Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted

Happy Birthday, Sherry!

I think China is ahead of us .....

Donna, I really feel it is helping with the bloating, and nothing has before. :) Fortunately, today I did not see any tapeworm. :) I SAW about 4 feet, and I didn't do a thorough search, so there very well could have been more. It was making me nauseous for quite some time after I used the bathroom .... I think just the idea of it nauseated me!

I have to adjust to the new colors, too! I'm looking at it for the first time and don't have my glasses on ... so we'll see later! I didn't like the gray and blue, but I liked the blue it was before .... I think I'll like the green ... it's my favorite color!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
confusedks Enthusiast
confusedks
Posted

I'm not so sure I like the new board format. It's a little confusing...I guess I'll get used to it. ;)

Kassandra

Flor Apprentice
Flor
Posted

Sorry to interrupt here with an unrelated (but related) item:

This is a new report on possible link between electro-magnetic radiation and mercury toxicity. YIKES!

Open Original Shared Link

confusedks Enthusiast
confusedks
Posted

Okay, I have REALLY GOOD NEWS!!! The insurance has approved up to $800 a day for iron IV's!!!!! YAY!!!!!!!!!!!!!!!! Since the IV's cost about $300- 500 a day, so there will be enough for a PICC line also. The Dr. just needs to order that and figure out exactly how this will all work out. I am so relieved!!!

On another note, the Igenex stuff still hasn't gone through. We decided that we are going to get blood drawn through the Medical Group I was going to (the ones who ran the most recent blood work) and since it's only $35 for the Western Blot, my mom figures if it comes back positive then great...but if its negative we will pursue Igenex.

Kassandra

Green12 Enthusiast
Green12
Posted
Sorry to interrupt here with an unrelated (but related) item:

This is a new report on possible link between electro-magnetic radiation and mercury toxicity. YIKES!

Open Original Shared Link

catesfolly, you aren't interupting! Jump in any time.

YIKES is right! Thanks for posting that.

Kassandra, GREAT NEWS on the insurance coming through for your iron IV's!! I am sure you and your family are so relived about that.

That is the route I went, same price for the test, might even be the same lab. Igenex is the next step so you can see how that one worked out for me :lol:

Anybody heard from SUsie UK? She hasn't posted in a long time.

Carla, that's good you are noticing less bloating with the product.

You must be feeling well, I can tell when you aren't around as much you are probably out and about living your life!

I don't care for the board change, I love green, but I can't read this very well, the posts are muddled together :(

CarlaB Enthusiast
CarlaB
Posted

catesfolly, thanks for posting that!

Kassandra, I'm glad the iron is covered ... and the Western Blot sounds like a good idea, maybe you'll get a positive and won't have to worry about IGeneX.

It looks like I am going to get through this cold without a Lyme flare! This is HUGE! I do have more muscle aches than normal, and a little knee pain, but a small cold used to send me to bed for two weeks .... this time it was a fever and bed only one day. :)

AndreaB Contributor
AndreaB
Posted
Sorry to interrupt here with an unrelated (but related) item:

This is a new report on possible link between electro-magnetic radiation and mercury toxicity. YIKES!

Open Original Shared Link

Thanks Catefolly. I've heard lots of stuff about how bad cell and cordless phones are. It's interesting to see a report on it.

That is the route I went, same price for the test, might even be the same lab. Igenex is the next step so you can see how that one worked out for me :lol:

Anybody heard from SUsie UK? She hasn't posted in a long time.

Carla, that's good you are noticing less bloating with the product.

You must be feeling well, I can tell when you aren't around as mucch you are probably out and about living your life!

I don't care for the board change, I love green, but I can't read this very well, the posts are muddled together :(

Is Igenex in your future?

Susie UK was reading a day or two ago.

Yep, Carla's not on as much when she's feeling better.

I don't like the format very well. I agree it's hard to read the posts now with the poster information strung across the top of the post instead of the side. I do like the green color though.

It looks like I am going to get through this cold without a Lyme flare! This is HUGE! I do have more muscle aches than normal, and a little knee pain, but a small cold used to send me to bed for two weeks .... this time it was a fever and bed only one day. :)

YAY!!!!!

Kassandra,

I thought I'd hit quote for your post.....anyway YAY on getting the IV's approved!

I do hope your mom will follow through with Igenex if your other lyme test comes out negative.....which I won't be surprised if it does......see Julies response.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Yeah, I get busy playing catch-up when I'm feeling well. Today I feel pretty good ... it's just that I'm supposed to be cleaning ... gosh, I'm worse than the kids!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Sorry to interrupt here with an unrelated (but related) item:

This is a new report on possible link between electro-magnetic radiation and mercury toxicity. YIKES!

Open Original Shared Link

Unfortunately this stuff is true. I've posted a little about it awhile back. There is a definate link and very often people who are highly toxic with metals will notice reactions to EMF's. There was a time when I'd feel it just sitting in front of the computer...although its not so bad anymore.

My Dr.'s have talked to me about EMF's and I've been tested for EMF stress...and they did find that my body was under some stress from that. I had to stop using my electric blanket and I unplugged the cordless phone that was in my room...also the alram clock that was over my head.

I'm supposed to avoid putting my cell phone up to my head but I havent addressed that yet. :ph34r:

One of my Dr.'s said that this is definately showing up as a problem with her autistic kids. She said some of them will go nuts when they get around a cell phone tower...and some have to be holding onto some type of electronic device at all times or they have meltdowns.

I asked her if this stuff is gonna prevent me from recovering. She said that right now we just really need to focus on getting the metals out.

She also told me to not put my body right next to the computer tower....she said to keep my body away from it as much as possible.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

I cant read the board as well....it hurts my eyes. :(

I'm not sure what it is cuz I love green ....its my favorite color...but my eyes dont adjust too well to this. All the posts seem to run together. :unsure:

Hopefully my eyes will adjust cuz right now its hard for me to read the posts.

Maybe its the font?? Is the font lighter or something?? :unsure:

confusedks Enthusiast
confusedks
Posted

Julie,

Lol! I am not expecting anything from this lab. If it comes back negative, we will pursue Igenex, but if it's positive, we won't unless the LLMD wants us to.

Kassandra

ami27 Apprentice
ami27
Posted

Thank you all for your kind words of support. You are all a great group of people :wub:

tom Contributor
tom
Posted
Okay, I have REALLY GOOD NEWS!!! The insurance has approved up to $800 a day for iron IV's!!!!! YAY!!!!!!!!!!!!!!!!

YAhOOOOOoooooooooooOOOOOOOO!!

So happy for you!!! :)

It's a lonely and precarious position to be hoping an Insurance company will do the right thing. <_<

confusedks Enthusiast
confusedks
Posted
YAhOOOOOoooooooooooOOOOOOOO!!

So happy for you!!! :)

It's a lonely and precarious position to be hoping an Insurance company will do the right thing. <_<

Tom,

Lol!! Thank you! We are very happy! Now I am freaked out to get the PICC line! AHH!!

Everyone,

The place that was going to run the test for Lyme (western blot) didn't call me back today! I guess I will have to wait until Monday or Tuesday.

Kassandra

Green12 Enthusiast
Green12
Posted
Thank you all for your kind words of support. You are all a great group of people :wub:

I've been thinking a lot about you Ami, I hope you are holding up ok.

Don't be a stranger.

Green12 Enthusiast
Green12
Posted
Everyone,

The place that was going to run the test for Lyme (western blot) didn't call me back today! I guess I will have to wait until Monday or Tuesday.

Kassandra

You might be in for a little bit of a longer wait with the timing of all of this. It will be a short week for offices/labs next week with Thanksgiving.

Judyin Philly Enthusiast
Judyin Philly
Posted

Oh My Gracious........... :blink:

I haven't been on a few days............

This format has sure changed

It is so bright i just can't read it.

I was just reading the one page posts here and I'm going to have to get off.

I just have to squint to keep the brightness out. :o:(

confusedks Enthusiast
confusedks
Posted

Judy,

If you press refresh, it won't be as bright...

Julie,

Grr! I hadn't thought about that! It's like there something going on because every time I try to get something done...it doesn't happen!!! :angry:

Jin,

WHERE ARE YOU!???

Kassandra

AndreaB Contributor
AndreaB
Posted
My Dr.'s have talked to me about EMF's and I've been tested for EMF stress...and they did find that my body was under some stress from that. I had to stop using my electric blanket and I unplugged the cordless phone that was in my room...also the alram clock that was over my head.

She also told me to not put my body right next to the computer tower....she said to keep my body away from it as much as possible.

I had EMF stress come up on my ASYRA testing. I'm still on the computer almost all day. :(

Looks like the main board color has been toned down now........still light print though.

confusedks Enthusiast
confusedks
Posted

Andrea,

I know...the print is too dull...it needs to be black...not charcoal! LOL!

Kassandra

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

I had DMPS again yesterday. It went really well...no problems at all.

I wish I had been collecting urine again but I do feel alot better knowing that last time the metals were coming out.

I wish I had started earlier so that I might be eating holiday food this year. :(

I had a baby dose again (1cc). My Dr. wrote on my chart "DMPS 1-3". The nurse told me since he wrote that I could pick which dose I want 1-3. :huh: I was really tempted to say "2 please". :)

I know what my Dr. meant by 1-3...so I told her he wants me to start with 1 and then work up to 3.

So I got the smallest again. :rolleyes:

I asked her if anyone else is getting 1cc...and she said no..that most people get 5cc's...which is the "normal" dose. I said "Everyone else is getting 5 cc's??" :blink:

She said thats what most people get. I told her my doc said I probably wont ever have 5 cc's. :(

Judyin Philly Enthusiast
Judyin Philly
Posted

Thanks guys this is better.

doing it in bold so we'll see how this comes out.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Everyone,

Just when I thought I was getting caught up, there was more! Do not worry, I am reading along and will post soon. I have been busy, but will respond shortly.

I just worry this new format will mess up my ability to recall things as well. Tomorrow, I may get my hair done! Maybe by this time tomorrow, I will have my Jen Zen going on!

Sincerely,

Jin

AndreaB Contributor
AndreaB
Posted
Thanks guys this is better.

doing it in bold so we'll see how this comes out.

I need to try and remember to post everything in black. :)

Just when I thought I was getting caught up, there was more! Do not worry, I am reading along and will post soon. I have been busy, but will respond shortly.

I just worry this new format will mess up my ability to recall things as well. Tomorrow, I may get my hair done! Maybe by this time tomorrow, I will have my Jen Zen going on.

Thanks for the drive by. I've been worried about you.

confusedks Enthusiast
confusedks
Posted

So I know plenty of you have had to deal with insomnia, so I was just wondering what is something that I can get over the counter that won't make me sleep for 10 days straight...lol.

Kassandra

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,128
    • Most Online (within 30 mins)
      7,748
    Steve715
    Newest Member
    Steve715
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies.   B12 Cobalamine needs the seven other B vitamins to work properly.   You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency.  You can have "normal" B12, but have deficiencies in other B vitamins like Thiamine and Niacin, for which there are no accurate tests. Take a B Complex supplement with all the B vitamins.  Take additional Thiamine B 1 in the form Benfotiamine which has been shown to promote intestinal healing.  Thiamine Mononitrate found in most vitamin supplements is not easy for the body to utilize.  What makes thiamine mononitrate not break down on the shelf also makes it hard for the body to absorb and utilize.  Thiamine and Niacin B 3 deficiency symptoms include anxiety, depression and irritability.  The brain uses more Thiamine than other organs.  Take the B Complex and Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and look for health improvements in the following weeks.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals.  Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain.  Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high.   Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself?  The AIP diet helps lower inflammation and promotes intestinal healing.   The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in.  The low histamine AIP diet will help reduce inflammation further.   Histamine is released as part of the immune response in celiac disease.  Foods also contain various amounts of histamine or provoke histamine release.  Lowering the amount of histamine from foods helps.  The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial.  Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease.  Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants.  Processed foods like sausages and gluten-free processed products are high in histamines.  All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate.  You can have vitamin deficiency symptoms before blood levels show a deficiency.  Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized.  The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder.  Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins.   The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease.  Because they are water soluble, the body can easily excrete any excess B vitamins in urine.  The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks.  Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable.  The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily.  Benfotiamine has been shown to promote intestinal healing.   Remember your intestines are in a damaged, permeable state.  Treat them tenderly, like you would a baby until they heal.  You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts.  Change your diet so your intestines can heal.   I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain.  These three B vitamins have analgesic properties.  They relieve pain better than other otc pain relievers. 
    • Mari
      My only proof

      By Mari · Posted

    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Sorry, I think I got you mixed up with another poster.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.