Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

confusedks Enthusiast
confusedks
Posted

Oy vey! It's pulled and it wasn't bad...the Dr. was flirty though! It was very funny. They ALL remembered me because when I had it placed, we talked about the places I have traveled, so they remembered! :lol: LOL! :lol:

My grandpa had to meet me there because I am under 18, so I needed someone there to consent, and he apparently went to the wrong building! So, 45 minutes later I called my uncle (because I forgot my cell phone at home, of course! :rolleyes:) and he freaked, he thought something was wrong, lol. Finally we just got my uncle to give oral consent (thank goodness he did!) and then they pulled it.

When I was leaving the valet area, my grandpa pulled up! A little late! LOL! Glad that's over! No more PICC line for me! :D Now there is big hole where the line was placed. :huh:

Andrea, I hope you get a response from your Dr so you can figure out what to do. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
confusedks Enthusiast
confusedks
Posted

OMG, I want to KILL my insurance company! I don't know how they SLEEP at night! They are SO awful! :angry: :angry: Grrr! Sorry, just had to vent! :)

truthsearcher Rookie
truthsearcher
Posted

Talking to the Insurance Co = Lyme flare

I dread talking to the Ins. Co. some days I'd rather die than talk to them.

So... I can relate <_<

dlp252 Apprentice
dlp252
Posted

All insurance companies are evil. :angry::P

mftnchn Explorer
mftnchn
Posted

Quick drive by...got in safetly and smoothly to Seattle. Will post when I can.

Sherry

Nyxie63 Apprentice
Nyxie63
Posted

Kassandra,

Yay! You're picc-less! :D

Called the drs office several times today but couldn't get through to a live human. Left a voice mail for the appt nurse. Hopefully, she'll call me back tomorrow and we can get this darn thing scheduled.

I've been of the opinion for many years that insurance is just a legalized and instutionalized form of crooked gambling. You pay in every month in the hope that you never have to use it. And then when you do need it, they don't want to provide the services you paid for. The whole system needs a serious kick in the pants.

dlp252 Apprentice
dlp252
Posted

Well, you tried Nyxie!

Yay, Sherry's in the USA, lol.

Okay, so here's a little know factoid about me. I am a total and absolute KLUTZ. Sometimes I get by in life with the klutz trait barely noticable, and other times, like today...fear for your life. :P So, I'm getting my shot stuff ready...feeling really nervous about the whole thing. I get everything ready...making sure everything is sterile, I've drawn the stupid medicines, trying to mix the two and get out any air bubbles, and...

I DROP THE STUPID SYRINGE!!!! Yep, down there on my mold filled carpet. I stared at it for a couple of minutes and decided nothing was going to change about the situation, so, I trashed the thing. Doh, I could have just changed the needle, didn't have to throw away the whole thing. Course, I didn't realize that until AFTER I dropped the thing and THEN pulled out the instructions. :P THe instructions say clearly that if the needle tip touches anything you can't use it, but you can change the tip. Anyway, I was so darned flustered that I forgot and injected a little of the one medicine into the other bottle. YIKES. It wasn't much though and gotta take both anyway, but you just shouldn't do it, lol.

Good news is I didn't want to pass out, lol, but my leg hurts...probably just because I've convinced myself that I did it all wrong and my leg will now fall off. :lol::lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confusedks Enthusiast
confusedks
Posted
Talking to the Insurance Co = Lyme flare

I dread talking to the Ins. Co. some days I'd rather die than talk to them.

So... I can relate <_<

Ugh! I HATE, HATE, HATE them! :angry: :angry: I hope they rot! :lol:

I DROP THE STUPID SYRINGE!!!!

My leg hurts every time I do it...so if it's any consolation, I think that's normal. My question is, why do you do it in the afternoon? They told me to do it in the morning, so it doesn't disturb my sleep pattern (yea, right! :lol:).

CarlaB Enthusiast
CarlaB
Posted

Hi Nyxie, they never answer their phone, it's always a message system. If you have gotten through, it was a fluke. :) Just leave a message, I've only had them lose the message once in all this time working with them.

Kassandra, glad you got rid of the PICC.

Donna, keep us posted about your leg ... I'd hate to hear it fell off!

confused Community Regular
confused
Posted

Remember how i was having bad dreams for awhile, i figured out what was causing them, it was from smoking and from quitting. I have not had a bad dream in a few days now and i have actually slept all night. The nicotine was what was keeping me up. Well at least this is what i hope, watch i will have bad dreams tonight lol.

Im glad with my insurance we never have to pay more then 5 for generics or 20 for brand name. Only thing they dont cover is kids well check up and immunizationgs. But everything else is 80-90 percent covered. We only had to fight with them once when we wanted to start ss on allergy shots, but we won lol.

donna,

Hope ur leg feels better and glad u didnt faint. Sorry u dropped it on the floor tho.

paula

AndreaB Contributor
AndreaB
Posted

Sherry,

Yay!!! You got here safe and sound! :D

Donna,

Somehow I don't think you're the only one to have done something like that. :P

Nyxie,

Hang in there! :)

dlp252 Apprentice
dlp252
Posted

All is well...my leg hurts less and it's still attached to my body. :lol::P

Kassandra,

I asked whether I should do it in the morning or afternoon and they said it didn't matter. I've been getting them in the office at around 3:00 and it hasn't seemed to make things any worse than they are sleep wise, lol. Course tonight will be a bad sleep night anyway because I have ensemble practice at 9:00 tonight. Uggg.

Paula,

Hope you are right about the smoking, lol.

Green12 Enthusiast
Green12
Posted

Wow, I got real behind here :lol:

Sherry glad you got home safely! Keep us posted on all your follow up appts, and the new ones you are going to have.

Andrea, sorry you are still having abdominal symptoms. Hope the probiotics help, or that your Dr can give you some answers and something to help.

Donna, glad you survived your shot mishap :lol:

Paula, hope you keep going strong without your smoking, that will really contribute to your healing process!

I don't really have anything to report.....

I'm noticing some slight irribility yesterday and today, not sure if it is too soon to see the effects of homeopathy, but maybe my liver is doing its thing :D

My practitioner said keep taking my epsom salt/soda baths, not only good for detox but they are also a great source of magnesium.

Also, I have continued with my charcoal which is supposed to be constipating, well with me it has the opposite effect :blink: . I was slightly constipated before taking it and ever since have had very significant movements, go figure!

And, I am drinking a teaspoon of apple cider vinegar in a glass of water before meals to help prep optimal digestion.

confusedks Enthusiast
confusedks
Posted

I'm about to shower PICC-less! OMG, I am so EXCITED! I don't have to wear a glove all the way up to my shoulder! :lol::D:P

Update on my brother: he was "upgraded/promoted" to a residential living program! I'm shocked, not in a bad way, but I didn't think he would "move" that quickly! :D And, we have our first family session thing tomorrow! :unsure:

AndreaB Contributor
AndreaB
Posted

Julie,

Thanks for the update. Glad to hear the charcoal has been good for you. :P

Kassandra,

Is the upgrade back home or in a residential area of the facility?

tabasco32 Apprentice
tabasco32
Posted

Hey everyone

Went 7 days no ice cream. Then pow I didn't fall off the wagon but I fell of the ice cream truck. :mellow:

Green12 Enthusiast
Green12
Posted

Lisa, that's great you made it 7 days!

Now get back on that truck and make it another 7 days!!

Baby steps :D

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel

I hope tou do not mind me asking so many questions because I have 2 more here.

Do you still use gluthione?

Did you react to biotin?

thanks

Eisabet...there's no such thing as too many questions here. ;)

No...I do not take glutathione anymore because I react to it. My Dr. has it on the"must avoid" list...because it stresses my body pretty bad.

I dont know for sure if Biotin caused me problems but I suspect it did...although I didnt really notice anything until I'd been taking it for over a week. When my Dr. tested it it didnt go on the "must avoid" list but it wasnt one of the things I really benefited from either. Basically, it wasnt really doing me any good to take it.

Wow, I got real behind here :lol:

Me too!! :P

confusedks Enthusiast
confusedks
Posted
Kassandra,

Is the upgrade back home or in a residential area of the facility?

It's a residential part of the facility. He apparently isn't going to be coming home at all anymore...maybe to visit, but my mom is going to turn his room into an office for her. :)

Ridgewalker Contributor
Ridgewalker
Posted
All insurance companies are evil. :angry::P

I've been of the opinion for many years that insurance is just a legalized and instutionalized form of crooked gambling. You pay in every month in the hope that you never have to use it. And then when you do need it, they don't want to provide the services you paid for. The whole system needs a serious kick in the pants.

Amen, sisters! ... then if they DO provide the services you paid for, you must pay again- deductible and copays. It's utterly crooked, evil, and wrong. People are dying everyday because of this, right here in America.

miamia Rookie
miamia
Posted

Sorry its been a while since i posted-

Julie-

Thank you so much for the updates on your appt. and protocol. I am so happy you found someone you feel comfortable with!! I am so glad you are gonna start on a treatment plan. I cannot wait to hear how it goes.

Rachel-

Geez. you and the new found i am very jealous, but so so happy for you!!! A Big Mac is not so far away.

Kassandra-

good new on getting the line removed. I hope you enjoyed your shower.

Andrea,

So sorry to hear about the abdominal pain hopefully the probiotic will help.

Ok- quick update. I had a sonogram done this week, abdominal and pelvic. I was kind of dreading it and sisn't know why I think mostly becasue i doubt it will show anything and i really wish it would. But at lesat i figured it was uninvasive.............Wrong!!! The pelvic was invasive and lets just say it was less than enjoyable!!

I have chelation today and am going to set up an appt. with my doc. I ahve a long list of things I want to discuss with him and its too much to do over the phone or via email.

I have my endoscopy and colonoscopy scheduled for FEb. 1st. (yes I am dreading that- although I ahve to admit looking forward to the anesthesia)

Ok bathroom question for everyone- does everyone go everyday? Just curious.

Ok thats it for now sorry for everyone i forgot.

Oh- one more thing- i missed the love fest a few pages back and I coulden't let an oh my god love fest pass by without me chiming in.... I Love you guys!!!!!!!!!!

Miamia

Nyxie63 Apprentice
Nyxie63
Posted

Miamia,

Oh yeah. The trans-vag. Had one of those back in August. "You want to put what where?????" :o:blink: They're not fun. Didn't help that my right ovary decided to go walkabout and wasn't where it was supposed to be.

re: bathroom - I tend to go either every day or every other day. It really depends if I've been cheating or not and if I'm taking the enzymes/probiotics like I should. If I've been a "good girl" then yes, every day. This has only been since taking the gluten/dairy/corn out of my diet tho. Prior to the diet modifications it was maybe twice a week, if that.

The endo/colonoscopy wasn't that bad when I had mine in Sept. Have you had one done before? The worst part for me was not eating solids. Did you ask for the Osmo-Prep? That stuff rocks, as far as preps go.

Good luck at your dr's appt today. :)

covsooze Enthusiast
covsooze
Posted

Mia, good to see you :) That pelvic exam sounds nasty. Hope the endoscopy/ colonoscopy goes well. As for toilet trips, I often go 2 or 3 times in the morning, and that's me done for the day usually. I think I've still got problems there that need sorting.

Donna, how did the practice go?

Everyone - just had my telephone consult. It's the first time I've really felt listened to about my health and taken seriously :D Dr P was lovely and is sure that I'm still hypothyroid (silly blood tests) and that my main problem is adrenal. He also thinks it's highly likely that I have a candida problem :ph34r: I told him that freaks me out having done the diet before, but he was very reassuring. Once I've had my adrenals tested, I'll have natural thyroid and adrenal support. He's pretty sure that this is why, amongst other things, I had the miscarriages. I will be having a face-to-face consultation in March. Oh, and mustn't forget to add, he said that I'm NOT a hypochondriac lol!!! :lol:

And just wanted to add my :wub::wub::wub: to the hug fest :D

S x

dlp252 Apprentice
dlp252
Posted

Morning all.

I ended up NOT going to rehearsal last night...was all set to go, put on my coat and gloves, then started feeling dizzy and nauseated, so took off the coat and gloves and layed down...started feeling better, so got up and put the coat and gloves on, and started feeling dizzy and weird again, so gave up and just layed on the couch! :lol:

But, all that confusion and undecisiveness caused a couple of things to happen. I completely forgot to take my melatonin last night. I take a bunch of it, and my doctor wants me to take a trial period off of it, but I've been afraid, lol. I've been sleeping fairly well and didn't want to mess it up--I still wake up every hour after midnight, but I go back to sleep quickly, which is great.

Well, it took me slightly longer to get to sleep, but I slept pretty well! Woke up around 1:30 (great because I've been waking up around 12:30 for several weeks now), went to the bathroom got back in bed and fell asleep...COMPLETELY forgot to take my charcoal, which is something else I had convinced myself was helping me sleep, lol. I usually take that the first time I wake up which is when I usually go to the restroom.

So, I'm going to try at least a couple of days a week without all the melatonin and see what happens. Then maybe I'll increase the days off of it a little at a time.

Kassandra,

Great news about your brother!

AND, about your picc-less shower, lol!

Lisa,

Congratulations on 7 days without ice cream...I agree...get back on that ice cream wagon!

Mia,

Yep I've had that type of sonogram too...NOT fun, lol!

As for the bathroom...I usually go everyday, anywhere from 1-5 times. Lately though I've had quite a few days (not in a row) where I don't go at all. I think the Humaworm killed off some pesky thing that helped the D along.

Susie,

Sounds like a GREAT phone consult!!!!

Amen, sisters! ... then if they DO provide the services you paid for, you must pay again- deductible and copays. It's utterly crooked, evil, and wrong. People are dying everyday because of this, right here in America.

AND, then they raise your RATES!!! Stupid evil insurance companies!! :angry::P

Nyxie63 Apprentice
Nyxie63
Posted

Lisa,

Just a thought.... how's your ferritin level? A lot of people with low iron will crave ice or cold foods. Maybe that's why you're craving ice cream so much? You could always try something like crushed ice and fruit juice. No dairy, but you still get that cold sensation.

Donna,

Glad to hear you're going to try to kick the melatonin. My dr told me that long-term use of melatonin can shrink the pituitary(? or was it pineal? one of those P-glands in the brain). He gave me some, but said to only take it a maximum of 2-3 times a week. Still haven't taken it.

Do you drink salt water? It might help with the dizzy/vertigo. Hope that sensation doesn't last. That would suck.

Kassandra,

Yes! Excellent news about your brother. :)

Susie,

Is this THE Dr P over in the UK? Wow! Just Wow!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,858
    • Most Online (within 30 mins)
      7,748
    Janet1234
    Newest Member
    Janet1234
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.