Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

AndreaB Contributor

Kassandra,

Hope you can find something that will work.....both for your hair and the protein powder.

I wash my hair about 3x a week. It does much better that way. I had really oily hair too but now it's only that bad (which used to be daily) every 2-3 days.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Daura Damm



Celiac.com Sponsor (A8-M):
Little Northern Bakehouse


  • Replies 33.4k
  • Created
  • Last Reply
confusedks Enthusiast

Carla,

When you order stuff from Nutramedix how long does it take for you to get it? I know we're far away from each other, but I was just wondering.

I want my stuff to get here so I can start detoxing! I am feeling yucky/toxic...awaiting my herx. Sigh.

CarlaB Enthusiast

I get mine from my doctor, Kassandra. I ordered once from Nutramedix, but don't remember how long it took. Try drinking some lemon water. :)

confusedks Enthusiast
I get mine from my doctor, Kassandra. I ordered once from Nutramedix, but don't remember how long it took. Try drinking some lemon water. :)

Oh. Thanks...I will drink some lemon water.

Green12 Enthusiast

Kass, Metagenics makes some rice protein based protein powders. I haven't had them in a long time though, and I know since then they have added many flavor varieties and I'm sure their formual has changed over the years.

I think they also have a lot of added ingredients- but since it is professional grade company product they are good quality ingredients, just not maybe ingredients you can tolerate.

My favorite protein powder that I have ever had was soy based, unfortunately :( Darn that soy!

Just a tip I meant to mention earlier before about castor oil, for those of you who are doing the castor oil packs, baking soda and water will remove the castor oil from your skin after you are done.

I just sprinkled some baking soda on a washcloth and then ran it under the faucet a little bit until it made a thin paste to wipe off the area I had the pack on, then I got in the shower to rinse off.

Castor oil is amazing stuff, but if you get it on your clothes and etc, it does not come out!

tabasco32 Apprentice

Hey Juliem that organic chocolate is not a whole foods brand. It is from Lake Champlian or something like that.

Hey Carla you look GREAT!

CarlaB Enthusiast
Hey Carla you look GREAT!

Thanks. :)

My daughter took this picture of me today. See the ends of my hair? I still have about three inches of bad ends from all the breakage when I was sick. I'm getting my hair cut in two weeks ... I think I'll have her take an inch off, maybe two.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
Holidaily Brewing Co.



Celiac.com Sponsor (A8-M):
Smith & Truslow


aprilh Apprentice
Regarding the dandruff, didn't Rachel post some scientificness way back, I mean way back, in the thread that said dandruff was a yeast/candida condition of the scalp????? I could have sworn reading something to that effect....

This is what I have found to be true for me. I have heard of soaking the scalp with monistat....my dad actually tried it. Nizoral shampoo works, too. Sometimes I rinse my hair and scalp with apple cider vinegar (organic). Lots of probiotics and antifungals work from the inside out.

aprilh Apprentice

Hi Everyone!

I got my daughters blood test results today. Her iron was very low, her saturation was very low, her white blood cell count was down, red blood cell count was a bit low. This could be due to her just getting over a virus so we'll recheck that in a few weeks. Also, her neutrophils (msp?) was low. Not sure what thats about.

Poor thing! I wish all this iron I have been giving her would finally work! wonder if she's not absorbing it or if the dosage is too low.

April

PS: Kassandra - i sent labs by email.

Talking about hair....I just made big 'ol boo boo with mine :( . I tried to color it myself and now I look like orange glo! My big attempt to save money - sheesh!

Green12 Enthusiast
Hey Juliem that organic chocolate is not a whole foods brand. It is from Lake Champlian or something like that.

Thanks Lisa! I'll look for it tomorrow, I always like to have a little chocolate for Valentine's Day :D

How are you feeling? How are all the treatments going?

I got my daughters blood test results today. Her iron was very low, her saturation was very low, her white blood cell count was down, red blood cell count was a bit low. This could be due to her just getting over a virus so we'll recheck that in a few weeks. Also, her neutrophils (msp?) was low. Not sure what thats about.

Poor thing! I wish all this iron I have been giving her would finally work! wonder if she's not absorbing it or if the dosage is too low.

April, I believe neutrophils are a type of white blood cell (a measurement of white blood cell function), and if they are low it can indicate a higher risk of infection.

Is she currently under somenone's care that can interpret the test results and sort all this out for you?

aprilh Apprentice

My ND helped me decipher the test results. We have a couple of theories.

1) lead is displacing iron. I am thinking that it could be possible that the pipes in school could have lead being the reason that she has problems mid-year. Want to order lead test from www.leadtesting.org for $28 and sneak and test the school water

2) recent growth spurt took all the amount of iron she barely had

3) lyme or other infection causing the imbalance. Will find out more tomorrow when I go to the LLMD for my test results.

4) mold exposure can cause the body to "throw" iron. How can I get mold plates put in school?

OR could it just be her? Seems she has always been on the low side even as a toddler.

I definately have some investigating to do.

Right now I am researching the best way to juice/cook/replenish her iron stores so she can feel better. Then I can focus on determining the cause.

I am considering starting her back on her slow chelation protocol we did over the summer to hopefully pull some lead out of the tissues and allow some iron to get in the tissues. Seems she did very well with that last summer. If that works then I will know it was more about the metals.

NoGluGirl Contributor

Dear Everyone,

I just got caught up on my reading. Everyone should have received an e-mail or PM who had posted up until page 1820. The pages after that will be covered in my column soon. It may take a bit. Right now, I am going to go upstairs and take my tapping notes.

Sincerely,

Jin

confusedks Enthusiast

April,

I got your email. I will reply soon. I was looking over my results to have some sort of comparison. The thing I was going to suggest was a growth spurt. I noticed that my WBC went from 3.6 to 5.something in 2 weeks from Iron IV's. Then two weeks later, it dropped down to 3.6! :o I obviously have a lot going on, such as Lyme, etc. but it must have had something to do with the Iron IV's.

I am going to mention it to my LLMD next time I see him. I had blood drawn today, so we'll see what my WBC comes back as. It must not be too low otherwise my LLMD would have said something.

dlp252 Apprentice

Carla, meant to say how much I love your new avatar!

My favorite protein powder that I have ever had was soy based, unfortunately :( Darn that soy!

Mine too! Stupid soy! :angry:

aprilh Apprentice

Thanks Kassandra. I just talked to the pediatrician and he is going to call in a prescription strength iron for me so maybe her pain will go away. He said its wierd that her ferritin is there but the body is not using it for some reason. He suggested that maybe we see a hematologist, but will they consider the lead and other metals and the "maybe" lyme? I don't know.

tabasco32 Apprentice

Happy Valentines Day Girls :wub::wub:

Don't eat too much chocolate now.

Lisa

confusedks Enthusiast
Thanks Kassandra. I just talked to the pediatrician and he is going to call in a prescription strength iron for me so maybe her pain will go away. He said its wierd that her ferritin is there but the body is not using it for some reason. He suggested that maybe we see a hematologist, but will they consider the lead and other metals and the "maybe" lyme? I don't know.

I was going to say you should probably see a hematologist. It is strange that her ferritin is doing fine, but other numbers are off.

HAPPY VALENTINE'S DAY!!!

Green12 Enthusiast
My ND helped me decipher the test results. We have a couple of theories.

I definately have some investigating to do.

I wish I had more knowledge to share :(

I just hope you can find some answers April.

Carla, meant to say how much I love your new avatar!

Mine too! Stupid soy! :angry:

Ditto, love your new avatar Carla, you look pretty in pink!

Soy. If I could eat soy I think I would have it made :lol: There would be so much to eat.

Happy Valentine's Day to everyone!!

dlp252 Apprentice
Don't eat too much chocolate now.

TOO LATE!!!!!! :lol:

HAPPY VALENTINES DAY TO EVERYONE!

CarlaB Enthusiast
Carla, meant to say how much I love your new avatar!

Thank you. :D Can't wait to get my haircut though ....

Happy Valentines Day Girls :wub::wub:

Don't eat too much chocolate now.

Lisa

Happy Valentine's Day to all of you!!! :wub:

Ditto, love your new avatar Carla, you look pretty in pink!

Thanks.

Green12 Enthusiast

I have been sweating profusely the last few days. It's worse when I am sleeping, I wake up soaked in the middle of the night.

This has happened in the past during my periods, just not every one. I had always read it was the estrogen/liver thing which might make sense since I have liver issues and am currently detosxing the liver.

Anybody have any input on this?

CarlaB Enthusiast

Sounds like babesia, Julie.

tabasco32 Apprentice

TOO LATE!!!!!! :lol:

/\

l

l

l

BRAT! ;) Donna, bad girl bad!

I Don't think my brother will have a good valentines day today. He went to the dentist and they say he has a bad tooth abcess or something like that. His face was swollen last night. I guess one to many hershey's bars.

aprilh Apprentice
I have been sweating profusely the last few days. It's worse when I am sleeping, I wake up soaked in the middle of the night.

This has happened in the past during my periods, just not every one. I had always read it was the estrogen/liver thing which might make sense since I have liver issues and am currently detosxing the liver.

Anybody have any input on this?

I have heard this about the liver also. Don't kjnow much about babesia though.

miamia Rookie

Happy Valentines Day!!!!!!

I know i have not posted in a while but i've been reading i will try to post an update tomorrow but i have to get some shut eye now

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      129,596
    • Most Online (within 30 mins)
      7,748

    Vicki teach
    Newest Member
    Vicki teach
    Joined

  • Celiac.com Sponsor (A20):
    GliadinX


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    NutHouse! Granola Co.



  • Upcoming Events

  • Posts

    • Alibu
      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
    • Scott Adams
      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...