Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

AndreaB Contributor
AndreaB
Posted

Kassandra,

Hope you can find something that will work.....both for your hair and the protein powder.

I wash my hair about 3x a week. It does much better that way. I had really oily hair too but now it's only that bad (which used to be daily) every 2-3 days.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
confusedks Enthusiast
confusedks
Posted

Carla,

When you order stuff from Nutramedix how long does it take for you to get it? I know we're far away from each other, but I was just wondering.

I want my stuff to get here so I can start detoxing! I am feeling yucky/toxic...awaiting my herx. Sigh.

CarlaB Enthusiast
CarlaB
Posted

I get mine from my doctor, Kassandra. I ordered once from Nutramedix, but don't remember how long it took. Try drinking some lemon water. :)

confusedks Enthusiast
confusedks
Posted
I get mine from my doctor, Kassandra. I ordered once from Nutramedix, but don't remember how long it took. Try drinking some lemon water. :)

Oh. Thanks...I will drink some lemon water.

Green12 Enthusiast
Green12
Posted

Kass, Metagenics makes some rice protein based protein powders. I haven't had them in a long time though, and I know since then they have added many flavor varieties and I'm sure their formual has changed over the years.

I think they also have a lot of added ingredients- but since it is professional grade company product they are good quality ingredients, just not maybe ingredients you can tolerate.

My favorite protein powder that I have ever had was soy based, unfortunately :( Darn that soy!

Just a tip I meant to mention earlier before about castor oil, for those of you who are doing the castor oil packs, baking soda and water will remove the castor oil from your skin after you are done.

I just sprinkled some baking soda on a washcloth and then ran it under the faucet a little bit until it made a thin paste to wipe off the area I had the pack on, then I got in the shower to rinse off.

Castor oil is amazing stuff, but if you get it on your clothes and etc, it does not come out!

tabasco32 Apprentice
tabasco32
Posted

Hey Juliem that organic chocolate is not a whole foods brand. It is from Lake Champlian or something like that.

Hey Carla you look GREAT!

CarlaB Enthusiast
CarlaB
Posted
Hey Carla you look GREAT!

Thanks. :)

My daughter took this picture of me today. See the ends of my hair? I still have about three inches of bad ends from all the breakage when I was sick. I'm getting my hair cut in two weeks ... I think I'll have her take an inch off, maybe two.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aprilh Apprentice
aprilh
Posted
Regarding the dandruff, didn't Rachel post some scientificness way back, I mean way back, in the thread that said dandruff was a yeast/candida condition of the scalp????? I could have sworn reading something to that effect....

This is what I have found to be true for me. I have heard of soaking the scalp with monistat....my dad actually tried it. Nizoral shampoo works, too. Sometimes I rinse my hair and scalp with apple cider vinegar (organic). Lots of probiotics and antifungals work from the inside out.

aprilh Apprentice
aprilh
Posted

Hi Everyone!

I got my daughters blood test results today. Her iron was very low, her saturation was very low, her white blood cell count was down, red blood cell count was a bit low. This could be due to her just getting over a virus so we'll recheck that in a few weeks. Also, her neutrophils (msp?) was low. Not sure what thats about.

Poor thing! I wish all this iron I have been giving her would finally work! wonder if she's not absorbing it or if the dosage is too low.

April

PS: Kassandra - i sent labs by email.

Talking about hair....I just made big 'ol boo boo with mine :( . I tried to color it myself and now I look like orange glo! My big attempt to save money - sheesh!

Green12 Enthusiast
Green12
Posted
Hey Juliem that organic chocolate is not a whole foods brand. It is from Lake Champlian or something like that.

Thanks Lisa! I'll look for it tomorrow, I always like to have a little chocolate for Valentine's Day :D

How are you feeling? How are all the treatments going?

I got my daughters blood test results today. Her iron was very low, her saturation was very low, her white blood cell count was down, red blood cell count was a bit low. This could be due to her just getting over a virus so we'll recheck that in a few weeks. Also, her neutrophils (msp?) was low. Not sure what thats about.

Poor thing! I wish all this iron I have been giving her would finally work! wonder if she's not absorbing it or if the dosage is too low.

April, I believe neutrophils are a type of white blood cell (a measurement of white blood cell function), and if they are low it can indicate a higher risk of infection.

Is she currently under somenone's care that can interpret the test results and sort all this out for you?

aprilh Apprentice
aprilh
Posted

My ND helped me decipher the test results. We have a couple of theories.

1) lead is displacing iron. I am thinking that it could be possible that the pipes in school could have lead being the reason that she has problems mid-year. Want to order lead test from www.leadtesting.org for $28 and sneak and test the school water

2) recent growth spurt took all the amount of iron she barely had

3) lyme or other infection causing the imbalance. Will find out more tomorrow when I go to the LLMD for my test results.

4) mold exposure can cause the body to "throw" iron. How can I get mold plates put in school?

OR could it just be her? Seems she has always been on the low side even as a toddler.

I definately have some investigating to do.

Right now I am researching the best way to juice/cook/replenish her iron stores so she can feel better. Then I can focus on determining the cause.

I am considering starting her back on her slow chelation protocol we did over the summer to hopefully pull some lead out of the tissues and allow some iron to get in the tissues. Seems she did very well with that last summer. If that works then I will know it was more about the metals.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Everyone,

I just got caught up on my reading. Everyone should have received an e-mail or PM who had posted up until page 1820. The pages after that will be covered in my column soon. It may take a bit. Right now, I am going to go upstairs and take my tapping notes.

Sincerely,

Jin

confusedks Enthusiast
confusedks
Posted

April,

I got your email. I will reply soon. I was looking over my results to have some sort of comparison. The thing I was going to suggest was a growth spurt. I noticed that my WBC went from 3.6 to 5.something in 2 weeks from Iron IV's. Then two weeks later, it dropped down to 3.6! :o I obviously have a lot going on, such as Lyme, etc. but it must have had something to do with the Iron IV's.

I am going to mention it to my LLMD next time I see him. I had blood drawn today, so we'll see what my WBC comes back as. It must not be too low otherwise my LLMD would have said something.

dlp252 Apprentice
dlp252
Posted

Carla, meant to say how much I love your new avatar!

My favorite protein powder that I have ever had was soy based, unfortunately :( Darn that soy!

Mine too! Stupid soy! :angry:

aprilh Apprentice
aprilh
Posted

Thanks Kassandra. I just talked to the pediatrician and he is going to call in a prescription strength iron for me so maybe her pain will go away. He said its wierd that her ferritin is there but the body is not using it for some reason. He suggested that maybe we see a hematologist, but will they consider the lead and other metals and the "maybe" lyme? I don't know.

tabasco32 Apprentice
tabasco32
Posted

Happy Valentines Day Girls :wub::wub:

Don't eat too much chocolate now.

Lisa

confusedks Enthusiast
confusedks
Posted
Thanks Kassandra. I just talked to the pediatrician and he is going to call in a prescription strength iron for me so maybe her pain will go away. He said its wierd that her ferritin is there but the body is not using it for some reason. He suggested that maybe we see a hematologist, but will they consider the lead and other metals and the "maybe" lyme? I don't know.

I was going to say you should probably see a hematologist. It is strange that her ferritin is doing fine, but other numbers are off.

HAPPY VALENTINE'S DAY!!!

Green12 Enthusiast
Green12
Posted
My ND helped me decipher the test results. We have a couple of theories.

I definately have some investigating to do.

I wish I had more knowledge to share :(

I just hope you can find some answers April.

Carla, meant to say how much I love your new avatar!

Mine too! Stupid soy! :angry:

Ditto, love your new avatar Carla, you look pretty in pink!

Soy. If I could eat soy I think I would have it made :lol: There would be so much to eat.

Happy Valentine's Day to everyone!!

dlp252 Apprentice
dlp252
Posted
Don't eat too much chocolate now.

TOO LATE!!!!!! :lol:

HAPPY VALENTINES DAY TO EVERYONE!

CarlaB Enthusiast
CarlaB
Posted
Carla, meant to say how much I love your new avatar!

Thank you. :D Can't wait to get my haircut though ....

Happy Valentines Day Girls :wub::wub:

Don't eat too much chocolate now.

Lisa

Happy Valentine's Day to all of you!!! :wub:

Ditto, love your new avatar Carla, you look pretty in pink!

Thanks.

Green12 Enthusiast
Green12
Posted

I have been sweating profusely the last few days. It's worse when I am sleeping, I wake up soaked in the middle of the night.

This has happened in the past during my periods, just not every one. I had always read it was the estrogen/liver thing which might make sense since I have liver issues and am currently detosxing the liver.

Anybody have any input on this?

CarlaB Enthusiast
CarlaB
Posted

Sounds like babesia, Julie.

tabasco32 Apprentice
tabasco32
Posted

TOO LATE!!!!!! :lol:

/\

l

l

l

BRAT! ;) Donna, bad girl bad!

I Don't think my brother will have a good valentines day today. He went to the dentist and they say he has a bad tooth abcess or something like that. His face was swollen last night. I guess one to many hershey's bars.

aprilh Apprentice
aprilh
Posted
I have been sweating profusely the last few days. It's worse when I am sleeping, I wake up soaked in the middle of the night.

This has happened in the past during my periods, just not every one. I had always read it was the estrogen/liver thing which might make sense since I have liver issues and am currently detosxing the liver.

Anybody have any input on this?

I have heard this about the liver also. Don't kjnow much about babesia though.

miamia Rookie
miamia
Posted

Happy Valentines Day!!!!!!

I know i have not posted in a while but i've been reading i will try to post an update tomorrow but i have to get some shut eye now

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Can Your Gut Microbiome Predict Celiac Disease Years in Advance?

    2. hjayne19
      - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      Insomnia help

      Hi @knitty kitty Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially w...
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      43

      My journey is it gluten or fiber?

      I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
    4. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      @Charlie1946, Sorry I sidetracked your thread a bit. Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over. Have you been checked for SIBO? There's a significant link between length of Omeprazole use and SIBO. I had SIBO, thrush (Candida...
    5. Lkg5
      - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,099
    • Most Online (within 30 mins)
      7,748
    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      Severe severe mouth pain

      By Lkg5 · Posted

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.