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Omg...i Might Be On To Something


Rachel--24

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NoGluGirl Contributor

Dear Donna,

Thank you for the birthday wish! :) Do not worry! You are not late. You are right on time! It is amazing! Rachelvillians are the only ones of all my friends that remembered my birthday! My two best friends are the only ones the usually remembered out of all my friends in high school!

I am sure your pathways will get unblocked soon. LED might be what you need. Cost may be an issue, though. They can be expensive treatments. Not many insurance companies will cover that type of treatment.

Meanwhile, maybe Dr. Amy will have another appointment you can take in the future.

Dear Andrea,

I just checked my e-mail. Thank you for sending the update from Rachel! It just popped up in there!

I wish I was as on top of things as you are! Of course, with three children, you have to be!

Sincerely,

Jin


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CarlaB Enthusiast
Well...my stomach has not been happy with me at all today!!! :( I am just wondering what "safe foods" are for everyone?

Kassandra

I don't have time to catch up completely, but this caught my eye. Oddly enough, when my stomach is killing me, either potato chips or cheese curls helps. In fact, it must be my new med because I've been nauseous the past couple days .... I ate tons of cheese curls yesterday .... but when I was at my worst, it was potato chips.

That's how I got started on the whey protein smoothies .... to balance out all those carbs.

There's a thread on LN about this .... there were about a half-dozen of us who find potato chips to be the answer. :lol:

Happy Birthday, Jin!

I'll have to catch up later this afternoon. :)

Rachel--24 Collaborator
Rachel,

What are you emailing? If its your treatment plan and all that I would love to get a copy. I am always interested in that!! :P

April,

I sent you an email with the rest...did you get it??

I dont know if its your current email address that I have.

I'll check if your email is available here or on YC....I'll send it to you again. :)

NoGluGirl Contributor

Dear Carla,

Thank you for the birthday wishes! I have been suffering again this morning. I am pretty sure it was the Cool Whip. So much for casein not being the issue as much. Now I am doped up on promethazine, so I should feel much better soon.

That is funny what you mentioned about potato chips. They often help me as well! It is so strange. Mom always said the one thing she could always handle was french fries when she was sick. This is interesting. Meanwhile, I hope you start to recover from the new medication.

Dear Rachel,

I have not gotten to read much of your update yet. So far, what I have read is very encouraging. We all have hope now! Thank goodness there is some! There are times things looks quite bleak.

Sincerely,

Jin

Rachel--24 Collaborator
Nope, not surprised about your little alien, lol.

HEY!! Maybe this worm really *is* the alien baby??!! :o

Do you think its possible that the parasite was actually causing my intestines to move all over the place...pushing my ovaries out of view during my ultrasound?? Remember...the OB had said shed never seen anything like it before and she said it was something going on with my intestines. :blink:

I had to go back and redo the u/s because she couldnt see my ovaries at all that day.

Maybe the worm (aka alien baby) was very upset that day...maybe it was a full moon or something? :unsure:

Thats kind of disturbing actually. :ph34r:

What do you guys think?

Maybe the worm was moving things around and causing that abdominal pain that I was calling "ovary pain"??

AndreaB Contributor
Is your DD okay?

She said her stomach was hurting. She didn't have anything that should have been a problem yesterday. She was very good about staying away from all the food at the fellowship meal. I don't know if I wrote that she had a chip at Whole Foods a couple weeks ago and was severely constipated for 24 hours afterwards. Don't know if the gluten in that was the cause or something else but it did get her attention. We have had lots of sugar lately so that could be it too.

Parasites are known to cause skin conditions. Eczema is a common problem when parasites are present. Yeast typically causes it, too.

Dark chocolate is the best kind, but I am sure any organic kind would be fairly healthy.

Chocolate cravings are much worse during your cycle. They always have been for me, too. Once a month, I have got to have it!

I was that way as a child, too. I was always quiet around people I did not know very well. Other times, I threw tantrums. The allergy shots I had did not help. Many of the mannerisms that Rachel described, my brother and I both have. The rocking is something my mom, brother, and I all still do!

I may have gotten Lyme from my mother. She knows for certain she was bitten by a tick.

I wonder if the problem with my ears and eyelid is from mercury and parasites. Can't mercury cause skin problems too?

We only eat dark chocolate and I definately crave it once a month. :P

Sounds like the possibility for mercury toxicity and lyme is very probable for you.

I don't remember if I commented on the adrenal fatique before. I don't consider my family chronically ill as we can still function daily, but we still suffer from adrenal fatique. I don't know about the boys though and T may have had enough taken care of to get over hers. Mitch and I do have adrenal fatique though. I do think we would have wound up chronically ill had we not started things when we did. Mitch and I haven't been able to afford to do any treatments for us so we are just on chlorella, fish oil and adranal support.

I just checked my e-mail. Thank you for sending the update from Rachel! It just popped up in there!

I can't take credit for that. Rachel sent it to you. :)

AndreaB Contributor
HEY!! Maybe this worm really *is* the alien baby??!! :o

What do you guys think?

Maybe the worm was moving things around and causing that abdominal pain that I was calling "ovary pain"??

I think it's a very good possibility.


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NoGluGirl Contributor

Dear Rachel,

Maybe it really is the alien baby! :o Worms can do some scary stuff. That makes sense to me why they could not see your ovaries. Parasites are capable of a lot. People often underestimate them.

Thank you for the e-mail, by the way! I thought Andrea sent it. I finally got to read the rest of it. Wow, that is a lot of progress! You will be eating well in no time! :D

Dear Andrea,

Poor T! :( Since she was careful not to eat anything bad for her, I am not sure what it could be. I hope she is not reacting to anything new. It seems everytime I turn around, something else irritates my stomach. Has she started any new supplements or anything? The sugar is a good possible cause.

You did not mention she had the bout of C the other week. Being stopped up is awful. I used to get C all the time as a child. Sugar overload might be effecting her. Didn't you say she has issues with yeast?

Mercury does cause skin problems. The organic kind does not usually, only the inorganic mercury. Upon exposure, the inorganic compounds are very dangerous and can be linked to rashes and skin cancer. There is a good reason not to go swimming in the ocean! Our river probably is loaded with it.

It is good you guys eat dark chocolate only. I normally ate milk chocolate. Now, I cannot eat any. Maybe I can order some organic casein-free, gluten-free, soy-free. I may even attempt to make some myself. We will see! I do not crave chocolate near like I used to now that I do not eat dairy.

Mercury toxicity from vaccines is likely. I had the tetanus shot before entering high school. That also is about the same time I may have contracted Lyme if I did not have it already. Mom has a few metal amalgams as well, plus she smoked while carrying me. My love of shrimp, salmon, and tuna add to it further. Of all of the metals, I think aluminum is probably my largest one, then mercury.

Lyme is a good possibility due to my mother being bitten prior to my being born. Also, ten years ago in the summer, I had a rash around my waist for two or three weeks. I did not have nerve pain, so I doubt it was shingles. That is also around the time my sleep issues started, but they did not get really bad until I was about 17 or so. I filled out that questionnaire from the Lyme Thread, and had 53 of the 75 symptoms.

Adrenals are probably some of my trouble. I know my thyroid is out of whack. I have made a health improvement plan, and my adrenals are part of that. I wrote out things that could help. You and Mitch sound like you are probably worn out all of the time!

Having three kids is some of it, but adrenals being exhausted really makes everything difficult. There are some exercises called TTAP that are supposed to help them. I will see if I can find them somewhere and give you a link. I want to include them in my treatment plan. The more help I get, the better!

I am glad you told me Rachel sent the e-mail! I should have known it was from her. The address was not familiar. Now I know her address as well! One day, I will be sending out updates and reports of my progress and road toward wellness!

Sincerely,

Jin

Rachel--24 Collaborator
There's always the metal problem to keep on top of with removing the tapeworm, too. So, it's probably good to wait another month. If it's a big one, then there could be lots of metals.

True....it will probably cause a release of metals. I better make sure to take charcoal when I get to that point. It sucks that I still cant take any other binders but she said that charcoal does the job...and thats the main thing.

I should be taking charcoal when I have my DMPS but I havent because of my gut being so sensitive to everything. From now on I'm going to be sure I take it....I also need to be on it when I start the transdermal DMPS.

BUT, of all the parasites to have you have to have THE GIANT AMONG THE HUMAN PARASITES?????????

:lol:

Yeah...and I'm a small girl!! Geeez...couldnt I have a smaller "guest" ...preferably one who doesnt require alot of food...and who leaves some for me. :P

Stupid greedy worm! :angry:

I wonder if I'll still be racheling everything once I get better?? :P

I did kind of freak out when I read that "Giant among the human parasites" thing. NICE...just what I wanted to be dealing with. Merry Xmas to me! :rolleyes:

I'm actually not too grossed out by it...its not a big shock. Remember...I'm the one who wanted to go look at all the "bugs" that have been removed from people. That would be my idea of "fascinating" stuff. :lol:

My mom is really freaked out though. She hugged me and said "I dont have a daughter...I have a parasite". :blink:

Nice. :rolleyes:

So all the stuff I've gone through already hasnt really phased her too much...but THIS....this is really disturbing stuff. Shes worried that its gonna "hurt" me....nevermind all the mercury thats inside me. :rolleyes:

She said she cant "see" mercury...so she cant picture it hurting me...but she pictures a worm inside me and she doesnt like it at all. :lol:

She said her stomach was hurting. She didn't have anything that should have been a problem yesterday. She was very good about staying away from all the food at the fellowship meal. I don't know if I wrote that she had a chip at Whole Foods a couple weeks ago and was severely constipated for 24 hours afterwards. Don't know if the gluten in that was the cause or something else but it did get her attention. We have had lots of sugar lately so that could be it too.

Awww poor T. :(

I wonder if the problem with my ears and eyelid is from mercury and parasites. Can't mercury cause skin problems too?

Yeah....mercury does cause skin problems. One Dr. (cant recall which website) was saying she always looks for skin stuff as signs of mercury toxicity. Anything like excema, redness, blotchy skin, rashes, spots, etc..

Rachel--24 Collaborator

It really seems like all of the treatments I've done have helped alot as far as things going so smoothly with chelation. Amy agreed that I probably really benefited from the LED's....especially having that sulfa treatment. The 2 that I had a noticeable detox reaction from were the sulfa and mercury treatments.

Since the Lyme and babs are not showing up now Scott asked if Dr. M. had done a LED for those. I did get a LED for all of the bugs.....except the parasite which was not found. I wonder if those LED's really helped with the bugs too...because even the yeast isnt showing up as a major stressor anymore. :huh:

Maybe right before I start treating the parasite I should get a LED for it. I'm gonna ask about that.

Green12 Enthusiast

Happy Birthday Jin!!!!!!!!! I hope you have a special day :)

Kass, I can eat chicken, turkey, and beef, carrots, lettuce, steamed veggies (like asparagus, zucchini, broccoli), red skinned potatoes, rice, winter squash. I makes sure to eat a protein portion with a starch and a veggie at every meal.

Also I had some Biometric testing done (EAV) test showed my body doesn't like any detoxing formulas. No matter what was tested my body rejected it. The practioner said "your body just does not want to detox" OK so what do I do about that?????????

This was my experience with the bioscan as well, which is a good thing imo because you don't want to push your body to do something before it is ready. Usually what will happen is you will work on supporting other things, and building and strengthening, and when your body is up for detoxing it will happen. It might go back and forth like that for a while.

Rachel, thanks for the email update :) FABULOUS!! Oh and yes Patti has a new email, did someone get it to you??

:lol:

Yeah...and I'm a small girl!! Geeez...couldnt I have a smaller "guest" ...preferably one who doesnt require alot of food...and who leaves some for me. :P

Stupid greedy worm! :angry:

Well now we know who got all those sweet potatoes :lol::lol::lol:

It's good you are ok with it, not too freaked out anymore after the initial shock. IMO it's a better mind frame to be in when fighting to eliminate it, not giving it the power.

AndreaB Contributor
Maybe right before I start treating the parasite I should get a LED for it. I'm gonna ask about that.

It certainly wouldn't hurt.

That reminds me. Has Lisa had all her amalgams taken care of? I know she said she just had a LED treatment. Dr. E wouldn't treat me with amalgams in, but it may be different with Lisa as toxic as she is.

AndreaB Contributor
My mom is really freaked out though. She hugged me and said "I dont have a daughter...I have a parasite". :blink:

Nice. :rolleyes:

So all the stuff I've gone through already hasnt really phased her too much...but THIS....this is really disturbing stuff. Shes worried that its gonna "hurt" me....nevermind all the mercury thats inside me. :rolleyes:

She said she cant "see" mercury...so she cant picture it hurting me...but she pictures a worm inside me and she doesnt like it at all. :lol:

I can see her reasoning. Look at it this way though. That worm has helped absorb some mercury along with the candida.

Yeah....mercury does cause skin problems. One Dr. (cant recall which website) was saying she always looks for skin stuff as signs of mercury toxicity. Anything like excema, redness, blotchy skin, rashes, spots, etc..

I do have skin problems.

Another thing I have is the small blood blister-like things (they aren't blisters though). My dentist said those are areas where the mercury blocked the blood vessel and another way was made through. Now that I know what they are I can see that the mercury has traveled.

September still seems so far away. :(

AndreaB Contributor
Rachel, thanks for the email update :) FABULOUS!! Oh and yes Patti has a new email, did someone get it to you??

I sent a copy on to Patti. :)

Rachel--24 Collaborator
Well now we know who got all those sweet potatoes :lol::lol::lol:

:lol::lol:

Yeah...I guess we do!!

That reminds me. Has Lisa had all her amalgams taken care of? I know she said she just had a LED treatment. Dr. E wouldn't treat me with amalgams in, but it may be different with Lisa as toxic as she is.

I dont think Dr. M. would do a LED for mercury on her until after her amalgams are removed. I met another patient in his clinic....she was having LED's but was not gonna be able to have the mercury LED because she was still in the process of removing the fillings.

I'm sure Lisa will have LED's for her other issues...but not mercury because she still has alot of fillings to take care of.

Another thing I have is the small blood blister-like things (they aren't blisters though). My dentist said those are areas where the mercury blocked the blood vessel and another way was made through. Now that I know what they are I can see that the mercury has traveled.

HEY! I have those tiny blood things too. <_<

Mine are bright red and they showed up right around the time I got sick....I never had them prior to that. They arent blisters but look like little freckles that are bright red...they are a little bit raised but not like a blister.

Thanks for sending my email to Patti. :)

Green12 Enthusiast

Good Andrea, you are on top of it as usual!

Thank you for the birthday wishes! I have been suffering again this morning. I am pretty sure it was the Cool Whip. So much for casein not being the issue as much. Now I am doped up on promethazine, so I should feel much better soon.

Jin, this has been a while, maybe 5 years ago or so, but I tried to eat Cool Whip at Thanksgiving and it made me sick as a dog. There are so many chemicals in that stuff, things you can't even pronounce in the ingredient list, chances are it was one or all of those that made you so sick.

AndreaB Contributor
HEY! I have those tiny blood things too. <_<

Mine are bright red and they showed up right around the time I got sick....I never had them prior to that. They arent blisters but look like little freckles that are bright red...they are a little bit raised but not like a blister.

That's what they are, you described them better than me. Now you know what they are from.

I've been thinking about asking Dr. E if she can clear me for sulfa's before I undergo the mercury removal. I'm thinking that one would be beneficial.

melmak5 Contributor

Jin - Happy birthday!

mftnchn - legumes, no, they cause too much gas

I tried quinoa and some sorghum this weekend - no good.

Also tried some dairy - even worse

I think the rectal bleeding was from the corn.

I regurgitated chicken and voided carrots in their original form.

I am back to "what the hell CAN I eat?!" again.

If anyone knows of a competent, open-minded doctor in the Northeast, I am sufficiently ready to hear.

Rachel--24 Collaborator
Jin, this has been a while, maybe 5 years ago or so, but I tried to eat Cool Whip at Thanksgiving and it made me sick as a dog. There are so many chemicals in that stuff, things you can't even pronounce in the ingredient list, chances are it was one or all of those that made you so sick.

I agree! The same thing happened to me about 2 years ago. I felt really bad after eating cool whip....it couldnt have been caesin because I ate organic ice cream for 9 months without getting those symptoms.

It was definately the chemicals for me.

dlp252 Apprentice

I have TONS of those blood spots too. I thought they were petechae(sp?)...makes sense that they are mercury though. I've just got tons of them. I've also got the kind that are more like blisters. I thought those were cherry angioma (or something like that). I think I'll ask Dr. S about them too when I see him tomorrow.

There's a thread on LN about this .... there were about a half-dozen of us who find potato chips to be the answer. :lol:

It's funny because remember a couple of months ago when I was craving and eating chips...the reason I ate them is because it seemed like it would make me feel better. It sort of did unless I ate to many and then it just made things worse.

HEY!! Maybe this worm really *is* the alien baby??!! :o

...

What do you guys think?

I have to admit that it's the first thing I thought of when you said you had the little beast. Maybe it's also why your intestines were so kinked up that they couldn't get the scope through. I wonder if it was a full moon then?

I wonder if I'll still be racheling everything once I get better?? :P

I'll bet it normalizes a little...although SOME of that HAS to be us, lol.

You know, it probably wouldn't hurt your mom and her husband to take some of the anti-parasite stuff. :unsure:

Maybe right before I start treating the parasite I should get a LED for it. I'm gonna ask about that.

Certainly couldn't hurt, that's for sure.

I am back to "what the hell CAN I eat?!" again.

If anyone knows of a competent, open-minded doctor in the Northeast, I am sufficiently ready to hear.

I'm so very sorry...I really wish I knew of someone back there! You could always see Carla's LLMD...at least he'd run the proper tests.

Rachel--24 Collaborator
If anyone knows of a competent, open-minded doctor in the Northeast, I am sufficiently ready to hear.

Sorry, I'm on the West Coast...but I think there are others here who might know of someone.

Rachel--24 Collaborator

Here are some of the symptoms caused by parasites....but of course they can be caused by other infections as well. It seems like once the balance is upset we're getting alot of different infections. So far I've had the C. Diff, yeast and now this parasite. I'm sure thats not gonna be the end of the story but getting the mercury out should make it possible to restore normal balance...eventually.

Constipation

Some parasitic worms are actually large enough to physically block the passage of nutrients and waste at certain points in the digestive system. Severe parasitic infections in the bile duct or the intestines can make bowel movements difficult, leading to constipation.

Diarrhea

This intestinal parasite symptom is the development of diarrhea, or frequent, loose, watery stools. Many parasites produce a prostaglandin that leads to a sodium and chloride loss in the body. This in turn causes diarrhea. This process is especially true in the case of protozoan infection.

Gas and Bloating

Parasites that live in the upper small intestines can cause intestinal symptoms such as inflammation that leads to gas and bloating. Frequent occurrences of gas and bloating are classic signs of a intestinal parasite infection. The discomfort is aggravated by the consumption of hard to digest foods such as beans and non-organic meats.

Irritable Bowel Syndrome

Intestinal parasites dig in and attach themselves to the intestinal wall. This often causes irritation and inflammation that can in turn lead to muscle spasms, intestinal blockage, and a malabsorption of nutrients. Fatty substances in particular can be difficult to digest.

Joint and Muscle Aches

Intestinal parasites can also move and migrate throughout the body. It is not uncommon for them to become encysted in joint fluids or even in the muscles themselves. This causes pain, aching and irritation that are often mistaken for arthritis. Joint and muscle pain can also be caused by the body's own immune system response to the parasite infection.

Anemia

There are several varieties of intestinal parasites that attach themselves to the lining of the intestines and divert nutrients away from the human body. In severe infections, these parasites can lead to blood loss sufficient enough to cause anemia.

Allergies

Intestinal parasites cause irritation and inflammation. This in turn can make it difficult to digest certain types of foods. The body's response to these undigested food particles may be to produce increased levels of eosinophils, which are one of the body's immune system defenders. These eosinophils then inflame the body's tissue and cause an allergic reaction.

Skin Conditions

Intestinal parasites can cause the release of hormones and immune system defenders that can in turn irritate the skin. Hives, rashes, weeping eczema, and other allergic reactions are common with intestinal parasites. Protozoan infections can also cause ulcers, swelling, sores, lesions, and dermatitis.

Tumors

The body may develop a tumor like mass in response to the parasitic infection that is also known as a granuloma. The tumor is developed to encase parasitic larvae or eggs. Granulomas most often develop in the colon or on the rectal wall, but they are also found in the lungs, liver, peritoneum, and the uterus.

Nervousness

Intestinal parasites release waste products and other toxic substances into the body's system. In chronic or severe parasitic infections, these toxins may irritate the central nervous system resulting in restlessness, nervousness, and anxiety.

Sleep Disorders

Intestinal parasites can cause irritation that can disturb sleep patterns making it difficult to fall asleep and to stay asleep. In the night, the body works to eliminate toxins via the liver. Parasitic infections can interrupt this process and upset the rhythms of the body. Some parasites also migrate out of the anus at night causing itching, discomfort, and irritation.

Teeth Grinding

This intestinal parasite symptom can also cause a condition known as bruxism, or the abnormal grinding, clenching, and gnashing of the teeth. This condition occurs most often at night, and it may be linked to the restlessness and anxiety caused in the body by the parasite's release of waste and other toxins.

Chronic Fatigue

Parasites can exhaust and deplete the body, on physical, mental, and emotional levels. It can lead to the mal-absorption of protein, carbohydrates, fats, and vitamins, draining the body of both nutrients and energy. Chronic fatigue can develop with symptoms such as exhaustion, aches, apathy, depression, difficulty concentrating, and impaired cognitive ability.

Immune Dysfunction

Parasites leech vital nutrients from the body, forcing the immune system to operate with a poor supply of vitamins, minerals, and energy sources. Parasites also stimulate the production of immunoglobulin A, which is a defender against foreign substances. Over time, this over stimulation can exhaust the body's supply of immunoglobulin A, leaving the body susceptible to attacks from bacteria, yeast, fungus, virus, and other foreign invaders.

Kassandra...I wonder if it might be a parasite causing your anemia??

Rachel--24 Collaborator

Donna...I was thinking we might be able to meet yesterday. Dont you normally have BioSET on Saturdays?? I thought I might run into you...but nope...you werent there. :(

Actually noone was there when I got there. I went plenty early cuz of the parking heinosity. Anna, Amy and Scott were out to lunch. I ended up seeing Denise...so I guess she still works there. :)

CarlaB Enthusiast

Rachel, I had every symptom on that list except tumors ...

My FIL came over for lunch today and we were talking about my BIL I told you about. Ends up, my MIL has/had a D problem that was rather bad. She's overweight and somewhat reclusive. Umm, sounds like celiac definitely is a possibility here ... he is going to be tested for it.

I gave my FIL a lot of food for thought about possibilities and what the GI can and cannot do. He was interested in all of it and wrote it down to Google later.

Now he's scheming how to get my BIL to listen to him.

Rachel has been through the gamut trying to find foods that caused the least amount of discomfort. It's different for everyone. You definately need some good protein. Did you write about going vegetarian recently or was that someone else? Rachel has done well with beef. I don't have so many food sensitivities but I get along real well with beef. Make sure (if you can afford it) to buy 100% grass fed beef.

I know you've done ok with the raw diet but have you tried super cooking your veggies to see if they get along with your system better? Maybe pureeing stuff. I don't know.

Yes, you want to be sure you're getting enough protein. Protein requirements for the chronically ill are much higher than for the general population.

I used to eat about 50% raw .... but since I've been sick, I can't handle much raw ... especially carrots, cauliflower, broccoli, etc.

HEY!! Maybe this worm really *is* the alien baby??!! :o

Maybe the worm was moving things around and causing that abdominal pain that I was calling "ovary pain"??

I don't know ... do the worms move? I haven't had that motion stuff since I got rid of it, come to think of it. My stomach used to quite often make constant noise .... no longer.

My mom is really freaked out though. She hugged me and said "I dont have a daughter...I have a parasite". :blink:

Is she disowning you are accepting the worm as her daughter now? :lol: Nah, just tell her she has a daughter with a pet .... what did you name him? (He's a pest, so he's a guy...)

I have TONS of those blood spots too. I thought they were petechae(sp?)

I get these from the Bartonella. They flared when I started bart treatment. Might be different than what Andrea is talking about though .... they would cluster up on my forehead/scalp, but I also would get random ones on my arms and legs.

I'm so very sorry...I really wish I knew of someone back there! You could always see Carla's LLMD...at least he'd run the proper tests.
If you want his number, let me know.
Rachel--24 Collaborator

Carla...Yup, I have/had most of the symptoms listed for parasites on various lists I've seen. I was pretty convinced I had a parasite over 3 years ago...but unfortunately I still had my HMO and the Dr. was saying I couldnt have parasites since I havent been to a 3rd world country. :rolleyes:

I also couldnt possibly have mercury or candida either. :rolleyes:

Morons. :angry:

I did get them to test me but they only tested me for like 2 parasites.....or maybe it was just Gihardia (sp?). I did get them to test me for mercury too...but they gave me a blood test and an unprovoked urine test. :rolleyes:

Morons. :angry:

So after all these years the stupid parasite has probably grown plenty...not to mention all the babies and eggs. :(

I asked Amy if I'd "see" anything when I'm on the Alinia...she said I *might* but that the parasite would be encased in mucous and other gunk...so I might see lots of mucous....or other weird things. She said I will definately have stool changes.

She said the meds wont touch the eggs so thats why we have to repeat treatments. It sounds like the Alinia is gonna be harsh....and I'm guessing I have more than just the tapeworm.

This is what I read about Alinia's effectiveness.

Dr William P. Stuppy, a Harvard trained gastroenterologist and pathologist gave a paper at the 2006 Annual Scientific Meeting of The American College of Gastroenterology with some worrying figures. For people with abdominal complaints, even mild, or just fatigue, sleeplessness and vague rashes, he was finding parasites. Lots of

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      Newly diagnosed mam to coeliac 11 year old

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    • TheDHhurts
      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
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