glutened. I am still not recovered completely just yet.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.