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Rachel--24

Omg...i Might Be On To Something

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I had EMF stress come up on my ASYRA testing. I'm still on the computer almost all day. :(

I have this thing in the house that neutralizes geopathic and EMF stress.

Julie,

Grr! I hadn't thought about that! It's like there something going on because every time I try to get something done...it doesn't happen!!!

I know, this time of year requires patience, if possible :lol: , to get things done.

What's going on with your sleep? Are you on any additional medication that makes you sleep??

I know you are exhausted with all that your body is going through, and your iron levels are an issue, your body might just be calling for lots of sleep, it's a natural healing process.

Hi Jin!

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Lol!! Thank you! We are very happy! Now I am freaked out to get the PICC line! AHH!!

I would be, too. It'll be fine, though.

So I know plenty of you have had to deal with insomnia, so I was just wondering what is something that I can get over the counter that won't make me sleep for 10 days straight...lol.

My LLMD had me take melatonin, L-tryptophan, and Valerian root. None of them make me sleep though .... but you can try .... they work for some.

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My sleep is fine once I'm asleep. It's getting to sleep though. I think because I am not waking up at 5 and going to bed at 1, my body doesn't know how to sleep when it's not exhausted to the most extreme point. The good news is I went to bed at 1 and woke up just now (it's noon.) That was without taking anything.

Kassandra

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Then I would try taking melatonin each evening. It might help your body learn to sleep again.

Adam pointd out a couple interesting things .... one, the day I was sick with a fever and didn't even get up was the first day I was taking Humaworm. The other is, I have color in my face again! I had a great "pale" look going on for quite a while ... even last summer when I had a tan.

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Dear Everyone,

Just when I thought I was getting caught up, there was more! Do not worry, I am reading along and will post soon. I have been busy, but will respond shortly.

I just worry this new format will mess up my ability to recall things as well. Tomorrow, I may get my hair done! Maybe by this time tomorrow, I will have my Jen Zen going on!

Sincerely,

Jin

Jin!

There you are! Will you post a picture of your new 'do? B)

Kassandra,

A very nice member of this forum named "mouse" has had a picc line, and I'm sure that if you PM her, she'd be happy to let you know all about the experience :)

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Heres some info. re: why its important to deal with mercury when fighting chronic infections such as Lyme.

MERCURY AND THE IMMUNE SYSTEM

In 1984, David Eggleston, Associate Professor at the Department of Restorative Dentistry, published a preliminary report, which demonstrated the ability of amalgam and nickel to affect the total percentages of T cells (J Prost Dent, 1984; 51: 617-23)-those cells, which help killer cells to recognize foreign invaders.

Two cases involving dental amalgam, and one involving nickel, were presented. The results were similar in all cases. In one of Eggleston's 21-year-old patients who had six amalgam fillings, 47 per cent of lymphocytes were T lymphocytes with amalgam fillings. After removal of these fillings, 73 per cent of lymphocytes were T lymphocytes-an increase of 55.3 per cent.

When four amalgam fillings were again placed in the patient, the T lymphocyte count dropped to 55 per cent-a decrease of 24.7 per cent. When the patient's amalgam fillings were replaced with gold, the T lymphocyte count rose from to 72 per cent-an increase of 30.9 per cent.

The most recent research (Int J Occup Med Tox, 1995; 4) involving 34 patients with CNS disorders indicated intoxication from dental amalgam.

Tests showed pathological findings in 88 per cent of these patients, of whom 60 per cent showed an immune reaction to mercuric chloride. These findings support the view that chronic low-level exposure to mercury can compromise or weaken the immune system and adversely affect the defense mechanisms of the body.

BACTERIAL RESISTANCE TO ANTIBIOTICS

A survey of 356 patients who had not recently been exposed to antibiotics showed a high prevalence of mercury resistant bacteria. They were also significantly more likely to concurrently have resistance to two or more antibiotics (Antimicrob Agents Chemother, 1988; 32: 1801-6).

These findings prompted a three-university collaborative investigation in primates (Antimicrob Agents Chemother, 1993; 37:825-34). This showed that a large proportion of common oral and intestinal bacteria became resistant to mercury two weeks after receiving amalgam fillings.

Nearly all the mercury-resistant bacteria were resistant to one or more antibiotics such as tetracycline, ampicillin, streptomycin and erythromycin. As in the human study, the monkeys had not had recent exposure to antibiotics, demonstrating that the bacteria had become antibiotic-resistant due to exposure to mercury from dental amalgam.

In both studies, the proportion of mercury and antibiotic-resistant bacteria declined markedly during the two months after amalgam removal.

These studies confirm earlier work carried out in Japan (Antimicrob Agents Chemother, 1997; 11: 999-1003; Appl Environ Microbiol, 1977; 33: 975 6; Nature, 1977; 266: 165-7), which showed that strands of DNA could transfer the bacterial resistance to antibiotics and mercury to other bacteria. The mercury-resistant bacteria constantly recirculate the mercury as vapour-exacerbating the increase of antibiotic-resistant bacteria. Thus, the situation cannot improve until the source of the mercury is removed.

In a recent paper (Sci Prog, 1997; 80: 103-6), a team from the Eastman Dental Institute pointed out: "It must be remembered that oral streptococci are a major cause of infective endocarditis with a high mortality". The general systemic consequences of the inability of antibiotics to contain or eliminate these resistant bacteria, commonly called 'superbugs', are an escalating and serious problem. The role of mercury in their growth should not be ignored.

Research has shown that mercury from dental amalgam fillings:

1. Increases mercury-resistant bacteria, resulting in the constant recycling of mercury in the body;

2. Increases antibiotic resistance in bacteria-the superbugs-with obviously more serious consequences;

3. That bacteria are capable, via DNA strands, of transferring their resistance to other neighboring bacteria; and

4. Mercury in the body and antibiotic resistant bacteria markedly decline after removal of mercury amalgam fillings.

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My sleep is fine once I'm asleep. It's getting to sleep though. I think because I am not waking up at 5 and going to bed at 1, my body doesn't know how to sleep when it's not exhausted to the most extreme point. The good news is I went to bed at 1 and woke up just now (it's noon.) That was without taking anything.

Kassandra

:lol: Kassandra,

I totally read your post wrong. I thought you wanted something to help you not sleep.

I just know of some simple things that might help. I know Valerian root is a mild herb to relax/calm. Chamomile tea in the evening can also bring a calm, and/or a hot bath.

Taking magnesium in the evening can promote relaxation and sleep, taken with 5 almonds will activate the magnesium.

Carla and Donna seem to know the sleeping aids the best!

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Patti,

How would I find her? Thanks...any comfort I can get the better! ;)

Kassandra

HI

Maybe the easiest way is to link on my personal profile and go to my friends list.

'mouse' is there and click on it and send a message from there

I'm not sure how the person search works.

Her name is Armetta.......she's been ill last time i heard from her but she might be better by now.

I haven't seen her posting.

good luck

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Patti,

How would I find her? Thanks...any comfort I can get the better! ;)

Kassandra

Judy had a good idea--she's on my friend's list, too. I wish we could link from there.....

If you have a problem, I'll email her and get you two together that way--let me know.

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Dear Morgan,

You really do look exactly like your mother! Don't worry, it is a good thing! ;) Both of you are beautiful inside and out! Being a gorgeous fair-haired one does not come naturally to us all. I look awful with light blonde hair.

All-nighters are something I am no stranger to. I have been doing those for a long time. They are rough for people who are not used to them. However, you do adjust. I am glad you caught up on your rest.

That is very important!

It is nice your school has a fundraiser for Riley. I am not sure any of the schools around here do that type of thing. I attended Kaplan online. No charities were mentioned the whole time I attended. I just got my Associate's degree in Management.

Journalism is a difficult major. My best friend majored in that, but changed to another one later. The photography was the tough part for her. A lot of how well you do varies according to the professor you have.

One could hate the photos you take, while the other thinks they are great.

Being gluten-free in a house full of sorority sisters sounds impossible. There is no way I would have been able to attend a college like IU. Celiac makes me way too vulnerable for that. My reaction is much to violent.

I heard your allergies are what is aggravated by gluten. I am glad you do not have the reaction I get!

Your paper on women in Sci-Fi sounds interesting. I draw comicbook art, and X-Men is one of my favorites.

However, despite the fact I am not usually into anime, the art, storyline, and music are all excellent in Ghost In The Shell: Stand Alone Complex. The main character is Major Motoko Kusanagi. She is a cyborg with a soul after the time man and machine combine, known as The Singularity. To see a bit about her, and how cool and strong she is, go to

. Also, here is some more: http://youtube.com/watch?v=OXgJb5IdEcY to give you a better idea.

Kusanagi is the commander of an all male special operations unit of the Japanese government in the year 2030. Section 9 Public Security is her domain. She is very comfortable showing off being a woman, and despite how masculine some of her ways are, Kusanagi is very feminine. Most of the time, she is called "The Major." You can view episodes on YouTube in sections. If you like, I can hunt one up for you.

By the way, I hated Econ as well. That subject is a pain. I took Macroecon. I had to take that horrible course twice. It was very hard. All of it was confusing.

Dear Donna,

Chocolate is my addiction right now as well. The stuff is really impossible to quit! :blink: I too, binge on fruit if not chocolate. The Candida is probably what is causing it. If it cannot get chocolate, it figures it should have fructose!

Well, I am never going to be able to look at rice the same way again, now! :lol: I am suprised that you broke down and ordered the Humaworm! This is interesting. Who would have thought? The next thing you know, you will be doing e-coffee! It is like Rachel and pink!

You probably do have parasites if you ate all of that sushi and sashimi! A man in Japan had to have brain surgery because he ate so much of it. A worm got in his brain. He developed a terrible headache, and they found out that is what caused it! Can you imagine?

Dear Carla,

Thank you for the whey protein powder info! I might try that stuff. It is worth a shot. Vanilla probably is better. What about the chocolate? Is it any good?

How frightening what you have seen with the worms! I bet that is a tapeworm. They are better out than in. Those things can grow to be the size of your intestines! The thought of pooping those things out makes me sick, too.

The rest of the family will likely benefit from the Humaworm. Your son probably has parasites as well. I read anyone with Candida has parasites, so I am sure I have them. The entire idea is horrifying. It is really disgusting to think about.

Your fever must have been from the worm getting killed off. That would make sense considering your husband's observations. Way to go, Adam! Who would have thought about it unless your husband said something? Of course, since so many of us have Lyme Brain, that makes figuring out anything difficult! :lol:

I tried various things for insomnia when I was a teenager, and nothing really helped. Valerian did me no good. It was pooped out whole. The capsule was gone, but all of it came out the next morning. No sleep was received, either. Hot cocoa makes me rest well, though.

Dear Rachel,

Thank you for the article on mercury and toxicity! The part about bacteria becoming antibiotic resistent was particularly fascinating. My father probably has a ton of mercury in his jaw. It can break off and become stuck in the bone. Surgery is the only way to get them out, then chelation must follow.

Tapeworms seem to be quite common. They are all over the place! Those things are easy to spot. Being flat and very long is the most significant part of its description. I saw a show on Animal Planet called Eaten Alive, and one of the stories was a man who had a tapeworm. Other stories were about less spoken of parasites, like nematodes.

I am so glad your chelation on Thursday went well! You are on your way! Just keep your goal in mind.

That helps when you are frustrated. We all deal with that, and it can drive you crazy.

I remember the info you gave before on autism and EMFs! That is so weird how those things are related.

This is not something that is discussed often. I do not tolerate noises well. Many autistic children suffer from sensory overload, where bright colors, loud noises, etc. force them to withdrawl because they cannot handle all of the stimuli mentally.

Yes, there are more Lymies every day! We will have more and more I am sure. I hope the other people you met that have been diagnosed will visit here. It would be nice to meet them. Maybe they will come post soon!

I agree that God has special plans for Ami. His reasoning is beyond our comprehension. When things become more than we can handle, we can lean on him. He expects nothing. All he desires is our trust that He will help us.

Dear Judy,

I agree that the info on oxalates and minerals is fascinating. I never knew anything about this before this thread! You really do learn something everyday! How great is that? At least now Rachel is understanding why her calcium and selenium were so low.

The new format is going to take some getting used to! Our eyes are used to seeing other things. Colors can change how you perceive things. I think our brains may be a bit confused right now. Pretty soon we will adjust.

I will try to post larger for you. Darker print should help as well. My contacts are not helping as much anymore. I need new ones. I got new glasses, but not new contacts yet. Both are expensive, and being uninsured, you have to get what you can when you can.

Dear Sarah,

Morgan and Carla are obviously mother and daughter! It is amazing! Some people resemble each other remarkably, while some people look nothing like their parents. My brother and I are a mix of both parents. I do not think either of us really look exactly like my mother or father.

Thank you for remembering me as a possible Lymie, too! :) Everyone else forgot! I suppose I need to work on being more memorable! You are newer but recalled the details well! Way to go!

Dear Kassandra,

Boy am I glad the IVs were approved! Plus, you got the PICC line! Hopefully, you will get a hold of mouse. Talking to her should ease your fears. I know how afraid you are. I have been there, too.

Do we have the same parents? My mother is fickled as well. One second she supports me, the next I am a hypochondriac. It is emotionally exhausting. I really do not agree with your mother's decision to not see the LLMD. However, I understand from the financial standpoint why she may have decided what she did.

The first time I did Pilates, I thought I was having a stroke! They are tough. My Fibromyalgia improved, though. I also lost six inches from my hips when doing them! Speaking of, I need to get back to those.

Congratulations on losing weight already! Those raw foods do look good! Thank you for the link. I am going to look at this more. According to what I understand, most Americans are enzyme deficient. This diet would likely benefit many.

Insomnia makes life difficult. I have had it since high school began. It got much worse when I got to be your age. I assumed it was hormone related, but now I wonder if there is more to it. Other times, I sleep for up to twelve hours in a day. Herbal remedies have not helped me, yet I can drink coffee and go straight to sleep.

Dear Birdy,

Your GI appointment sounded like a waste of time. What a bummer! The endo might show something.

Let us know when it is coming up. We will all send good energy your way!

Those miniature pumpkin pies with snickerdoodle crusts must have been pretty good if you ate five! Well, you had to make sure they tasted good. People who do not cook do not understand the baker's plight, like when I eat four cookies. Since spiced items often have more flavor when cold, that would explain why you could not taste the full flavor at first. It is recommended cheesecakes and certain other desserts are made the day or night before an event to let the flavors meld and intensify.

Chocolate is something I am trying to not overdo. I have a Hershey's Milk Chocolate Bar a day. The rest of the day, I have to eat lower fat foods and no more sugar. Reducing my carbohydrate intake is difficult. My low blood sugar causes issues, however, the Candida is likely responsible for that.

I am working on alkalizing my system and removing yeast-aggravating no-nos a little at a time. I also am going to add a new yeast-killing supplement every week along with a new detox method or supplement. As far as your soy-free chocolate chips go, you can get others besides Enjoy Life. Go to www.choclat.com to the Chocolate Emporium, where they have gluten, casein, and soy-free chocolate chips.

Dear Julie,

Chocolate is definitely addictive. It being a drug is not surprising at all. Still, it sure is a wonderful thing when consumed in moderation. Most people's trouble is, not knowing how much is moderare. Twice a week is moderate.

Can whey protein be casein-free? Is that possible? They can take the protein out? There are many different proteins in milk. I think there are 25 or 36, something like that. Some are destroyed with heat, which would explain why foods made with heated milk do not bother me.

I bet you cannot wait until your Humaworm arrives! Hopefully, nothing too gross will come out. Colonics are probably really great to expel parasites. I know you can make an enema out of garlic to flush worms out. My herb book describes it.

I have not heard from Susie, either. Maybe she has just been busy. I know she has work. That can be very demanding. Attorneys spend a lot of time working after hours.

Thank you for the shout-out! I got to have some retail therapy on Wednesday. I had not been to the mall in ages, and they have tons of new shops. One of the stores had some gorgeous black pumps I had to have, and some adorable pink sandal heels with rhinestones that went perfect with this off-shoulder top. I also got some silver charms, a tote bag, and some new earrings.

Dear Andrea,

Let us know how the mineral taste kit works out! This sounds interesting. What exactly does it do? Is it to test for deficiencies? It sounds like your phone appointment was productive.

Thank goodness the chlorella is working for everyone so far! Keep us posted. It really is the least expensive detoxer besides charcoal. Finances are tight here as well, so we have to get what we can afford.

Dad does not get his bonus until January.

You are so sweet! I knew I had better get on here and at least let everyone know I was still alive. I have been trying to get things lined out for my makeover. Our house is loaded with crap, and I have been trying to fix that. Yesterday, I did three loads of laundry and dishes. I get worn out easily due to feeling bad, so I got too tired to type out my responses until today.

Do not worry about forgetting me in the Lyme Clan group! There is a lot to keep track of on here! So many have popped up lately, you cannot possibly remember them all. Everyone has multiple issues, further complicating it. Everytime you turn around, someone else has Lyme!

Dear Kristina,

It is so wonderful to hear you have been keeping food down! Plus, you even added some! We are all happy for you. Keep up the good work! This can be hard, but we are here!

Dizziness and weakness is what I have been dealing with lately more than ever. It could be my sinuses being irritated by this rotting molar. I called the dentist, but never got called back. That was last Friday! What good is having a dentist if I cannot get a hold of him when I need the help?

The heart monitor sounds like a real pesky thing! I bet you cannot wait to get rid of it. Did it really set off the fire alarm? That would be a bit embarrassing. Explaining it would be so weird, because people will think you might fall over dead at any second.

Dear tom,

I am not a Sci-Fi person for the most part, either. GITS:SAC is the only thing I really like in that genre, except for X-Men. Star Trek was never my thing. Star Wars was not my type of stuff. People stare at me like I am insane because of this, and the funny thing is, some of the X-Men and GITS occurances are more possible than the ones in the other films and shows.

Dear Sherry,

Happy really late birthday! I am sorry I was not on here the other day. My birthday is next month. I feel old, too. I am going to be 25. I always get so depressed on my birthday. For me, it is just another year I am stuck at home, still sick with no money. You are so lucky not to have to be stuck with your parents!

Dear Laurie/TS,

Weren't you the one who was just diagnosed with Lyme? I am pretty sure it was you. You went through IgeniX, right? Kassandra or someone was going through Prometheus. I had some labwork run through them, and found out that negative antibodies for Celiac were not accurate. So much for that!

You suffered a miscarriage, too? Those seem to be all too common with Celiacs. Susie had one as well.

She had hers back in July. It is still very difficult to come to terms with for her. Susie may have heavy metals as well.

Dear Ami,

I am so sad to hear about the baby. :( This is horrible! We are all sending lots of hugs! Afterall, we share your pain. Rachelville was so excited about its first baby!

Chelation might have caused this, but I do not know. You may still have too many metals in you. Mercury and other metals are known to contribute to miscarrying. Do you know what your levels were at the time the baby was conceived? This might help unravel the mystery.

Dear Lisa,

My toxic skin stuff does not turn green like yours, but is sometimes kind of gray. Other times, it is more beige or brown. I have oily skin, but some of this is not oil. You can scratch it off like make-up or clay. Regardless, it sure is nasty stuff.

I wish I could eat ice cream! Lactose-free Breyer's is good according to my brother. If it is gluten-free, I am going to try it! Pumpkin Pie ice cream sounds good. Pumpkin pie would be nice. Heck, I will go for any of the above! :lol:

Sugar does prevent you from detoxing and getting rid of metals. In fact, Rachel's doctor just told her no sugar. He offered to wait until after the holidays to start treatment, but Rachel wants to get rid of the mercury more than holiday treats! She has waited a long time. Sugar really is very toxic to your body.

Dear catesfolly,

To the contrary, your post is very on topic! We have discussed this before. I am glad you provided the link! Thank you for the information! This is now in my favorites!

Dear Patti,

As soon as I get my hair done, I will post a new avatar! Of course, I have to get new make-up to go with it. I had a terrible headache today, so Monday is when I will go for the consult. I may get it done then.

I may end up having to change to Jen instead of Jin after my makeover. I hope I do not lose my "me". :unsure:

Dear Rinne,

Do not feel bad. I cannot get off of the chocolate, either. I have tried. So far, I eat it every single day.

I feel worse when I do not eat it.

Dear Laura,

What have you been up to? We have not seen you a lot. I hope you are doing well. I know you pop in and out. Keep us posted on everything!

Sincerely,

Jin

P.S. Hi Christine! I see you!

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Well, Jin, the green didn't affect your memory after all!

Oh, it definately was a tapeworm! Definately!

The chocolate is good ... the vanilla is creamier and I prefer vanilla in about everything .... just don't get the natural, it has the texture of sawdust.

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Thanks so much Jin

That was sweet of you to use the larger print and bold color.

Your so kind

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Dear Andrea,

Thank goodness Rachel is alright! We were worried. She disappeared lately. What great news that she is finally excreting those awful metals! This is exciting!

How terrible that you had to drop your insurance coverage! I know the worry, too. Not having insurance is so scary, because if an emergency would occur, the cost could be very high if the treatment was particularly expensive. Those situations cannot always be planned for. I am scared as well, but luckily I do not have any children or a husband to worry about.

Dear Sherry,

I have been doing research on the acid/alkaline balance as well. If you need a list of foods, I can give one to you. All you need to do is ask! ;) I need to be more alkaline according to my blood type. I am AB positive. Now that I have been doing the lemon water, I have noticed a difference.

I react to gas stove fumes as well! When I stand over the stove cooking, or when I have the oven on, I tend to get dizzy. I am glad I am not the only one! Maybe one day I will get to move out and have an electric stove. For now, I have to use what we have.

That is interesting about the Chinese Medicine. I can see why you would be nervous about mixing it with traditional medicine. Things can get so complicated and confusing! Maybe your GI issues will be resolved soon. I know you need to see your doctor here in the U.S. for more help.

Dear truthsearcher,

I am so happy you finally got your results back from IgeniX! It is nice to know you are getting some answers. I hope to be next! I faxed the information Donna sent about the interpretations on the tests to her Friday. I am determined to get things going on this!

Positive results are good! Looking for answers is exhausting. In time, things will improve. Upon receiving treatment, everything will change. I know the frustration of waiting for improvement, as do most people on this thread. We are more than happy to oblige to your support needs! :)

Isn't it amazing how children are? They bounce back from things so well! I am glad your family is dealing with your illness the way they are. Strength is something we all get from adversity. We do not always become grateful for it until we pass the hurdles, but once things improve, we will be.

Dear Rinne,

A snickerdoodle is a cookie similar to a buttery sugar cookie, but with swirls of cinnamon and sugar in it. They are very good! A crust made from them would really accentuate the flavor of pumpkin pie. Do not feel bad about not knowing what snickerdoodles are! My father did not know what they were until after he married my mother! :lol: I suppose it is a regional thing, where some people eat them and others have never heard of them!

Psyllium husk is bad! That stuff is deadly. I will not take it for anything. My experience was like yours. Psyllium is heinous!

Yes, Rachel now likes pink a lot! It is so funny, because she never liked it. Things started going better for her after she began wearing it. October was Breast Cancer Awareness Month at Safeway. Showing support by wearing pink t-shirts with jeans was allowed. Ever since, Rachel has become a believer!

Neutracetical is something I have no information on. I wish I could help you with that. Unfortunately, I know absolutely nothing about it. So many different supplements are out there. It is difficult to keep track of them all! I think I have heard of that stuff, but do not know what it is for.

How awful IgeniX was accused of such a thing! The government always goes after the innocent people. They just do not want to acknowledge what is going on. Why would they care? Unless one of them gets sick, they do not really take an interest in this type of thing.

I know what those nightsweats and hotflashes are like! I get them, too! The thing is, I am not menopausal. I have had these since I was a teenager. Ever since puberty hit, they have been an issue. Interestingly, that was the same year I think I was bitten by a tick.

Dear Carla,

Thank you for the link to the PH info! I really wanted to see more about it. The list of foods I have should help a lot. Ask The Herbalist was where I got my list from. I am going to try to alkalize my system more and see if the yeast dies off some. I am also planning on taking a new supplement to kill it off every week on top of gradually eliminating sugar and other yeast no-nos.

I am so grateful that you can interpret the IgeniX tests, because I cannot do it! TS will finally be able to start recovering. We can celebrate now! The Lyme Clan has another member! Therefore, it is time for champagne! Well, maybe not considering how much Lyme messes up people when alcohol is involved! :lol:

Your trip to Naples sounded divine! I am so glad you enjoyed the trip! Of course, who could not have a good time at the Ritz Carlton? Everything from room service, the car show, the spa, to the heated pool must have been terrific! Remind me to stay there when I get rich!

How wonderful that your family has been brought closer together due to your illness! You wrote about it so elegantly! Good things do come from bad ones. Sometimes we just need someone to remind us of this. Thorns may make not make roses more beautiful, but remind us to be thankful for the beauty in the rose itself.

I am sorry to hear you were suffering with a fever and cough. That sounds miserable! You probably caught the flu or a cold from the plane. The air does not circulate well in them. As a result, germs can easily get breathed in. Hopefully, you will feel better soon and not flare afterwards.

ROTFLMAO! You never noticed that closet, or were you afraid to look in it? I know where you are coming from. What my parents have done to this house is scary. Like you, I am a perfectionist and cannot stand things being out of place. It literally drives me crazy.

I am glad your husband's line of work is so steady. Not many people are that fortunate. My father is a salesman, so things are up and down. I would not want to be a salesperson, because you cannot depend on a definite paycheck. There is always a variation, and planning for bills is difficult that way. I want a steady flow of cash. We always are left worrying whether or not we will be able to afford to pay the house payment or not.

Dear Donna,

That is terrible about the sensitivities found at BioSet! :( The stuff you react to is in a lot. This has to be terribly frustrating! At least you do not wear make-up that often. I am all broke out on my back, face, scalp, and neck. I think it is DH, but cannot afford a skin biopsy.

Dad appreciates the well-wishes! Things are improving every single day! The antibiotics were the saving grace. Had he not called the doctor when he did, it might have been like last time. He took six months to get over that nasty infection before.

I would not mind learning more about miasms. I do not really know what they are. You have discussed them some before, but not in great detail. Maybe I will Google them. Meanwhile, I hope you get to test for those next time!

Your poor doors probably feel so neglected! :lol: Our trouble is, ours are all full! Everything is loaded to capacity. It does not matter whether it is a closet or a cabinet. There is no room for anything else!

Dear Julie,

My chemical sensitivities vary as well. Sometimes, I get horribly nauseated by perfume. Other times, I am fine being around it. I never know how things will be. I am worried about getting my hair done possibly tomorrow for that reason.

Rachel has been missing lately. That is unusual for her. I hope her appointment goes well Thursday. I will be anxious to hear from her. Thank goodness Andrea was able to talk to her!

Have you gotten your Humaworm yet? I know you ordered it. When should it arrive? I am curious about how well it works. I will keep it in mind for future use.

I have not heard of that lab. It sounds interesting, though. Pinpointing where the actual trouble is can be difficult. If this lab could do that, it would be amazing! Testing is probably expensive, though.

You can use witch hazel to decongest? Thank you for the tips! Those might come in handy this year. Cold season is upon us. I hope to avoid colds, but I do have the elderberry extract as a back-up plan.

Dear Mia,

Anywhere in the store that has cleaners nearly knocks me over! I feel like I cannot breathe around the soaps and detergents. The whole situation is very unpleasant. Getting dizzy is typical for me, too. If you are like me, you want to wear a mask or hazmat suit when going into the store!

Dear tom,

Those chemicals are so hard to deal with! They are everywhere! Perfume is all over the place! My mother wears perfume, and my father wears cologne. I cannot escape it. These things even make my body ache all over when I smell them.

Dear Kassandra,

I am like Sarah, trying to figure out why these doctors have not moved their butts already! I am tired of waiting on these idiots to get well, too! They think everyone has their entire life to wait on them. You are in dire need of the IVs, and there is no reason they cannot try to fix the situation. My doctor is going to move, and I know I may drive her nuts, but oh well!

That is wonderful the Raw Food Diet is helping you! Apple pie sounds good raw, too! Food prep is exhausting. I have to go through a ridiculous amount of effort to make the most basic thing. I am going to start doing all of my cooking for the week once a week, because I do not have the energy for cooking and cleaning every day anymore. Besides, that is more energy I could spend doing things I enjoy, like artwork or something.

I have a theory why you get bloated when you eat cooked food. Since raw food is rich in enzymes, I believe you are enzyme deficient. This would make sense. When you cook the food, the enzymes are destroyed. At least, it is a thought.

Dear Nancy,

Welcome to the thread! Corn is not suitable for pigs according to some doctors. I hope I am not sensitive to it. The thought is scary, considering all it is in. My brother cannot tolerate it.

Carageenan makes me ill, too! They were putting it in my soymilk. Finally, after Rachel posted about it, I thought maybe it was a possibility. So, I got the soymilk without it, and some of the trouble stopped. I definitely watch out for it now.

I also have an overgrowth of yeast, could have Lyme, and even heavy metal poisoning. I hope to get some answers soon.

Dear Sarah,

I cannot figure out why doctors assume patients have forever for them to get on things! We have spent enough time sick. It is time we heal! They often hold us back by not taking action. This is so frustrating! What do we pay these idiots for?

Dear Rachel,

There you are! Sorry to hear your time did not fly like you expected waiting for the test results. I never wish time away, because it passed too fast. It honestly scares me how quickly it goes. The thought depressed me a lot.

This is great news! You can start chelation! Just think of all the wonderful things you will be able to eat once you are done with treatment! In six months, you may be well! We will be thinking of you Thursday!

Dear Patti,

How are you doing? Are you still unpacking? Settling into the new home probably takes a little bit. Meanwhile, I hope your stomach issues are not bothering you. I know you had been glutened a while back, and that was hard on you.

Sincerely,

Jin

Jin-

Oh my goodness, I just saw your health timeline...I can't believe it...so much like mine. I just want to share mine, if that is OK because in my little world, friends and family cannot believe all of the health problems I have and can't understand the gluten connection or the battle I faced with the idiot doctors and the disbelief that one again I had to diagnose and treat myself.

1986 - hip pain started, irregular menstrual cycles

1989 - hip surgeries on the muscles to release the fascia

1991 - sciatica, and diagnosed with FIBROMYALGIA

1993 - problems with sleep, fatigue and depression

1995 - Grave's Disease (hyperthyroidism)

1996 - Blood sugar problems

2000 - diagnosed with POLYCYCSTIC OVARIAN SYNDROME

2001- tested for Celiac through blood only, negative

2002 - diagnosed with ADD

2006 - diagnosed with Endometriosis

2006 - dizziness problems finally dabilitated me, stopped working diagnosed with VESTIBULAR NEURITIS, caused by FIBROMYALGIA

2007- diagnosed myself with CELIAC from test with ENTEROLAB.COM, where my stool tested positive for antibodies two months after I stopped gluten, and genetic testing was postive for Celiac and gluten intolerance.

Are any of you on the east coast NJ/NY specifically and can any of you recommend a GREAT doctor. I continue to have a thyoid that rollercoasters, hormone problems, blood sugar issues, pain and fatigue. I have about 5 good days a month. My doctor is OK, but is not really addressing it from a Celiac/malabsorption stand point.

Thank you so much-

Nancy!!!!!

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Nancy, would you consider going to a Lyme doctor? They do a thorough differential diagnosis ....

Mine is in Hyde Park, NY and is the best doctor I have ever been to. If you want his contact information, let me know and I'll send it to you.

I am being treated for Lyme, low thryoid, bacterial dysbiosis, bartonella, babesia .... I also have fatigue, muscle aches, joint pain, and brain fog.

I have gone from being about 15% to being 90% on a good day, which is about 2/3 of the time and getting better every month.

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Dear Carla,

Thank goodness my memory appears intact! I was nervous. When your brain is used to one thing, that complicates matters. I wanted to comment on you and Donna eating red meat, but did not get to. My post was already too long!

Make sure you get the entire worm out. If you leave even a small segment, the stupid thing can regenerate itself! Then it just keeps growing and growing! Talk about a true kind of horror story. Worms are truly terrifying! :o

I appreciate the information on the protein powder. The kind I had before tasted like sawdust. It also did not mix well when you made smoothies with it. I really need solid food anyway. I really should go back to doing The Zone, when I ate protein at every meal and snack. Despite doing this, my blood sugar was still a little low at 67. :(

Dear Donna and Carla,

I have always been a well-done sort of girl! I never would eat meat that is pink inside. I am much too afraid of E. Coli, Salmonella, and other scary things. :unsure: You guys live on the edge! My uncle likes his steaks practically raw, but my father is preferred medium rare at least.

Dear Judy,

You are so welcome! I know what it is like to strain to read. Headaches are best avoided! I get my share of those. Maybe if I actually get a hold of the dentist, they will improve and be less frequent.

Dear Nancy,

I am more than happy you shared your story! Jump right in! :) I think you have posted on this thread recently, haven't you? I think it was this past week or so you were on here. Was it you discussing corn and carageenan?

We must be twins! Our histories really are alike! Another member on here named Jacqui also has a health history like ours. Everything is so messed up. I made a list of possible causes of the issues I am having, and since many tend to coincide with others, there are about thirteen things that could be wrong!

I have had to diagnose myself numerous times as well. It really is ridiculous, isn't it? My cousin said I might as well be a doctor, now! Of the possible causes I have, at this point, I have come up with:

  1. Additional Food Allergies and Sensitivities
  2. Leaky-Gut Syndrome
  3. Mercury and Other Heavy Metal Poisoning
  4. Lyme Disease
  5. Babesia (Lyme co-infection)
  6. Bacterial Dysbiosis
  7. Yeast Candida
  8. Vitamin Deficiencies
  9. Toxic Mold Exposure
  10. Parasites

These are just what I can think of right now. I also tend to have low blood pressure, low blood sugar, migraines, and may have ADHD. I am sure I have it. I am very hyper. Adrenal gland fatigue is probably in there on top of my Thyroid being hyped up, despite tests not revealing it. Thyroid tissue in my neck swells up whenever it is hyper, and it has been this way for a year-and-a-half. I also wonder if that is what is making me feel faint so often.

A dental infection may also be the trouble. I think my molar may be absessed. We have a dentist shortage here. My dentist is sort of semi-retired, and has a woman who talks on the phone a lot as the receptionist. I literally feel like my skull is being crushed at times, and cannot move my jaw at all without cracking and pain. I do not have room for my wisdom teeth, and the final two just poked through on bottom.

Considering the PCOS, and other symptoms, I can bet you have an overgrowth of Candida yeast in your system. I was on antibiotics, birth control, and steroids. That is the trifecta from Hell for causing Candida. Getting rid of it is difficult. However, it can be done. I am doing gradual changes because I tried to do the Candida Diet before and could not tolerate it. Limiting carbs is hard due to low blood sugar.

We do have members in the Northeast. Patti and Judy are in Pennsylvania. Patti was in New Jersey originally, but recently moved. Mia is in New York. You might see her on here soon.

Sincerely,

Jin

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Hello everyone! Quick update:

Thanks so much for the birthday best wishes. I couldn't safely celebrate in Beijing, but I have a plan! Tomorrow we are going to make blueberry and apple pie!

I got back late last night from my trip and didn't have any internet access while I was gone. Then today all day I couldn't get into the forum. :huh: I was so happy to have it finally start working!

Just caught up with reading....

Hmm, the humaworm sounds like something I need to consider doing...

My liver enzymes are still elevated, but not worse, one is slightly better. This is the first time they have ever been elevated two times in a row.

I felt much better this week, the week before was really bad. I think the changes I made a while back are helping (dropping the Chinese ascorbic acid, switching to Pfizer azithromycin). Also the bad spell could have been that accidental glutening.

Donna, my lyme results aren't Igenex, they were from Bowen, so won't be the same. I can try to find the last one if you want.

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Heres some info. re: why its important to deal with mercury when fighting chronic infections such as Lyme.

Thanks for the post Rachel. :)

Chocolate is definitely addictive. It being a drug is not surprising at all. Still, it sure is a wonderful thing when consumed in moderation. Most people's trouble is, not knowing how much is moderare. Twice a week is moderate.

Does that mean we can eat chocolate all day 2x a week?! :P:lol::lol:

Are any of you on the east coast NJ/NY specifically and can any of you recommend a GREAT doctor. I continue to have a thyoid that rollercoasters, hormone problems, blood sugar issues, pain and fatigue. I have about 5 good days a month. My doctor is OK, but is not really addressing it from a Celiac/malabsorption stand point.

Welcome Nancy! I was going to suggest the same thing Carla did.

Sherry, I couldn't get on here either, so just getting caught up now. Hope your apple and blueberry pie turns out fantastic and that you have a good belated birthday celebration. :)

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Ami, I'm sorry I hope things get better

Morgan,

Hello! I have never "met" you, but I have talked to your mom on the phone...she is really sweet! She talked about you and your homeschool experience, it's a long story but I have started online school because of medical stuff (possible Lyme) and I was influenced largely by your moms ideas. :)

Well it's nice to sort of "meet" you now. :) Mom's really good at helping and advice

Hi Morgan....good to "see" you. :)

Love the new pic.

Sarah...yeah all of Carla's girl's look like Carla. :lol:

haha... thanks... and nice to "see" you too

HI MO!!!

:lol: :lol: I can't deny her, can I?

Keep telling her this ....

It's a huge philanthropy at IU every year .... I was at a spa getting massages and stuff and taunting her with text messages about it. ;):lol::D

Hi Mommy!

I finally got a ton of sleep... a four hour nap yesterday along with a good night's sleep... I think I'm finally caught up now.

yeah <_< telling me about her massage was just plain cruel... she can be awesome and give advice but she is also capable of torture... brat

Hi Morgan, nice to see you again!

HI!

I MISSED MORGAN!!!! Looking at the time she was on I was definitely asleep :lol:

Hi Morgan :) So glad you stopped by, good luck with all your papers and tests and everything!

Hi Julie! Sorry we missed each other... you don't want to be up at that time of the night though lol

Hi Morgan, nice to see you. :) For reading pleasure I recommend "Lady of the Lake" by Marion Zimmer Bradley, actually she has a whole series around the Arthurian legend that is fabulous.

I haven't read that... thanks :)

Whoa, well hello Morgan!

That "long time" of yours has to be since at least the end of May, when I joined this thread.

Nice to "meet" you. :)

Tho not a Sci-Fi fan in general, I've greatly enjoyed some Heinlein. Good stuff!

yeah... my long time was definitely before that....Nice to "meet" you now though!

My son is on Humaworm, too .... he had a tapeworm, too. We're buying some for the rest of the family!!! I am still thoroughly disgusted by this ...... saw more tonight.

YUCK :huh::mellow::ph34r::o !!!!!!!!!!!!!!!!!!

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Morgan, I was wondering if you want me to buy you some, too.

I'm glad you got caught up on your sleep. :) I took a long nap yesterday, too.

Everyone, I can't believe how much better my stomach feels getting rid of these parasites!!! I eat a normal amount for my size rather than enough to feed a large man .... I'm comfortable after eating rather than still hungry .... it's really great! Amazing!

I had to take my Tindamax today though .... I take it for 7 days, starting about 2 days before my herx. It's a tough medicine, I feel bad already. :( It's not fun stirring up the dormant Lyme. I felt about 90% this month during my good days though, that was incredible!

Andrea, somehow I don't think all day fits the definition of moderation. :blink:

Sherry, enjoy your treats!

Jin, I eat protein at every meal and snack. I just feel better when I do. Now if I could eat raw veggies, I wouldn't find it necessary to eat protein with them .... but I can't do that with braces.

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Dear Sherry,

I am glad you were able to get back on here, too! :) The forum was down late last night. I tried to get on here about 1:30am, but could not. Not having Internet access must have been difficult for you. I go crazy if I cannot get on here!

Those pies sound so good! I hope to make a cherry pie and a pumpkin pie or two this week. My brother and I are having our own Thanksgiving since he is now gluten-free. Birthday pies are nice! I am trying to cut out sugar, and so far am doing better. However, there is still a lot of room for improvement!

That is terrible about having a rough week the other week. :( I am glad you are doing better now! The misery from being glutened takes a bit to go away, and I hope that you recover from that if you have not already. I was glutened twice this past week. I need to get out of here, or I will never be well! My parents do not pay attention, and it really is annoying that they act like I am a hypochondriac when I am the one who suffers for their laziness. :angry:

I hope not to get glutened while getting my hair done. I may end up getting it done tomorrow. The Salon Professional Academy does it for less money, and they are very good. It just so happened who I spoke to used to have black hair and decided to do something different as well! I will have a new avatar this week if I do get it done tomorrow!

Dear Andrea,

It would be great to eat chocolate all day twice a week! :lol: Moderation means like a candy bar twice a week. I eat one every single day! :ph34r: At least that is less sugar than I was eating. For a while, I had that on top of other things like canned fruit in syrup, or jam.

I decided it would be easier to gradually reduce the intake of sugar by grams daily. You just cut down a little more each time. So, I might begin taking a magnesium supplement before getting off of the chocolate. Maybe a square of dark chocolate a day would be healthier? That is what Dr. Andrew Weil recommends.

Dear Morgan,

Here is something interesting for you. Since Rinne mentioned the works of Marion Bradley, I thought I would add something. I am Wiccan, and some practitioners actually do believe that there was a Goddess Morgan/Morgana/Morgaine at one time. That is where your name comes from! Pretty cool, huh?

I have seen the mini-series "The Mists of Avalon". It was terrific! I had no idea there was a book until Rinne mentioned this author, and found that she had written it among other books. Vivianne, The Lady of The Lake, was an old goddess as well. Many people believe these individuals actually existed at one point, because in the time period the events occur, writers only wrote from what they experienced.

I am glad you caught up on your sleep! That is very important. I sometimes barely sleep. Other times, I sleep most of the day. My body is messed up.

Did you see the Ghost In The Shell information? I know there was a lot to read. I thought you would find it fascinating. Anime usually has poor artwork, but this one stands out in so many ways! The music is great, too!

Yeah, that was kind of cruel about the massage. I wish I could afford a massage. What I do when I hear about other people getting massages, I fantasize about getting one. Maybe I should get that Fukuoku thing for Christmas! You can take it everywhere with you. It might help my migraines, too.

Dear Carla,

How wonderful you are feeling better! That stupid worm was the cause of the trouble! They are nasty creatures. On "The Most Extreme", worms were the number-one extreme eater. You can see why!

That Tindamax sounds rough! Take it easy! I know you said it makes you out of it. I hate feeling like that. My promethazine makes me stupid. People probably think I am high or something when I take it. I have to take it every time I go anywhere as a precaution due to the nausea often hitting me out of nowhere.

I noticed I am feeling more blah when I eat carbs alone. I know it causes blood sugar stability to crash.

When I eat a candy bar, after a couple hours, I feel bad. The Zone has fat in it, but the healthy kinds that are not loaded with the bad stuff. I wonder if it can balance PH? I am going to do some research on that.

Sincerely,

Jin

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Hello everyone,

I have been pretty tired...and haven't been doing too much. I went today to get containers for all of my raw stuff like nuts, seeds, etc. I just organized them and our pantry is really organized in the section I use, but a mess everywhere else. LOL!!

Tomorrow is the appt. with the GI Dr. and we are also going to find out from the hematologist when we will start the IV's. They will see what time works for us. If they do them without the benadryl before each one, I can drive myself, otherwise someone has to drive me because I am "stoned" on benadryl!!! IV meds are so much more powerful than oral...lol!!!

I will keep everyone updated about the GI appt. and the IV's. Hope everyone has had a great weekend!! :)

Kassandra

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Dear Kassandra,

That sounds like our kitchen, too! Everything is messy for the most part. So is the rest of the house. I am big on my organizers! I try to get my things organized. My cookware is together in a large plastic tub with my paper plates and stuff.

I hope your GI doctor's appointment goes well. We will be anxious to hear.

The hematologist should get things rolling soon. Those IVs will make you feel much better! Keep us posted!

Dear Everyone,

I would like to clear something up. A while back on another thread, I posted something about some friends of mine on the forum who got into a disagreement. It quickly got out of hand. Poor tom (and apparently others) thought I meant him and this thread. He was not who I was referring to at all!

I literally felt sick when I found out he thought that. I want you all to know that was another two people. If you guys want more info, just PM or e-mail me. I do not want to put salt on old wounds for people, and that is why I did not reveal the identities or sex of these individuals. Again, I apologize for the confusion. I am not one of those people that talks behind others' backs, and honestly, I regret ever trying to disguise the actual situation.

Sincerely,

Jin

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Welcome Nancy :)

Hi Sherry, thanks for the update. Glad you are feeling a little better, enjoy those blueberry and apple pies!

Do they want to do something for your elevated liver enzymes now that they have come back high 2 times in a row??

Hi again Morgan! So good to have you stop by again :) I predict you might be on Humaworm by the time you go back to school from Thanksgiving break :lol::lol: Maybe.....a good possibility....... :lol:

Carla, great news you are feeling so fabulous. All that you have done is really paying off.

Kassandra, good luck with your GI appt tomorrow. I'll be thinking of you :)

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I predict you might be on Humaworm by the time you go back to school from Thanksgiving break :lol::lol: Maybe.....a good possibility....... :lol:

LOL! No, it doesn't come in that fast, and I need to know if she wants it .... no sense buying something for a young adult if they don't want it and won't take it.

Carla, great news you are feeling so fabulous. All that you have done is really paying off.

Thanks! I was feelng the best I felt for years until I had to take the Tindamax .... now I feel like garbage again. I take it for a week, then I'm off it for a couple weeks. I know it's a part of what I have to do, but I don't have to like it. :D

Oh, btw, seeing that we have no kitchen, we've had to eat out all the time .... in the beginning, we were getting semi-healthy frozen meals, but they get old, fast. Tonight I had a Big Mac!

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